selected scholarly activity
-
chapters
- The Explosion of Technology in Pediatric Rehabilitation. 147-160. 2024
- AGING WITH PEDIATRIC ONSET DISABILITY AND DISEASES. 561-605. 2015
- Rehabilitation Goal Setting. 143-160. 2014
- Sedentary behaviour in youth with cerebral palsy and age, gender-and season-matched controls. 227-231. 2011
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conferences
- Whole Genome Sequencing to Resolve the Genomic Architecture of Cerebral Palsy in a Canadian Cohort (P13-9.003). Neurology. 2023
- Accelerometer-measured physical activity, sedentary behaviour, and sleep in children with cerebral palsy and their adherence to the 24-hour activity guidelines. Sleep Medicine. S190-S191. 2022
- Goal-Setting Improves Transition Readiness in Adolescents with Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus. Arthritis & Rheumatology. 2020
- Ready or Not? Measuring Readiness for Transition to Adult Care in Adolescents with JIA & jSLE. Arthritis & Rheumatology. 2020
- Transition from Pediatric to Adult Rheumatology: The Clinician as a Fundamental Ally. Arthritis & Rheumatology. 99-100. 2020
- Ready or Not: Transition Readiness in JIA and SLE. Journal of Rheumatology. 830-831. 2019
- Development and Validation of a Generic Scale for use in Transition Programs to Measure Self-Management Skills in Adolescents with Chronic Health Conditions: The TRANSITION-Q. Quality of Life Research. 63-63. 2014
- 456 Change in Cerebral Palsy Incidence and Severity Among Children Born Preterm in 1990-2005: A Hospital-Based Cohort Study. Pediatric Research. 234-234. 2010
- Sjogren-Larsson syndrome: Motor performance and everyday functioning. Journal of Inherited Metabolic Disease. 91-91. 2007
- Effort and chronic diseases in childhood - From laboratory to practice. Sport en Geneeskunde. 206-211. 2006
- The creation and purpose of a classification system of children's abilities: Gross Motor Function Classification System (GMFCS). Journal of Intellectual Disability Research. 346-346. 2004
- The risk of intracranial hemorrhage in patients after cerebral ischemia without and with atrial fibrillation on oral anticoagulation (SPIRIT vs EAFT). Stroke. 256-256. 1999
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journal articles
- Exploring Parents' Experiences and Needs During Disclosure of a Cerebral Palsy Diagnosis of Their Young Child: A Scoping Review.. Child: Care, Health and Development. 50:e13327. 2024
- 334P GrowDMD: an international study on transition of youth with Duchenne muscular dystrophy (DMD). Neuromuscular Disorders. 43:104441.665. 2024
- 335P Transition in Duchenne muscular dystrophy: understanding healthcare providers’ roles in an international context. Neuromuscular Disorders. 43:104441.666. 2024
- 379P A qualitative study on people with Duchenne muscular dystrophy and caregivers’ experiences during the transition process from pediatric to adult healthcare. Neuromuscular Disorders. 43:104441.107. 2024
- Development of MyREADY Transition BBD Mobile App, a Health Intervention Technology Platform, to Improve Care Transition for Youth With Brain-Based Disabilities: User-Centered Design Approach.. JMIR Pediatrics and Parenting. 7:e51606. 2024
- Landscape of healthcare transition services in Canada: a multi-method environmental scan.. BMC Health Services Research. 24:1114. 2024
- Caregiver identity in health research: mothers of children with disabilities share their experiences with partnering on health research studies. International Journal of Care and Caring. 1-18. 2024
- Quality Indicators for Transition from Paediatric to Adult Care for Youth with Chronic Conditions: Protocol for an Online Modified Delphi Study (Preprint). JMIR Research Protocols. 13:e60860. 2024
- “Your brain can’t wait”: perspectives of children and adolescents with acquired brain injury and their parents on physical rehabilitation during the subacute phase. Disability and Rehabilitation. 46:1-8. 2024
- Development, implementation, and scalability of the Family Engagement in Research Course: a novel online course for family partners and researchers in neurodevelopmental disability and child health. Research Involvement and Engagement. 10:80. 2024
- “Filling in the gap”: A qualitative case study about identity construction of siblings of youth with a neurodisability. Journal of Adolescence. 96:1354-1367. 2024
- The TRUST Study—TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus. Children. 11:881-881. 2024
- Exploring the complexities of weight management care for children with spina bifida: a qualitative study with children and parents. Disability and Rehabilitation. 46:3440-3448. 2024
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Environment‐based approaches to improve participation of young people with physical disabilities during
COVID ‐19. Developmental Medicine and Child Neurology. 66:931-938. 2024 - The temporal and bi-directional relationship between physical activity and sleep in ambulatory children with cerebral palsy. Disability and Rehabilitation. 46:2821-2827. 2024
- Impact of contractures on daily functioning in adolescents with spinal muscular atrophy: a qualitative study. Disability and Rehabilitation. 46:2593-2599. 2024
- Patient, caregiver and other knowledge user engagement in consensus-building healthcare initiatives: a scoping review protocol. BMJ Open. 14:e080822-e080822. 2024
- Starting from the needs: what are the appropriate sources to co-create innovative solutions for persons with disabilities?. Disability and rehabilitation. Assistive technology. 19:623-632. 2024
- Comprehensive whole-genome sequence analyses provide insights into the genomic architecture of cerebral palsy. Nature Genetics. 56:585-594. 2024
- Continuity of mental disorders in children with chronic physical illness. European Child and Adolescent Psychiatry. 2024
- Being a sibling of a youth with a neurodisability: A qualitative study about the roles and responsibilities during the transition to adulthood. Child: Care, Health and Development. 50:e13241. 2024
- How can we reach long‐lasting inclusive participation for all? A vision for the future. Child: Care, Health and Development. 50:e13249. 2024
- Systematic review of the effectiveness of innovative, gamified interventions for cognitive training in paediatric acquired brain injury. Neuropsychological Rehabilitation. 34:268-299. 2024
- Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research. Research Involvement and Engagement. 10:17. 2024
- Body mass index is not suitable for assessing body composition in children with spastic cerebral palsy. Disability and Rehabilitation. 46:509-514. 2024
- Detecting Asymmetry of Upper Limb Activity with Accelerometry in Infants at Risk for Unilateral Spastic Cerebral Palsy. Physical and Occupational Therapy in Pediatrics. 44:1-15. 2024
