Patient Reported Outcome Measures
Concept
Vocabulary Service
Overview
subject area of
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A Call for a Standardized Approach to Reporting Patient-Reported Outcome Measures Journal Articles
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A Catalyst for Transforming Health Systems and Person-Centred Care: Canadian National Position Statement on Patient-Reported Outcomes Journal Articles
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A Prognostic Survival Model Incorporating Patient-Reported Outcomes for Transplant-Ineligible Patients With Multiple Myeloma Journal Articles
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A Standard Set for Outcome Measurement in Patients With Hand and Wrist Conditions: Consensus by the International Consortium for Health Outcomes Measurement Hand and Wrist Working Group Journal Articles
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A Systematic Review and Quality Assessment of Cardiovascular Disease-Specific Health-Related Quality-of-Life Instruments Part I: Instrument Development and Content Validity Journal Articles
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A cluster randomized controlled trial for the Evaluation of routinely Measured PATient reported outcomes in HemodialYsis care (EMPATHY): a study protocol Journal Articles
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A comparative performance analysis of the International Classification of Functioning, Disability and Health and the Item-Perspective Classification framework for classifying the content of patient reported outcome measures Journal Articles
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A narrative review and content analysis of functional and quality of life measures used to evaluate the outcome after TSA: an ICF linking application Journal Articles
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A systematic survey identified methodological issues in studies estimating anchor-based minimal important differences in patient-reported outcomes Journal Articles
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ASPECTS OF PATIENT REPORTED OUTCOMES IN RARE DISEASES: A DISCUSSION PAPER Journal Articles
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Acceptability and Validity of the EQ-5D in Patients Living With Dementia Journal Articles
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Acupuncture treatment for knee osteoarthritis with sensitive points: protocol for a multicentre randomised controlled trial Journal Articles
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Addition of anti-thymocyte globulin to standard graft-versus-host disease prophylaxis versus standard treatment alone in patients with haematological malignancies undergoing transplantation from unrelated donors: final analysis of a randomised, open-label, multicentre, phase 3 trial Journal Articles
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Ambulatory Toxicity Management (AToM) in patients receiving adjuvant or neo-adjuvant chemotherapy for early stage breast cancer - a pragmatic cluster randomized trial protocol Journal Articles
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An extension minimal important difference credibility item addressing construct proximity is a reliable alternative to the correlation item Journal Articles
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An international study to develop the EAR-Q patient-reported outcome measure for children and young adults with ear conditions Journal Articles
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Anterior cruciate ligament reconstruction with concomitant meniscal surgery: a systematic review and meta-analysis of outcomes Journal Articles
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Application of minimal important differences in degenerative knee disease outcomes: a systematic review and case study to informBMJRapid Recommendations Journal Articles
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Applying Computerized Adaptive Testing to the FACE-Q Skin Cancer Module: Individualizing Patient-Reported Outcome Measures in Facial Surgery Journal Articles
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Assessing quality of life of patients with hypospadias: A systematic review of validated patient-reported outcome instruments Journal Articles
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Assessing the Implementation and Effectiveness of the Electronic Patient-Reported Outcome Tool for Older Adults With Complex Care Needs: Mixed Methods Study Journal Articles
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Assessing the content based on ICF and quality based on COSMIN criteria of patient-reported outcome measures of functioning in breast cancer survivors: a systematic review Journal Articles
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Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review Journal Articles
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Association of patient, treatment and disease characteristics with patient‐reported outcomes: Results of the ECHO Registry Journal Articles
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BODY-Q patient-reported outcomes measure (PROM) to assess sleeve gastrectomy vs. Roux-en-Y gastric bypass: eating behavior, eating-related distress, and eating-related symptoms Journal Articles
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Baseline Patient-reported Symptoms Less Predictive Than MM-SES-CD for Endoscopic Remission in Crohn’s Disease Journal Articles
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Best Practices for BREAST-Q Research: A Systematic Review of Study Methodology Journal Articles
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Body Contouring Surgery After Bariatric Surgery Improves Long-Term Health-Related Quality of Life and Satisfaction With Appearance Journal Articles
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Bone Versus All Soft Tissue Quadriceps Tendon Autografts for Anterior Cruciate Ligament Reconstruction: A Systematic Review Journal Articles
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Breast Cancer and Reconstruction: Normative Data for Interpreting the BREAST-Q Journal Articles
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CLEFT-Q: Detecting Differences in Outcomes among 2434 Patients with Varying Cleft Types Journal Articles
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CORR Insights®: How Much Perioperative Pain and Dysfunction Underlie the HOOS JR and KOOS JR? Journal Articles
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Causal pathways to health-related quality of life in children with juvenile idiopathic arthritis: results from the ReACCh-Out cohort Conferences
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Challenges in virtual collection of patient-reported data: a prospective cohort study conducted in COVID-19 era Journal Articles
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Changes in biomechanical risk factors for knee osteoarthritis and their association with 5-year clinically important improvement after limb realignment surgery Journal Articles
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Changing trends in the use of cartilage restoration techniques for the patellofemoral joint: a systematic review Journal Articles
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Child- and Parent-Reported Health: The Rashōmon Effect of Multiple Realities Journal Articles
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Clinical Outcomes After Anterior Cruciate Ligament Injury: Panther Symposium ACL Injury Clinical Outcomes Consensus Group Conferences
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Clinical Outcomes in Atrial Fibrillation Research Journal Articles
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Clinical Significance Unveiled: Understanding the Meaning of FACE-Q Skin Cancer Scores for Improved Patient Care. Journal Articles
