Journal article
Evidence of a disability paradox in patient‐reported outcomes in haemophilia
Abstract
INTRODUCTION: People with inherited and long-term conditions such as haemophilia have been shown to adapt to their levels of disability, often reporting better quality of life (QoL) than expected from the general population (the disability paradox).
AIM: To investigate the disability paradox in people with haemophilia in the United States by examining preference differences in health state valuations versus the general population.
Authors
O’Hara J; Martin AP; Nugent D; Witkop M; Buckner TW; Skinner MW; O’Mahony B; Mulhern B; Morgan G; Li N
Journal
Haemophilia, Vol. 27, No. 2, pp. 245–252
Publisher
Wiley
Publication Date
March 2021
DOI
10.1111/hae.14278
ISSN
1351-8216