- Cognitive Event-Related Potentials in Young Adults With Cerebral Palsy: A Proof-of-Concept Study. Clinical EEG and Neuroscience. 55:64-75. 2024
- Exploring needs and requirements for a prototype device measuring physical activity in pediatric physical therapy: A qualitative study. PLoS ONE. 19:e0305968-e0305968. 2024
- Harmonizing data on correlates of sleep in children within and across neurodevelopmental disorders: lessons learned from an Ontario Brain Institute cross-program collaboration. Frontiers in Neuroinformatics. 18:1385526. 2024
- Speech and language therapists’ perceptions of contextual factors associated with communicative participation in children with developmental language disorders. Child Language Teaching and Therapy. 2024
- Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care. Health Care Transitions. 2:100035-100035. 2024
- The views of parents of children with cancer and pediatric physical therapists on a network for continuity and optimal quality of care for children with cancer: KinderOncoNet. Supportive Care in Cancer. 32:9. 2024
- Population-Based Teacher-Rated Assessment of Anxiety Among Canadian Kindergarten Children. Child Psychiatry and Human Development. 54:1309-1320. 2023
- Development of expert consensus to guide physical rehabilitation in children and adolescents with acquired brain injury during the subacute phase. Journal of Rehabilitation Medicine. 55:jrm12303-jrm12303. 2023
- Youth engagement in research: exploring training needs of youth with neurodevelopmental disabilities. Research Involvement and Engagement. 9:50. 2023
- Implementation of the C-BiLLT, an accessible instrument to assess language comprehension in children with limited motor and speech function: an international clinician survey. AAC: Augmentative and Alternative Communication. 39:135-145. 2023
- Self-reported quantity and quality of sleep in children and adolescents with a chronic condition compared to healthy controls. European Journal of Pediatrics. 182:3139-3146. 2023
- Psychometric properties of the English language version of the C-BiLLT evaluated in typically developing Canadian children. Journal of Pediatric Rehabilitation Medicine. 16:71-81. 2023
- A systematic scoping review on contextual factors associated with communicative participation among children with developmental language disorder. International Journal of Language and Communication Disorders. 58:482-515. 2023
- Accelerometer-measured physical activity, sedentary behavior, and sleep in children with cerebral palsy and their adherence to the 24-hour activity guidelines. Developmental Medicine and Child Neurology. 65:393-405. 2023
- Accelerometer‐measured physical activity, sedentary behavior, and sleep in children with cerebral palsy and their adherence to the 24‐hour activity guidelines. Developmental Medicine and Child Neurology. 65:393-405. 2023
- Assistive Products and Technology to Facilitate Activities and Participation for Children with Disabilities. International Journal of Environmental Research and Public Health. 20:2086-2086. 2023
- A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada. Frontiers in Rehabilitation Sciences. 4:1305084. 2023
- Device-based and subjective measurements of sleep in children with cerebral palsy: a comparison of sleep diary, actigraphy, and bed sensor data. Journal of Clinical Sleep Medicine. 19:35-43. 2023
- Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated?. J Patient Cent Res Rev. 10:82-90. 2023
- Programs to Prepare Siblings for Future Roles to Support Their Brother or Sister with a Neurodevelopmental Disability: a Scoping Review. Current Developmental Disorders Reports. 10:47-79. 2023
- Sleep, internalizing symptoms, and health-related quality of life in children with neurodevelopmental disorders: a cross-sectional analysis of cohort data from three research programs in Canada. Frontiers in Sleep. 2:1224610. 2023
- The Transformative Nature of Residential Immersive Life Skills Programs: Integrating Findings from a Five-Year Prospective Study of Program Opportunities, Youth Experiences, and Outcomes. International Journal of Environmental Research and Public Health. 19:15865-15865. 2022
- Implementing the language comprehension test C-BiLLT: a qualitative description study using the COM-B model of behaviour change. BMC Health Services Research. 22:1421. 2022
- Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom. Research Involvement and Engagement. 8:62. 2022
- ‘This battle, between your gut feeling and your mind. Try to find the right balance’: Parental experiences of children with spinal muscular atrophy during COVID‐19 pandemic. Child: Care, Health and Development. 48:1062-1070. 2022
- Operationalization, measurement, and health indicators of sedentary behavior in individuals with cerebral palsy: a scoping review. Disability and Rehabilitation. 44:6070-6081. 2022
- Exploring 10 years of dissemination of the F‐words for Child Development: A multifaceted case study. Child: Care, Health and Development. 48:751-762. 2022
- Programmes to support paediatric to adult healthcare transitions for youth with complex care needs and their families: A scoping review. Child: Care, Health and Development. 48:659-692. 2022
- A call for action: Recommendations to improve transition to adult care for youth with complex health care needs. Paediatrics and Child Health. 27:297-302. 2022
- Appel à l’action : des recommandations pour améliorer la transition des jeunes ayant des besoins de santé complexes vers les soins aux adultes. Paediatrics and Child Health. 27:303-309. 2022
- Prevalence and Correlates of Physical-mental Multimorbidity in Outpatient Children From a Pediatric Hospital in Canada. Canadian Journal of Psychiatry. 67:626-637. 2022
- A core outcome set for multimorbidity risk in individuals with cerebral palsy. Developmental Medicine and Child Neurology. 64:881-889. 2022
- Quality Indicators for Youth Transitioning to Adult Care: A Systematic Review. Pediatrics. 150:e2021055033. 2022
- Correlates of Mental Health in Adolescents and Young Adults with Cerebral Palsy: A Cross-Sectional Analysis of the MyStory Project. Journal of Clinical Medicine. 11:3060-3060. 2022
- Environmental factors associated with participation and its related concepts among children and youth with cerebral palsy: a rapid review. Disability and Rehabilitation. 44:1571-1582. 2022
- Factors influencing participation. Disability and Rehabilitation. 44:1558-1559. 2022
- Exploring demographic, medical, and developmental determinants of adaptive behaviour in children with hemiplegic cerebral palsy. European Journal of Paediatric Neurology. 36:19-25. 2022
- Physical rehabilitation interventions in children with acquired brain injury: a scoping review. Developmental Medicine and Child Neurology. 64:40-48. 2022
- Building a culture of engagement at a research centre for childhood disability. Research Involvement and Engagement. 7:78. 2021