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Clinical classes of injured workers with chronic low back pain: a latent class analysis with relationship to working status Journal Articles
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Clinical outcomes after anterior cruciate ligament injury: panther symposium ACL injury clinical outcomes consensus group Journal Articles
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Clinimetrics: Single Assessment Numeric Evaluation Journal Articles
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Combining volunteers and primary care teamwork to support health goals and needs of older adults: a pragmatic randomized controlled trial Journal Articles
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Communicating Gastrointestinal Symptoms: The Patient’s Challenge Journal Articles
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Comparison of Patient-Reported Outcome Measures for Use as Performance Metrics in Adolescent and Young Adult Psychosocial Cancer Care Journal Articles
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Comparison of the EQ-5D-5L and the patient-reported outcomes measurement information system preference score (PROPr) in the United States Journal Articles
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Comparison of the Moorehead‐Ardelt quality of life questionnaire and the BODY‐Q in Danish patients undergoing weight loss and body contouring surgery Journal Articles
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Comparison of upper extremity lymphedema after sentinel lymph node biopsy and axillary lymph node dissection: patient-reported outcomes in 3044 patients Journal Articles
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Computerised adaptive testing accurately predicts CLEFT-Q scores by selecting fewer, more patient-focused questions Journal Articles
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Content Analysis of Patient-Reported Outcome Measures Used in Patients With Nail Conditions Journal Articles
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Content Validity of Patient-Reported Outcome Instruments used with Pediatric Patients with Facial Differences Journal Articles
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Content Validity of the LIMB-Q: A Patient-Reported Outcome Instrument for Lower Extremity Trauma Patients Journal Articles
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Core Outcome Domains for Trials in Autosomal Dominant Polycystic Kidney Disease: An International Delphi Survey Journal Articles
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Correlation Between Financial Toxicity, Quality of Life, and Patient Satisfaction in an Insured Population of Breast Cancer Surgical Patients: A Single-Institution Retrospective Study Journal Articles
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Cross cultural adaptation and refinement of an English version of a Dutch patient-reported questionnaire for hand sensitivity: The Radboud Evaluation of Sensitivity Journal Articles
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Cross-sectional validation of the PROMIS-Preference scoring system Journal Articles
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Current state of quality of life and patient-reported outcomes research Journal Articles
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Determinants of change in home participation among critically ill children Journal Articles
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Determining Construct Validity of a Patient-Reported Outcome Measure for Birthmarks on the Face and Body Journal Articles
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Determining the Independent Risk Factors for Worse SCAR-Q Scores and Future Scar Revision Surgery Journal Articles
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Deutschsprachige Validierung des Body-Q – standardisiertes
PRO-Messinstrument nach bariatrischen und körperformenden
Eingriffen Journal Articles
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Developing a short-form version of the HIV Disability Questionnaire (SF-HDQ) for use in clinical practice: a Rasch analysis Journal Articles
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Development and Preliminary Validation of the KOOS-ACL: A Short Form Version of the KOOS for Young Active Patients With ACL Tears Journal Articles
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Development and Psychometric Validation of a Patient-Reported Outcome Measure for Arm Lymphedema: The LYMPH-Q Upper Extremity Module Journal Articles
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Development and Validation of a Nipple-Specific Scale for the BREAST-Q to Assess Patient-Reported Outcomes following Nipple-Sparing Mastectomy Journal Articles
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Development and Validation of a Prognostic Survival Model With Patient-Reported Outcomes for Patients With Cancer Journal Articles
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Development and assessment of a verbal response scale for the Patient-Specific Functional Scale (PSFS) in a low-literacy, non-western population Journal Articles
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Development and persistence of patient-reported visual problems associated with serotonin reuptake inhibiting antidepressants Journal Articles
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Development and usability testing of HEARTPA♀N: protocol for a mixed methods strategy to develop an integrated smartphone and web-based intervention for women with cardiac pain Journal Articles
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Development and validation of a patient‐reported outcome measure for hair loss treatment: The HAIR‐Q Journal Articles
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Development of a Core Outcome Set for Studies on Cardiac Disease in Pregnancy (COSCarP): a study protocol Journal Articles
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Development of a New Module of the FACE-Q for Children and Young Adults with Diverse Conditions Associated with Visible and/or Functional Facial Differences Journal Articles
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Development of a new patient‐reported outcome measure to evaluate treatments for acne and acne scarring: the
ACNE
‐Q Journal Articles
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Development of an international standard set of outcome measures for patients with atrial fibrillation: a report of the International Consortium for Health Outcomes Measurement (ICHOM) atrial fibrillation working group Journal Articles
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Development of an international standard set of outcome measures for patients with venous thromboembolism: an International Consortium for Health Outcomes Measurement consensus recommendation Journal Articles
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Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process Journal Articles
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Development of the BODY-Q Chest Module Evaluating Outcomes following Chest Contouring Surgery Journal Articles
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Development of the Canadian COVID-19 Emergency Department Rapid Response Network population-based registry: a methodology study Journal Articles
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Disease-specific Preference-based Measure of Glaucoma Health States: HUG-5 Psychometric Validation Journal Articles
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Editorial Commentary: Standardized Evaluation of Cartilage Damage and Restoration in Hip Arthroscopy Requires Consideration of Clinical, Imaging, and Patient-Reported Outcomes Journal Articles
