selected scholarly activity
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chapters
- The Evolution of Patient-Reported Outcome Measures (PROMs) in Plastic Surgery. 411-417. 2024
- Patient-Important Outcome Measures in Surgical Care. 71-83. 2019
- Health-Related Quality of Life. Pediatric Oncology. 735-747. 2017
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conferences
- Extracting big data from the internet to support the development of a new patient-reported outcome measure for breast implant illness: a proof of concept study. Quality of Life Research. 1975-1983. 2024
- Development Of A Novel Patient-Reported Outcome Measure For Headache Disorders: The Headache-Q. Plastic and Reconstructive Surgery - Global Open. 48-49. 2023
- Impact of Completing FACE-Q Craniofacial Module Scales on Children and Young Adults with Facial Differences: An International Study. Plastic and Reconstructive Surgery. 1063-1069. 2023
- A Prospective Study to Examine Responsiveness and Minimally Important Differences (MIDs) for the CLEFT-Q Scales Following Three Cleft-Specific Operations. Cleft Palate-Craniofacial Journal. 413-420. 2023
- Development and Pilot testing of a Patient-Reported Outcome Measure for Gender-Affirming Care: The GENDER-Q. Quality of Life Research. S20-S21. 2022
- The first step in patient-censtered outcomes research: deciding what to measure. Quality of Life Research. S18-S18. 2022
- Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities.. Quality of Life Research. 2805-2818. 2022
- Development and Psychometric Validation of BREAST-Q Scales Measuring Cancer Worry, Fatigue, and Impact on Work. Annals of Surgical Oncology. 7410-7420. 2021
- Determining construct validity of scales from the FACE-Q craniofacial module for patients with craniosynostosis. Quality of Life Research. S142-S142. 2021
- Development of LYMPH-Q upper extremity scales measuring worry, work impact, and burden of conservative treatments. Quality of Life Research. S91-S91. 2021
- European normative data for interpreting the BODY-Q. Quality of Life Research. S143-S143. 2021
- Parents of children with medical complexity: a qualitative exploration of impact on health and well-being from caregiving and care coordination. Quality of Life Research. S14-S14. 2021
- Understanding outcomes and experiences of care important to transgender and gender diverse youth. Quality of Life Research. S17-S17. 2021
- Validation of a PROM for use in pediatric head and neck cancer: The FACE-Q Craniofacial Module. Quality of Life Research. S118-S118. 2021
- Health-related quality of life in the treatment and survivorship phases of breast cancer.. Journal of Clinical Oncology. e18621-e18621. 2021
- An international qualitative study informing the development of a patient-reported outcome instrument for adults receiving gender-affirming treatments: the GENDER-Q. Quality of Life Research. S70-S71. 2020
- Development of a new patient-reported outcome measure for use in patient's diagnosis with headaches. Quality of Life Research. S173-S173. 2020
- Development and Psychometric Evaluation of the Cancer Distress Scales for Adolescent and Young Adults. Journal of Adolescent and Young Adult Oncology. 566-580. 2019
- Development of a new Patient-Reported Outcome measure to evaluate treatments for acne and acne scarring: The ACNE-Q. Quality of Life Research. S77-S78. 2019
- Examining content validity of BREAST-Q a decade later to determine relevance and comprehensiveness. Quality of Life Research. S75-S75. 2019
- Normative data for interpreting the BODY-Q: understanding the value of weight loss surgery. Quality of Life Research. S116-S117. 2019
- Patient-reported outcomes in weight loss and body contouring surgery: the voice of 1831 patients using the BODY-Q. Quality of Life Research. S115-S116. 2019
- Psychometric evaluation of new BREAST-Q Scales for the breast reconstruction module. Quality of Life Research. S76-S77. 2019
- The development of new BODY-Q scales to measure outcomes for patients undergoing weight loss surgery. Quality of Life Research. S76-S76. 2019
- What matters to children and adolescents with lower limb deformities: an international qualitative study informing the development of the LIMB-Q Kids. Quality of Life Research. S22-S22. 2019
- BODY CONTOURING SURGERY: IMPROVEMENT IN PHYSICAL SYMPTOMS AFTER ABDOMINOPLASTY Plastic surgery after weight loss. Obesity Surgery. 304-304. 2019
- BODY-Q NETWORK: MEASURING WHAT MATTERS TO MASSIVE WEIGHT LOSS PATIENTS Plastic surgery after weight loss. Obesity Surgery. 305-305. 2019
