Journal article
Core Outcome Domains for Trials in Autosomal Dominant Polycystic Kidney Disease: An International Delphi Survey
Abstract
RATIONALE & OBJECTIVE: Outcomes reported in trials involving patients with autosomal dominant polycystic kidney disease (ADPKD) are heterogeneous and rarely include patient-reported outcomes. We aimed to identify critically important consensus-based core outcome domains to be reported in trials in ADPKD.
STUDY DESIGN: An international 2-round online Delphi survey was conducted in English, French, and Korean languages.
Authors
Cho Y; Rangan G; Logeman C; Ryu H; Sautenet B; Perrone RD; Nadeau-Fredette A-C; Mustafa RA; Htay H; Chonchol M
Journal
American Journal of Kidney Diseases, Vol. 76, No. 3, pp. 361–373
Publisher
Elsevier
Publication Date
September 2020
DOI
10.1053/j.ajkd.2020.01.005
ISSN
0272-6386
Associated Experts
Fields of Research (FoR)
Sustainable Development Goals (SDG)
Medical Subject Headings (MeSH)
AdolescentAdultAfricaAgedAsiaCaregiversChildConsensusDelphi TechniqueFemaleHealth PersonnelHumansIntracranial AneurysmKidney Failure, ChronicMaleMiddle AgedPainPatient Reported Outcome MeasuresPatientsPolycystic Kidney, Autosomal DominantQualitative ResearchQuality of LifeSelf ConceptSocioeconomic FactorsStress, PsychologicalYoung Adult