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Effect of Medial Soft Tissue Releases During Posterior-Stabilized Total Knee Arthroplasty on Contact Kinematics and Patient-Reported Outcomes Journal Articles
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Effect of an e-Learning Tool on Expectations and Satisfaction Following Total Knee Arthroplasty: A Randomized Controlled Trial Journal Articles
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Effect of patient‐centered transitional care services on patient‐reported outcomes in heart failure: sex‐specific analysis of the PACT‐HF randomized controlled trial Journal Articles
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End of Induction Patient-reported Outcomes Predict Clinical Remission but Not Endoscopic Remission in Crohn’s Disease Journal Articles
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End of induction patient reported outcomes predict clinical remission and endoscopic improvement with vedolizumab and adalimumab in ulcerative colitis Journal Articles
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Engaging the Voices of Children: A Scoping Review of How Children and Adolescents Are Involved in the Development of Quality-of-Life–Related Measures Journal Articles
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English Translation and Cultural Adaptation of the Knee Numeric-Entity Evaluation Score (KNEES-ACL): A Condition-Specific Patient-Reported Outcome Measure for Anterior Cruciate Ligament Injuries. Journal Articles
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Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States Journal Articles
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Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities Journal Articles
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Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities. Conferences
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Establishing content validity of an orthodontic subset of the FACE‐Q Craniofacial Module in children and young adults with malocclusion Journal Articles
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Establishing the psychometric properties of 2 self-reported outcome measures of elbow pain and function: A systematic review Journal Articles
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Estimation of a Preference-Based Summary Score for the Patient-Reported Outcomes Measurement Information System: The PROMIS®-Preference (PROPr) Scoring System Journal Articles
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Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research Journal Articles
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Evaluating the content validity of generic preference-based measures for use in Parkinson's disease Journal Articles
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Evaluating the credibility of anchor based estimates of minimal important differences for patient reported outcomes: instrument development and reliability study Journal Articles
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Evaluation of options for presenting health-states from PROMIS® item banks for valuation exercises Journal Articles
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Evaluation of the content validity index of the Australian/Canadian osteoarthritis hand index, the patient-rated wrist/hand evaluation and the thumb disability exam in people with hand arthritis Journal Articles
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Evidence of a disability paradox in patient‐reported outcomes in haemophilia Journal Articles
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Exploring patient-reported barriers to advance care planning in family practice Journal Articles
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Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study Journal Articles
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Exploring the perspectives of primary care providers on use of the electronic Patient Reported Outcomes tool to support goal-oriented care: a qualitative study Journal Articles
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Extracting big data from the internet to support the development of a new patient-reported outcome measure for breast implant illness: a proof of concept study Conferences
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FACE-Q Craniofacial Module: Part 1 validation of CLEFT-Q scales for use in children and young adults with facial conditions Journal Articles
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FACE-Q Skin Cancer Module for measuring patient-reported outcomes following facial skin cancer surgery Journal Articles
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FACE-Q craniofacial module: Part 2 Psychometric properties of newly developed scales for children and young adults with facial conditions Journal Articles
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FDA ovarian cancer clinical trial endpoints workshop: A Society of Gynecologic Oncology White Paper Journal Articles
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Factors associated with additional anterior cruciate ligament reconstruction and register comparison: a systematic review on the Scandinavian knee ligament registers Journal Articles
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Factors that affect patient reported outcome after anterior cruciate ligament reconstruction–a systematic review of the Scandinavian knee ligament registers Journal Articles
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Fatigue and endocrine symptoms among women with early breast cancer randomized to endocrine versus chemoendocrine therapy: Results from the TAILORx patient‐reported outcomes substudy Journal Articles
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Feasibility and Construct Validation of the Patient Reported Outcomes Measurement Information System in Systemic Vasculitis Journal Articles
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Feasibility of collecting longitudinal patient-reported outcomes in individuals with relapsed or refractory large B-cell lymphoma who received chimeric antigen receptor T-cell (CART) therapy Journal Articles
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Feasibility, Reliability, Responsiveness, and Validity of the Patient-Reported Functional Scale for the Intensive Care Unit: A Pilot Study Journal Articles
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Femoroacetabular impingement surgery leads to early pain relief but minimal functional gains past 6 months: experience from the FIRST trial Journal Articles
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Five-Year Patient-Reported Outcomes in NRG Oncology RTOG 0938, Evaluating Two Ultrahypofractionated Regimens for Prostate Cancer Journal Articles
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Fixation using Alternative Implants for the Treatment of Hip Fractures (FAITH-2): The Exploratory Health-Related Quality of Life and Patient-Reported Functional Outcomes of a Multi-Centre 2 × 2 Factorial Randomized Controlled Pilot Trial in Young Femoral Neck Fracture Patients Journal Articles
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French translation and linguistic validation of a new Patient Reported Outcome instrument: the BODY-Q: A description of the process. Journal Articles
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Further construct validation of the CLEFT-Q: Ability to detect differences in outcome for four cleft-specific surgeries Journal Articles
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Further psychometric evaluation of the WOUND‐Q: A responsiveness study Journal Articles
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Further psychometric validation and test–retest reproducibility of the WOUND‐Q Journal Articles
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Further psychometric validation of the BODY-Q: ability to detect change following bariatric surgery weight gain and loss Journal Articles