- GIVING MEANING TO DIFFERENCES IN BODY-Q SCORES: MINIMAL IMPORTANT DIFFERENCE FOR BODY CONTOURING SURGERY PATIENTS Plastic surgery after weight loss. Obesity Surgery. 306-306. 2019
- NORMATIVE DATA FOR INTERPRETING THE BODY-Q: UNDERSTANDING THE VALUE OF BARIATRIC SURGERY Registries and Quality in Bariatric Surgery. Obesity Surgery. 341-341. 2019
- RACIAL DISPARITIES IN BODY IMAGE AND SATISFACTION WITH APPEARANCE FOLLOWING BARIATRIC SURGERY Psychology and bariatric surgery - pre and post-op challenges. Obesity Surgery. 990-990. 2019
- TOWARDS A NATIONWIDE DUTCH PROM IN OBESITY CARE: THE OBESI-Q Registries and Quality in Bariatric Surgery. Obesity Surgery. 297-297. 2019
- WHAT MATTERS TO PATIENTS UNDERGOING BARIATRIC SURGERY: THE DEVELOPMENT OF NEW BARIATRIC SURGERY SPECIFIC BODY-Q SCALES Registries and Quality in Bariatric Surgery. Obesity Surgery. 296-296. 2019
- An international qualitative study to develop a new patient-reported outcome instrument for hand conditions: the HAND-Q. Quality of Life Research. S180-S180. 2018
- CLEFT-Q: detecting differences in outcomes between 2,434 patients with varying cleft types. Quality of Life Research. S147-S147. 2018
- Developing a new module of the BREAST-Q to measure outcomes for patients with lymphedema: a qualitative study. Quality of Life Research. S162-S162. 2018
- Development of a patient education program for patients undergoing body contouring after massive weight loss. Quality of Life Research. S89-S90. 2018
- Development of health-state classification system for a new breast cancer-specific preference-based measure: the BREAST-Q-U. Quality of Life Research. S18-S19. 2018
- Dutch and Danish translation and cultural adaption of the WOUND-Q. Quality of Life Research. S69-S69. 2018
- Impact of completing pediatric patient-reported outcome measures that ask about appearance of cleft lip and/or palate. Quality of Life Research. S110-S111. 2018
- Improving breast cancer care by understanding health utilities: the work before the work. Quality of Life Research. S14-S14. 2018
- Streamlining assessment of patient satisfaction with body appearance by applying multidimensional computerized adaptive testing to the BODY-Q. Quality of Life Research. S107-S107. 2018
- BODY CONTOURING SURGERY: IMPROVEMENT IN PHYSICAL FUNCTION AND SYMPTOMS AFTER ABDOMINOPLASTY. Obesity Surgery. 15-15. 2018
- ACNE-Q is a new Patient Reported Outcome instrument that measures appearance-related concerns. Quality of Life Research. 136-136. 2017
- An international qualitative study to development a new Patient-Reported Outcome instrument for chronic wounds: The WOUND-Q. Quality of Life Research. 137-137. 2017
- Development of A New Patient-Reported Outcome Instrument To Evaluate Treatments For Stretchmarks: The Body-Q Stretchmark Scale. Value in Health. A805-A806. 2017
- Development of a new patient-reported outcome instrument for skin cancer: FACE-Q skin cancer. Quality of Life Research. 104-105. 2017
- Psychometric findings and normative values for the CLEFT-Q based on 2,434 children and young adult patients with cleft lip and/or palate from 12 countries. Quality of Life Research. 42-42. 2017
- Qualitative insights to health related quality of life among US and Canadian based children with lower limb deformities. Quality of Life Research. 73-74. 2017
- Translation And Cultural Adaptation Of The Body-Q Chest Module Into Finnish For Use In Gynecomastia, Weight Loss And FTM Chest Surgery. Value in Health. A766-A766. 2017
- FIRST RESULTS OF THE BODY-Q; A SPECIFIC 'PATIENT REPORTED OUTCOME MEASURES' (PROM) FOR BODY CONTOURING SURGERY. Plastic surgery after weight loss. Obesity Surgery. 269-269. 2017
- Linguistic Validation of the Finnish Version of the Body-Q Pro Instrument. Value in Health. A595-A595. 2016
- Applying computer adaptive testing to the BREAST-Q. Quality of Life Research. 54-55. 2016
- Developing content for a PRO instrument for surgical and traumatic scars: qualitative phase. Quality of Life Research. 187-188. 2016
- Developing content for a patient-reported outcome instrument for ear anomalies: a qualitative study. Quality of Life Research. 174-174. 2016
- Development of a patient-reported outcome instrument to measure quality of life of children with lower limb deformities: preliminary results. Quality of Life Research. 138-138. 2016
- Development of a patient-reported outcome instrument to measure satisfaction with appearance of the chest for men. Quality of Life Research. 173-174. 2016
