Caregivers Concept

subject area of

• "I really should've gone to the doctor": older adults and family caregivers describe their experiences with community-acquired pneumonia  Journal Articles
• "There Is No Before Cancer… There Is Only Cancer." Perceived Late Effects of Pediatric Cancer on Survivors.  Journal Articles
• "Where Do We Go from Here?" Health System Frustrations Expressed by Patients with Multimorbidity, Their Caregivers and Family Physicians  Journal Articles
• "…but I know something's not right here": Exploring the diagnosis and disclosure experiences of persons living with ALS.  Journal Articles
• A Canadian qualitative study exploring the diversity of the experience of family caregivers of older adults with multiple chronic conditions using a social location perspective  Journal Articles
• A Comparison of HU12 and HU13 Utility Scores in Alzheimer's Disease  Journal Articles
• A Comparison of Support Needs Between Rural and Urban Family Caregivers Providing Palliative Care  Journal Articles
• A Comparison of Users and Nonusers of a Web-Based Intervention for Carers of Older Persons With Alzheimer Disease and Related Dementias: Mixed Methods Secondary Analysis  Journal Articles
• A First-Person Account of Caring for a Parent With Dysphagia.  Journal Articles
• A Latent Class Analysis to Identify Variation in Caregivers’ Preferences for their Child’s Attention-Deficit/Hyperactivity Disorder Treatment: Do Stated Preferences Match Current Treatment?  Journal Articles
• A National Survey of Caregiver Needs and Experiences When Attending the Emergency Department.  Journal Articles
• A Review of the Essential Components of Quality Palliative Care in the Home  Journal Articles
• A Survey of Caregiver Perspectives on Children’s Pain Management in the Emergency Department  Journal Articles
• A comparative analysis of carer-employees in Canada over time: a cross-sectional analysis of Canada’s General Social Survey, 2012 and 2018  Journal Articles
• A comparative study of perceived burden in parent caregivers of adolescents with epilepsy in a resource-restricted setting: Investigating the explanatory factors of perceived burden  Journal Articles
• A comparison of health utility scores calculated using United Kingdom and Canadian preference weights in persons with alzheimer’s disease and their caregivers  Journal Articles
• A comprehensive mobility discharge assessment framework for older adults transitioning from hospital-to-home in the community—What mobility factors are critical to include? Protocol for an international e-Delphi study  Journal Articles
• A family carer decision support intervention for people with advanced dementia residing in a nursing home: a study protocol for an international advance care planning intervention (mySupport study)  Journal Articles
• A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia  Journal Articles
• A mixed-methods evaluation of the Caregiving Essentials Course for unpaid caregivers of older adults in Canada.  Journal Articles
• A multistakeholder development process to prioritize and translate COVID-19 health recommendations for patients, caregivers and the public. A case study of the COVID-19 recommendation map  Journal Articles
• A national cross-sectional survey of health literacy of caregivers attending Canadian pediatric emergency departments.  Journal Articles
• A new way of loving and living.  Journal Articles
• A prospective 2-site parallel intervention trial of a research-based film to increase exercise amongst older hemodialysis patients  Journal Articles
• A qualitative descriptive study on the alignment of care goals between older persons with multi-morbidities, their family physicians and informal caregivers  Journal Articles
• A qualitative evaluation of the impact of a Good Life Club on people living with dementia and care partners  Journal Articles
• A qualitative examination of the benefits and challenges of a psychosocial screening intervention in pediatric oncology: “Support comes to us”  Journal Articles
• A qualitative investigation of injurious falls in long-term care: perspectives of staff members  Journal Articles
• A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model  Journal Articles
• A survey of stakeholders' perceived importance of health indicators and subgroup analyses to inform the Canadian clinical practice guideline for managing paediatric obesity  Journal Articles
• A systematic review of heart failure dyadic self-care interventions focusing on intervention components, contexts, and outcomes  Journal Articles
• A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress  Journal Articles
• A walking stick in one hand and a chainsaw in the other: patients' perspectives of living with multimorbidity.  Journal Articles
• Acceptability and Validity of the EQ-5D in Patients Living With Dementia  Journal Articles
• Acceptability and preliminary effects of the volunteer-supported Meaningful Moments program to engage older adults with advanced dementia on a hospital-based specialized dementia care unit: a mixed methods study  Journal Articles
• Achieving a caregiver-friendly workplace standard for Canadian carer-workers: An ex ante evaluation of potential uptake.  Journal Articles
• Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers  Journal Articles
• Adapting the Namaste Care Program for Use with Caregivers of Community-Dwelling Older Adults with Moderate to Advanced Dementia: A Qualitative Descriptive Study  Journal Articles
• Adult Day Center Programs and Their Associated Outcomes on Clients, Caregivers, and the Health System: A Scoping Review  Journal Articles
• Advance Care Planning for Seniors Diagnosed with Dementia: A Scoping Review of the Canadian Literature.  Journal Articles
• Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit  Journal Articles
• Agenda-setting for Canadian caregivers: using media analysis of the maternity leave benefit to inform the compassionate care benefit  Journal Articles
• Agreement Between Patient and Proxy Assessments of Health-Related Quality of Life After Stroke Using the EQ-5D and Health Utilities Index  Journal Articles
• Alzheimer’s and other dementias in Canada, 2011 to 2031: a microsimulation Population Health Modeling (POHEM) study of projected prevalence, health burden, health services, and caregiving use  Journal Articles
• An Assessment of Community Palliative Care Needs: The Case of Niagara  Journal Articles
• An Evaluation of the Family Informal Caregiver Stroke Self-Management Program  Journal Articles
• An Official American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation  Journal Articles
• An evaluation study of caregiver perceptions of the Ontario’s Health Links program  Journal Articles
• An examination of cancer patients’ monthly ‘out-of-pocket’ costs in Ontario, Canada  Journal Articles
• An exploration of Canadian transitional care programs for older adults  Journal Articles
• An innovative model of system-linked community care: home-based traction as an alternative to institutional treatment.  Journal Articles
• An international survey to inform priorities for new guidelines on von Willebrand disease  Journal Articles
• Apathy in Dementia: An Examination of the Psychometric Properties of the Apathy Evaluation Scale  Journal Articles
• Are Informal Caregivers of Persons With Dementia Open to Extending Medical Aid in Dying to Incompetent Patients? Findings From a Survey Conducted in Quebec, Canada  Journal Articles
• Are postbereavement research interviews distressing to carers? Lessons learned from palliative care research  Journal Articles
• Artful Moments: A framework for successful engagement in an arts-based programme for persons in the middle to late stages of dementia  Journal Articles
• Artificial intelligence for good health: a scoping review of the ethics literature  Journal Articles
• Assessing care models implemented in primary healthcare for persons with dementia: a mixed-methods study protocol  Journal Articles
• Assessing caregiving experience in COPD: content validity of the Zarit Burden Interview in Canadian and Portuguese caregivers  Journal Articles
• Assessing trauma and related distress in refugee youth and their caregivers: should we be concerned about iatrogenic effects?  Journal Articles
• Assessment of Informal Caregiver Assistance and Strain With Total Hip and Knee Arthroplasty  Journal Articles
• Assisted-Transport Caregiving and Its Impact Towards Carer-Employees  Journal Articles
• Association between caregiver quality of life and the care provided to persons with Alzheimer’s disease: protocol for a systematic review  Journal Articles
• Association between children’s caregivers time preferences and childhood overweight and obesity in Mexico  Journal Articles
• Associations Between Dysfunctional Behaviors, Gender, and Burden in Spousal Caregivers of Cognitively Impaired Older Adults  Journal Articles
• Associations between spanking beliefs and reported spanking among adolescents-parent/caregiver dyads in a Canadian sample  Journal Articles
• Associations of Participation-Focused Strategies and Rehabilitation Service Use With Caregiver Stress After Pediatric Critical Illness  Journal Articles
• Attitudes, Beliefs, and Intention to Receive a COVID-19 Vaccine for Pediatric Patients With Sickle Cell Disease.  Journal Articles
• Availability and Acceptability of Canadian Home and Community-Based Services: Perspectives of Family Caregivers of Persons with Dementia  Journal Articles
• Availability of caregiver-friendly workplace policies (CFWPs): an international scoping review  Journal Articles
• Barriers and facilitators for optimizing oral anticoagulant management: Perspectives of patients, caregivers, and providers  Journal Articles
• Barriers and facilitators to care for the terminally ill: a cross-country case comparison study of Canada, England, Germany, and the United States.  Journal Articles