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Gender and age make no difference in the re-irradiation of painful bone metastases: A secondary analysis of the NCIC CTG SC.20 randomized trial Journal Articles
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Gender differences in pain and patient reported outcomes: a secondary analysis of the NCIC CTG SC. 23 randomized trial Journal Articles
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General population normative scores for interpreting the BODY‐Q Journal Articles
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Giving Meaning to Differences in BREAST-Q Scores: Minimal Important Difference for Breast Reconstruction Patients Journal Articles
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Good 5-year outcomes after arthroscopic treatment for femoroacetabular impingement syndrome Journal Articles
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Health Equity Considerations for Developing and Reporting Patient-reported Outcomes in Clinical Trials: A Report from the OMERACT Equity Special Interest Group Journal Articles
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High rates of return to sport following management of osteochondritis dissecans of the femoral trochlea: A systematic review Journal Articles
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How the Routine Use of Patient-Reported Outcome Measures for Hemodialysis Care Influences Patient-Clinician Communication Journal Articles
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Identifying Factors Most Important to Lower Extremity Trauma Patients: Key Concepts from the Development of a Patient-Reported Outcome Instrument for Lower Extremity Trauma, The LIMB-Q Journal Articles
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Identifying changes in gait waveforms following a strengthening intervention for women with knee osteoarthritis using principal components analysis Journal Articles
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Identifying patient-important outcomes in medication-assisted treatment for opioid use disorder patients: a systematic review protocol Journal Articles
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Impact of Completing CLEFT-Q Scales That Ask About Appearance on Children and Young Adults: An International Study Journal Articles
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Impact of Completing FACE-Q Craniofacial Module Scales on Children and Young Adults with Facial Differences: An International Study Conferences
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Impact of Risk Adjustment on Provider Ranking for Patients With Low Back Pain Receiving Physical Therapy Journal Articles
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Implementation of an electronic prospective surveillance model for cancer rehabilitation: a mixed methods study protocol. Journal Articles
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Implementing Electronic Patient-Reported Outcome Measures in Outpatient Cosmetic Surgery Clinics: An Exploratory Qualitative Study Journal Articles
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Implementing a Patient-Reported Outcome Measure for Hemodialysis Patients in Routine Clinical Care Conferences
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Important questions for the malignant hematologist to consider when designing or evaluating a study with patient‐reported outcome measures (PROMs) Journal Articles
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Improvement in pain and patient-related outcome measures following hip arthroscopy in patients with femoroacetabular impingement syndrome and concomitant generalized ligamentous laxity: a systematic review Journal Articles
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Incorporating Fecal Calprotectin Into Clinical Practice for Patients With Moderate-to-Severely Active Ulcerative Colitis Treated With Biologics or Small-Molecule Inhibitors Journal Articles
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Incorporating patient centered benefits as endpoints in randomized trials of maintenance therapies in advanced ovarian cancer: A position paper from the GCIG symptom benefit committee Journal Articles
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Insufficient evidence of superiority of any restorative technique for primary teeth over another regarding anxiety, pain, and oral health–related quality of life Journal Articles
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Integration of patient-reported outcomes (PROs) for personalized symptom management in “real-world” oncology practices: a population-based cohort comparison study of impact on healthcare utilization Journal Articles
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Internal lumbar disc derangement with instability catch from monosegmental discopathy. The forgotten mechanical and kinetic surgical back pain syndrome Journal Articles
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International mixed methods study protocol to develop a patient-reported outcome measure for all types of chronic wounds (the WOUND-Q) Journal Articles
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International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome and experience measure for hand conditions (HAND-Q) Journal Articles
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International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome instrument for children and young adults with cleft lip and/or palate (CLEFT-Q) Journal Articles
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International multiphase mixed methods study protocol to develop a patient-reported outcome instrument for children and adolescents with lower limb deformities Journal Articles
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International phase I study protocol to develop a patient-reported outcome measure for adolescents and adults receiving gender-affirming treatments (the GENDER-Q) Journal Articles
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International study to develop the WOUND‐Q patient‐reported outcome measure for all types of chronic wounds Journal Articles
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Interpretation and content validity of the items of the numeric rating version short-WORC to evaluate outcomes in management of rotator cuff pathology: a cognitive interview approach Journal Articles
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Interpreting Patient-Reported Outcome Measures in Orthopaedic Surgery Journal Articles
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Interpreting the BREAST-Q for Breast-Conserving Therapy: Minimal Important Differences and Clinical Reference Values Journal Articles
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Introducing BREAST-Q Computerized Adaptive Testing: Short and Individualized Patient-Reported Outcome Assessment following Reconstructive Breast Surgery Journal Articles
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Introduction and methods of the evidence-based guidelines for the diagnosis and management of autism spectrum disorder by the Italian National Institute of Health Journal Articles
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Iterative qualitative approach to establishing content validation of a patient-reported outcome measure for arm lymphedema: the LYMPH-Q Upper Extremity Module Journal Articles
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Ixekizumab improves patient-reported outcomes in patients with active psoriatic arthritis and inadequate response to tumour necrosis factor inhibitors: SPIRIT-P2 results to 52 weeks. Journal Articles
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Knee Flexion Angle During Graft Fixation for Medial Patellofemoral Ligament Reconstruction: A Systematic Review of Outcomes and Complications Journal Articles