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The impact of
COVID ‐19 on the mental health and wellbeing of caregivers of autistic children and youth: A scoping review. Autism Research. 14:2477-2494. 2021 - Quality indicators for transition from paediatric to adult care for adolescents with chronic physical and mental illness: protocol for a systematic review. BMJ Open. 11:e055194-e055194. 2021
- Sleep problems in children with cerebral palsy and their parents. Developmental Medicine and Child Neurology. 63:1344-1350. 2021
- Knowledge translation strategies to support service providers’ implementation of the “F-words in Childhood Disability”. Disability and Rehabilitation. 43:3168-3174. 2021
- Scootering for Children and Youth Is More Than Fun: Exploration of a Feasible Approach to Improve Function and Fitness. Pediatric Physical Therapy. 33:218-225. 2021
- Opportunities, experiences, and outcomes of residential immersive life skills programs for youth with disabilities. Disability and Rehabilitation. 43:2758-2768. 2021
- Pain, fatigue, depressive symptoms and sleep disturbance in young adults with cerebral palsy. Disability and Rehabilitation. 43:2164-2171. 2021
- Family‐centredness of a provincial autism programme: A quality assurance evaluation using the Measure of Processes of Care. Child: Care, Health and Development. 47:435-441. 2021
- Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability: protocol of a scoping review. BMJ Open. 11:e053184-e053184. 2021
- Neurodevelopmental profiles of children with unilateral cerebral palsy associated with middle cerebral artery and periventricular venous infarctions. Developmental Medicine and Child Neurology. 63:729-735. 2021
- Cohort Profile: Multimorbidity in Children and Youth Across the Life-course (MY LIFE) Study.. Journal of the Canadian Academy of Child and Adolescent Psychiatry. 30:104-115. 2021
- Prognostic value of brain abnormalities for cognitive functioning in cerebral palsy: A prospective cohort study. European Journal of Paediatric Neurology. 32:56-65. 2021
- Transition Readiness in Adolescents With Juvenile Idiopathic Arthritis and Childhood‐Onset Systemic Lupus Erythematosus. ACR Open Rheumatology. 3:260-265. 2021
- Self-reported factors contributing to fatigue and its management in adolescents and adults with cerebral palsy. Disability and Rehabilitation. 43:929-935. 2021
- Use of the International Classification of Functioning, Disability and Health to support goal-setting practices in pediatric rehabilitation: a rapid review of the literature. Disability and Rehabilitation. 43:884-894. 2021
- Participation during a Pandemic: Forging New Pathways. Physical and Occupational Therapy in Pediatrics. 41:115-119. 2021
- CHILD-BRIGHT READYorNot Brain-Based Disabilities Trial: protocol of a randomised controlled trial (RCT) investigating the effectiveness of a patient-facing e-health intervention designed to enhance healthcare transition readiness in youth. BMJ Open. 11:e048756-e048756. 2021
- Expression of propositional attitudes in conversation by adults with traumatic brain injury: A relevance theoretic approach. International Journal of Language and Communication Disorders. 56:346-359. 2021
- Parents’ perceptions of the foundational and emergent benefits of residential immersive life skills programs for youth with disabilities. Analysis and Intervention In Developmental Disablities. 110:103857-103857. 2021
- Teacher-Reported Prevalence of FASD in Kindergarten in Canada: Association with Child Development and Problems at Home. Journal of Autism and Developmental Disorders. 51:433-443. 2021
- Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition. Journal of Transition Medicine. 3:20210004. 2021
- The role of family adaptation in the transition to adulthood for youth with medical complexity: a qualitative case study protocol. Journal of Transition Medicine. 3:20210005. 2021
- The transition from pediatric to adult rheumatology care through creating positive and productive patient-provider relationships: an opportunity often forgotten. Journal of Transition Medicine. 3:20210001. 2021
- Transition us together: development of a parent-centered toolkit to support adolescents with rheumatic disease transition to adult care. Journal of Transition Medicine. 3:20210008. 2021
- Longitudinal Trajectories and Reference Percentiles for Participation in Family and Recreational Activities of Children with Cerebral Palsy. Physical and Occupational Therapy in Pediatrics. 41:18-37. 2021
- 24‐hour activity for children with cerebral palsy: a clinical practice guide. Developmental Medicine and Child Neurology. 63:54-59. 2021
- COVID-19-Related Psychological and Psychosocial Distress Among Parents and Youth With Physical Illness: A Longitudinal Study. Frontiers in Psychiatry. 12:761968. 2021
- Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis. Frontiers in Rehabilitation Sciences. 2:724589. 2021
- Functional connectivity and quality of life in young adults with cerebral palsy: a feasibility study. BMC Neurology. 20:388. 2020
- Understanding the essential components and experiences of youth with autism spectrum disorders in peer mentorship programmes during the transition to adulthood: A qualitative meta‐ethnography. Child: Care, Health and Development. 46:667-681. 2020
- Experiences of youth with medical complexity and their families during the transition to adulthood: a meta-ethnography. Journal of Transition Medicine. 2:20200002. 2020
- Service Providers’ Perspectives on Using the ‘F-Words in Childhood Disability’: An International Survey. Physical and Occupational Therapy in Pediatrics. 40:534-545. 2020
- The Formula for Health and Well-Being in Individuals With Cerebral Palsy: Cross-Sectional Data on Physical Activity, Sleep, and Nutrition. Annals of Rehabilitation Medicine. 44:301-310. 2020
- Promoting capacities for future adult roles and healthy living using a lifecourse health development approach. Disability and Rehabilitation. 42:2002-2011. 2020
- Effects of selective dorsal rhizotomy and meaningful outcomes for the child and family. Developmental Medicine and Child Neurology. 62:538-539. 2020
- Improving body functions through participation in community activities among young people with physical disabilities. Developmental Medicine and Child Neurology. 62:640-646. 2020
- The effects of an individualized health-risk report intervention on changes in perceived inactivity-related disease risk in adults with cerebral palsy. Disability and Health Journal. 13:100868-100868. 2020
- Transition of adolescents with congenital heart disease from pediatric to adult congenital cardiac care: lessons from a retrospective cohort study. Journal of Transition Medicine. 2:20190003. 2020
- Autonomy in participation in cerebral palsy from childhood to adulthood. Developmental Medicine and Child Neurology. 62:363-371. 2020