- Linguistic validation of the CLEFT-Q into 8 languages. Quality of Life Research. 167-167. 2016
- Patient expectations of bariatric and body contouring surgery. Plastic and Reconstructive Surgery - Global Open. 67-67. 2016
- Using cognitive interviews and expert feedback to validate the Australian AYA Distress Thermometer and Problem Checklist for use in Canada.. Journal of Clinical Oncology. 10088-10088. 2016
- An early look: a mixed methods study to examine the feasibility, preliminary psychometric performance, and early construct validity of the CLEFT-Q. Quality of Life Research. 159-159. 2015
- Determining the psychometric properties of the CLEFT-Q using two different sets of response options. Quality of Life Research. 41-41. 2015
- Development and psychometric validation of a PRO instrument for obese, bariatric and cosmetic body contouring patients: the BODY-Q. Quality of Life Research. 42-42. 2015
- Measuring outcomes in young patients with conditions associated with a facial difference: are PRO instruments asking the right questions?. Quality of Life Research. 115-115. 2015
- What do health-related quality of life questionnaires designed for adolescents and young adults (AYA) with cancer measure? A systematic review. Quality of Life Research. 77-78. 2015
- EXPLORING CANCER WORRY PREDICTORS IN ADOLESCENT AND YOUNG ADULT SURVIVORS OF CHILDHOOD CANCERS. Pediatric Blood and Cancer. S253-S253. 2014
- QUALITY OF LIFE FROM THE PERSPECTIVE OF PEDIATRIC CANCER PATIENTS AND SURVIVORS: "THERE ARE GOOD THINGS AND THEN THERE ARE BAD THINGS". Pediatric Blood and Cancer. S357-S357. 2014
- Development and Validation of a Generic Scale for use in Transition Programs to Measure Self-Management Skills in Adolescents with Chronic Health Conditions: The TRANSITION-Q. Quality of Life Research. 63-63. 2014
- Health-related quality of life (HRQOL) following prophylactic mastectomy and reconstruction. Quality of Life Research. 7-7. 2014
- How qualitative methods can be used to ensure content validity in a PRO instrument for patients with cleft lip and/or palate who vary by age and culture: development of the CLEFT-Q. Quality of Life Research. 62-63. 2014
- Measuring Pros That Matter to Bariatric and Body Contouring Surgery: The Body-Q. Value in Health. A386-A386. 2013
- A qualitative study to develop a conceptual framework to understand the health concerns of patients who undergo facial surgery for skin cancer. Quality of Life Research. 2013
- CLEFT-Q: Cross-cultural and age-related similarities in developing a patient-reported outcome instrument for children with cleft lip and/or palate. Quality of Life Research. 2013
- Development and psychometric evaluation of the FACE-Q aging appraisal scale. Quality of Life Research. 2013
- Quality of life and the impact of altered facial appearance in head and neck cancer patient populations: a qualitative study. Quality of Life Research. 2013
- A systematic review of patient-reported outcome instruments of nonmelanoma skin cancer in the dermatologic population. Journal of American Academy of Dermatology. e59-e67. 2013
- Optimizing Patient-Centered Care in Breast Reconstruction. Plastic and Reconstructive Surgery. 212e-220e. 2013
- Psychometric Development Of A New Pro Instrument: The Face-Q Scales For Facelift Patients. Value in Health. A76-A76. 2013
- Responsiveness Of The Face-Q: A New Pro For Facial Aesthetic Paitents. Value in Health. A77-A77. 2013
- Development of a Conceptual Model of Quality of Life within Pediatric Oncology. International Journal of Qualitative Methods. 744-744. 2013
- A NEW QUESTIONNAIRE TO MEASURE TEEN-CENTRED CARE IN PEDIATRIC ONCOLOGY: GIVE YOUTH A VOICE. Pediatric Blood and Cancer. 1121-1121. 2012
- IDENTIFYING THE HEALTH AND SUPPORTIVE CARE NEEDS OF ADOLESCENT AND YOUNG ADULT CANCER PATIENTS AND SURVIVORS. Pediatric Blood and Cancer. 1119-1119. 2012
- IMPORTANT FACTORS TO UNDERSTANDING QUALITY OF LIFE ACCORDING TO CHILDREN WITH CANCER AND CHILDHOOD CANCER SURVIVORS. Pediatric Blood and Cancer. 1120-1120. 2012
- TEEN-CENTRED CARE IS ASSOCIATED WITH TYPE OF CARE AND HEALTH-RELATED QUALITY OF LIFE IN ADOLESCENT ONCOLOGY PATIENTS. Pediatric Blood and Cancer. 983-983. 2012
- Breast reconstruction and radiation: an analysis of quality of life and satisfaction among patients undergoing implant reconstruction. Quality of Life Research. 12-13. 2012
- Content comparison of the qualitative data informing the CLEFT-Q to generic instruments (Peds-QL 4.0, CHQ, KINDL) using the ICF-CY classification. Quality of Life Research. 28-29. 2012
- Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction. Quality of Life Research. 82-82. 2012
- Optimizing satisfaction in breast reconstruction: the importance of the preoperative information and patient-physician communication. Plastic and Reconstructive Surgery. 61-62. 2012
- Patient-reported satisfaction with psychosocial and sexual well-being and the nipple areola complex: comparison of preservation and reconstruction. Quality of Life Research. 126-127. 2012
- Patient-reported satisfaction with reconstructed breasts in the long-term survivorship period: comparison of autologous and non-autologous breast reconstruction. Quality of Life Research. 5-5. 2012
- Measuring Quality of Life and Patient Satisfaction in Facial Paralysis Patients. Plastic and Reconstructive Surgery. 91-99. 2012
- The Magnitude of Effect of Cosmetic Breast Augmentation on Patient Satisfaction and Health-Related Quality of Life. Plastic and Reconstructive Surgery. 218-223. 2012
- PIH56 Measuring Quality of Life in Facial Aesthetic Patients: Field-Testing of a New Modular System (the FACE-Q). Value in Health. A202-A202. 2012
- Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction.. Journal of Clinical Oncology. 2012
- Patient-reported satisfaction with reconstructed breasts in the long-term survivorship period: Comparison of autologous and nonautologous breast reconstruction. Journal of Clinical Oncology. 2012
- The BREAST-Q. Plastic and Reconstructive Surgery. 293-302. 2012
- Adaptation of existing PRO measures for use in additional patient populations: The BREAST-Q (c) BCT Module. Quality of Life Research. 26-27. 2012
- Developing a Patient-Reported Outcome Measure for Cleft-Lip and/or Palate Patients. Quality of Life Research. 34-35. 2012
- Development of Scales to Measure Transition Readiness in Childhood Cancer Survivors (MT). Quality of Life Research. 41-41. 2012
- Establishing Content Validity of the Give Youth a Voice Questionnaire for use in Pediatric Oncology: A Qualitative Study. Quality of Life Research. 13-13. 2012
- Measuring Child Health: How Do Measures Influence the Outcomes? (MT). Quality of Life Research. 94-95. 2012
- Missing elements in current head and neck patient reported outcome measures. Quality of Life Research. 35-35. 2012
- The BODY-Q: A New Patient-Reported Outcome (PRO) Measure for Body Contouring Patients (CP). Quality of Life Research. 74-75. 2012
- Understanding The Health Impact of Caregiving: A Qualitative Study of Canadian Parents of Children With Cancer (MT). Quality of Life Research. 62-62. 2012
- From breast-Q © to Q-score ©: Using rasch measurement to better capture breast surgery outcomes. 14th Joint International IMEKO TC1, TC7, TC13 Symposium on Intelligent Quality Measurements - Theory, Education and Training 2011, Held in Conj. with the 56th IWK Ilmenau University of Technology. 82-94. 2011
- Measuring Quality of Life and Patient Satisfaction After Body Contouring: A Systematic Review of Patient-Reported Outcome Measures. Aesthetic Surgery Journal. 807-813. 2011
- Identifying the Health Care Supportive needs of Adolescents and Young Adult Cancer Patients and Survivors: Preliminary Findings from a Qualitative Study. International Journal of Qualitative Methods. 481-482. 2011
- LANGUAGE AND COMMUNICATION CHALLENGES EXPERIENCED BY CHINESE AND SOUTH ASIAN PARENTS OF CHILDREN WITH CANCER LIVING IN CANADA. Pediatric Blood and Cancer. 990-990. 2010
- PERCEPTIONS ABOUT COMPLEMENTARY AND ALTERNATIVE MEDICINE USE AMONG CHINESE IMMIGRANT PARENTS OF CHILDREN WITH CANCER. Pediatric Blood and Cancer. 848-849. 2010
- Conceptualizing Quality of Life in Children with Cancer and Childhood Cancer Survivors. Quality of Life Research. 76-76. 2010
- Development of a new BREAST-Q module for Breast Cancer Patients: The Breast-Conserving Therapy (BCT) Module. Quality of Life Research. 112-113. 2010
- Measuring Transition Readiness in Childhood Cancer Survivors: Development of a Patient Reported Outcome (PRO) Instrument. Quality of Life Research. 77-77. 2010
- Measuring and managing patient expectation for breast reconstruction: A new preoperative patient assessment tool. Quality of Life Research. 45-45. 2010
- Solving the Conceptual Discontinuity Problem for Instruments used in Childhood Cancer Research: A systematic review & content analysis using the ICF-CY & WHO definitions. Quality of Life Research. 76-77. 2010
- Single parents' experience of caring for a child with cancer: Preliminary findings. Psychology and Health. 38-38. 2010
