Journal article
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts
Abstract
Objectives: The Scleroderma Patient-centered Intervention Network (SPIN) Cohort is a web-based cohort designed to collect patient-reported outcomes at regular intervals as a framework for conducting trials of psychosocial, educational, self-management and rehabilitation interventions for patients with SSc. The aim of this study was to present baseline demographic, medical and patient-reported outcome data of the SPIN Cohort and to compare it …
Authors
Dougherty DH; Kwakkenbos L; Carrier M-E; Salazar G; Assassi S; Baron M; Bartlett SJ; Furst DE; Gottesman K; van den Hoogen F
Journal
Rheumatology, Vol. 57, No. 9, pp. 1623–1631
Publisher
Oxford University Press (OUP)
Publication Date
September 1, 2018
DOI
10.1093/rheumatology/key139
ISSN
1462-0324