Journal article
SUDEP: Living with the knowledge
Abstract
OBJECTIVE: To understand how knowledge of sudden unexpected death in epilepsy (SUDEP) impacted the lives of adult persons with epilepsy (PWE) and primary caregivers of both adults and children with epilepsy.
METHODS: The principles of fundamental qualitative description guided this descriptive and exploratory qualitative study to document patients' and caregivers' perceptions and experiences. A purposeful sample of individuals (18 years or …
Authors
Whitney R; Strohm S; Jeffs T; Jones KC; Jack SM; RamachandranNair R
Journal
Epilepsy Research, Vol. 194, ,
Publisher
Elsevier
Publication Date
August 2023
DOI
10.1016/j.eplepsyres.2023.107177
ISSN
0920-1211