- CONTENT COMPARISON OF HEALTH RELATED QUALITY OF LIFE MEASURES FOR CEREBRAL PALSY BASED ON THE INTERNATIONAL CLASSIFICATION OF FUNCTIONING (ICF-CY). Acta Paediatrica, International Journal of Paediatrics. 228-228. 2009
- Development of a New Patient-Reported Outcome Measure for Breast Surgery: The BREAST-Q. Plastic and Reconstructive Surgery. 345-353. 2009
- A Systematic Review of Patient-Reported Outcome Measures after Facial Cosmetic Surgery and/or Nonsurgical Facial Rejuvenation. Plastic and Reconstructive Surgery. 1819-1827. 2009
- A systematic review of patient‐reported outcome measures in head and neck cancer surgery. Otolaryngology - Head and Neck Surgery. 525-535. 2007
- AGREEMENT BETWEEN SELF-REPORT AND PARENT-REPORT OF QUALITY OF LIFE IN A SAMPLE OF CHILDREN DIAGNOSED WITH ATTENTION-DEFICIT/HYPERACTIVITY DISORDER. Quality of Life Research. 1573-1573. 2004
- RELATIONSHIP BETWEEN CHILD HRQL AND PARENT HEALTH IN A SAMPLE OF CHILDREN WITH ADHD. Quality of Life Research. 1572-1572. 2004
- Health status problems in preschoolers: Population-based follow-up study of NICU graduates. Pediatric Research. 485A-486A. 2003
- Who gives permission to access health-related administrative data: Characteristics associated with consent from a study of NICU graduates. Pediatric Research. 445A-445A. 2003
- Behavioral outcomes in a population-based sample of preschool children admitted at birth to a NICU. Pediatric Research. 410A-410A. 2002
- Comparison of parent/caregiver perceptions of the general health of NICU survivors with and without major congenital anomalies. Pediatric Research. 402A-402A. 2002
- Health problems in preschool children admitted to a NICU at birth. Pediatric Research. 410A-410A. 2002
- Health related quality of life (HRQL) and caregiving burden in parents of NICU children: A follow-up study. Pediatric Research. 410A-410A. 2002
- Health related quality of life (HRQL) of preschool children admitted to a NICU at birth. Pediatric Research. 290A-290A. 2002
- Infant toddler quality of life questionnaire (ITHQ): A new measure of health-related quality of life (HRQL) for children aged 1 to 5. Pediatric Research. 290A-290A. 2002
- An Economic Evaluation of Therapies for Attention Deficit Hyperactivity Disorder. Pediatric Research. 18A-18A. 1999
- Benchmarks for nosocomial infection (NI) rates in neonatal intensive care units (NICUs). Pediatric Research. 271A-271A. 1999
- Do antibiotics on admission to the neonatal intensive care unit (NICU) affect later nosocomial infection (NI)?. Pediatric Research. 271A-271A. 1999
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journal articles
- The LIMB-Q: Reliability and Validity of a Novel Patient-Reported Outcome Measure for Lower Extremity Trauma Patients. Plastic and Reconstructive Surgery. 154:1332-1340. 2024
- International study to develop a patient-reported outcome measure to evaluate outcomes of gender-affirming care - the GENDER-Q.. Journal of Patient-Reported Outcomes. 8:134. 2024
- Improving the Impact of BODY-Q Scores Through Minimal Important Differences in Body Contouring Surgery: An International Prospective Cohort Study. Aesthetic Surgery Journal. 44:1317-1329. 2024
- Measuring Outcomes Relevant to the Decolletage from the Patient Perspective: Development and Validation of the BODY-Q Decolletage Scale.. Aesthetic Surgery Journal. sjae229. 2024
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Development and validation of a patient‐reported outcome measure for hair loss treatment: The
HAIR ‐Q. Journal of Cosmetic Dermatology. 23:3705-3715. 2024 - Patient Factors Associated With Increased Cancer Worry, Fatigue, and Impact on Work Following a Breast Cancer Diagnosis: A Cross-Sectional Analysis. Plastic Surgery. 32:229255032311610-229255032311610. 2024
- Psychometric validation of the FACE‐Q Aesthetics Satisfaction with Temples scale in individuals seeking minimally invasive treatment to improve temple hollowing. Journal of Cosmetic Dermatology. 23:3517-3524. 2024
- Clinical Significance Unveiled: Understanding the Meaning of FACE-Q Skin Cancer Scores for Improved Patient Care.. Psycho-Oncology. 33:e70009. 2024
- Core Competencies for Healthcare Practitioners and Clinics Providing Gender-Affirming Care from the Patient Perspective: An International Qualitative Study. Journal of Plastic, Reconstructive and Aesthetic Surgery. 2024
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Minimal important difference in weight loss following bariatric surgery: Enhancing
