Caregivers - McMaster Experts

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"I really should've gone to the doctor": older adults and family caregivers describe their experiences with community-acquired pneumonia Academic Article
A Canadian qualitative study exploring the diversity of the experience of family caregivers of older adults with multiple chronic conditions using a social location perspective Academic Article
A Comparison of HU12 and HU13 Utility Scores in Alzheimer's Disease Academic Article
A Comparison of Support Needs Between Rural and Urban Family Caregivers Providing Palliative Care Academic Article
A Comparison of Users and Nonusers of a Web-Based Intervention for Carers of Older Persons With Alzheimer Disease and Related Dementias: Mixed Methods Secondary Analysis Academic Article
A Latent Class Analysis to Identify Variation in Caregivers’ Preferences for their Child’s Attention-Deficit/Hyperactivity Disorder Treatment: Do Stated Preferences Match Current Treatment? Academic Article
A Prospective Study of Usability and Workload of Electronic Medication Adherence Products by Older Adults, Caregivers, and Health Care Providers Academic Article
A Relaxation Training Program To Increase Self-Efficacy for Anxiety Control in Alzheimer Family Caregivers Academic Article
A Review of the Essential Components of Quality Palliative Care in the Home Academic Article
A Survey of Caregiver Perspectives on Children’s Pain Management in the Emergency Department Academic Article
A comparative study of perceived burden in parent caregivers of adolescents with epilepsy in a resource-restricted setting: Investigating the explanatory factors of perceived burden Academic Article
A comparison of health utility scores calculated using United Kingdom and Canadian preference weights in persons with alzheimer’s disease and their caregivers Academic Article
A comprehensive profile of the sociodemographic, psychosocial and health characteristics of Ontario home care clients with dementia Academic Article
A hybrid qualitative method for pretesting questionnaires: The example of a questionnaire to caregivers of Alzheimer disease patients Academic Article
A longitudinal study looking at and beyond care recipient health as a predictor of long term care home admission Academic Article
A new way of loving and living. Academic Article
A prospective 2-site parallel intervention trial of a research-based film to increase exercise amongst older hemodialysis patients Academic Article
A qualitative investigation of injurious falls in long-term care: perspectives of staff members Academic Article
A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model Academic Article
A systematic review of heart failure dyadic self-care interventions focusing on intervention components, contexts, and outcomes Academic Article
A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress Academic Article
A walking stick in one hand and a chainsaw in the other: patients' perspectives of living with multimorbidity. Academic Article
About my Child: measuring ‘Complexity’ in neurodisability. Evidence of reliability and validity Academic Article
Acceptability and Validity of the EQ-5D in Patients Living With Dementia Academic Article
Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers Academic Article
Adult Day Center Programs and Their Associated Outcomes on Clients, Caregivers, and the Health System: A Scoping Review Academic Article
Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit Academic Article
Aerosol Therapy With Valved Holding Chambers in Young Children: Importance of the Facemask Seal Academic Article
Agenda-setting for Canadian caregivers: using media analysis of the maternity leave benefit to inform the compassionate care benefit Academic Article
Alzheimer’s and other dementias in Canada, 2011 to 2031: a microsimulation Population Health Modeling (POHEM) study of projected prevalence, health burden, health services, and caregiving use Academic Article
An Assessment of Community Palliative Care Needs: The Case of Niagara Academic Article
An Evaluation of the Family Informal Caregiver Stroke Self-Management Program Academic Article
An Official American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation Academic Article
An evaluation study of caregiver perceptions of the Ontario’s Health Links program Academic Article
An examination of cancer patients’ monthly ‘out-of-pocket’ costs in Ontario, Canada Academic Article
An innovative model of system-linked community care: home-based traction as an alternative to institutional treatment. Academic Article
An international survey to inform priorities for new guidelines on von Willebrand disease Academic Article
Apathy in Dementia: An Examination of the Psychometric Properties of the Apathy Evaluation Scale Academic Article
Are Informal Caregivers of Persons With Dementia Open to Extending Medical Aid in Dying to Incompetent Patients? Findings From a Survey Conducted in Quebec, Canada Academic Article
Are postbereavement research interviews distressing to carers? Lessons learned from palliative care research Academic Article
Artful Moments: A framework for successful engagement in an arts-based programme for persons in the middle to late stages of dementia Academic Article
Assessment of Informal Caregiver Assistance and Strain With Total Hip and Knee Arthroplasty Academic Article
Assisted-Transport Caregiving and Its Impact Towards Carer-Employees Academic Article
Assistive devices for children with functional impairments: impact on child and caregiver function Academic Article
Association between caregiver quality of life and the care provided to persons with Alzheimer’s disease: protocol for a systematic review Academic Article
Associations Between Dysfunctional Behaviors, Gender, and Burden in Spousal Caregivers of Cognitively Impaired Older Adults Academic Article
Associations and costs of parental symptoms of psychiatric distress in a multi-diagnosis group of children with special needs Academic Article
Associations of Participation-Focused Strategies and Rehabilitation Service Use With Caregiver Stress After Pediatric Critical Illness Academic Article
