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Evidence of a disability paradox in...
Journal article

Evidence of a disability paradox in patient‐reported outcomes in haemophilia

Abstract

INTRODUCTION: People with inherited and long-term conditions such as haemophilia have been shown to adapt to their levels of disability, often reporting better quality of life (QoL) than expected from the general population (the disability paradox). AIM: To investigate the disability paradox in people with haemophilia in the United States by examining preference differences in health state valuations versus the general population.

Authors

O’Hara J; Martin AP; Nugent D; Witkop M; Buckner TW; Skinner MW; O’Mahony B; Mulhern B; Morgan G; Li N

Journal

Haemophilia, Vol. 27, No. 2, pp. 245–252

Publisher

Wiley

Publication Date

March 2021

DOI

10.1111/hae.14278

ISSN

1351-8216