379P A qualitative study on people with Duchenne muscular dystrophy and caregivers’ experiences during the transition process from pediatric to adult healthcare

Transition from pediatric to adult-centered healthcare involves both medical and psychological needs of adolescents and young adults. This process can be especially complex in rare neurological diseases, including neuromuscular disorders. Duchenne Muscular Dystrophy (DMD) is a rare X-linked disorder characterized by progressive muscle degeneration, causing the loss of independent ambulation and severe multisystem complications. Over the past …