Attitudes Toward Physical Activity and Exercise: Comparison of Memory Clinic Patients and Their Caregivers and Prediction of Activity Levels Academic Article
Availability and Acceptability of Canadian Home and Community-Based Services: Perspectives of Family Caregivers of Persons with Dementia Academic Article
Barriers to Disclosure to Children with HIV Academic Article
Barriers to maternal workforce participation and relationship between paid work and health Academic Article
Barriers to technology use among older heart failure individuals in managing their symptoms after hospital discharge Academic Article
Behavioural disturbance triggers recognition of dementia by family informants Academic Article
Behavioural problems in school age children with cerebral palsy Academic Article
Beyond the realist turn: a socio-material analysis of heart failure self-care Academic Article
Burden and related factors in caregivers of young adults presenting bipolar and unipolar mood disorder Academic Article
Burden on caregivers as perceived by hemodialysis patients in the Frequent Hemodialysis Network (FHN) trials Academic Article
Can the general public use vignettes to discriminate between Alzheimer’s disease health states? Academic Article
Canada's Compassionate Care Benefit: Is it an adequate public health response to addressing the issue of caregiver burden in end-of-life care? Academic Article
Canada’s Compassionate Care Benefit: Views of family caregivers in chronic illness Academic Article
Canadian Families Caring for Members With Mental Illness: A Vicious Cycle Academic Article
Canadian study of health and aging: study methods and prevalence of dementia. Academic Article
Capturing the Palliative Home Care Experience From Bereaved Caregivers Through Qualitative Survey Data: Toward Informing Quality Improvement Academic Article
Care Challenges in the Bathroom: The Views of Professional Care Providers Working in Clients’ Homes Academic Article
Care recipients’ physical frailty is independently associated with subjective burden in informal caregivers in the community setting: a cross-sectional study Academic Article
Care-related quality of life in caregivers of children with drug-resistant epilepsy Academic Article
Caregiver Acceptance of Adverse Effects and Use of Cholinesterase Inhibitors in Alzheimer's Disease Academic Article
Caregiver Burden, Health-Related Quality of Life and Coping in Dementia Caregivers: A Comparison of Frontotemporal Dementia and Alzheimer’s Disease Academic Article
Caregiver Singing and Background Music in Dementia Care Academic Article
Caregiver Strategy Use to Promote Children's Home Participation After Pediatric Critical Illness Academic Article
Caregiver dissatisfaction with their child’s participation in home activities after pediatric critical illness Academic Article
Caregiver knowledge and skills to safely care for pediatric tracheostomy ventilation at home Academic Article
Caregiver preparedness for death in dementia: an evaluation of existing tools Academic Article
Caregiver status affects medication adherence among older home care clients with heart failure. Academic Article
Caregiver-Focused, Web-Based Interventions: Systematic Review and Meta-Analysis (Part 2) Academic Article
Caregiver-fabricated illness in a child prescribed long-term opioids and benzodiazepines Academic Article
Caregivers of older adults with dementia and multiple chronic conditions: Exploring their experiences with significant changes Academic Article
Caregivers’ contributions to heart failure self-care: A systematic review Academic Article
Caregivers’ willingness-to-pay for Alzheimer’s disease medications in Canada Academic Article
Caregiving and its impact on families of the terminally ill Academic Article
Caregiving at the end of life: Perspectives from spousal caregivers and care recipients Academic Article
Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-life Academic Article
Caregiving process and caregiver burden: Conceptual models to guide research and practice Academic Article
Caregiving, single parents and cumulative stresses when caring for a child with cancer Academic Article
Care‐giving as a C anadian‐ V ietnamese tradition: ‘It's like eating, you just do it’ Academic Article
Caring ahead: Mixed methods development of a questionnaire to measure caregiver preparedness for end-of-life with dementia Academic Article
Challenges facing palliative neurology practice: A qualitative analysis Academic Article
Changes Over Time in the Health of Caregivers of Children With Health Problems: Growth-Curve Findings From a 10-Year Canadian Population-Based Study Academic Article
Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space Academic Article
Changing the Way We Talk with Elders: Promoting Health Using the Communication Enhancement Model Academic Article
Child Care Providers Who Commit Sexual Offences Academic Article
Childhood maltreatment, emotional distress, and early adolescent sexual intercourse: Multi-informant perspectives on parental monitoring. Academic Article
Children receiving treatment for cancer and their caregivers: A mixed methods study of their sleep characteristics Academic Article
Children’s and caregivers’ perspectives about mandatory reporting of child maltreatment: a meta-synthesis of qualitative studies Academic Article
Child’s symptom burden and depressive symptoms among caregivers of children with cancers: an argument for early integration of pediatric palliative care Academic Article
Cholesterol Metabolism and Suicidality in Smith-Lemli-Opitz Syndrome Carriers Academic Article
Choosing Healthcare Options by Involving Canada's Elderly: a protocol for the CHOICE realist synthesis project on engaging older persons in healthcare decision-making: Table 1 Academic Article
Circles of care for people with intellectual and developmental disabilities: Communication, collaboration, and coordination Academic Article
Co-designing for quality: Creating a user-driven tool to improve quality in youth mental health services Academic Article
Communicating with library patrons and people with dementia: Tracing an ethic of care in professional communication guidelines Academic Article