• Barriers to Disclosure to Children with HIV  Journal Articles
• Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences  Journal Articles
• Barriers to maternal workforce participation and relationship between paid work and health  Journal Articles
• Barriers to technology use among older heart failure individuals in managing their symptoms after hospital discharge  Journal Articles
• Behavioural disturbance triggers recognition of dementia by family informants  Journal Articles
• Behavioural problems in school age children with cerebral palsy  Journal Articles
• Being a Husband and Caregiver: The Adjustment of Roles When Caring for a Wife Who Has Dementia.  Journal Articles
• Bereavement interventions to support informal caregivers in the intensive care unit: a systematic review  Journal Articles
• Beyond the realist turn: a socio‐material analysis of heart failure self‐care  Journal Articles
• Building Engagement-Capable Environments for Health System Transformation: Development and Early Implementation of a Capability Framework for Patient, Family and Caregiver Engagement in Ontario Health Teams.  Journal Articles
• Building a new life: a qualitative study of how family carers deal with significant changes  Journal Articles
• Building collaborative relationships with family caregivers of hospitalized older persons with delirium superimposed on dementia: A qualitative study  Journal Articles
• Burden and related factors in caregivers of young adults presenting bipolar and unipolar mood disorder  Journal Articles
• Burden on caregivers as perceived by hemodialysis patients in the Frequent Hemodialysis Network (FHN) trials  Journal Articles
• Can a complex adaptive systems perspective support the resiliency of the heart failure patient – informal caregiver dyad?  Journal Articles
• Can the general public use vignettes to discriminate between Alzheimer’s disease health states?  Journal Articles
• Canada's Compassionate Care Benefit: Is it an adequate public health response to addressing the issue of caregiver burden in end-of-life care?  Journal Articles
• Canada’s Compassionate Care Benefit: Views of family caregivers in chronic illness  Journal Articles
• Canada’s health care system needs to care more about caregivers  Journal Articles
• Canadian study of health and aging: study methods and prevalence of dementia.  Journal Articles
• Capturing the Palliative Home Care Experience From Bereaved Caregivers Through Qualitative Survey Data: Toward Informing Quality Improvement  Journal Articles
• Capturing the experiences of patients across multiple complex interventions: a meta-qualitative approach  Journal Articles
• Care Challenges in the Bathroom: The Views of Professional Care Providers Working in Clients’ Homes  Journal Articles
• Care Coordination of Older Adults With Diabetes: A Scoping Review  Journal Articles
• Care home design for people with dementia: What do people with dementia and their family carers value?  Journal Articles
• Care recipients’ physical frailty is independently associated with subjective burden in informal caregivers in the community setting: a cross-sectional study  Journal Articles
• Care-related quality of life in caregivers of children with drug-resistant epilepsy  Journal Articles
• Caregiver Burden, Health-Related Quality of Life and Coping in Dementia Caregivers: A Comparison of Frontotemporal Dementia and Alzheimer’s Disease  Journal Articles
• Caregiver Involvement and Concerns with Care of Residents of Assisted Living before and during the COVID-19 Pandemic  Journal Articles
• Caregiver Out-of-Pocket Costs for Octogenarian Intensive Care Unit Patients in Canada  Journal Articles
• Caregiver Singing and Background Music in Dementia Care  Journal Articles
• Caregiver Strategy Use to Promote Children's Home Participation After Pediatric Critical Illness  Journal Articles
• Caregiver and Child Distress as Predictors of Dyadic Physiological Attunement During Vaccination  Journal Articles
• Caregiver and Young Child Biological Attunement In Distress Contexts: A Systematic Review and Narrative Synthesis  Journal Articles
• Caregiver burden interventions in speech–language pathology: A systematic review  Journal Articles
• Caregiver dissatisfaction with their child’s participation in home activities after pediatric critical illness  Journal Articles
• Caregiver knowledge and attitudes relating to paediatric pneumonia and antimicrobial stewardship: a qualitative study  Journal Articles
• Caregiver knowledge and skills to safely care for pediatric tracheostomy ventilation at home  Journal Articles
• Caregiver preparedness for death in dementia: an evaluation of existing tools  Journal Articles
• Caregiver views on virtual management of food allergy: A mixed‐methods study  Journal Articles
• Caregiver-Focused, Web-Based Interventions: Systematic Review and Meta-Analysis (Part 2)  Journal Articles
• Caregiver-Reported Health Outcomes of Preschool Children Born at 28 to 32 Weeks?? Gestation  Journal Articles
• Caregiver-fabricated illness in a child prescribed long-term opioids and benzodiazepines  Journal Articles
• Caregivers of older adults with dementia and multiple chronic conditions: Exploring their experiences with significant changes  Journal Articles
• Caregivers’ Concerns About Assisted Living Residents’ Mental Health During the COVID-19 Pandemic: A Cross-Sectional Survey Study  Journal Articles
• Caregivers’ contributions to heart failure self-care: A systematic review  Journal Articles
• Caregivers’ willingness-to-pay for Alzheimer’s disease medications in Canada  Journal Articles
• Caregiving Across International Borders: a Systematic Review of Literature on Transnational Carer-Employees  Journal Articles
• Caregiving and its impact on families of the terminally ill  Journal Articles
• Caregiving at the end of life: Perspectives from spousal caregivers and care recipients  Journal Articles
• Caregiving concerns and clinical characteristics across neurodegenerative and cerebrovascular disorders in the Ontario neurodegenerative disease research initiative  Journal Articles
• Caregiving in long-term care before and during the COVID-19 pandemic: a scoping review  Journal Articles
• Caregiving process and caregiver burden: Conceptual models to guide research and practice  Journal Articles
• Caregiving, single parents and cumulative stresses when caring for a child with cancer  Journal Articles
• Care‐giving as a C anadian‐ V ietnamese tradition: ‘It's like eating, you just do it’  Journal Articles
• Caring ahead: Mixed methods development of a questionnaire to measure caregiver preparedness for end-of-life with dementia  Journal Articles
• Caring for older people with an intellectual disability: A systematic review  Journal Articles
• Caught in the middle: a thematic analysis of the experiences of Korean-Canadian caregiver-employees in the greater Toronto and Hamilton area  Journal Articles
• Challenges and support service preferences of informal caregivers of people with systemic sclerosis: a cross-sectional survey.  Journal Articles
• Challenges facing palliative neurology practice: A qualitative analysis  Journal Articles
• Changes Over Time in the Health of Caregivers of Children With Health Problems: Growth-Curve Findings From a 10-Year Canadian Population-Based Study  Journal Articles
• Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space  Journal Articles
• Changing the Way We Talk with Elders: Promoting Health Using the Communication Enhancement Model  Journal Articles
• Characterizing complex care relationships in Canada using the Canadian Longitudinal Study on Aging (CLSA).  Journal Articles
• Child Care Providers Who Commit Sexual Offences  Journal Articles
• Children receiving treatment for cancer and their caregivers: A mixed methods study of their sleep characteristics  Journal Articles
• Children’s and caregivers’ perspectives about mandatory reporting of child maltreatment: a meta-synthesis of qualitative studies  Journal Articles
• Child’s symptom burden and depressive symptoms among caregivers of children with cancers: an argument for early integration of pediatric palliative care  Journal Articles
• Cholesterol Metabolism and Suicidality in Smith-Lemli-Opitz Syndrome Carriers  Journal Articles
• Choosing and accessing COVID-19 treatment options: a qualitative study with patients, caregivers, and health care providers in Lebanon  Journal Articles
• Clinical Management of Financial Toxicity–Identifying Opportunities through Experiential Insights of Cancer Survivors, Caregivers, and Social Workers  Journal Articles
• Clinical Outcomes and Cost-Effectiveness of Collaborative Dementia Care  Journal Articles
• Coming full circle: patient and physician reunite in kidney research network  Journal Articles
• Communicating with library patrons and people with dementia: Tracing an ethic of care in professional communication guidelines  Journal Articles
• Comparing the attitudes of four groups of stakeholders from Quebec, Canada, toward extending medical aid in dying to incompetent patients with dementia  Journal Articles
• Comparing the experiences of rural and urban family caregivers of the terminally ill  Journal Articles
• Comparing the psychometric properties of EQ-5D-3L and EQ-5D-5L proxy ratings by informal caregivers and a health professional for people with dementia  Journal Articles
• Connecting Families to Their Health Record and Care Team: The Use, Utility, and Impact of a Client/Family Health Portal at a Children’s Rehabilitation Hospital  Journal Articles
• Construct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in caregivers of patients with COPD  Journal Articles
• Construction of a biological rhythm assessment scale for children  Journal Articles
• Continuity of Care for Advanced Cancer Patients: Comparing the Views of Spousal Caregivers in Ontario, Canada, to Dumont et al.'s Theoretical Model  Journal Articles