- Perspectives on cerebral palsy in Africa: Exploring the literature through the lens of the International Classification of Functioning, Disability and Health. Child: Care, Health and Development. 46:175-186. 2020
- Self-Care Trajectories and Reference Percentiles for Children with Cerebral Palsy. Physical and Occupational Therapy in Pediatrics. 40:62-78. 2020
- Development curves of communication and social interaction in individuals with cerebral palsy. Developmental Medicine and Child Neurology. 62:132-139. 2020
- Detection of body postures and movements in ambulatory adults with cerebral palsy: a novel and valid measure of physical behaviour. Journal of NeuroEngineering and Rehabilitation. 16:125. 2019
- Focus on Risk Factors for Cardiometabolic Disease in Cerebral Palsy: Toward a Core Set of Outcome Measurement Instruments. Archives of Physical Medicine and Rehabilitation. 100:2389-2398. 2019
- Multimorbidity risk assessment in adolescents and adults with cerebral palsy: a protocol for establishing a core outcome set for clinical research and practice. Trials. 20:176. 2019
- Participation in Social Roles of Adolescents With Cerebral Palsy: Exploring Accomplishment and Satisfaction. Archives of Rehabilitation Research and Clinical Translation. 1:100021-100021. 2019
- Physical activity and sedentary behaviour in children with spina bifida. Developmental Medicine and Child Neurology. 61:1400-1407. 2019
- Caregiver Strategy Use to Promote Children's Home Participation After Pediatric Critical Illness. Archives of Physical Medicine and Rehabilitation. 100:2144-2150. 2019
- Multimorbidity in Children and Youth Across the Life-course (MY LIFE): protocol of a Canadian prospective study. BMJ Open. 9:e034544-e034544. 2019
- Multidimensional Outcome Measurement of Children and Youth With Neuropathy Following Treatment of Leukemia: Cross-sectional Descriptive Report. Rehabilitation Oncology. 37:160-166. 2019
- Beyond stereotypes of cerebral palsy: Exploring the lived experiences of young Canadians. Child: Care, Health and Development. 45:613-622. 2019
- Cardiovascular disease and related risk factors in adults with cerebral palsy: a systematic review. Developmental Medicine and Child Neurology. 61:915-923. 2019
- Mobility and self-care trajectories for individuals with cerebral palsy (aged 1–21 years): a joint longitudinal analysis of cohort data from the Netherlands and Canada. The Lancet Child and Adolescent Health. 3:548-557. 2019
- Intervention strategies in residential immersive life skills programs for youth with disabilities: a study of active ingredients and program fidelity. Disability and Rehabilitation. 22:303-311. 2019
- Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis. Child: Care, Health and Development. 45:473-490. 2019
- Mental–Physical Multimorbidity in Youth: Associations with Individual, Family, and Health Service Use Outcomes. Child Psychiatry and Human Development. 50:400-410. 2019
- 95 A Comparison of the Developmental Profiles of Individuals with Hemiplegic Cerebral Palsy associated with Middle Cerebral Artery and Periventricular Venous Infarctions. Paediatrics and Child Health. 24:e36-e37. 2019
- Personal, environmental, and family factors of participation among young children. Child: Care, Health and Development. 45:448-456. 2019
- Longitudinal trajectories and reference centiles for the impact of health conditions on daily activities of children with cerebral palsy. Developmental Medicine and Child Neurology. 61:469-476. 2019
- Developmental Trajectories and Reference Percentiles for Range of Motion, Endurance, and Muscle Strength of Children With Cerebral Palsy. Physical Therapy. 99:329-338. 2019
- Developmental Trajectories for the Early Clinical Assessment of Balance by Gross Motor Function Classification System Level for Children With Cerebral Palsy. Physical Therapy. 99:217-228. 2019
- Long‐term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Developmental Medicine and Child Neurology. 61:194-203. 2019
- Using the Young Children’s Participation and Environment Measure (YC-PEM) to Describe Young Children’s Participation and Relationship to Disability and Complexity. Journal of Developmental and Physical Disabilities. 31:135-148. 2019
- Emerging evidence for accelerated ageing and cardiovascular disease in individuals with cerebral palsy. Journal of Rehabilitation Medicine. 51:525-531. 2019
- A Web-Based Knowledge Translation Resource for Families and Service Providers (The “F-Words” in Childhood Disability Knowledge Hub): Developmental and Pilot Evaluation Study. JMIR Rehabilitation and Assistive Technologies. 5:e10439-e10439. 2018
- Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A. BMC Pediatrics. 18:1. 2018
- How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expectations. 21:1024-1034. 2018
- Psychometric properties and parental reported utility of the 19-item ‘About My Child’ (AMC-19) measure. BMC Pediatrics. 18:174. 2018
- Activity Performance Curves of Individuals With Cerebral Palsy. Pediatrics. 142:e20173723. 2018
- A Collaborative Approach to Decision Making Through Developmental Monitoring to Provide Individualized Services for Children With Cerebral Palsy. Physical Therapy. 98:865-875. 2018
- Effects of Botulinum Toxin Treatment in Nonambulatory Children and Adolescents With Cerebral Palsy: Understanding Parents’ Perspectives. Journal of Child Neurology. 33:724-733. 2018
- Stability of the Gross Motor Function Classification System, Manual Ability Classification System, and Communication Function Classification System. Developmental Medicine and Child Neurology. 60:1026-1032. 2018
- “If I had been given that information back then”: An interpretive description exploring the information needs of adults with cerebral palsy looking back on their transition to adulthood. Child: Care, Health and Development. 44:689-696. 2018
- Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review. Journal of Transition Medicine. 1:20180003. 2018
- Protocol for a scoping review about ethics in transition programmes for adolescents and young adults with neurodisabilities. BMJ Open. 8:e020914-e020914. 2018
- Cardiovascular disease and related risk factors in adults with cerebral palsy: A systematic review. Annals of Physical and Rehabilitation Medicine. 61:e320-e320. 2018
- Development curves of motor and daily activity performance of individuals with cerebral palsy from childhood into adulthood. Annals of Physical and Rehabilitation Medicine. 61:e54-e55. 2018
- The use of the Rotterdam Transition Profile: 10 years in review. Journal of Transition Medicine. 1:20180002. 2018
- Establishing a protocol for building a pan-Canadian population-based monitoring system for early childhood development for children with health disorders: Canadian Children’s Health in Context Study (CCHICS). BMJ Open. 8:e023688-e023688. 2018