Comparing the attitudes of four groups of stakeholders from Quebec, Canada, toward extending medical aid in dying to incompetent patients with dementia Academic Article
Comparing the experiences of rural and urban family caregivers of the terminally ill Academic Article
Connecting Families to Their Health Record and Care Team: The Use, Utility, and Impact of a Client/Family Health Portal at a Children’s Rehabilitation Hospital Academic Article
Construction of a biological rhythm assessment scale for children Academic Article
Continuity of Care for Advanced Cancer Patients: Comparing the Views of Spousal Caregivers in Ontario, Canada, to Dumont et al.'s Theoretical Model Academic Article
Contributors to Poststroke Dysphagia-Related Caregiver Burden Academic Article
Coping With a Child With Dravet Syndrome: Insights From Families Academic Article
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy Academic Article
Core Outcome Domains for Trials in Autosomal Dominant Polycystic Kidney Disease: An International Delphi Survey Academic Article
Correlates of Health Status for Family Caregivers in Bereavement Academic Article
Correlates of health-related quality of life in children with drug resistant epilepsy Academic Article
Correlates of well-being among caregivers of cognitively impaired relatives. Academic Article
Creating a Supportive Environment for Living with Stroke in Rural Areas: Two Low-Cost Community-Based Interventions Conference Paper
Creation and Initial Validation of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES) Screening Tool Academic Article
Critically examining diversity in end-of-life family caregiving: implications for equitable caregiver support and Canada’s Compassionate Care Benefit Academic Article
Cross-cultural adaptation of the caregiver contribution to heart failure self-Care into Brazilian Portuguese and content validation Academic Article
Cross-site randomized control trial of theSocial ABCscaregiver-mediated intervention for toddlers with autism spectrum disorder Academic Article
Cultural influences on palliative family caregiving: service recommendations specific to the Vietnamese in Canada Academic Article
Cumulative stress and substantiated maltreatment: The importance of caregiver vulnerability and adult partner violence Academic Article
Deathbed Visions from India: A Study of Family Observations in Northern Kerala Academic Article
Deathbed Visions from the Republic of Moldova: A Content Analysis of Family Observations Academic Article
Defining priorities for improving end-of-life care in Canada Academic Article
Depressive Symptoms in Family Caregivers of Long-stay Patients Academic Article
Depressive symptoms among mothers of children with epilepsy: A review of prevalence, associated factors, and impact on children Academic Article
Determinants of Depressive Symptoms at 1 Year Following ICU Discharge in Survivors of ≥ 7 Days of Mechanical Ventilation Academic Article
Determinants of effective heart failure self-care: a systematic review of patients’ and caregivers’ perceptions Academic Article
Developing Physician Consensus on the Reporting of Patients with Mild Cognitive Impairment and Mild Dementia to Transportation Authorities in a Region with Mandatory Reporting Legislation Academic Article
Developing a Living with Hope Program for Caregivers of Family Members with Advanced Cancer Academic Article
Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being Academic Article
Development and Evaluation of an Activity Measure for People with Spinal Cord Injury Academic Article
Development and validation of a screener based on interRAI assessments to measure informal caregiver wellbeing in the community Academic Article
Development of Child and Family-Centered Engagement Guidelines for Clinical Administration of the Challenge to Measure Advanced Gross Motor Skills: A Qualitative Study Academic Article
Development of Clinical Vignettes to Describe Alzheimer's Disease Health States: A Qualitative Study Academic Article
Development of a decision-making tool for reporting drivers with mild dementia and mild cognitive impairment to transportation administrators Academic Article
Development of a family-based pulmonary rehabilitation programme: an exploratory study Academic Article
Development of a measure of family-centred care for resource-poor South African settings: the experience of using a modified version of the MPOC-20 Academic Article
Development of the family needs questionnaire – pediatric version [FNQ-P] – phase I Academic Article
Diabetes knowledge, risk perception, and quality of life among South Asian caregivers in young adulthood Academic Article
Differential impacts of care‐giving across three caregiver groups in C anada: end‐of‐life care, long‐term care and short‐term care Academic Article
Disarmed complaints: Academic Article
Do active assist transfer devices improve transfer safety for patients and caregivers in hospital and community settings? A scoping review Academic Article
Does being a retired or employed caregiver affect the association between behaviours in Alzheimer’s disease and caregivers’ health-related quality-of-life? Academic Article
Dying from cancer in community hospitals or a hospice: closest lay carers' perceptions. Academic Article
Dysfunctional Behavior Rating Instrument Academic Article
Ease of Caregiving for Children: A measure of parent perceptions of the physical demands of caregiving for young children with cerebral palsy Academic Article
Ease of Caregiving for Children: Re-Validation of Psychometric Properties of the Measure for Children with Cerebral Palsy up to 11 Years of Age Academic Article
Editorial: Hidden Costs and Invisible Contributions in Family Caregiving: An Introduction Academic Article
Editorial: an introduction to context, practice, and policy in caring for an aging population. Academic Article
Education, Training, and Mentorship of Caregivers of Canadians Experiencing a Life-Limiting Illness Academic Article
Effects of parenting interventions on child and caregiver cortisol levels: systematic review and meta-analysis Academic Article
Elder Abuse in the Out-of-Hospital and Emergency Department Settings: A Scoping Review Academic Article
