335P Transition in Duchenne muscular dystrophy: understanding healthcare providers’ roles in an international context

Duchenne muscular dystrophy (DMD) is a rare X-linked disorder characterized by progressive muscle degeneration. The period of transition from pediatric to adult care is particularly challenging for adolescents with DMD, with the disease progressing at a time when youth typically strive for greater independence. With life expectancies increasing over the last years, health care providers are in need for better concepts to meet patients’ and …