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Letter to the Editor: Comment on Sinnott CJ, et al. Female Genital Cosmetic Surgery Requires a New Rigorously Developed Patient Reported Outcome Measure (Ann Plast Surg. 2020;85(S1)) Journal Articles
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Leveraging patient‐reported outcomes data to inform oncology clinical decision making: Introducing the FACE‐Q Head and Neck Cancer Module Journal Articles
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Limitations in systematic review comparing the outcomes of single implant mandibular overdentures with complete conventional dentures render it unuseful in making clinical decisions Journal Articles
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Limited responsiveness related to the minimal important difference of patient-reported outcomes in rare diseases Journal Articles
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MONOCRYL and DERMABOND vs Staples in Total Hip Arthroplasty Performed Through a Lateral Skin Incision: A Randomized Controlled Trial Using a Patient-Centered Assessment Tool Journal Articles
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Management and Complications in Nonoperative Fractures of the Tibial Spine: A Systematic Review Journal Articles
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Meaningful Change Estimates for the Late-Life Function and Disability Instrument in Older Adults Journal Articles
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Measurement Properties of the Hand Grip Strength Assessment: A Systematic Review With Meta-analysis Journal Articles
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Measuring Outcomes in Cosmetic Abdominoplasty Journal Articles
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Measuring Patient-Reported Outcomes in Rhinoplasty Using the FACE-Q: A Single Site Study Journal Articles
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Measuring Patient-Reported Outcomes: Key Metrics in Reconstructive Surgery Journal Articles
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Meniscal repair at the time of primary ACLR does not negatively influence short term knee stability, graft rupture rates, or patient-reported outcome measures: the STABILITY experience Journal Articles
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Mepitel Film and Mepilex Lite for the prophylaxis and treatment of skin toxicities from breast radiation Journal Articles
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Methods for shortening patient-reported outcome measures Journal Articles
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Mind the methods of determining minimal important differences: three critical issues to consider Journal Articles
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Minimal Detectable Changes of the Health Assessment Questionnaire-Disability Index, Patient-Reported Outcomes Measurement Information System-29 Profile Version 2.0 Domains, and Patient Health Questionnaire-8 in People With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Cross-Sectional Study. Journal Articles
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Minimal important difference estimates for patient-reported outcomes: A systematic survey Journal Articles
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Minimal important differences for improvement in shoulder condition patient-reported outcomes: a systematic review to inform aBMJRapid Recommendation Journal Articles
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Minimally Important Differences in Patient or Proxy-Reported Outcome Studies Relevant to Children: A Systematic Review Journal Articles
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Montreal Accord on Patient-Reported Outcomes (PROs) use series–Paper 7: modern perspectives of measurement validation emphasize justification of inferences based on patient reported outcome scores Journal Articles
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Motivation and attitudes toward changing health (MATCH): A new patient-reported measure to inform clinical conversations Journal Articles
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Multimorbidity Frameworks Impact Prevalence and Relationships with Patient‐Important Outcomes Journal Articles
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Neighborhood Deprivation and Rurality Associated With Patient-Reported Outcomes and Survival in Men With Prostate Cancer in NRG Oncology RTOG 0415 Journal Articles
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Normative Data for Interpreting the BREAST-Q: Augmentation Journal Articles
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Obesity in Pregnancy – Patient-Reported Outcomes in Qualitative Research: A Systematic Review Journal Articles
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Optimising the computerised adaptive test to reliably reduce the burden of administering the CLEFT-Q: A Monte Carlo simulation study Journal Articles
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Outcome Evaluation in Tendinopathy: Foundations of Assessment and a Summary of Selected Measures Journal Articles
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Outcomes After Hip Arthroscopy Show No Differences Between Sexes: A Systematic Review Journal Articles
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PATIENT-REPORTED OUTCOMES IN RARE LYSOSOMAL STORAGE DISEASES: KEY INFORMANT INTERVIEWS AND A SYSTEMATIC REVIEW PROTOCOL Journal Articles
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PaTH Forward: A Randomized, Double-Blind, Placebo-Controlled Phase 2 Trial of TransCon PTH in Adult Hypoparathyroidism Journal Articles
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Patient Reported Outcomes After Radiation Therapy for Bone Metastases as a Function of Age: A Secondary Analysis of the NCIC CTG SC—Twenty-Three Randomized Trial Journal Articles
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Patient Reported Outcomes in NRG Oncology RTOG 0938, Evaluating Two Ultrahypofractionated Regimens for Prostate Cancer Journal Articles
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Patient factors associated with cancer worry post-breast reconstruction: A cross-sectional study Journal Articles
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Patient factors associated with novel EAR-Q appearance, psychosocial, and social scales: A cross-sectional study and regression analysis Journal Articles
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Patient perspectives in pediatric neurology: a critical shift in the paradigm of outcome measurement Journal Articles
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Patient reported outcome measures in clinical trials should be initially analyzed as continuous outcomes for statistical significance and responder analyses should be reserved as secondary analyses Journal Articles
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Patient reported symptom burden amongst immigrant and Canadian long-term resident women undergoing breast cancer surgery Journal Articles
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Patient- and Health-Care-Provider-Reported Outcomes to Consider in Research on Pregnancy-Associated Venous Thromboembolism Journal Articles
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Patient-Reported Outcome Instruments for Surgical and Traumatic Scars: A Systematic Review of their Development, Content, and Psychometric Validation Journal Articles
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Patient-Reported Outcome Measures Journal Articles
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Patient-Reported Outcome Measures Used for Neck Disorders: An Overview of Systematic Reviews Journal Articles
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Patient-Reported Outcome Measures in Cancer Care Journal Articles