Emotionally maltreated: The under-current of impairment? Academic Article
Endurance, resistance and resilience in the South African health care system: case studies to demonstrate mechanisms of coping within a constrained system Academic Article
Engaging knowledge users in a systematic review on the comparative effectiveness of geriatrician-led models of care is possible: A cross-sectional survey using the Patient Engagement Evaluation Tool Academic Article
Epilepsy surgery does not harm motor performance of children and adolescents Academic Article
Establishing a Core Outcome Set for Autosomal Dominant Polycystic Kidney Disease: Report of the Standardized Outcomes in Nephrology–Polycystic Kidney Disease (SONG-PKD) Consensus Workshop Academic Article
Establishing benefit of emotion-focused, carer-based interventions for adolescents with anorexia nervosa Academic Article
Evaluating Canada's Compassionate Care Benefit using a utilization-focused evaluation framework: Successful strategies and prerequisite conditions Academic Article
Evaluation of a Caregiver-Friendly Workplace Program Intervention on the Health of Full-Time Caregiver Employees Academic Article
Evaluation of an Assessment Battery for Estimating Dementia Caregiver Needs for Health and Social Care Services Academic Article
Evaluation of caregiver-friendly workplace policy (CFWPs) interventions on the health of full-time caregiver employees (CEs): implementation and cost-benefit analysis Academic Article
Evaluations by staff, residents, and community seniors of patronizing speech in the nursing home: Impact of passive, assertive, or humorous responses. Academic Article
Examining clinically relevant levels of depressive symptoms in mothers following a diagnosis of epilepsy in their children: a prospective analysis Academic Article
Examining physician-patient-caregiver encounters: the case of Alzheimer's disease patients and family physicians in Israel Academic Article
Experiences of Informal Caregivers of Older Adults Transitioned From Nursing Homes to the Community Through the Money Follows the Person Demonstration Academic Article
Experiences of Older Adults in Transition from Hospital to Community Academic Article
Experiences of acute mental health care in an ethnically diverse inner city: qualitative interview study Academic Article
Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study Academic Article
Experiences of living and dying with COPD: a systematic review and synthesis of the qualitative empirical literature. Academic Article
Experiences of unpaid family/friend caregivers of community-dwelling adults with dementia: a systematic review protocol Academic Article
Explaining the use and non-use of community-based long-term care services by caregivers of persons with dementia Academic Article
Factor Structure and Reliability of the Brain Impairment Behavior Scale Academic Article
Factor structure and longitudinal invariance of the Center for Epidemiological Studies Depression Scale (CES-D) in adult women: application in a population-based sample of mothers of children with epilepsy Academic Article
Factors Associated With Long-term Institutionalization of Older People With Dementia: Data From the Canadian Study of Health and Aging Academic Article
Factors Related to Adaptive Behavior in Children With Cerebral Palsy Academic Article
Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions Academic Article
Family Caregiver Perspectives on Caring for Ventilator-Assisted Individuals at Home Academic Article
Family care of the Dying in the republic of Moldova: A Qualitative Study Academic Article
Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers Academic Article
Family caregiver views on patient-centred care at the end of life Academic Article
Family caregivers’ ideal expectations of Canada’s Compassionate Care Benefit Academic Article
Family conflict and future concerns: Opportunities for social workers to better support Chinese immigrant caregiver employees Academic Article
Family involvement in cancer treatment decision-making: A qualitative study of patient, family, and clinician attitudes and experiences Academic Article
Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the Literature Academic Article
Feasibility of conducting a prospective cohort study in pediatric surgery: introducing the Caregiver Quality of Life of pediatric patients referred for feeding tube insertion (CARE) study Academic Article
Financial and family burden associated with cancer treatment in Ontario, Canada Academic Article
Finding harmony within dissonance: Engaging patients, family/caregivers and service providers in research to fundamentally restructure relationships through integrative dynamics Conference Paper
Formulation of evidence-based messages to promote the use of physical activity to prevent and manage Alzheimer’s disease Academic Article
Fostering humanism: a mixed methods evaluation of the Footprints Project in critical care Academic Article
Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario Academic Article
Gastrostomy matters—The impact of pediatric surgery on caregiver quality of life Academic Article
Gender differences among Canadian spousal caregivers at the end of life Academic Article
Giving support and getting help: informal caregivers’ experiences with palliative care services Academic Article
HOW MOTHERS AND FATHERS VIEW PROFESSIONAL CAREGMNG FOR CHILDREN WITH DISABILITIES Academic Article
Handheld computers and paper diaries for documenting the use of factor concentrates used in haemophilia home therapy: a qualitative study Academic Article
Health Among Caregivers of Children With Health Problems: Findings From a Canadian Population-Based Study Academic Article
Health Information Technology to Facilitate Communication Involving Health Care Providers, Caregivers, and Pediatric Patients: A Scoping Review Academic Article
Health Utility Scores in Alzheimer’s Disease: Differences Based on Calculation With American and Canadian Preference Weights Academic Article
Health workers’ views on factors affecting caregiver engagement with bubble CPAP Academic Article
Healthcare providers’ experiences in supporting community-living older adults to manage multiple chronic conditions: a qualitative study Academic Article