• Continuity of care for children with complex chronic health conditions: parents' perspectives  Journal Articles
• Contributors to Poststroke Dysphagia-Related Caregiver Burden  Journal Articles
• Conversations and Reactions Around Severe Hypoglycemia Study: Results of Hypoglycemia Experiences in Canadian Adults With Insulin-Treated Diabetes and Their Caregivers  Journal Articles
• Coping Behaviors and Health Status during the COVID-19 Pandemic among Caregivers of Assisted Living Residents in Western Canada  Journal Articles
• Coping With a Child With Dravet Syndrome: Insights From Families  Journal Articles
• Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy  Journal Articles
• Core Outcome Domains for Trials in Autosomal Dominant Polycystic Kidney Disease: An International Delphi Survey  Journal Articles
• Core aspects of "empowering" caregivers as articulated by leaders in home health care: palliative and chronic illness contexts.  Journal Articles
• Correlates of Health Status for Family Caregivers in Bereavement  Journal Articles
• Correlates of health‐related quality of life in children with drug resistant epilepsy  Journal Articles
• Correlates of well-being among caregivers of cognitively impaired relatives.  Journal Articles
• Cost Implications from an Employer Perspective of a Workplace Intervention for Carer-Employees during the COVID-19 Pandemic  Journal Articles
• Co‐designing for quality: Creating a user‐driven tool to improve quality in youth mental health services  Journal Articles
• Creating a Supportive Environment for Living with Stroke in Rural Areas: Two Low-Cost Community-Based Interventions  Conferences
• Creation and Initial Validation of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES) Screening Tool  Journal Articles
• Critically examining diversity in end-of-life family caregiving: implications for equitable caregiver support and Canada’s Compassionate Care Benefit  Journal Articles
• Cross-cultural adaptation of the caregiver contribution to heart failure self-Care into Brazilian Portuguese and content validation  Journal Articles
• Cross-cultural conceptualization of a good end of life with dementia: a qualitative study  Journal Articles
• Cultural Understandings of Dementia in Indigenous Peoples: A Qualitative Evidence Synthesis  Journal Articles
• Cultural influences on palliative family caregiving: service recommendations specific to the Vietnamese in Canada  Journal Articles
• Cumulative stress and substantiated maltreatment: The importance of caregiver vulnerability and adult partner violence  Journal Articles
• Deathbed Visions from India: A Study of Family Observations in Northern Kerala  Journal Articles
• Deathbed Visions from the Republic of Moldova: A Content Analysis of Family Observations  Journal Articles
• Decoding the persistence of delayed hospital discharge: An in‐depth scoping review and insights from two decades  Journal Articles
• Defining priorities for improving end-of-life care in Canada  Journal Articles
• Dementia as a Disability and Human Rights Issue  Journal Articles
• Dementia care in rural and remote settings: A systematic review of informal/family caregiving  Journal Articles
• Dementia diagnosis and post-diagnostic support in Scottish rural communities: Experiences of people with dementia and their families  Journal Articles
• Depressive Symptoms in Family Caregivers of Long-stay Patients  Journal Articles
• Depressive symptoms among mothers of children with epilepsy: A review of prevalence, associated factors, and impact on children  Journal Articles
• Designing systems for the care we need: A transformation journey in Southwestern Ontario.  Journal Articles
• Determinants of Depressive Symptoms at 1 Year Following ICU Discharge in Survivors of ≥ 7 Days of Mechanical Ventilation  Journal Articles
• Determinants of effective heart failure self-care: a systematic review of patients’ and caregivers’ perceptions  Journal Articles
• Developing Physician Consensus on the Reporting of Patients with Mild Cognitive Impairment and Mild Dementia to Transportation Authorities in a Region with Mandatory Reporting Legislation  Journal Articles
• Developing a Living with Hope Program for Caregivers of Family Members with Advanced Cancer  Journal Articles
• Developing a Profile of Canadian Children With Cerebral Palsy Who Require Augmentative and Alternative Communication.  Journal Articles
• Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being  Journal Articles
• Developing country-specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers  Journal Articles
• Developing the Driving and Dementia Roadmap: a knowledge-to-action process  Journal Articles
• Development and Evaluation of an Activity Measure for People with Spinal Cord Injury  Journal Articles
• Development and Psychometric Evaluation of the Concerns of Grieving Caregivers Scale (COGCS) with Two Clinical Samples  Journal Articles
• Development of Clinical Vignettes to Describe Alzheimer's Disease Health States: A Qualitative Study  Journal Articles
• Development of a core outcome set for disease modification trials in mild to moderate dementia: a systematic review, patient and public consultation and consensus recommendations  Journal Articles
• Development of a decision-making tool for reporting drivers with mild dementia and mild cognitive impairment to transportation administrators  Journal Articles
• Development of a family-based pulmonary rehabilitation programme: an exploratory study  Journal Articles
• Development of the Engage with Impact Toolkit: A comprehensive resource to support the evaluation of patient, family and caregiver engagement in health systems  Journal Articles
• Diabetes knowledge, risk perception, and quality of life among South Asian caregivers in young adulthood  Journal Articles
• Differential impacts of care‐giving across three caregiver groups in C anada: end‐of‐life care, long‐term care and short‐term care  Conferences
• Disarmed complaints:  Journal Articles
• Diversified caregiver input to upgrade the Young Children’s Participation and Environment Measure for equitable pediatric re/habilitation practice  Journal Articles
• Do active assist transfer devices improve transfer safety for patients and caregivers in hospital and community settings? A scoping review  Journal Articles
• Don’t Forget the Caregivers! A Discrete Choice Experiment Examining Caregiver Views of Integrated Youth Services  Journal Articles
• Double-Duty Carers’ Health and Wellbeing during COVID-19: Exploring the Role of Mobility of the Care Economy in Southern Ontario, Canada  Journal Articles
• Dying from cancer in community hospitals or a hospice: closest lay carers' perceptions.  Journal Articles
• Dysfunctional Behavior Rating Instrument  Journal Articles
• Dysphagia Symptoms Contribute to Greater Care Partner Burden in Neurodegenerative Disease.  Journal Articles
• Ease of Caregiving for Children: A measure of parent perceptions of the physical demands of caregiving for young children with cerebral palsy  Journal Articles
• Ease of Caregiving for Children: Re-Validation of Psychometric Properties of the Measure for Children with Cerebral Palsy up to 11 Years of Age  Journal Articles
• Editorial: An Introduction to Context, Practice, and Policy in Caring for an Aging Population  Journal Articles
• Editorial: Hidden Costs and Invisible Contributions in Family Caregiving: An Introduction  Journal Articles
• Editorial: an introduction to context, practice, and policy in caring for an aging population.  Journal Articles
• Education, Training, and Mentorship of Caregivers of Canadians Experiencing a Life-Limiting Illness  Journal Articles
• Effect of a training and educational intervention for physicians and caregivers on antibiotic prescribing for upper respiratory tract infections in children at primary care facilities in rural China: a cluster-randomised controlled trial  Journal Articles
• Effect of an innovative model of complexity care on family caregiver experience: Qualitative study in family practice.  Journal Articles
• Effectiveness of Family Integrated Care in neonatal intensive care units on infant and parent outcomes: a multicentre, multinational, cluster-randomised controlled trial  Journal Articles
• Effectiveness of My Tools for Care-in Care: A Pragmatic Randomized Controlled Trial.  Journal Articles
• Effectiveness of caregiver educational materials for paediatric community-acquired pneumonia in the emergency department: a qualitative study  Journal Articles
• Effectiveness of interventions by non-professional community-level workers or family caregivers to improve outcomes for physical impairments or disabilities in low resource settings: systematic review of task-sharing strategies  Journal Articles
• Effects of parenting interventions on child and caregiver cortisol levels: systematic review and meta-analysis  Journal Articles
• Elder Abuse in the Out-of-Hospital and Emergency Department Settings: A Scoping Review  Journal Articles
• Emotional distress among parent caregivers of adolescents with sickle cell disease: Association with patients and caregivers variables  Journal Articles
• Emotionally maltreated: The under-current of impairment?  Journal Articles
• Empirical support for a model of risk and resilience in children and families during COVID-19: A systematic review & narrative synthesis  Journal Articles
• Endurance, resistance and resilience in the South African health care system: case studies to demonstrate mechanisms of coping within a constrained system  Journal Articles
• Engaging care partners of persons living with dementia in acceptance and commitment therapy (ACT) programs: a scoping review  Journal Articles
• Engaging knowledge users in a systematic review on the comparative effectiveness of geriatrician-led models of care is possible: A cross-sectional survey using the Patient Engagement Evaluation Tool  Journal Articles