- A Web-Based Knowledge Translation Resource for Families and Service Providers (The “F-Words” in Childhood Disability Knowledge Hub): Developmental and Pilot Evaluation Study (Preprint) 2018
- “Ready to take on the world”: Experiences and understandings of independence after attending residential immersive life skills programs for youth with physical disabilities. Developmental Neurorehabilitation. 21:73-82. 2018
- De novo and rare inherited copy-number variations in the hemiplegic form of cerebral palsy. Genetics in Medicine. 20:172-180. 2018
- Functional Recovery in Critically Ill Children, the “WeeCover” Multicenter Study. Pediatric Critical Care Medicine. 19:145-154. 2018
- Differences in cardiovascular health in ambulatory persons with cerebral palsy. Journal of Rehabilitation Medicine. 50:892-897. 2018
- Fatigue in adults with cerebral palsy: A three-year follow-up study. Journal of Rehabilitation Medicine. 50:886-891. 2018
- Interrelationships of Functional Status and Health Conditions in Children With Cerebral Palsy: A Descriptive Study. Pediatric Physical Therapy. 30:10-16. 2018
- Looking back to move forward: Reflections and lessons learned about transitions to adulthood for youth with disabilities. Child: Care, Health and Development. 44:83-88. 2018
- Mental disorder in children with physical conditions: a pilot study. BMJ Open. 8:e019011-e019011. 2018
- Using the ICF in transition research and practice? Lessons from a scoping review. Analysis and Intervention In Developmental Disablities. 72:225-239. 2018
- Gait characteristics of children and youth with chemotherapy induced peripheral neuropathy following treatment for acute lymphoblastic leukemia. Gait and Posture. 58:139-145. 2017
- Physical activity interventions for children and young people with cerebral palsy. Developmental Medicine and Child Neurology. 59:990-991. 2017
- Sleep: An underemphasized aspect of health and development in neurorehabilitation. Early Human Development. 113:120-128. 2017
- A life course approach to increase physical activity in individuals with Rett syndrome. Developmental Medicine and Child Neurology. 59:566-566. 2017
- Life course health development of individuals with neurodevelopmental conditions. Developmental Medicine and Child Neurology. 59:470-476. 2017
- Communicating about obesity and weight-related topics with children with a physical disability and their families: spina bifida as an example. Disability and Rehabilitation. 39:791-797. 2017
- Fatigue and its relationship with physical activity, age, and body composition in adults with cerebral palsy. Developmental Medicine and Child Neurology. 59:367-373. 2017
- Consensus Planning Toward a Community-Based Approach to Promote Physical Activity in Youth with Cerebral Palsy. Physical and Occupational Therapy in Pediatrics. 37:35-50. 2017
- Differences in health, participation and life satisfaction outcomes in adults following paediatric- versus adult-sustained spinal cord injury. Spinal Cord. 54:1197-1202. 2016
- Erratum: Differences in health, participation and life satisfaction outcomes in adults following paediatric- versus adult-sustained spinal cord injury. Spinal Cord. 54:1220-1220. 2016
- Optimizing life success through residential immersive life skills programs for youth with disabilities: study protocol of a mixed-methods, prospective, comparative cohort study. BMC Pediatrics. 16:153. 2016
- Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability. Journal of Medical Internet Research. 18:e293-e293. 2016
- Child-Focused and Context-Focused Behaviors of Physical and Occupational Therapists during Treatment of Young Children with Cerebral Palsy. Physical and Occupational Therapy in Pediatrics. 36:363-375. 2016
- The formula for health and well‐being in individuals with cerebral palsy: physical activity, sleep, and nutrition. Developmental Medicine and Child Neurology. 58:989-990. 2016
- Longitudinal Association Between Gross Motor Capacity and Neuromusculoskeletal Function in Children and Youth With Cerebral Palsy. Archives of Physical Medicine and Rehabilitation. 97:1329-1337. 2016
- Efficacy of three therapy approaches in preschool children with cerebral palsy: a randomized controlled trial. Developmental Medicine and Child Neurology. 58:758-766. 2016
- Parents' perceptions of the services provided to children with cerebral palsy in the transition from preschool rehabilitation to school‐based services. Child: Care, Health and Development. 42:455-463. 2016
- You never transition alone! Exploring the experiences of youth with chronic health conditions, parents and healthcare providers on self‐management. Child: Care, Health and Development. 42:464-472. 2016
- Parents’ experiences and needs regarding physical and occupational therapy for their young children with cerebral palsy. Analysis and Intervention In Developmental Disablities. 53-54:314-322. 2016
- Enhancing interprofessional education and practice: Development and implementation of a new graduate-level course using the international classification of functioning, disability, and health. Journal of Interprofessional Care. 30:385-387. 2016
- Neuroplastic Sensorimotor Resting State Network Reorganization in Children With Hemiplegic Cerebral Palsy Treated With Constraint-Induced Movement Therapy. Journal of Child Neurology. 31:220-226. 2016
- Reliability of the Dutch‐language version of the Communication Function Classification System and its association with language comprehension and method of communication. Developmental Medicine and Child Neurology. 58:180-188. 2016
- Residential immersive life skills programs for youth with disabilities: service providers' perceptions of change processes. Disability and Rehabilitation. 37:2418-2428. 2015
- Associations of non-invasive measures of arterial structure and function, and traditional indicators of cardiovascular risk in adults with cerebral palsy. Atherosclerosis. 243:462-465. 2015
- Descriptive data on cardiovascular and metabolic risk factors in ambulatory and non-ambulatory adults with cerebral palsy. Data in Brief. 5:967-970. 2015
-
Knowledge mobilization to spread awareness of the ‘
F ‐words’ in childhood disability: lessons from a family–researcher partnership. Child: Care, Health and Development. 41:947-953. 2015 - Trajectories of Depressive Symptoms in Canadian Emerging Adults. American Journal of Public Health. 105:2322-2327. 2015
- Resting State and Diffusion Neuroimaging Predictors of Clinical Improvements Following Constraint-Induced Movement Therapy in Children With Hemiplegic Cerebral Palsy. Journal of Child Neurology. 30:1507-1514. 2015
- Quantification of Physical Activity and Sedentary Time in Adults with Cerebral Palsy. Medicine & Science in Sports & Exercise. 47:1719-1726. 2015
- Determinants of Developmental Gain in Daily Activities in Young Children with Cerebral Palsy. Physical and Occupational Therapy in Pediatrics. 35:265-279. 2015