Higher Levels of Caregiver Strain Perceived by Indian Mothers of Children and Young Adults with Cerebral Palsy Who have Limited Self-Mobility Academic Article
Hope of rural women caregivers of persons with advanced cancer: guilt, self-efficacy and mental health Academic Article
How Do Older Adults Decide to Visit the Emergency Department? Patient and Caregiver Perspectives Academic Article
INSPIRE (INvestigating Social and PractIcal suppoRts at the End of life): Pilot randomised trial of a community social and practical support intervention for adults with life-limiting illness Academic Article
Identification of Childhood Psychiatric Disorder by Informant: Comparisons of Clinic and Community Samples Academic Article
Identifying and Ensuring Optimal Care for All Children at Risk of Developing Serious Respiratory Syncytial Virus Disease: A Canadian Nurses’ Perspective Academic Article
Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: a protocol for a scoping review Academic Article
Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: a scoping review Academic Article
Identifying critically important vascular access outcomes for trials in haemodialysis: an international survey with patients, caregivers and health professionals Academic Article
Identifying educational needs in end-of-life care for staff and families of residents in care facilities Academic Article
Immigrant to Canada, newcomer to childhood cancer: a qualitative study of challenges faced by immigrant parents Academic Article
Impact of Caring for a Child With Cancer on Parents’ Health-Related Quality of Life Academic Article
Impact of Internet-Based Interventions on Caregiver Mental Health: Systematic Review and Meta-Analysis Academic Article
Impact of Study Oximeter Masking Algorithm on Titration of Oxygen Therapy in the Canadian Oxygen Trial Academic Article
Impact of a Caregiver-Friendly Workplace Policies Intervention Academic Article
Impact of caring for a child with cancer on single parents compared with parents from two-parent families Academic Article
Impact of caring for a school-aged child with a disability: Understanding mothers’ perspectives Academic Article
Impact of contraindications, barriers to self-care and support on incident peritoneal dialysis utilization Academic Article
Impact of emotional distress on caregivers burden among Nigerian children with Obstructive Adenotonsillar hypertrophy Academic Article
Impact of the Caring for Aging Relatives Group Program: An Evaluation Academic Article
Impacts of care‐giving and sources of support: a comparison of end‐of‐life and non‐end‐of‐life caregivers in C anada Academic Article
Impressions of Early Mobilization of Critically Ill Children—Clinician, Patient, and Family Perspectives* Academic Article
Improving access to community support and services for persons living with dementia: Integration of home care services into primary care-based memory clinics Academic Article
In This Issue/Abstract Thinking: Game On: Is There a Role for Video Games in Clinical Care? Academic Article
Increased Risk of RSV Infection in Children with Down's Syndrome: Clinical Implementation of Prophylaxis in the European Union Academic Article
Indicators of distress in families of children with cerebral palsy Academic Article
Informal Dementia Caregiving Among Indigenous Communities in Ontario, Canada Academic Article
Informal caregivers' hopes and expectations of a referral to a memory clinic Academic Article
Informal caregiving for dementia patients: the contribution of patient characteristics and behaviours to caregiver burden Academic Article
Informal caregiving in COPD: A systematic review of instruments and their measurement properties Academic Article
Innovation processes for ageing-related health technologies Academic Article
International synthesis and case study examination of promising caregiver-friendly workplaces Academic Article
Is a family-centred initiative a family-centred service? A case of a Conductive Education setting for children with cerebral palsy Academic Article
Knowledge exchange throughout the dementia care journey by Canadian rural community-based health care practitioners, persons with dementia, and their care partners: an interpretive descriptive study Academic Article
Lasting impact in families after death from ALS Academic Article
Lessons learned: feasibility and acceptability of a telehealth-delivered exercise intervention for rural-dwelling individuals with dementia and their caregivers Academic Article
Linking Survey Data with Administrative Health Information Academic Article
Longitudinal Changes in Physical Caregiving for Parents of Children with Cerebral Palsy Academic Article
Longitudinal construct validity of the minimum data set health status index Academic Article
Looking out for family caregivers. Academic Article
MEASURING PROCESSES OF CAREGIVING TO PHYSICALLY DISABLED CHILDREN AND THEIR FAMILIES. I: IDENTIFYING RELEVANT COMPONENTS OF CARE Academic Article
MEASURING THE EFFECT OF CARERS ON PATIENTS’ RISK OF ADVERSE HEALTHCARE OUTCOMES USING THE CAREGIVER NETWORK SCORE Academic Article
Male/Female Differences in the Impact of Caring for Elderly Relatives on Labor Market Attachment and Hours of Work: 1997–2015 Academic Article
Managing multiple chronic conditions in the community: a Canadian qualitative study of the experiences of older adults, family caregivers and healthcare providers Academic Article
Mandatory reporting of child abuse and neglect: Crafting a positive process for health professionals and caregivers Academic Article
Meaningful connections in dementia end of life care in long term care homes Academic Article
Measurement of the Caregiving Experience in Caregivers of Persons Living With Heart Failure: A Review of Current Instruments Academic Article
Measuring quality of life in the parents of children with asthma Academic Article
Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness Academic Article
Moral distress experienced by health care professionals who provide home-based palliative care Academic Article
More effective and less expensive: lessons from five studies examining community approaches to care Academic Article