• Epilepsy surgery does not harm motor performance of children and adolescents  Journal Articles
• Epinephrine autoinjectors: individualizing device and dosage to optimize anaphylaxis management in the community setting  Journal Articles
• Establishing a Core Outcome Set for Autosomal Dominant Polycystic Kidney Disease: Report of the Standardized Outcomes in Nephrology–Polycystic Kidney Disease (SONG-PKD) Consensus Workshop  Journal Articles
• Establishing benefit of emotion-focused, carer-based interventions for adolescents with anorexia nervosa  Journal Articles
• Ethical concerns around use of artificial intelligence in health care research from the perspective of patients with meningioma, caregivers and health care providers: a qualitative study  Journal Articles
• Evaluating Canada's Compassionate Care Benefit using a utilization-focused evaluation framework: Successful strategies and prerequisite conditions  Journal Articles
• Evaluating changes in workplace culture: Effectiveness of a caregiver-friendly workplace program in a public post-secondary educational institution  Journal Articles
• Evaluating the Uptake of the Canadian Standards Association (CSA) B701:17 (R2021) Carer-Inclusive and Accommodating Organizations Standard Across Canada.  Journal Articles
• Evaluation of a Caregiver-Friendly Workplace Program Intervention on the Health of Full-Time Caregiver Employees  Journal Articles
• Evaluation of an Assessment Battery for Estimating Dementia Caregiver Needs for Health and Social Care Services  Journal Articles
• Evaluation of caregiver-friendly workplace policy (CFWPs) interventions on the health of full-time caregiver employees (CEs): implementation and cost-benefit analysis  Journal Articles
• Evaluation of parent and youth experiences in advisory groups as part of a mental healthcare clinical trial: protocol for a mixed-method study  Journal Articles
• Evaluation of the Caring Ahead: Preparing for End-of-Life With Dementia Questionnaire  Journal Articles
• Evaluations by staff, residents, and community seniors of patronizing speech in the nursing home: Impact of passive, assertive, or humorous responses.  Journal Articles
• Examining clinically relevant levels of depressive symptoms in mothers following a diagnosis of epilepsy in their children: a prospective analysis  Journal Articles
• Examining physician-patient-caregiver encounters: the case of Alzheimer's disease patients and family physicians in Israel  Journal Articles
• Experience of Care as a Critical Component of Health System Performance Measurement: Recommendations for Moving Forward  Journal Articles
• Experiences and perceptions of spousal/partner caregivers providing care for community-dwelling adults with dementia  Journal Articles
• Experiences and perceptions of spousal/partner caregivers providing care for community-dwelling adults with dementia: a qualitative systematic review.  Journal Articles
• Experiences of Families, Staff, Volunteers, and Administrators With Namaste Care for Persons With Advanced Dementia in Canadian Long-Term Care Homes  Journal Articles
• Experiences of Informal Caregivers of Older Adults Transitioned From Nursing Homes to the Community Through the Money Follows the Person Demonstration  Journal Articles
• Experiences of Older Adults in Transition from Hospital to Community  Journal Articles
• Experiences of a communication‐skills course for care partners of people living with dementia, empowered conversations: A qualitative framework analysis  Journal Articles
• Experiences of acute mental health care in an ethnically diverse inner city: qualitative interview study  Journal Articles
• Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study  Journal Articles
• Experiences of living and dying with COPD: a systematic review and synthesis of the qualitative empirical literature.  Journal Articles
• Experiences of unpaid family/friend caregivers of community-dwelling adults with dementia: a systematic review protocol  Journal Articles
• Experiencing financial toxicity associated with cancer in publicly funded healthcare systems: a systematic review of qualitative studies  Journal Articles
• Explaining the use and non‐use of community‐based long‐term care services by caregivers of persons with dementia  Journal Articles
• Exploring attitudes and preferences for dementia screening in Britain: contributions from carers and the general public  Journal Articles
• Exploring the perspectives of caregivers of urban Inuit children on child health knowledge mobilisation  Journal Articles
• Facilitating independence: The benefits of a post-diagnostic support project for people with dementia  Journal Articles
• Factor Structure and Reliability of the Brain Impairment Behavior Scale  Journal Articles
• Factor structure and longitudinal invariance of the Center for Epidemiological Studies Depression Scale (CES-D) in adult women: application in a population-based sample of mothers of children with epilepsy  Journal Articles
• Factors Associated With Long-term Institutionalization of Older People With Dementia: Data From the Canadian Study of Health and Aging  Journal Articles
• Factors Associated with Participation Patterns of Young Brazilian Children with Myelomeningocele.  Journal Articles
• Factors Related to Adaptive Behavior in Children With Cerebral Palsy  Journal Articles
• Factors associated with symptoms of depression among informal caregivers of people with systemic sclerosis: a cross-sectional study.  Journal Articles
• Factors impacting the access and use of formal health and social services by caregivers of stroke survivors: an interpretive description study  Journal Articles
• Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions  Journal Articles
• Family Caregiver Perspectives on Caring for Ventilator-Assisted Individuals at Home  Journal Articles
• Family care of the Dying in the republic of Moldova: A Qualitative Study  Journal Articles
• Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers  Journal Articles
• Family caregiver views on patient‐centred care at the end of life  Journal Articles
• Family caregivers’ ideal expectations of Canada’s Compassionate Care Benefit  Journal Articles
• Family conflict and future concerns: Opportunities for social workers to better support Chinese immigrant caregiver employees  Journal Articles
• Family involvement in cancer treatment decision-making: A qualitative study of patient, family, and clinician attitudes and experiences  Journal Articles
• Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the Literature  Journal Articles
• Feasibility and Effects of Namaste Care for Persons with Advanced Dementia in Canadian Long-Term Care Homes  Journal Articles
• Feasibility of conducting a prospective cohort study in pediatric surgery: introducing the Caregiver Quality of Life of pediatric patients referred for feeding tube insertion (CARE) study  Journal Articles
• Feasibility, acceptability, and preliminary effectiveness of the adapted Namaste Care program delivered by caregivers of community-dwelling older persons with moderate to advanced dementia: a mixed methods feasibility study  Journal Articles
• Financial and family burden associated with cancer treatment in Ontario, Canada  Journal Articles
• Financial toxicity associated with a cancer diagnosis in publicly funded healthcare countries: a systematic review  Journal Articles
• Finding harmony within dissonance: Engaging patients, family/caregivers and service providers in research to fundamentally restructure relationships through integrative dynamics  Conferences
• Fluctuations of health states in dementia diseases and their impact on the assessment of health today using the EQ-5D-5L: Protocol of a mixed-methods study  Journal Articles
• Food insecurity during COVID-19 in a Canadian academic pediatric hospital: a cross-sectional survey  Journal Articles
• Formal Health and Social Services That Directly and Indirectly Benefit Stroke Caregivers: A Scoping Review of Access and Use  Journal Articles
• Formulation of evidence-based messages to promote the use of physical activity to prevent and manage Alzheimer’s disease  Journal Articles
• Fostering humanism: a mixed methods evaluation of the Footprints Project in critical care  Journal Articles
• Gastrostomy matters—The impact of pediatric surgery on caregiver quality of life  Journal Articles
• Gender and dementia national strategy policymaking: Working toward health equity in Canada through gender-based analysis plus  Journal Articles
• Gender differences among Canadian spousal caregivers at the end of life  Journal Articles
• Giving support and getting help: informal caregivers’ experiences with palliative care services  Journal Articles
• Guidance for family about comfort care in dementia: a comparison of an educational booklet adopted in six jurisdictions over a 15 year timespan  Journal Articles
• HOW MOTHERS AND FATHERS VIEW PROFESSIONAL CAREGMNG FOR CHILDREN WITH DISABILITIES  Journal Articles
• Handheld computers and paper diaries for documenting the use of factor concentrates used in haemophilia home therapy: a qualitative study  Journal Articles
• Health Among Caregivers of Children With Health Problems: Findings From a Canadian Population-Based Study  Journal Articles
• Health Fluctuations in Dementia and its Impact on the Assessment of Health-Related Quality of Life Using the EQ-5D-5L  Journal Articles
• Health Information Technology to Facilitate Communication Involving Health Care Providers, Caregivers, and Pediatric Patients: A Scoping Review  Journal Articles
• Health Utility Scores in Alzheimer’s Disease: Differences Based on Calculation With American and Canadian Preference Weights  Journal Articles
• Healthcare professionals' perceived challenges and solutions when providing rehabilitation to persons living with dementia—A scoping review  Journal Articles