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Development and validation of a generic scale for use in transition programmes to measure self‐management skills in adolescents with chronic health conditions: the
TRANSITION ‐Q . Child: Care, Health and Development. 41:547-558. 2015 - Residential immersive life skills programs for youth with disabilities: service providers’ perceptions of experiential benefits and key program features. Disability and Rehabilitation. 37:971-980. 2015
- Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open. 5:e007553-e007553. 2015
- Functional Recovery Following Critical Illness in Children. Pediatric Critical Care Medicine. 16:310-318. 2015
- Gross motor development in youth with cerebral palsy; associations with musculoskeletal function. Physiotherapy. 101:e287-e288. 2015
- Trajectories of depressive symptoms during the transition to young adulthood: The role of chronic illness. Journal of Affective Disorders. 174:594-601. 2015
- Parents’ experiences with physical and occupational therapy for their young child with cerebral palsy: a mixed studies review. Child: Care, Health and Development. 40:787-796. 2014
- Use of the international classification of functioning, disability and health as a framework for transition from paediatric to adult healthcare. Child: Care, Health and Development. 40:759-761. 2014
- Measurement of habitual physical activity and sedentary behaviour of youth with cerebral palsy: work in progress. Developmental Medicine and Child Neurology. 56:911-911. 2014
- How Do Changes in Motor Capacity, Motor Capability, and Motor Performance Relate in Children and Adolescents With Cerebral Palsy?. Archives of Physical Medicine and Rehabilitation. 95:1577-1584. 2014
- Objectively Measured Sedentary Time in Youth With Cerebral Palsy Compared With Age-, Sex-, and Season-Matched Youth Who Are Developing Typically: An Explorative Study. Physical Therapy. 94:1163-1167. 2014
- Assessment of family needs in children with physical disabilities: development of a family needs inventory. Child: Care, Health and Development. 40:498-506. 2014
- Pathways toward Positive Psychosocial Outcomes and Mental Health for Youth with Disabilities: A Knowledge Synthesis of Developmental Trajectories. Canadian Journal of Community Mental Health. 33:45-61. 2014
- Stability of Serial Range-of-Motion Measurements of the Lower Extremities in Children With Cerebral Palsy: Can We Do Better?. Physical Therapy. 94:987-995. 2014
- ABSTRACT 136. Pediatric Critical Care Medicine. 15:35-35. 2014
- Six mots commençant par la lettre « F » : une charte de valeurs pour les enfants, les familles et les intervenants. Annals of Physical and Rehabilitation Medicine. 57:e357-e357. 2014
- The F-Words in childhood disability: A values statement for children, families and service providers. Annals of Physical and Rehabilitation Medicine. 57:e345-e345. 2014
- Developmental Trajectories of Mobility and Self-Care Capabilities in Young Children with Cerebral Palsy. Journal of Pediatrics. 164:769-774.e2. 2014
- Developmental trajectories of social participation in individuals with cerebral palsy: a multicentre longitudinal study. Developmental Medicine and Child Neurology. 56:370-377. 2014
- Botulinum Toxin Type A in Children and Adolescents With Severe Cerebral Palsy. Journal of Child Neurology. 29:210-213. 2014
- Change in Parent-Identified Goals in Young Children with Cerebral Palsy Receiving a Context-Focused Intervention: Associations with Child, Goal and Intervention Factors. Physical and Occupational Therapy in Pediatrics. 34:62-74. 2014
- Therapy behaviours in paediatric rehabilitation: essential attributes for intervention with children with physical disabilities. Disability and Rehabilitation. 36:16-22. 2014
- Development of social functioning and communication in school-aged (5–9years) children with cerebral palsy. Analysis and Intervention In Developmental Disablities. 34:4485-4494. 2013
- Diagnostic shortfalls in early childhood chronic stress: a review of the issues. Child: Care, Health and Development. 39:765-771. 2013
- “It's the Participation that Motivates Him”: Physical Activity Experiences of Youth with Cerebral Palsy and Their Parents. Physical and Occupational Therapy in Pediatrics. 33:405-420. 2013
- Development of an outcome measurement system for service planning for children and youth with special needs. Child: Care, Health and Development. 39:750-759. 2013
- Development of a generic fidelity measure for rehabilitation intervention research for children with physical disabilities. Developmental Medicine and Child Neurology. 55:737-744. 2013
- Assessment of environmental factors in disabled children 2–12 years: development and reliability of the Craig Hospital Inventory of Environmental Factors (CHIEF) for Children–Parent Version. Child: Care, Health and Development. 39:337-344. 2013
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Longitudinal development of gross motor function among
D utch children and young adults with cerebral palsy: an investigation of motor growth curves. Developmental Medicine and Child Neurology. 55:378-384. 2013 - Exploring the Aquatic Environment for Disabled Children: How We Can Conceptualize and Advance Interventions With the ICF. Critical Reviews in Physical and Rehabilitation Medicine. 25:59-76. 2013
- A Narrative Review of Generic Intervention Fidelity Measures. Physical and Occupational Therapy in Pediatrics. 32:430-446. 2012
- Botulinum Toxin-A use in Paediatric Hypertonia: Canadian Practice Patterns. Canadian Journal of Neurological Sciences. 39:508-515. 2012
- The ‘F‐words’ in childhood disability: I swear this is how we should think!. Child: Care, Health and Development. 38:457-463. 2012
- Accelerometry: A Feasible Method to Quantify Physical Activity in Ambulatory and Nonambulatory Adolescents with Cerebral Palsy. International Journal of Pediatrics. 2012:1-6. 2012
- Arterial Structure and Function in Ambulatory Adolescents with Cerebral Palsy Are Not Different from Healthy Controls. International Journal of Pediatrics. 2012:1-8. 2012
- Build our youth for the future in paediatrics and beyond. Acta Paediatrica, International Journal of Paediatrics. 101:2-3. 2012
- Making Links Across the Lifespan in Neurology. Canadian Journal of Neurological Sciences. 39:1-2. 2012
- Needs of Families with Children Who Have a Physical Disability: A Literature Review. Critical Reviews in Physical and Rehabilitation Medicine. 24:85-108. 2012
- Becoming and staying physically active in adolescents with cerebral palsy: protocol of a qualitative study of facilitators and barriers to physical activity. BMC Pediatrics. 11:1. 2011
- Idiopathic toe-walking in children, adolescents and young adults: a matter of local or generalised stiffness?. BMC Musculoskeletal Disorders. 12:61. 2011
- Participation outcomes for children with acquired brain injury: A narrative review. Brain Injury. 25:1279-1287. 2011