Moving experiences: a qualitative analysis of health and migration Academic Article
Muscled by the System: Informal Caregivers’ Experiences of Transitioning an Older Adult into Long-term Care Academic Article
Namaste care delivered by caregivers of community‐dwelling older adults with moderate to advanced dementia: A mixed methods study protocol Academic Article
Nurse-Led Interventions to Promote Optimal Aging at Home for Older Adults With Multimorbidity and Their Caregivers Academic Article
Nurses' preferred end-of-life treatment choices in five countries Academic Article
Nurturing care: promoting early childhood development Academic Article
Nutrition Education Needs and Resources for Dementia Care in the Community Academic Article
Older Adult Spouses with Multiple Chronic Conditions: Challenges, Rewards, and Coping Strategies Academic Article
Older Adults’ Awareness of Community Health and Support Services for Dementia Care Academic Article
One-Year Outcomes in Caregivers of Critically Ill Patients Academic Article
Optimizing outpatient total hip arthroplasty: perspectives of key stakeholders Academic Article
Out-of-pocket expenses related to aging in place for frail older people Academic Article
Outcome Measures in Rheumatology - Interventions for medication Adherence (OMERACT-Adherence) Core Domain Set for Trials of Interventions for Medication Adherence in Rheumatology: 5 Phase Study Protocol Academic Article
PARENTS‘ PERCEPTIONS OF CAREGIVING: DEVELOPMENT AND VALIDATION OF A MEASURE OF PROCESSES Academic Article
Palliative Care Experience in the Last 3 Months of Life: A Quantitative Comparison of Care Provided in Residential Hospices, Hospitals, and the Home From the Perspectives of Bereaved Caregivers Academic Article
Palliative care in adolescents and young adults with cancer Academic Article
Palliative care in interstitial lung disease: living well Academic Article
Parenting children with neurodevelopmental disorders and/or behaviour problems Academic Article
Parents of children with cancer: Which factors explain differences in health-related quality of life Academic Article
Parent–youth discordance about youth-witnessed violence: Associations with trauma symptoms and service use in an at-risk sample Academic Article
Partner Burden in Irritable Bowel Syndrome Academic Article
Patient and caregiver involvement in a multicentre clustered hemodialysis trial Academic Article
Patient and family financial burden associated with cancer treatment in Canada: a national study Academic Article
Patients’, physicians’, and pharmacists’ preferences towards coagulation factor concentrates to treat haemophilia with inhibitors: results from the COHIBA Study Academic Article
Patterns and Health Effects of Caring for People With Dementia: The Impact of Changing Cognitive and Residential Status Academic Article
Patterns of caregiving following the institutionalization of elderly husbands. Academic Article
Perceived support needs of family caregivers and implications for a telephone support service. Academic Article
Perceptions of a psychoeducation program for caregivers of persons with dementia at end of life: a qualitative study Academic Article
Perceptions of the Process of Care Among Caregivers and Care Recipients in Dementia Care Networks Academic Article
Person-centered risk assessment framework: assessing and managing risk in older adults living with dementia Academic Article
Persons with dementia and care partners’ perspectives on memory clinics in primary care Academic Article
Perspectives from the Cancer and Aging Research Group: Caring for the vulnerable older patient with cancer and their caregivers during the COVID-19 crisis in the United States Academic Article
Perspectives from the frontlines: palliative care providers’ expectations of Canada’s compassionate care benefit programme Academic Article
Perspectives of older adults, caregivers, and healthcare providers on frailty screening: a qualitative study Academic Article
Pilot evaluation of the family informal caregiver stroke self-management program. Academic Article
Play Deprivation in Children With Physical Disabilities: The Role of the Occupational Therapist in Preventing Secondary Disability Academic Article
Practical Resources for Nurses and Other Health Care Providers Involved in the Care of Children at Risk for Respiratory Syncytial Virus Infection Academic Article
Predictors of Family Caregiver Ratings of Patient Quality of Life in Alzheimer Disease: Cross-Sectional Results from the Canadian Alzheimer's Disease Quality of Life Study Academic Article
Predictors of caregiver burden across the home-based palliative care trajectory in Ontario, Canada Academic Article
Predictors of caregivers' dissatisfaction with community long-term care services for seniors: results from the Canadian Study of Health and Aging. Academic Article
Preventing crises in palliative care in the home. Role of family physicians and nurses. Academic Article
Primary Care–Based Memory Clinics: Expanding Capacity for Dementia Care Academic Article
Problem-Solving Counseling for Caregivers of the Cognitively Impaired: Effective for Whom? Academic Article
Promoting a Combination Approach to Paediatric HIV Psychosocial Support Academic Article
Psychological health of family caregivers of children admitted at birth to a NICU and healthy children: a population-based cross-sectional survey Academic Article
Psychometric Evaluation of the Young Children's Participation and Environment Measure (YC-PEM) for use in Singapore Academic Article
Psychometric evaluation of the Participation and Environment Measure for Children and Youth Academic Article
Psychophysiological correlates of cognitive deficits in family caregivers of patients with Alzheimer Disease Academic Article
Publicly Funded and Family-Friend Care in the Case of Long-Term Illness: The Role of the Spouse Academic Article
Qualitative Research and Its Importance in Adapting Interventions Academic Article
Quality of life among Brazilian children with epilepsy: Validation of a parent proxy instrument (QVCE-50) Academic Article