• Healthcare providers’ experiences in supporting community-living older adults to manage multiple chronic conditions: a qualitative study  Journal Articles
• Hidden costs and invisible contributions in family caregiving: An introduction  Journal Articles
• Higher Levels of Caregiver Strain Perceived by Indian Mothers of Children and Young Adults with Cerebral Palsy Who have Limited Self-Mobility  Journal Articles
• Home Participation of Infants With and Without Biological Risk in the First Year of Life: A Cross-Sectional and Comparative Study.  Journal Articles
• Home participation and personal and environmental factors in children and adolescents with Down syndrome  Journal Articles
• Hope of rural women caregivers of persons with advanced cancer: guilt, self-efficacy and mental health  Journal Articles
• How Do Older Adults Decide to Visit the Emergency Department? Patient and Caregiver Perspectives  Journal Articles
• INSPIRE (INvestigating Social and PractIcal suppoRts at the End of life): Pilot randomised trial of a community social and practical support intervention for adults with life-limiting illness  Journal Articles
• Identification of Childhood Psychiatric Disorder by Informant: Comparisons of Clinic and Community Samples  Journal Articles
• Identifying and Ensuring Optimal Care for All Children at Risk of Developing Serious Respiratory Syncytial Virus Disease: A Canadian Nurses’ Perspective  Journal Articles
• Identifying and understanding the health and social care needs of Indigenous older adults with multiple chronic conditions and their caregivers: a scoping review  Journal Articles
• Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: a protocol for a scoping review  Journal Articles
• Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: a scoping review  Journal Articles
• Identifying educational needs in end-of-life care for staff and families of residents in care facilities  Journal Articles
• Immigrant to Canada, newcomer to childhood cancer: a qualitative study of challenges faced by immigrant parents  Journal Articles
• Impact of 2019 Novel Coronavirus (2019-nCov) Pandemic and Lockdown on Parents and Caregivers in Ontario, Canada  Journal Articles
• Impact of Care-Recipient Relationship Type on Quality of Life in Community-Dwelling Older Adults With Dementia Over Time  Journal Articles
• Impact of Caring for a Child With Cancer on Parents’ Health-Related Quality of Life  Journal Articles
• Impact of Internet-Based Interventions on Caregiver Mental Health: Systematic Review and Meta-Analysis  Journal Articles
• Impact of Study Oximeter Masking Algorithm on Titration of Oxygen Therapy in the Canadian Oxygen Trial  Journal Articles
• Impact of a Caregiver-Friendly Workplace Policies Intervention  Journal Articles
• Impact of caregiver and parenting status on time trade-off and standard gamble utility scores for health state descriptions  Journal Articles
• Impact of care–recipient relationship type on quality of life in caregivers of older adults with dementia over time  Journal Articles
• Impact of caring for a child with cancer on single parents compared with parents from two‐parent families  Journal Articles
• Impact of caring for a school‐aged child with a disability: Understanding mothers’ perspectives  Journal Articles
• Impact of contraindications, barriers to self-care and support on incident peritoneal dialysis utilization  Journal Articles
• Impact of emotional distress on caregivers burden among Nigerian children with Obstructive Adenotonsillar hypertrophy  Journal Articles
• Impact of the Caring for Aging Relatives Group Program: An Evaluation  Journal Articles
• Impact of “early intervention” parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study  Journal Articles
• Impacts of care‐giving and sources of support: a comparison of end‐of‐life and non‐end‐of‐life caregivers in C anada  Journal Articles
• Implementation of an Advance Care Planning Intervention in Nursing Homes: An International Multiple Case Study  Journal Articles
• Impressions of Early Mobilization of Critically Ill Children—Clinician, Patient, and Family Perspectives*  Journal Articles
• Improving access to community support and services for persons living with dementia: Integration of home care services into primary care‐based memory clinics  Journal Articles
• Increased Infectious Risk Donor Status and Equity-Relevant Predictors of Organ Donation Organization Approach and Caregiver Consent for Deceased Organ Donation in a Canadian Province (2015-2021).  Journal Articles
• Increased Risk of RSV Infection in Children with Down's Syndrome: Clinical Implementation of Prophylaxis in the European Union  Journal Articles
• Indicators of distress in families of children with cerebral palsy  Journal Articles
• Inequities in access to directly-funded home care in Canada: a privilege only afforded to some  Journal Articles
• Informal Caregiving for People With Life-Limiting Illness: Exploring the Knowledge Gaps.  Journal Articles
• Informal Dementia Caregiving Among Indigenous Communities in Ontario, Canada  Journal Articles
• Informal caregivers' hopes and expectations of a referral to a memory clinic  Journal Articles
• Informal caregiving for dementia patients: the contribution of patient characteristics and behaviours to caregiver burden  Journal Articles
• Informal caregiving in COPD: A systematic review of instruments and their measurement properties  Journal Articles
• Informational and Supportive Care Needs of Brain Metastases Patients and Caregivers: a Systematic Review.  Journal Articles
• Innovation processes for ageing-related health technologies  Journal Articles
• Insight into the experiences of caregivers of older adults in long‐term care homes: A photovoice study  Journal Articles
• Integrating a Standardized Self-Report Tool into Geriatric Medicine Practice during the COVID-19 Pandemic: A Mixed-Methods Study  Journal Articles
• Intensity of care and perceived burden among informal caregivers to persons with chronic medical conditions: a systematic review and meta-analysis.  Journal Articles
• International synthesis and case study examination of promising caregiver-friendly workplaces  Journal Articles
• Interventions for Grieving and Bereaved Informal Caregivers: A Scoping Review of the Canadian Literature  Journal Articles
• Interventions to Support Informal Caregivers of People with Chronic Obstructive Pulmonary Disease: A Systematic Literature Review  Journal Articles
• Investigating convergence of cardiac and behavioral indicators of distress during routine vaccinations over the second year of life  Journal Articles
• Investigating the adaptation of caregivers of people with traumatic brain injury: a journey told in evolving research traditions  Journal Articles
• Ketogenic Diet: Parental Experiences and Expectations  Journal Articles
• Knowledge exchange throughout the dementia care journey by Canadian rural community-based health care practitioners, persons with dementia, and their care partners: an interpretive descriptive study  Journal Articles
• Knowledge translation strategies for sharing evidence-based health information with older adults and their caregivers: findings from a persona-scenario method  Journal Articles
• Lasting impact in families after death from ALS  Journal Articles
• Leader as CARER: An ecological approach to designing a resilient MAiD program  Journal Articles
• Levels of Depression and Anxiety Among Informal Caregivers During the COVID-19 Pandemic: A Study Based on the Canadian Longitudinal Study on Aging  Journal Articles
• Linking Survey Data with Administrative Health Information  Journal Articles
• Longitudinal Changes in Physical Caregiving for Parents of Children with Cerebral Palsy  Journal Articles
• Longitudinal construct validity of the minimum data set health status index  Journal Articles
• Looking out for family caregivers.  Journal Articles
• Low caregiver health literacy is associated with non-urgent pediatric emergency department use.  Journal Articles
• MEASURING THE EFFECT OF CARERS ON PATIENTS’ RISK OF ADVERSE HEALTHCARE OUTCOMES USING THE CAREGIVER NETWORK SCORE  Journal Articles
• Male/Female Differences in the Impact of Caring for Elderly Relatives on Labor Market Attachment and Hours of Work: 1997–2015  Journal Articles
• Managing multiple chronic conditions in the community: a Canadian qualitative study of the experiences of older adults, family caregivers and healthcare providers  Journal Articles
• Mandatory reporting of child abuse and neglect: Crafting a positive process for health professionals and caregivers  Journal Articles
• Meaningful connections in dementia end of life care in long term care homes  Journal Articles
• Measurement of the Caregiving Experience in Caregivers of Persons Living With Heart Failure: A Review of Current Instruments  Journal Articles
• Measuring functioning among youth using the Columbia impairment scale: investigating dimensionality and measurement invariance among 14-17 year olds using mental health services and their caregivers.  Journal Articles
• Measuring quality of life in the parents of children with asthma  Journal Articles
• Mental health and well-being of unpaid caregivers: a cross-sectional survey protocol  Journal Articles
• Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness  Journal Articles
• Moderate burden amongst caregivers posthip arthroscopy linked to younger caregiver age and task load: A cross‐sectional survey study  Journal Articles
• Moral distress experienced by health care professionals who provide home-based palliative care  Journal Articles
• More effective and less expensive: lessons from five studies examining community approaches to care  Journal Articles
• Moving experiences: a qualitative analysis of health and migration  Journal Articles
• Muscled by the System: Informal Caregivers’ Experiences of Transitioning an Older Adult into Long-term Care  Journal Articles