BODY‐Q interpretability. Clinical Obesity. 14:e12675. 2024 - Establishing test-retest reliability and the smallest detectable change of FACE-Q Aesthetic Module scales. Journal of Plastic, Reconstructive and Aesthetic Surgery. 95:231-238. 2024
- The WOUND-Q Function and Symptoms Scales for Chronic Lower Extremity Wounds: A Validation Study. Advances in Wound Care. 2024
- Further psychometric evaluation of the WOUND‐Q: A responsiveness study. Wound Repair and Regeneration. 32:451-463. 2024
- German Translation and Linguistic Validation of the LIMB‑Q: A Patient-reported Outcome Measure for Lower Extremity Trauma. Plastic and Reconstructive Surgery - Global Open. 12:e6001-e6001. 2024
- Iterative qualitative approach to establishing content validation of a patient-reported outcome measure for arm lymphedema: the LYMPH-Q Upper Extremity Module. Journal of Patient-Reported Outcomes. 8:63. 2024
- “I Want It to Look Natural”: Development and Validation of the FACE-Q Aesthetics Natural Module. Aesthetic Surgery Journal. 44:733-743. 2024
- Body Contouring Surgery After Bariatric Surgery Improves Long-Term Health-Related Quality of Life and Satisfaction With Appearance. Annals of Surgery. 279:1008-1017. 2024
- Determining Construct Validity of a Patient-Reported Outcome Measure for Birthmarks on the Face and Body. Facial Plastic Surgery and Aesthetic Medicine. 26:310-314. 2024
- Patient factors associated with cancer worry post-breast reconstruction: A cross-sectional study. Journal of Plastic, Reconstructive and Aesthetic Surgery. 93:173-182. 2024
- Patient factors associated with novel EAR-Q appearance, psychosocial, and social scales: A cross-sectional study and regression analysis. Journal of Plastic, Reconstructive and Aesthetic Surgery. 93:62-69. 2024
- The SKIN-Q: An Innovative Patient-Reported Outcome Measure for Evaluating Minimally Invasive Skin Treatments for the Face and Body. Facial Plastic Surgery and Aesthetic Medicine. 26:247-255. 2024
- Dutch translation and cultural adaptation of new LYMPH-Q- scales measuring impact on work and lymphedema worry. European Journal of Plastic Surgery. 47. 2024
- Extending the Range of Measurement for Minimally Invasive Treatments by Adding New Concepts to FACE-Q Aesthetics Scales. Plastic and Reconstructive Surgery - Global Open. 12:e5736-e5736. 2024
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Readability analysis and concept mapping of
PROMs used for headache disorders. Headache. 64:410-423. 2024 - Measuring the Impact of Surgical and Non-surgical Facial Cosmetic Interventions Using FACE-Q Aesthetic Module Scales: A Systematic Review and Meta-Analysis. Plastic Surgery. 22925503231225480. 2024
- Identifying health-related quality of life concepts to inform the development of the WOUND-Q. Journal of Wound Care. 33:28-38. 2024
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Further psychometric validation and test–retest reproducibility of the
WOUND‐Q . International Wound Journal. 21:e14354. 2024 - “Most efficient and meaningful patient reported appearance assessment in different cleft types and age-groups with Cleft-Q”. Plastic and Reconstructive Surgery. 153:120e-129e. 2024
- Danish translation and linguistic validation of the LIMB-Q, a PROM for traumatic lower limb injuries and amputations. European Journal of Plastic Surgery. 46:1255-1264. 2023
- What is the optimal assessment of speech? A multicentre, international evaluation of speech assessment in 2500 patients with a cleft. BMJ Open. 13:e071571-e071571. 2023
- BODY-Q Normative Scores: Psychometric Validation of the BODY-Q in the General Population in Europe and North America. Plastic and Reconstructive Surgery - Global Open. 11:e5401-e5401. 2023
- Comparing the suitability of virtual versus in-person care: Perceptions from pediatricians. Journal of Telemedicine and Telecare. 1357633X231205329. 2023
- Quality of life in children suffering from headaches: a systematic literature review. Journal of Headache and Pain. 24:127. 2023
- Best Practices for FACE-Q Aesthetics Research: A Systematic Review of Study Methodology. Aesthetic Surgery Journal. 43:NP674-NP686. 2023
- Ensuring patient centeredness in upper extremity lymphedema research: Identifying patient-prioritized agenda and preferences. Journal of Plastic, Reconstructive and Aesthetic Surgery. 83:326-333. 2023
- Body contouring surgery improves long-term satisfaction with appearance and health-related quality of life after bariatric surgery: BODY-Q results from a Danish cohort study. Plastic and Reconstructive Surgery. 151:1307-1316. 2023
- Health state utility values in patients undergoing chest masculinization surgery. Journal of Plastic, Reconstructive and Aesthetic Surgery. 81:26-33. 2023