Quality of life of children with neurological impairment who receive a fundoplication for gastroesophageal reflux disease Academic Article
Radiation exposure for ‘caregivers’ during high-dose outpatient radioiodine therapy Academic Article
Rehabilitation of stroke patients needs a family-centred approach Academic Article
Relation between severity of Alzheimer's disease and costs of caring. Academic Article
Relations between Immigrant Care Workers and Older Persons in Home and Long-Term Care Academic Article
Relationship between family caregiver burden and physical frailty in older adults without dementia: a systematic review Academic Article
Relationships between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities Academic Article
Reliability of Proxy Respondents for Patients With Stroke: A Systematic Review Academic Article
Renewing Everyday Hope: The Hope Experience of Family Caregivers of Persons with Dementia Academic Article
Reported distress in patients living with advanced cancer: changes pre-post interdisciplinary palliative rehabilitation Academic Article
Research Priorities for Optimizing Long-term Community Integration after Brain Injury Academic Article
Research on Alzheimer's caregiving in Canada: current status and future directions. Academic Article
Residential immersive life skills programs for youth with disabilities: a case study of youth developmental trajectories of personal growth and caregiver perspectives Academic Article
Role of food labels in accidental exposures in food-allergic individuals in Canada Academic Article
Seeking to Understand Telephone Support for Dementia Caregivers Academic Article
Sense of Competence in a Dutch Sample of Informal Caregivers of Frontotemporal Dementia Patients Academic Article
Service Preferences Among Family Caregivers of the Terminally Ill Academic Article
Shaping the practice of home care: critical case studies of the significance of the meaning of home Academic Article
Should people do unto others as they would not want done unto themselves? Academic Article
Single-Parent Caregivers of Children with Cancer Academic Article
Sleep Issues in Children with Physical Disabilities and Their Families Academic Article
Sleep Outcomes for Parents of Children With Neurodevelopmental Disabilities: A Systematic Review Academic Article
Spatially informed knowledge translation: Informing potential users of Canada's Compassionate Care Benefit Academic Article
Spinal cord injury and polypharmacy: a scoping review Academic Article
Spousal caregiving following institutionalization: the experience of elderly wives Academic Article
Stakeholder Involvement: How to Do It Right Academic Article
Strategies for Reducing the Risk of Respiratory Syncytial Virus Infection in Infants and Young Children: A Canadian Nurses’ Perspective Academic Article
Stroke Survivor Depressive Symptoms Are Associated With Family Caregiver Depression During the First 2 Years Poststroke Academic Article
Stroke Survivors’ Behavioral and Psychologic Symptoms Are Associated With Informal Caregivers’ Experiences of Depression Academic Article
Stroke rehabilitation: availability of a family member as caregiver and discharge destination. Academic Article
Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health Academic Article
Study protocol: pragmatic randomized control trial of an internet-based intervention (My tools 4 care) for family carers Academic Article
Study protocol: pragmatic randomized control trial of my tools 4 care- in care (MT4C-in care) a web-based tool for family Carers of persons with dementia residing in long term care Academic Article
Successful Linkage Between Formal and Informal Care Systems Academic Article
Supporting Children With Neurodevelopmental Disorders During the COVID-19 Pandemic Academic Article
Survivor focus groups: a quality assurance technique Academic Article
Swallowing Impairments Increase Emotional Burden in Spousal Caregivers of Older Adults Academic Article
THE EXPERIENCE OF PROVIDING CARE TO RELATIVES WITH CHRONIC MENTAL ILLNESS Academic Article
THE INFLUENCE OF INCOME ON THE EXPERIENCE OF INFORMAL CAREGIVING: POLICY IMPLICATIONS Academic Article
Ten questions: Developmentally appropriate support for pediatric testing in young children—How you can help Academic Article
The ACHRU-CPP versus usual care for older adults with type-2 diabetes and multiple chronic conditions and their family caregivers: study protocol for a randomized controlled trial Academic Article
The Caregiver Contribution to Heart Failure Self-Care (CACHS): Further Psychometric Testing of a Novel Instrument Academic Article
The CaregiverVoice Survey: A Pilot Study Surveying Bereaved Caregivers To Measure the Caregiver and Patient Experience at End of Life Academic Article
The Dutch Objective Burden Inventory: Validity and Reliability in a Canadian Population of Caregivers for People with Heart Failure Academic Article
The Experience of Hope for Informal Caregivers of Palliative Patients Academic Article
The Health and Well-Being of Caregivers of Children With Cerebral Palsy Academic Article
The Health of Primary Caregivers of Children With Cerebral Palsy: How Does It Compare With That of Other Canadian Caregivers? Academic Article
The Measurement of Uncertainty in Caregivers of Patients With Heart Failure Academic Article
The Nature, Value, and Experience of Engagement in Pediatric Rehabilitation: Perspectives of Youth, Caregivers, and Service Providers Academic Article
The Role of Caregiver Involvement in Upper-Limb Treatment in Individuals With Subacute Stroke Academic Article
The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making Academic Article
The Use of the Diary as a Data Collection Technique Academic Article
The Zarit Burden Interview Academic Article
The association between caregiver well-being and care provided to persons with Alzheimer’s disease and related disorders Academic Article
The care experiences of patients who die in residential hospice: A qualitative analysis of the last three months of life from the views of bereaved caregivers Academic Article
The clinical effectiveness and cost-effectiveness of clinical nurse specialist-led hospital to home transitional care: a systematic review Academic Article