- Responsiveness of Goal Attainment Scaling in comparison to two standardized measures in outcome evaluation of children with cerebral palsy. Clinical Rehabilitation. 25:1128-1139. 2011
- The use of the Gross Motor Function Classification System in cerebral palsy registers: quo vadis?. Developmental Medicine and Child Neurology. 53:973-974. 2011
- Youth in transition: care, health and development. Child: Care, Health and Development. 37:757-763. 2011
- Perceptions of Pediatric Physical Therapists and Physical Educators on Classifying Learning Styles of Children and Adolescents With Cerebral Palsy. Physical and Occupational Therapy in Pediatrics. 31:403-412. 2011
- Decreasing Incidence and Severity of Cerebral Palsy in Prematurely Born Children. Journal of Pediatrics. 159:86-91.e1. 2011
- Early Autism Detection: Are We Ready for Routine Screening?. Pediatrics. 128:e211-e217. 2011
- Muscle Strengthening in Children and Adolescents With Spastic Cerebral Palsy: Considerations for Future Resistance Training Protocols. Physical Therapy. 91:1130-1139. 2011
- Development of non‐verbal intellectual capacity in school‐age children with cerebral palsy. Journal of Intellectual Disability Research. 55:550-562. 2011
- Video gait analysis for ambulatory children with cerebral palsy: Why, when, where and how!. Gait and Posture. 33:501-503. 2011
- Aquatic Exercise Programs for Children and Adolescents with Cerebral Palsy: What Do We Know and Where Do We Go?. International Journal of Pediatrics. 2011:1-7. 2011
- Development of daily activities in school-age children with cerebral palsy. Analysis and Intervention In Developmental Disablities. 32:222-234. 2011
- Exercise Intervention Programs for Children and Adolescents with Cerebral Palsy: A Descriptive Review of the Current Research. Critical Reviews in Physical and Rehabilitation Medicine. 23:31-47. 2011
- Parental perceptions of participation of preschool children with and without mobility limitations: validity and reliability of the PART. Disability and Rehabilitation. 33:1421-1432. 2011
- LEARN 2 MOVE 2-3: a randomized controlled trial on the efficacy of child-focused intervention and context-focused intervention in preschool children with cerebral palsy. BMC Pediatrics. 10:80. 2010
- Cross-cultural validation and psychometric evaluation of the Dutch language version of the Children’s Assessment of Participation and Enjoyment (CAPE) in children with and without physical disabilities. Clinical Rehabilitation. 24:843-853. 2010
- Development of Romantic Relationships and Sexual Activity in Young Adults With Cerebral Palsy: A Longitudinal Study. Archives of Physical Medicine and Rehabilitation. 91:1423-1428. 2010
- Short‐term changes in parents' resolution regarding their young child's diagnosis of cerebral palsy. Child: Care, Health and Development. 36:703-708. 2010
- Selective motor control of the lower extremities in children with cerebral palsy: Inter-rater reliability of two tests. Developmental Neurorehabilitation. 13:258-265. 2010
- Manual Ability Classification System for Children With Cerebral Palsy in a School Setting and Its Relationship to Home Self-Care Activities. American Journal of Occupational Therapy. 64:614-620. 2010
- ‘The relationship of cerebral palsy subtype and functional motor impairment: a population‐based study’. Developmental Medicine and Child Neurology. 52:682-683. 2010
- The relevance of family-centred medicine and the implications for doctor education. Medical Education. 44:332-334. 2010
- Interrater Reliability of Goal Attainment Scaling in Rehabilitation of Children With Cerebral Palsy. Archives of Physical Medicine and Rehabilitation. 91:429-435. 2010
- Relationship between gross motor capacity and daily‐life mobility in children with cerebral palsy. Developmental Medicine and Child Neurology. 52:e60-e66. 2010
- Development and validation of item sets to improve efficiency of administration of the 66‐item Gross Motor Function Measure in children with cerebral palsy. Developmental Medicine and Child Neurology. 52:e48-e54. 2010
- Physical activity in young children with cerebral palsy. Disability and Rehabilitation. 32:1501-1508. 2010
- The relationship between spasticity in young children (18 months of age) with cerebral palsy and their gross motor function development. BMC Musculoskeletal Disorders. 10:108. 2009
- Transition to Adult-Oriented Health Care: Perspectives of Youth and Adults with Complex Physical Disabilities. Physical and Occupational Therapy in Pediatrics. 29:362-366. 2009
- Relation between physical fitness and gross motor capacity in children and adolescents with cerebral palsy. Developmental Medicine and Child Neurology. 51:866-871. 2009
- Parents' reactions to the diagnosis of cerebral palsy: associations between resolution, age and severity of disability. Child: Care, Health and Development. 35:673-680. 2009
- Long-Term Health-Related Quality of Life in Major Pediatric Trauma: A Pilot Study. European Journal of Trauma and Emergency Surgery. 35:371-377. 2009
- Long-term health condition in major pediatric trauma: a pilot study. Journal of Pediatric Surgery. 44:1591-1600. 2009
- Rehabilitative therapies for the child with cerebral palsy: focus on family, function and fitness.. Rivista di clinica pediatrica. 61:425-440. 2009
- Parental Reactions Following the Diagnosis of Cerebral Palsy in Their Young Child. Journal of Pediatric Psychology. 34:671-676. 2009
- Construct validity of the Capacity Profile in preschool children with cerebral palsy. Developmental Medicine and Child Neurology. 51:446-453. 2009
- Determinants of students’ attitudes towards peers with disabilities. Developmental Medicine and Child Neurology. 51:417-418. 2009
- Capacity, Capability, and Performance: Different Constructs or Three of a Kind?. Archives of Physical Medicine and Rehabilitation. 90:849-855. 2009
- Safety and one-year efficacy of intrathecal baclofen therapy in children with intractable spastic cerebral palsy. European Journal of Paediatric Neurology. 13:247-256. 2009
- Classification of manual abilities in children with cerebral palsy under 5 years of age: how reliable is the Manual Ability Classification System?. Clinical Rehabilitation. 23:164-170. 2009
- Classification of manual abilities in children with cerebral palsy under 5 years of age: how reliable is the Manual Ability Classification System?. Clinical Rehabilitation. 23:164-170. 2009
- Twee kinderen die kwijlen: het syndroom van Worster-Drought. Tijdschrift voor Kindergeneeskunde. 77:37-42. 2009
- Muscle strength, aerobic capacity and physical activity in independent ambulating children with lumbosacral spina bifida. Disability and Rehabilitation. 31:259-266. 2009
- Perceptions of family participation among parents of children with cerebral palsy followed from infancy to toddler hood. Disability and Rehabilitation. 31:1828-1834. 2009