- Patient-Reported Outcome Measures in Gender-Affirming Surgery. The virtual mentor : VM. 25:E421-430. 2023
- Development and Content Validity of a Novel Patient-Reported Outcome Measure for Total Laryngectomy: The LARY-Q. Journal of Voice. S0892-1997(23)00132-7. 2023
- The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery. Journal of Medical Internet Research. 25:e41870-e41870. 2023
- Validation of the Dutch Version of the BODY-Q Measuring Appearance, Health-Related Quality of Life, and Experience of Healthcare in Patients Undergoing Bariatric and Body Contouring Surgery. Aesthetic Surgery Journal. 43:569-579. 2023
- Re-examining content validity of the BREAST-Q more than a decade later to determine relevance and comprehensiveness. Journal of Patient-Reported Outcomes. 7:37. 2023
- D151. The Gender-Q: A Rigorous, Modular, Patient-reported Outcome Measure For Gender-affirming Care. Plastic and Reconstructive Surgery - Global Open. 11. 2023
- Psychometric Validation of the CLEFT-Q Patient Reported Outcome Measure: A Prospective Study to Examine Cross-Sectional Construct Validity. Cleft Palate-Craniofacial Journal. 60:327-335. 2023
- Dutch translation and cultural adaptation of the LYMPH-Q, a new patient-reported outcome measure for breast cancer-related lymphedema. European Journal of Plastic Surgery. 46:105-111. 2023
- Optimizing the Psychosocial Function Measures in the International Consortium for Health Outcomes Measurement Standard Set for Cleft. Plastic and Reconstructive Surgery. 151:274e-281e. 2023
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Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—A multicenter study using the
FACE‐Q Craniofacial module. Cancer Medicine. 12:4739-4750. 2023 -
Quantifying patients' expectations prior to bariatric surgery with the
BODY‐Q in an international multicentre cohort. Clinical Obesity. 13:e12555. 2023 - Development and Validation of a Patient-Reported Outcome Measure for Fingernail and Toenail Conditions: The NAIL-Q. Clinical, Cosmetic and Investigational Dermatology. Volume 16:3091-3105. 2023
- Comparing Breast Sensation between Alloplastic and Autologous Breast Reconstruction Patients Using the BREAST-Q Sensation Module. Plastic and Reconstructive Surgery. 150:1202e-1213e. 2022
- Danish translation and linguistic validation of new body-Q scales measuring expectations, eating behavior, distress, symptoms and work life. Journal of Plastic Surgery and Hand Surgery. 56:376-380. 2022
- Resilience through practicing acceptance: A qualitative study of how patients cope with the psychosocial experiences following limb-threatening lower extremity trauma. Journal of Plastic, Reconstructive and Aesthetic Surgery. 75:3722-3731. 2022
- Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities. Quality of Life Research. 31:2805-2818. 2022
- Patient-Level Factors Associated with Health-Related Quality of Life and Satisfaction with Body After Bariatric Surgery: a Multicenter, Cross-Sectional Study. Obesity Surgery. 32:3079-3087. 2022
- The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery (Preprint) 2022
- Advanced translation and cultural adaption of the LYMPH-Q Upper Extremity Module from English to Danish. European Journal of Plastic Surgery. 45:617-622. 2022
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General population normative scores for interpreting the
BODY‐Q . Clinical Obesity. 12:e12528. 2022 - Sun protection behaviour checklist for targeted counselling in skin cancer patients. Australasian Journal of Dermatology. 63:392-394. 2022
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The impact of body mass index (
BMI ) on satisfaction with work life: An internationalBODY‐Q study. Clinical Obesity. 12:e12527. 2022 - A Systematic Literature Review of Health Utility Values in Breast Cancer. Medical decision making. 42:704-719. 2022
- Understanding Breast Implant–Associated Illness: A Delphi Survey Defining Most Frequently Associated Symptoms. Plastic and Reconstructive Surgery. 149:1056e-1061e. 2022
- Correction to: BODY-Q patient-reported outcomes measure (PROM) to assess sleeve gastrectomy vs. Roux-en-Y gastric bypass: eating behavior, eating-related distress, and eating-related symptoms. Surgical Endoscopy. 36:2721-2721. 2022
- Patient-reported outcome measures for patients with nail conditions: a systematic review of the psychometric evidence. Archives of Dermatological Research. 314:223-237. 2022