The complexities and synergies of engagement: an ethnographic study of engagement in outpatient pediatric rehabilitation sessions Academic Article
The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire Academic Article
The effect of the Talking Diabetes consulting skills intervention on glycaemic control and quality of life in children with type 1 diabetes: cluster randomised controlled trial (DEPICTED study) Academic Article
The experiences and needs of people seeking palliative health care out-of-hours: a qualitative study Academic Article
The experiences of people living with HIV/AIDS and of their direct informal caregivers in a resource‐poor setting Academic Article
The forgotten people in British public health: a national neglect of the dying, bereaved and caregivers Academic Article
The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders Academic Article
The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders Academic Article
The impact of staging bipolar disorder on treatment outcome of family psychoeducation Academic Article
The impact of transitional care programs on health services utilization among community-dwelling older adults and their caregivers Academic Article
The influence of caregiver singing and background music on vocally expressed emotions and moods in dementia care Academic Article
The influence of culture on home-based family caregiving at end-of-life: A case study of Dutch reformed family care givers in Ontario, Canada Conference Paper
The influence of swallowing impairments as an independent risk factor for burden among caregivers of aging parents: A cross-sectional study Academic Article
The information transfer and knowledge acquisition geographies of family caregivers: an analysis of Canada's Compassionate Care Benefit. Academic Article
The relational dynamics of caregivers of patients with a left ventricular assist device for destination-therapy: A qualitative investigation Academic Article
The relationship between caregivers’ perceptions of end-of-life care in long-term care and a good resident death Academic Article
The role of unregulated care providers in Canada-A scoping review Academic Article
The supportive care needs of family members of men with advanced prostate cancer Academic Article
The youth report version of the C hild and A dolescent S cale of P articipation ( CASP ): assessment of psychometric properties and comparison with parent report Academic Article
Tracheostomy care: Clinical practice patterns of pediatric otolaryngologists-head and neck surgeons in a publicly funded (Canadian) health care system Academic Article
Trajectories of Maltreatment Re-Reports From Ages 4 to 12: Academic Article
Trajectory of psychosocial symptoms among home care patients with cancer at end‐of‐life Academic Article
Transitioning From Hospital to Palliative Care at Home: Patient and Caregiver Perceptions of Continuity of Care Academic Article
Transitions to Long-Term Care Academic Article
Uncertainty and Alternate Level of Care: A Narrative Study of the Older Patient and Family Caregiver Experience Academic Article
Understanding Engagement in Home-Based Interactive Computer Play: Perspectives of Children With Unilateral Cerebral Palsy and Their Caregivers Academic Article
Understanding burden differences between men and women caregivers: the contribution of care-recipient problem behaviors Academic Article
Understanding optimal approaches to patient and caregiver engagement in the development of cancer practice guidelines: a mixed methods study Academic Article
Understanding the Influence of the Complex Relationships among Informal and Formal Supports on the Well-Being of Caregivers of Persons with Dementia Academic Article
Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer Academic Article
Unsettling Knowledge Synthesis Methods Using Institutional Ethnography: Reflections on the Scoping Review as a Critical Knowledge Synthesis Tool Academic Article
Use of home telehealth in palliative cancer care: a case study Academic Article
Using Best–Worst Scaling to Measure Caregiver Preferences for Managing their Child’s ADHD: A Pilot Study Academic Article
Using Occupations to Improve Quality of Life, Health and Wellness, and Client and Caregiver Satisfaction for People With Alzheimer's Disease and Related Dementias Academic Article
Using focus groups to explore caregiver transitions and needs after placement of family members living with dementia in 24-hour care homes Academic Article
Using the life course perspective to study the entry into the illness trajectory: The perspective of caregivers of people with Alzheimer's disease Academic Article
Web-Based Intervention for Family Carers of Persons with Dementia and Multiple Chronic Conditions (My Tools 4 Care): Pragmatic Randomized Controlled Trial Academic Article
Web-Based Interventions to Improve Mental Health, General Caregiving Outcomes, and General Health for Informal Caregivers of Adults With Chronic Conditions Living in the Community: Rapid Evidence Review Academic Article
What Does Death Preparedness Mean for Family Caregivers of Persons With Dementia? Academic Article
What Makes Family Caregivers Happy During the First 2 Years Post Stroke? Academic Article
What about dads? An exploratory analysis of depressive symptoms in paternal primary caregivers of children with epilepsy Academic Article
What type of survey research questions are identified by adults as upsetting? A focus on child maltreatment Academic Article
Withdrawal of Mechanical Ventilation Academic Article
Witnessed violence and youth behavior problems: A multi‐informant study. Academic Article
‘He does not see himself as being different’: the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy Academic Article
“It brought hope and peace in my heart:” Caregivers perceptions on kangaroo mother care services in Malawi Academic Article
“Live It to Understand It” Academic Article
“This is my way”: reimagining disability, in/dependence and interconnectedness of persons and assistive technologies Academic Article
“Who would want to die like that?” Perspectives on dying alone in a long-term care setting Academic Article

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