• Namaste care delivered by caregivers of community‐dwelling older adults with moderate to advanced dementia: A mixed methods study protocol  Journal Articles
• Nurse-Led Interventions to Promote Optimal Aging at Home for Older Adults With Multimorbidity and Their Caregivers  Journal Articles
• Nurses' preferred end‐of‐life treatment choices in five countries  Journal Articles
• Nurturing care: promoting early childhood development  Journal Articles
• Older Adult Spouses with Multiple Chronic Conditions: Challenges, Rewards, and Coping Strategies  Journal Articles
• Older Adults’ Awareness of Community Health and Support Services for Dementia Care  Journal Articles
• One-Year Outcomes in Caregivers of Critically Ill Patients  Journal Articles
• Optimising care and the patient experience for people living with dementia: The perceptions of radiography practitioners  Journal Articles
• Optimizing outpatient total hip arthroplasty: perspectives of key stakeholders  Journal Articles
• Optimizing practice guidelines through incorporating patient and family values and preferences  Journal Articles
• Optimizing the Meaningful Engagement of Older Adults With Multimorbidity and Their Caregivers as Research Partners: A Qualitative Study  Journal Articles
• Out-of-pocket expenses related to aging in place for frail older people: a scoping review  Journal Articles
• Out-of-pocket expenses related to aging in place for frail older people: a scoping review protocol  Journal Articles
• Outcome Measures in Rheumatology - Interventions for medication Adherence (OMERACT-Adherence) Core Domain Set for Trials of Interventions for Medication Adherence in Rheumatology: 5 Phase Study Protocol  Journal Articles
• Outcome measures in palliative care training interventions: a systematic review of trial-based studies  Journal Articles
• Outcomes for clinical trials involving adults with chronic kidney disease: a multinational Delphi survey involving patients, caregivers and health professionals  Journal Articles
• Outcomes of critically ill COVID-19 survivors and caregivers: a case study-centred narrative review  Journal Articles
• PARENTS‘ PERCEPTIONS OF CAREGIVING: DEVELOPMENT AND VALIDATION OF A MEASURE OF PROCESSES  Journal Articles
• Palliative Care Experience in the Last 3 Months of Life: A Quantitative Comparison of Care Provided in Residential Hospices, Hospitals, and the Home From the Perspectives of Bereaved Caregivers  Journal Articles
• Palliative care in adolescents and young adults with cancer  Journal Articles
• Palliative care in interstitial lung disease: living well  Journal Articles
• Parents of children with cancer: Which factors explain differences in health‐related quality of life  Journal Articles
• Partner Burden in Irritable Bowel Syndrome  Journal Articles
• Patient and caregiver involvement in a multicentre clustered hemodialysis trial  Journal Articles
• Patient and family financial burden associated with cancer treatment in Canada: a national study  Journal Articles
• Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end‐of‐life  Journal Articles
• Patient partner perspectives on compensation: Insights from the Canadian Patient Partner Survey  Journal Articles
• Patient, Caregiver, and Clinician Participation in Prioritization of Research Questions in Pediatric Hospital Medicine  Journal Articles
• Patient, caregiver and other knowledge user engagement in consensus-building healthcare initiatives: a scoping review protocol  Journal Articles
• Patients’, physicians’, and pharmacists’ preferences towards coagulation factor concentrates to treat haemophilia with inhibitors: results from the COHIBA Study  Journal Articles
• Patient‐reported outcome measures and patient engagement in heart failure clinical trials: multi‐stakeholder perspectives  Journal Articles
• Patterns and Health Effects of Caring for People With Dementia: The Impact of Changing Cognitive and Residential Status  Journal Articles
• Patterns of caregiving following the institutionalization of elderly husbands.  Journal Articles
• Pediatric oncology caregiving as narrative repair: Restor(y)ing disrupted family biographies and damaged moral identities.  Journal Articles
• Perceived Benefits and Facilitators and Barriers to Providing Psychosocial Interventions for Informal Caregivers of People with Rare Diseases: A Scoping Review.  Journal Articles
• Perceived Social Support and Quality of Life of Children with and without Developmental Disabilities and Their Caregivers during the COVID-19 Pandemic in Brazil: A Cross-Sectional Study  Journal Articles
• Perceived support needs of family caregivers and implications for a telephone support service.  Journal Articles
• Perceptions of a psychoeducation program for caregivers of persons with dementia at end of life: a qualitative study  Journal Articles
• Perceptions of the Process of Care Among Caregivers and Care Recipients in Dementia Care Networks  Journal Articles
• Person-Centered Risk Assessment Framework: Assessing and Managing Risk in Older Adults Living With Dementia  Journal Articles
• Person-reported perspectives on support availability for people with disabilities during the COVID-19 pandemic in Quebec  Journal Articles
• Personal and environmental factors and household assistance in Down syndrome: cross-sectional study.  Journal Articles
• Persons with Dementia and Care Partners’ Perspectives on Memory Clinics in Primary Care  Journal Articles
• Perspectives from the Cancer and Aging Research Group: Caring for the vulnerable older patient with cancer and their caregivers during the COVID-19 crisis in the United States  Journal Articles
• Perspectives from the frontlines: palliative care providers’ expectations of Canada’s compassionate care benefit programme  Journal Articles
• Perspectives of older adults, caregivers, and healthcare providers on frailty screening: a qualitative study  Journal Articles
• Perspectives of people living with dementia and their care partners about the impact on social health when participating in a co‐designed Dementia café  Journal Articles
• Pharmacological Management of Lewy Body Dementia: A Systematic Review and Meta-Analysis  Journal Articles
• Physical activity and individuals with spinal cord injury: accuracy and quality of information on the Internet  Journal Articles
• Pilot evaluation of the family informal caregiver stroke self-management program.  Journal Articles
• Pilot randomized psychosocial trial of a screening intervention in pediatric oncology  Journal Articles
• Planning end-of-life care for patients with dementia: roles of families and health professionals.  Journal Articles
• Play Deprivation in Children With Physical Disabilities: The Role of the Occupational Therapist in Preventing Secondary Disability  Journal Articles
• Practical Resources for Nurses and Other Health Care Providers Involved in the Care of Children at Risk for Respiratory Syncytial Virus Infection  Journal Articles
• Predictors of Family Caregiver Ratings of Patient Quality of Life in Alzheimer Disease: Cross-Sectional Results from the Canadian Alzheimer's Disease Quality of Life Study  Journal Articles
• Predictors of caregiver burden across the home-based palliative care trajectory in Ontario, Canada  Journal Articles
• Predictors of caregivers' dissatisfaction with community long-term care services for seniors: results from the Canadian Study of Health and Aging.  Journal Articles
• Preliminary Study of the Effects of a Dysphagia Support Group on Quality of Life  Journal Articles
• Prevalence and correlates of anxiety and depression in caregivers to assisted living residents during COVID-19: a cross-sectional study  Journal Articles
• Prevalence of childhood exposure to intimate partner violence and associations with mental distress in Cambodia, Malawi and Nigeria: A cross-sectional study  Journal Articles
• Preventing crises in palliative care in the home. Role of family physicians and nurses.  Journal Articles
• Primary Care–Based Memory Clinics: Expanding Capacity for Dementia Care  Journal Articles
• Prioritizing Seizure Safety and SUDEP Counseling in People With Epilepsy and Their Caregivers During the COVID-19 Pandemic  Journal Articles
• Prioritizing core components of successful transitions from child to adult mental health care: a national Delphi survey with youth, caregivers, and health professionals  Journal Articles
• Problem-Solving Counseling for Caregivers of the Cognitively Impaired: Effective for Whom?  Journal Articles
• Programs Promoting Virtual Social Connections and Friendships for Youth with Disabilities: A Scoping Review  Journal Articles
• Promoting Intensive Transitions for Children and Youth with Medical Complexity from Paediatric to Adult Care: the PITCare study-protocol for a randomised controlled trial.  Journal Articles
• Protocol for a mixed methods feasibility and implementation study of a community-based integrated care model for home-dwelling older adults: The INSPIRE project  Journal Articles
• Protocol for validation of the Global Scales for Early Development (GSED) for children under 3 years of age in seven countries  Journal Articles
• Psychological health of family caregivers of children admitted at birth to a NICU and healthy children: a population-based cross-sectional survey  Journal Articles
• Psychometric Evaluation of the Young Children's Participation and Environment Measure (YC-PEM) for use in Singapore  Journal Articles
• Psychometric evaluation of the Participation and Environment Measure for Children and Youth  Journal Articles
• Psychometrics of psychosocial behavior items under age 6 years: Evidence from Nebraska, USA  Journal Articles
• Psychophysiological correlates of cognitive deficits in family caregivers of patients with Alzheimer Disease  Journal Articles
• Public health palliative care: Reframing death, dying, loss and caregiving.  Journal Articles