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Patient-Reported Outcome Measures in Cardiovascular Disease: An Evidence Map of the Psychometric Properties of Health Status Instruments Journal Articles
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Patient-Reported Outcome Measures in Chronic Spontaneous Urticaria, Angioedema, and Atopic Dermatitis. Journal Articles
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Patient-Reported Outcome Measures in Gender-Affirming Surgery Journal Articles
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Patient-Reported Outcome Measures in Lymphedema: A Systematic Review and COSMIN Analysis Journal Articles
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Patient-Reported Outcomes 1 Year After Immediate Breast Reconstruction: Results of the Mastectomy Reconstruction Outcomes Consortium Study Journal Articles
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Patient-Reported Outcomes and Endoscopic Appearance of Ulcerative Colitis: A Systematic Review and Meta-analysis Journal Articles
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Patient-Reported Outcomes in Weight Loss and Body Contouring Surgery: A Cross-Sectional Analysis Using the BODY-Q Journal Articles
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Patient-important outcomes reported in randomized controlled trials of pharmacologic treatments for COVID-19: a protocol of a META-epidemiological study Journal Articles
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Patient-reported Benefits and Limitations of Mobile Health Technologies for Diabetes in Pregnancy: A Scoping Review Journal Articles
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Patient-reported Quality of Life following Stereotactic Body Radiation Therapy for Primary Kidney Cancer – Results from a Prospective Cohort Study Journal Articles
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Patient-reported long-term quality of life after tisagenlecleucel in relapsed/refractory diffuse large B-cell lymphoma Journal Articles
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Patient-reported outcome measures are associated with health care utilization in patients with transplant ineligible multiple myeloma: a population-based study Journal Articles
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Patient-reported outcome measures for medication treatment satisfaction: a systematic review of measure development and measurement properties. Journal Articles
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Patient-reported outcome measures for pain in autosomal dominant polycystic kidney disease: A systematic review Journal Articles
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Patient-reported outcome measures for patients with nail conditions: a systematic review of the psychometric evidence Journal Articles
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Patient-reported outcome measures used for shoulder disorders: An overview of systematic reviews Journal Articles
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Patient-reported outcomes measures used in facial vascularized composite allotransplantation: A systematic literature review Journal Articles
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Patient-reported predictors of early treatment discontinuation: treatment-related symptoms and health-related quality of life among postmenopausal women with primary breast cancer randomized to anastrozole or exemestane on NCIC Clinical Trials Group (CCTG) MA.27 (E1Z03) Journal Articles
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Patient-reported quality of life and biopsychosocial health outcomes in pediatric epilepsy: An update for healthcare providers Journal Articles
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Patient-reported symptoms following mastectomy alone or lumpectomy plus radiation for early stage breast cancer: a cohort study Journal Articles
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Patient-reported, health economic and psychosocial outcomes in patients with Friedreich ataxia (PROFA): protocol of an observational study using momentary data assessments via mobile health app Journal Articles
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Patient‐Reported Outcomes and Patient‐Reported Experience of Patients With Atrial Fibrillation in the IMPACT‐AF Clinical Trial Journal Articles
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Patient‐reported experience measures are essential to improving quality of care for chronic wounds: An international qualitative study Journal Articles
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Patient‐reported experiences of consultation with an advanced nurse practitioner: Factor structure and reliability analysis of the patient enablement and satisfaction survey Journal Articles
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Patient‐reported fatigue refines prognosis in higher‐risk myelodysplastic syndromes (MDS): a MDS‐CAN study Journal Articles
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Patient‐reported outcome measures and patient engagement in heart failure clinical trials: multi‐stakeholder perspectives Journal Articles
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Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—A multicenter study using the FACE‐Q Craniofacial module Journal Articles
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Perioperative gait analysis after total hip arthroplasty: Does outpatient surgery compromise patient outcomes? Journal Articles
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Physician- and Patient-reported Effectiveness Are Similar for Tofacitinib and TNFi in Rheumatoid Arthritis: Data From a Rheumatoid Arthritis Registry Journal Articles
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Poor quality patient reported outcome measures bias effect estimates in orthopaedic randomized studies Journal Articles
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Post-Intensive Care Sequelae in Pediatrics—Results of an Early Rehabilitation Implementation Study Journal Articles
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Power training using pneumatic machines vs. plate-loaded machines to improve muscle power in older adults Journal Articles
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Presentation approaches for enhancing interpretability of patient-reported outcomes (PROs) in meta-analysis: a protocol for a systematic survey of Cochrane reviews Journal Articles
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Presentation approaches for enhancing interpretability of patient-reported outcomes in meta-analyses: a systematic survey of Cochrane reviews Journal Articles
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Prevalence and Consistency in Surgical Outcome Reporting for Femoroacetabular Impingement Syndrome: A Scoping Review Journal Articles
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Prevalence of endoscopic improvement and remission according to patient‐reported outcomes in ulcerative colitis Journal Articles
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Primary arthroscopic repair of massive rotator cuff tears results in significant improvements with low rate of re-tear Journal Articles
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Priority Outcomes in Critically Ill Children: A Patient and Parent Perspective Journal Articles
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Protocol for a Delphi consensus exercise to identify a core set of criteria for selecting health related outcome measures (HROM) to be used in primary health care Journal Articles
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Psychometric Findings for the SCAR-Q Patient-Reported Outcome Measure Based on 731 Children and Adults with Surgical, Traumatic, and Burn Scars from Four Countries Journal Articles