- Speech-language performance in Sjögren-Larsson syndrome. Developmental Neurorehabilitation. 12:106-112. 2009
- Use of the GMFCS in infants with CP: the need for reclassification at age 2 years or older. Developmental Medicine and Child Neurology. 51:46-52. 2009
- Stress in parents of children with cerebral palsy: what sources of stress are we talking about?. Child: Care, Health and Development. 34:825-829. 2008
- Gross motor functional abilities in preterm‐born children with cerebral palsy due to periventricular leukomalacia. Developmental Medicine and Child Neurology. 50:684-689. 2008
- Long-term occurrence of death and cardiovascular events in patients with transient ischaemic attack or minor ischaemic stroke: comparison between arterial and cardiac source of the index event. Journal of Neurology, Neurosurgery and Psychiatry. 79:895-899. 2008
- Goal Attainment Scaling in paediatric rehabilitation: a report on the clinical training of an interdisciplinary team. Child: Care, Health and Development. 34:521-529. 2008
- Health-related quality-of-life measures for long-term follow-up in children after major trauma. Quality of Life Research. 17:701-713. 2008
- Exercise Programs for Children with Cerebral Palsy. American Journal of Physical Medicine and Rehabilitation. 87:404-417. 2008
- Association between motor and mental functioning in toddlers with cerebral palsy. Developmental Neurorehabilitation. 11:276-282. 2008
- Reliability of hand-held dynamometry and functional strength tests for the lower extremity in children with Cerebral Palsy. Disability and Rehabilitation. 30:1358-1366. 2008
- Sjögren–Larsson syndrome: motor performance and everyday functioning in 17 patients. Developmental Medicine and Child Neurology. 50:38-43. 2008
- The Challenge of Moving Evidence-Based Measures into Clinical Practice: Lessons in Knowledge Translation. Physical and Occupational Therapy in Pediatrics. 28:191-206. 2008
- Haemostatic genetic variants, ABO blood group and bleeding risk during oral anticoagulant treatment after cerebral ischaemia of arterial origin. Journal of Neurology. 254:1660-1665. 2007
- Exercise Training Program in Children and Adolescents With Cerebral Palsy: A Randomized Controlled Trial. JAMA Pediatrics. 161:1075-1081. 2007
- The Effect of Cerebral Palsy on Arithmetic Accuracy is Mediated by Working Memory, Intelligence, Early Numeracy, and Instruction Time. Developmental Neuropsychology. 32:861-879. 2007
- Letters to the Editor. Developmental Medicine and Child Neurology. 49:797-800. 2007
- MLP015 Sjögren-Larsson syndrome: motor performance and everyday functioning. European Journal of Paediatric Neurology. 11:70-70. 2007
- One‐year stability of the Measure of Processes of Care. Child: Care, Health and Development. 33:604-610. 2007
- Mental status and health-related quality of life in an elderly population 15 years after limited cerebral ischaemia. Journal of Neurology. 254:1018-1025. 2007
- Goal attainment scaling in paediatric rehabilitation: a critical review of the literature. Developmental Medicine and Child Neurology. 49:550-556. 2007
- European Academy of Childhood Disability Annual Meeting 2007, 14-16 June - Foreword. Developmental Medicine and Child Neurology. 49:2-2. 2007
- Parent participation in paediatric rehabilitation treatment centres in the Netherlands: a parents’ viewpoint. Child: Care, Health and Development. 33:196-205. 2007
- Parents of children with cerebral palsy: a review of factors related to the process of adaptation. Child: Care, Health and Development. 33:161-169. 2007
- British Paediatric Neurology Association Annual Meeting 2007. Developmental Medicine and Child Neurology. 49:1-52. 2007
- Quality of paediatric rehabilitation from the parent perspective: validation of the short Measure of Processes of Care (MPOC-20) in the Netherlands. Clinical Rehabilitation. 21:62-72. 2007
- Reliability for Running Tests for Measuring Agility and Anaerobic Muscle Power in Children and Adolescents with Cerebal Palsy. Pediatric Physical Therapy. 19:108-115. 2007
- Selecting the appropriate outcome in paediatric physical therapy; how individual treatment goals of children with cerebral palsy are reflected in GMFM-88 and PEDI. Journal of Rehabilitation Medicine. 39:225-231. 2007
- Transparency and tuning of rehabilitation care for children with cerebral palsy: A multiple case study in five children with complex needs. Developmental Neurorehabilitation. 10:193-204. 2007
- Validation of the Dutch Giving Youth a Voice Questionnaire (GYV-20): A measure of the client-centredness of rehabilitation services from an adolescent perspective. Disability and Rehabilitation. 29:373-380. 2007
- Long-term survival and the risk of new vascular complications after transient ischemic attack (TIA) or a small brain infarction: A cohort study. Hart Bulletin. 37:151-155. 2006
- Functional status and use of healthcare facilities in long-term survivors of transient ischaemic attack or minor ischaemic stroke. Journal of Neurology, Neurosurgery and Psychiatry. 77:1238-1243. 2006
- Reliability and Validity of Data for 2 Newly Developed Shuttle Run Tests in Children With Cerebral Palsy. Physical Therapy. 86:1107-1117. 2006
- Family-centred services in the Netherlands: validating a self-report measure for paediatric service providers. Clinical Rehabilitation. 20:502-512. 2006
- Rehabilitation of stroke patients needs a family-centred approach. Disability and Rehabilitation. 28:1557-1561. 2006
- Assessing functional differences in gross motor skills in children with cerebral palsy who use an ambulatory aid or orthoses: can the GMFM-88 help?. Developmental Medicine and Child Neurology. 47:462-467. 2005
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- Long-term survival and vascular event risk after transient ischaemic attack or minor ischaemic stroke: a cohort study. The Lancet. 365:2098-2104. 2005
- Responsiveness of evaluative measures for children with cerebral palsy: The Gross Motor Function Measure and the Pediatric Evaluation of Disability Inventory. Disability and Rehabilitation. 27:1245-1252. 2005
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- Creating and being created: the changing panorama of paediatric rehabilitation. Developmental Neurorehabilitation. 6:5-12. 2003
- Reanalyzing the Data. Physical Therapy. 82:828-830. 2002
- Costs of Outpatient Anticoagulant Treatment in Patients with Cerebral and Peripheral Arterial Occlusive Disease. Thrombosis and Haemostasis. 85:52-56. 2001
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preprints
- Quality Indicators for Transition from Paediatric to Adult Care for Youth with Chronic Conditions: A Canadian Consensus-Building Multistakeholder Initiative (Preprint) 2024
- Development of MyREADY Transition BBD Mobile App, a Health Intervention Technology Platform, to Improve Care Transition for Youth With Brain-Based Disabilities: User-Centered Design Approach (Preprint)