• Publicly Funded and Family-Friend Care in the Case of Long-Term Illness: The Role of the Spouse  Journal Articles
• Qualitative Research and Its Importance in Adapting Interventions  Journal Articles
• Quality Indicators for Youth Transitioning to Adult Care: A Systematic Review  Journal Articles
• Quality of life among Brazilian children with epilepsy: Validation of a parent proxy instrument (QVCE-50)  Journal Articles
• Quality of life and coping strategies among lung transplant candidates and their family caregivers  Journal Articles
• Questions in Mild Asthma: An Official American Thoracic Society Research Statement  Journal Articles
• Radiation exposure for ‘caregivers’ during high-dose outpatient radioiodine therapy  Journal Articles
• Recruitment of Community-Based Samples: Experiences and Recommendations for Optimizing Success  Journal Articles
• Rehabilitation of stroke patients needs a family-centred approach  Journal Articles
• Relation between severity of Alzheimer's disease and costs of caring.  Journal Articles
• Relations between Immigrant Care Workers and Older Persons in Home and Long-Term Care  Journal Articles
• Relationship between Distress Related to Caregiver Burden and Physical Activity in Informal Caregivers of Patients with COPD  Journal Articles
• Relationship between family caregiver burden and physical frailty in older adults without dementia: a systematic review  Journal Articles
• Relationships between sleep disruptions, health and care responsibilities among mothers of school‐aged children with disabilities  Journal Articles
• Reliability of Proxy Respondents for Patients With Stroke: A Systematic Review  Journal Articles
• Renewing Everyday Hope: The Hope Experience of Family Caregivers of Persons with Dementia  Journal Articles
• Reported distress in patients living with advanced cancer: changes pre-post interdisciplinary palliative rehabilitation  Journal Articles
• Research Priorities for Optimizing Long-term Community Integration after Brain Injury  Journal Articles
• Research on Alzheimer's caregiving in Canada: current status and future directions.  Journal Articles
• Residential immersive life skills programs for youth with disabilities: a case study of youth developmental trajectories of personal growth and caregiver perspectives  Journal Articles
• Retrospective review of a carer-employee workplace intervention.  Journal Articles
• Role of food labels in accidental exposures in food-allergic individuals in Canada  Journal Articles
• SUDEP: Living with the knowledge  Journal Articles
• Screening for Caregiver Burden in the Community: Validation of the European Portuguese Screening Version of the Zarit Burden Interview (ZBI-4)  Journal Articles
• Seeking to Understand Telephone Support for Dementia Caregivers  Journal Articles
• Sense of Competence in a Dutch Sample of Informal Caregivers of Frontotemporal Dementia Patients  Journal Articles
• Service Preferences Among Family Caregivers of the Terminally Ill  Journal Articles
• Shaping the practice of home care: critical case studies of the significance of the meaning of home  Journal Articles
• Short-Term, Community-Based, Slow-Stream Rehabilitation Program for Older Adults Transitioning from Hospital to Home: A Mixed Methods Program Evaluation  Journal Articles
• Should People Do unto Others as They Would Not Want Done unto Themselves?  Journal Articles
• Single-Parent Caregivers of Children with Cancer  Journal Articles
• Sleep Issues in Children with Physical Disabilities and Their Families  Journal Articles
• Social care and support needs of community-dwelling people with dementia and concurrent visual impairment  Journal Articles
• Social participation and depressive symptoms of carer-employees of older adults in Canada: a cross-sectional analysis of the Canadian Longitudinal Study on Aging  Journal Articles
• Spatially informed knowledge translation: Informing potential users of Canada's Compassionate Care Benefit  Journal Articles
• Spousal caregiving following institutionalization: the experience of elderly wives  Journal Articles
• Spousal caregiving in the institutional setting: visiting  Journal Articles
• Stakeholder Involvement: How to Do It Right  Journal Articles
• Stakeholder-Identified Interventions to Address Cancer Survivors’ Psychosocial Needs after Completing Treatment  Journal Articles
• Stakeholders’ perceptions of rehabilitation services for individuals living with disability: a survey study  Journal Articles
• Strategies for Reducing the Risk of Respiratory Syncytial Virus Infection in Infants and Young Children: A Canadian Nurses’ Perspective  Journal Articles
• Stroke Survivor Depressive Symptoms Are Associated With Family Caregiver Depression During the First 2 Years Poststroke  Journal Articles
• Stroke Survivors’ Behavioral and Psychologic Symptoms Are Associated With Informal Caregivers’ Experiences of Depression  Journal Articles
• Stroke rehabilitation: availability of a family member as caregiver and discharge destination.  Journal Articles
• Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health  Journal Articles
• Study protocol: pragmatic randomized control trial of an internet-based intervention (My tools 4 care) for family carers  Journal Articles
• Study protocol: pragmatic randomized control trial of my tools 4 care- in care (MT4C-in care) a web-based tool for family Carers of persons with dementia residing in long term care  Journal Articles
• Successful Linkage Between Formal and Informal Care Systems  Journal Articles
• Support for Informal Caregivers in Canada: A Scoping Review from a Hospice and Palliative/End-of-Life Care Lens  Journal Articles
• Supporting Children With Neurodevelopmental Disorders During the COVID-19 Pandemic  Journal Articles
• Survivor focus groups: a quality assurance technique  Journal Articles
• Swallowing Impairments Increase Emotional Burden in Spousal Caregivers of Older Adults  Journal Articles
• Systematic scoping review protocol of Stroke Patient and Stakeholder Engagement (SPSE)  Journal Articles
• THE EXPERIENCE OF PROVIDING CARE TO RELATIVES WITH CHRONIC MENTAL ILLNESS  Journal Articles
• THE INFLUENCE OF INCOME ON THE EXPERIENCE OF INFORMAL CAREGIVING: POLICY IMPLICATIONS  Journal Articles
• Talking ‘Bout Better outcomes for Adolescent Depression: Youth and Caregiver Perspectives on an Integrated Care Pathway for Depression  Journal Articles
• Targeted Child Mental Health Prevention and Parenting Support Within a Canadian Context: A Randomized Controlled Trial Evaluating the U.S.-Developed Family Check-Up®.  Journal Articles
• Technology for Remote Caregiving: A Guide for Caregivers Providing Care at a Distance  Journal Articles
• Ten questions: Developmentally appropriate support for pediatric testing in young children—How you can help  Journal Articles
• The ACHRU-CPP versus usual care for older adults with type-2 diabetes and multiple chronic conditions and their family caregivers: study protocol for a randomized controlled trial  Journal Articles
• The Balancing Act: Mothers' Experiences of Providing Care to Their Children With Cancer.  Journal Articles
• The Caregiver Contribution to Heart Failure Self-care Instrument  Journal Articles
• The Caregiver Contribution to Heart Failure Self‐Care (CACHS): Further Psychometric Testing of a Novel Instrument  Journal Articles
• The CaregiverVoice Survey: A Pilot Study Surveying Bereaved Caregivers To Measure the Caregiver and Patient Experience at End of Life  Journal Articles
• The Dutch Objective Burden Inventory: Validity and Reliability in a Canadian Population of Caregivers for People with Heart Failure  Journal Articles
• The Experience of Hope for Informal Caregivers of Palliative Patients  Journal Articles
• The Grief and Bereavement Experiences of Informal Caregivers: A Scoping Review of the North American Literature  Journal Articles
• The Growing Role of Technology in the Care of Older Adults With Diabetes  Journal Articles
• The Health and Well-Being of Caregivers of Children With Cerebral Palsy  Journal Articles
• The Health of Primary Caregivers of Children With Cerebral Palsy: How Does It Compare With That of Other Canadian Caregivers?  Journal Articles
• The Importance of Place and Time in Translating Knowledge About Canada's Compassionate Care Benefit to Informal Caregivers  Journal Articles
• The Measurement of Uncertainty in Caregivers of Patients With Heart Failure  Journal Articles
• The Nature, Value, and Experience of Engagement in Pediatric Rehabilitation: Perspectives of Youth, Caregivers, and Service Providers  Journal Articles
• The Role of Caregiver Involvement in Upper-Limb Treatment in Individuals With Subacute Stroke  Journal Articles
• The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making  Journal Articles
• The Use of the Diary as a Data Collection Technique  Journal Articles
• The Zarit Burden Interview  Journal Articles
• The assessment and treatment of a complex geriatric patient by an interprofessional primary care team  Journal Articles
• The association between caregiver well-being and care provided to persons with Alzheimer’s disease and related disorders  Journal Articles
• The care experiences of patients who die in residential hospice: A qualitative analysis of the last three months of life from the views of bereaved caregivers  Journal Articles
• The challenges of implementing and evaluating a pilot music and movement intervention for people with dementia: Innovative practice  Journal Articles
• The clinical effectiveness and cost‐effectiveness of clinical nurse specialist‐led hospital to home transitional care: a systematic review  Journal Articles
• The complexities and synergies of engagement: an ethnographic study of engagement in outpatient pediatric rehabilitation sessions  Journal Articles
• The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire  Journal Articles