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Psychometric Properties of Patient-Reported Outcome Measures Assessing Self-Efficacy in Patients with Chronic Obstructive Pulmonary Disease (COPD): A Systematic Review Journal Articles
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Psychometric Properties of the Patient-Reported Outcome Measures for People With Ulnar Nerve Entrapment at the Elbow: A Systematic Review Journal Articles
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Psychometric Validation of the CLEFT-Q Patient Reported Outcome Measure: A Prospective Study to Examine Cross-Sectional Construct Validity Journal Articles
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Psychometric Validation of the FACE-Q Craniofacial Module for Facial Nerve Paralysis Journal Articles
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Psychometric measurement properties of patient-reported and observer-reported outcome measures for spinal mobilisations and manipulation on paediatric subjects with diverse medical conditions: A systematic review Journal Articles
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Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire Journal Articles
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Psychometric properties of the Single Assessment Numeric Evaluation (SANE) in patients with shoulder conditions. A systematic review Journal Articles
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Psychometric properties of the global rating of change scales in patients with neck disorders: a systematic review with meta-analysis and meta-regression Journal Articles
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Psychometric properties of the single assessment numeric evaluation in patients with lower extremity pathologies. A systematic review Journal Articles
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Psychometric validation of the FACE‐Q Aesthetics Satisfaction with Temples scale in individuals seeking minimally invasive treatment to improve temple hollowing Journal Articles
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Qualitative study informing the development and content validity of the HAND-Q: a modular patient-reported outcome measure for hand conditions Journal Articles
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Quality of Life Outcomes after Primary Treatment for Clinically Localised Prostate Cancer: A Systematic Review Journal Articles
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Quality of life and long-term outcomes after hospitalization for COVID-19: Protocol for a prospective cohort study (Coalition VII) Journal Articles
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Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients? Journal Articles
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Quantitative MRI Analysis of Patellofemoral Joint Cartilage Health 2 Years After Anterior Cruciate Ligament Reconstruction and Lateral Extra-Articular Tenodesis Journal Articles
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Rasch Analysis of Patient- and Parent-Reported Outcome Measures in the International Consortium for Health Outcomes Measurement Standard Set for Cleft Lip and Palate Journal Articles
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Readability analysis and concept mapping of PROMs used for headache disorders Journal Articles
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Recursive Partitioning vs Computerized Adaptive Testing to Reduce the Burden of Health Assessments in Cleft Lip and/or Palate: Comparative Simulation Study Journal Articles
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Relationship of Fatigue, Pain Interference, and Physical Disability in Children Newly Diagnosed With Juvenile Idiopathic Arthritis Journal Articles
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Reply: Identifying Factors Most Important to Lower Extremity Trauma Patients: Key Concepts from the Development of a Patient-Reported Outcome Instrument for Lower Extremity Trauma, The LIMB-Q Journal Articles
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Reported Outcomes in Perinatal Iron Deficiency Anemia Trials: A Systematic Review Journal Articles
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Resolution of dominant patient‐reported outcome at end of induction predicts clinical and endoscopic remission in Crohn’s disease Journal Articles
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Response to Weinfurt and Cappelleri on “Patient reported outcome measures in clinical trials should be initially analyzed as continuous outcomes for statistical significance and responder analyses should be reserved as secondary analyses” Journal Articles
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Responsiveness and Minimal Important Change of the IKDC of Middle-Aged and Older Patients With a Meniscal Tear Journal Articles
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Responsiveness of four patient-reported outcome measures to assess physical function in patients with knee osteoarthritis: comments on the article by Mahler et al Journal Articles
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Return-to-Sport Rates After Hip Arthroscopy for Femoroacetabular Impingement Syndrome in Flexibility Sports Athletes: A Systematic Review Journal Articles
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Return-to-work coordination programmes for improving return to work in workers on sick leave Journal Articles
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Secukinumab demonstrates sustained efficacy in clearing skin and improving patient-reported outcomes in patients with moderate-to-severe psoriasis through 2 years of treatment: Results from the CLEAR study Journal Articles
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Seeing the patient’s perspective: a guide to patient-reported outcome measures and minimal important differences in ophthalmic research Journal Articles
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Selection of key health domains from PROMIS® for a generic preference-based scoring system Journal Articles
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Serious reporting deficiencies exist in minimal important difference studies: current state and suggestions for improvement Journal Articles
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Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Network Cohort Journal Articles
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Speed of clinical improvement in the real‐world setting from patient‐reported Psoriasis Symptoms and Signs Diary: Secondary outcomes from the Psoriasis Study of Health Outcomes through 12 weeks Journal Articles
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Standardized Outcome Measures for Preterm and Hospitalized Neonates: An ICHOM Standard Set Journal Articles
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Streamlining the Assessment of Patient-Reported Outcomes in Weight Loss and Body Contouring Patients: Applying Computerized Adaptive Testing to the BODY-Q Journal Articles
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Subcutaneous Mastectomy Improves Satisfaction with Body and Psychosocial Function in Trans Men: Findings of a Cross-Sectional Study Using the BODY-Q Chest Module Journal Articles
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Surgical Management of Glenohumeral Osteoarthritis With Glenoid Erosion and Static Posterior Subluxation (Walch B2): Techniques, Outcomes, and Survivorship Rates Journal Articles
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Symptoms patients receiving manual therapy experienced and perceived as adverse: a secondary analysis of a survey of patients’ perceptions of what constitutes an adverse response Journal Articles
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Tailoring and evaluating treatment with the Patient-Specific Needs Evaluation: A Patient-Centered Approach Journal Articles