• The experiences and needs of people seeking palliative health care out-of-hours: a qualitative study  Journal Articles
• The experiences of people living with HIV/AIDS and of their direct informal caregivers in a resource‐poor setting  Journal Articles
• The forgotten people in British public health: a national neglect of the dying, bereaved and caregivers  Journal Articles
• The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders  Journal Articles
• The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders  Journal Articles
• The impact of COVID‐19 on the mental health and wellbeing of caregivers of autistic children and youth: A scoping review  Journal Articles
• The impact of COVID‐19 on patient engagement in the health system: Results from a Pan‐Canadian survey of patient, family and caregiver partners  Journal Articles
• The impact of a family skills training intervention among Burmese migrant families in Thailand: A randomized controlled trial  Journal Articles
• The impact of care–recipient relationship type on health-related quality of life in community-dwelling older adults with dementia and their informal caregivers  Journal Articles
• The impact of staging bipolar disorder on treatment outcome of family psychoeducation  Journal Articles
• The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest–posttest study in six countries  Journal Articles
• The impact of transitional care programs on health services utilization among community-dwelling older adults and their caregivers  Journal Articles
• The influence of caregiver singing and background music on vocally expressed emotions and moods in dementia care  Journal Articles
• The influence of culture on home-based family caregiving at end-of-life: A case study of Dutch reformed family care givers in Ontario, Canada  Journal Articles
• The influence of swallowing impairments as an independent risk factor for burden among caregivers of aging parents: A cross-sectional study  Journal Articles
• The information transfer and knowledge acquisition geographies of family caregivers: an analysis of Canada's Compassionate Care Benefit.  Journal Articles
• The perceived and observed needs of patients with dementia admitted to acute medical wards  Journal Articles
• The relational dynamics of caregivers of patients with a left ventricular assist device for destination-therapy: A qualitative investigation  Journal Articles
• The relationship between caregivers’ perceptions of end-of-life care in long-term care and a good resident death  Journal Articles
• The supportive care needs of family members of men with advanced prostate cancer  Journal Articles
• Tracheostomy care: Clinical practice patterns of pediatric otolaryngologists-head and neck surgeons in a publicly funded (Canadian) health care system  Journal Articles
• Trajectory of psychosocial symptoms among home care patients with cancer at end‐of‐life  Journal Articles
• Transitioning From Hospital to Palliative Care at Home: Patient and Caregiver Perceptions of Continuity of Care  Journal Articles
• Transitions in Labour Force Participation over the Palliative Care Trajectory  Journal Articles
• Treatment goal setting for complex patients: protocol for a scoping review  Journal Articles
• Uncertainty and Alternate Level of Care: A Narrative Study of the Older Patient and Family Caregiver Experience  Journal Articles
• Understanding Burden in Caregivers of Adults With Dysphagia: A Systematic Review  Journal Articles
• Understanding Engagement in Home-Based Interactive Computer Play: Perspectives of Children With Unilateral Cerebral Palsy and Their Caregivers  Journal Articles
• Understanding burden differences between men and women caregivers: the contribution of care-recipient problem behaviors  Journal Articles
• Understanding data and information needs for palliative cancer care to inform digital health intervention development in Nigeria, Uganda and Zimbabwe: protocol for a multicountry qualitative study  Journal Articles
• Understanding experiences and perspectives in addressing unmet social needs of children and families in a paediatric weight management program: a qualitative descriptive study  Journal Articles
• Understanding the Influence of the Complex Relationships among Informal and Formal Supports on the Well-Being of Caregivers of Persons with Dementia  Journal Articles
• Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer  Journal Articles
• Unequal distribution of financial toxicity among people with cancer and its impact on access to care: a rapid review  Journal Articles
• Unsettling Knowledge Synthesis Methods Using Institutional Ethnography: Reflections on the Scoping Review as a Critical Knowledge Synthesis Tool  Journal Articles
• Use of home telehealth in palliative cancer care: a case study  Journal Articles
• Use of multimedia in patient and caregiver education for cancer pain management: a literature review  Journal Articles
• Use of the Health Utilities Index With Stroke Patients and Their Caregivers  Journal Articles
• Use of the nominal group technique to identify stakeholder priorities and inform survey development: an example with informal caregivers of people with scleroderma.  Journal Articles
• Using Best–Worst Scaling to Measure Caregiver Preferences for Managing their Child’s ADHD: A Pilot Study  Journal Articles
• Using Occupations to Improve Quality of Life, Health and Wellness, and Client and Caregiver Satisfaction for People With Alzheimer’s Disease and Related Dementias  Journal Articles
• Using focus groups to explore caregiver transitions and needs after placement of family members living with dementia in 24-hour care homes  Journal Articles
• Using the life course perspective to study the entry into the illness trajectory: The perspective of caregivers of people with Alzheimer's disease  Journal Articles
• Validation of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES) Screening Tool for Neurodegenerative Disease.  Journal Articles
• Values and Preferences of Patients and Caregivers Regarding Treatment of Atopic Dermatitis (Eczema)  Journal Articles
• Versorgungsnahe Daten für Versorgungsanalysen – Teil 3 des Manuals  Journal Articles
• Web-Based Education Program for Care Partners of People Living With Dementia (iGeriCare): Protocol for a Pilot Randomized Controlled Trial.  Journal Articles
• Web-Based Intervention for Family Carers of Persons with Dementia and Multiple Chronic Conditions (My Tools 4 Care): Pragmatic Randomized Controlled Trial  Journal Articles
• Web-Based Interventions to Improve Mental Health, General Caregiving Outcomes, and General Health for Informal Caregivers of Adults With Chronic Conditions Living in the Community: Rapid Evidence Review  Journal Articles
• What Does Death Preparedness Mean for Family Caregivers of Persons With Dementia?  Journal Articles
• What Makes Family Caregivers Happy During the First 2 Years Post Stroke?  Journal Articles
• What Matters in Cancer Survivorship Research? A Suite of Stakeholder-Relevant Outcomes  Journal Articles
• What about dads? An exploratory analysis of depressive symptoms in paternal primary caregivers of children with epilepsy  Journal Articles
• What type of survey research questions are identified by adults as upsetting? A focus on child maltreatment  Journal Articles
• When ‘Being There’ Is Disallowed: Disruptions to Knowing and Caring During COVID-19 Visitor Restrictions  Journal Articles
• Who steers the ship? Rural family physicians’ views on collaborative care models for patients with dementia  Journal Articles
• Whom Do I Trust to Represent Me? Long-Term Care Resident and Family Perspectives on Legitimate Representation.  Journal Articles
• Why child neurologists talk about SUDEP: Results from two cross‐sectional surveys  Journal Articles
• Withdrawal of Mechanical Ventilation  Journal Articles
• World guidelines for falls prevention and management for older adults: a global initiative  Journal Articles
• e-Health Technological Ecosystems: Advanced Solutions to Support Informal Caregivers and Vulnerable Populations During the COVID-19 Outbreak  Journal Articles
• ‘You come because it is an interesting place’: The impact of attending a heritage programme on the well-being of people living with dementia and their care partners  Journal Articles
• ‘He does not see himself as being different’: the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy  Journal Articles
• ‘I want every minute to be worthwhile now’: The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restrictions  Journal Articles
• ‘The Future is Probably Now’: Understanding of illness, uncertainty and end‐of‐life discussions in older adults with heart failure and family caregivers  Journal Articles
• “Because you know there's an end to it”: Caring for a relative or friend with advanced breast cancer  Journal Articles
• “It’s More than Just Needing money”: The Value of Supporting Networks of Care  Journal Articles
• “Picturing a Way Forward”: Strategies to Manage the Effects of COVID-19-Related Isolation on Long-Term Care Residents and Their Informal Caregivers  Journal Articles
• “There’s So Much More Support We Could Have Provided”: Child Life Specialists’ Stories of the Challenges Working in Adult Oncology  Journal Articles
• “This is my way”: reimagining disability, in/dependence and interconnectedness of persons and assistive technologies  Journal Articles
• “Whatever happens, happens” challenges of end-of-life communication from the perspective of older adults and family caregivers: a Qualitative study  Journal Articles
• “Who would want to die like that?” Perspectives on dying alone in a long-term care setting  Journal Articles
• “You Take This Day by Day, Come What May”: A Qualitative Study of the Psychosocial Impacts of Living with Duchenne Muscular Dystrophy  Journal Articles
• “You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patients  Journal Articles