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Temporal Trends and Factors Associated With the Inclusion of Patient‐Reported Outcomes in Heart Failure Randomized Controlled Trials: A Systematic Review Journal Articles
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Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains Journal Articles
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Test–retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study Conferences
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The
FACE
‐Q Skin Cancer Module addresses post‐resection aesthetic and quality of life outcomes Journal Articles
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The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery Journal Articles
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The Effects of Home Exercise in Older Women With Vertebral Fractures: A Pilot Randomized Controlled Trial Journal Articles
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The Impact of Psychiatric Diagnoses on Patient-reported Satisfaction and Quality of Life in Postmastectomy Breast Reconstruction Journal Articles
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The Pediatric Toronto Extremity Salvage Score (pTESS): Validation of a Self-reported Functional Outcomes Tool for Children with Extremity Tumors Journal Articles
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The Pros and Cons of the PROs Journal Articles
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The Risks and Benefits of Cavernous Neurovascular Bundle Sparing during Radical Prostatectomy: A Systematic Review and Meta-Analysis Journal Articles
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The SKIN-Q: An Innovative Patient-Reported Outcome Measure for Evaluating Minimally Invasive Skin Treatments for the Face and Body Journal Articles
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The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts Journal Articles
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The Traumatic Injuries Distress Scale: A New Tool That Quantifies Distress and Has Predictive Validity With Patient-Reported Outcomes Journal Articles
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The Use and Effects of Electronic Health Tools for Patient Self-Monitoring and Reporting of Outcomes Following Medication Use: Systematic Review Journal Articles
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The appropriateness and quality of patient-reported outcome measures (PROMs) in plastic surgery randomized controlled trials: A systematic review Journal Articles
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The assessment of psychological factors on upper extremity disability: A scoping review Journal Articles
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The cement-in-cement technique is a reliable option in hip arthroplasty revision surgery: a systematic review Journal Articles
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The effect of conjoint tendon release on gait after direct anterior total hip arthroplasty Journal Articles
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The efficacy and safety of sunitinib given on an individualised schedule as first-line therapy for metastatic renal cell carcinoma: A phase 2 clinical trial Journal Articles
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The impact of routine Edmonton Symptom Assessment System (ESAS) use on overall survival in cancer patients: Results of a population‐based retrospective matched cohort analysis Journal Articles
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There is no definite consensus on the adequate radiographic correction in arthroscopic osteochondroplasty for femoroacetabular impingement: a systematic review and meta-analysis Journal Articles
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Total knee arthroplasty using patient-specific instrumentation for osteoarthritis of the knee: a meta-analysis Journal Articles
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Trajectory of Symptoms in Patients Undergoing Autologous Stem Cell Transplant for Multiple Myeloma: A Population-Based Cohort Study of Patient-Reported Outcomes Journal Articles
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Translation and cultural adaptation of the CLEFT-Q for use in Colombia, Chile, and Spain Journal Articles
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Trochleoplasty provides good clinical outcomes and an acceptable complication profile in both short and long-term follow-up Journal Articles
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Understanding and Optimizing the Patient Experience in Breast Reconstruction Journal Articles
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Understanding data and information needs for palliative cancer care to inform digital health intervention development in Nigeria, Uganda and Zimbabwe: protocol for a multicountry qualitative study Journal Articles
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Use of patient-reported outcome measures in patients with venous thromboembolism: communication from the ISTH SSC Subcommittee on Predictive and Diagnostic Variables in Thrombotic Disease Journal Articles
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Use of the Corail stem for revision total hip arthroplasty: evaluation of clinical outcomes and cost Journal Articles
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Use of the Corail stem for revision total hip arthroplasty: evaluation of clinical outcomes and cost. Journal Articles
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Using Optimal Test Assembly Methods for Shortening Patient‐Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale‐6: A Scleroderma Patient‐Centered Intervention Network Cohort Study Journal Articles
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Using the BODY-Q to Understand Impact of Weight Loss, Excess Skin, and the Need for Body Contouring following Bariatric Surgery Journal Articles
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Validation and application of Catquest-9SF in various populations: A systematic review Journal Articles
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Validation of Patient-Reported Outcome Measure in Pediatric CKD (PRO-Kid) Journal Articles
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Validation of the electronic version of the BREAST-Q in the army of women study Journal Articles
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Validation of the preference-based multiple sclerosis index Journal Articles
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Validity and Internal Consistency of the New Knee Society Knee Scoring System Journal Articles
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Validity and Reliability of the Banff Patellofemoral Instability Instrument 2.0 in an Adolescent Population Journal Articles
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Variations in reported outcomes in studies on vasa previa: a systematic review Journal Articles
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Variations in stepped-wedge cluster randomized trial design: Insights from the Patient-Centered Care Transitions in Heart Failure trial Journal Articles
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What Matters to Patients With Cleft Lip and/or Palate Journal Articles
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When does patient function “Plateau” after total joint arthroplasty? A cohort study Journal Articles
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“Most efficient and meaningful patient reported appearance assessment in different cleft types and age-groups with Cleft-Q” Journal Articles
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“You need a team”: perspectives on interdisciplinary symptom management using patient-reported outcome measures in hemodialysis care—a qualitative study Journal Articles