- Qualitative study informing the development and content validity of the HAND-Q: a modular patient-reported outcome measure for hand conditions. BMJ Open. 12:e052780-e052780. 2022
- Psychometric Validation of the FACE-Q Craniofacial Module for Facial Nerve Paralysis. Facial Plastic Surgery and Aesthetic Medicine. 24:1-7. 2022
- Comparison of upper extremity lymphedema after sentinel lymph node biopsy and axillary lymph node dissection: patient-reported outcomes in 3044 patients. Breast Cancer Research and Treatment. 191:87-96. 2022
- Development of New BREAST-Q Scales to Measure the Experience of Breast Implant Illness. Plastic and Reconstructive Surgery - Global Open. 10:7-7. 2022
- Measuring outcomes for temple hollowing treatment: Content validity of new and existing FACE‐Q scales. Journal of Cosmetic Dermatology. 21:167-175. 2022
- Patient-reported outcomes measures used in facial vascularized composite allotransplantation: A systematic literature review. Journal of Plastic, Reconstructive and Aesthetic Surgery. 75:33-44. 2022
- The HAND-Q: Psychometrics of a New Patient-reported Outcome Measure for Clinical and Research Applications. Plastic and Reconstructive Surgery - Global Open. 10:e3998-e3998. 2022
- ASO Visual Abstract: Development and Psychometric Validation of BREAST-Q Scales Measuring Cancer Worry, Fatigue, and Impact on Work. Annals of Surgical Oncology. 28:453-454. 2021
- An international mixed methods study to develop a new preference-based measure for women with breast cancer: the BREAST-Q Utility module. BMC Women's Health. 21:8. 2021
- Clinical and Demographic Factors Associated with Distress in Adolescent and Young Adults with Cancer. Journal of Adolescent and Young Adult Oncology. 10:682-689. 2021
- Content Analysis of Patient-Reported Outcome Measures Used in Patients With Nail Conditions. JAMA dermatology. 157:1509-1509. 2021
- Development and Psychometric Validation of the BREAST-Q Sensation Module for Women Undergoing Post-Mastectomy Breast Reconstruction. Annals of Surgical Oncology. 28:7842-7853. 2021
- Establishing content validity of an orthodontic subset of the FACE‐Q Craniofacial Module in children and young adults with malocclusion. Orthodontics and Craniofacial Research. 24:553-560. 2021
- Applying Computerized Adaptive Testing to the FACE-Q Skin Cancer Module: Individualizing Patient-Reported Outcome Measures in Facial Surgery. Plastic and Reconstructive Surgery. 148:863-869. 2021
- Modern Test Theory Techniques for Adaptive Testing in Short Scales Comprising Polytomous Items: A Monte Carlo Simulation Study Comparing Rasch Measurement Theory to Unidimensional and Multidimensional Graded Response Models. (Preprint) 2021
- 26423 Psychometric properties of patient-reported outcome measures for nail conditions: A systematic review. Journal of American Academy of Dermatology. 85:AB18-AB18. 2021
- An international study to develop the EAR-Q patient-reported outcome measure for children and young adults with ear conditions. Journal of Plastic, Reconstructive and Aesthetic Surgery. 74:2341-2348. 2021
- Deeper Understanding of Appearance in Orofacial Clefts: A Structural Equation Model of the CLEFT-Q Appearance Scales. Plastic and Reconstructive Surgery - Global Open. 9:e3806-e3806. 2021
- Development and Psychometric Validation of a Patient-Reported Outcome Measure for Arm Lymphedema: The LYMPH-Q Upper Extremity Module. Annals of Surgical Oncology. 28:5166-5182. 2021
- Development and Psychometric Validation of the BREAST-Q Animation Deformity Scale for Women Undergoing an Implant-Based Breast Reconstruction After Mastectomy. Annals of Surgical Oncology. 28:5183-5193. 2021
- Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process. Archives of Disease in Childhood. 106:868-876. 2021
- FACE-Q Craniofacial Module: Part 1 validation of CLEFT-Q scales for use in children and young adults with facial conditions. Journal of Plastic, Reconstructive and Aesthetic Surgery. 74:2319-2329. 2021
- FACE-Q craniofacial module: Part 2 Psychometric properties of newly developed scales for children and young adults with facial conditions. Journal of Plastic, Reconstructive and Aesthetic Surgery. 74:2330-2340. 2021
- Letter to the Editor: Comment on Sinnott CJ, et al. Female Genital Cosmetic Surgery Requires a New Rigorously Developed Patient Reported Outcome Measure (Ann Plast Surg. 2020;85(S1)). Annals of Plastic Surgery. 87:363-364. 2021
- Reply: Identifying Factors Most Important to Lower Extremity Trauma Patients: Key Concepts from the Development of a Patient-Reported Outcome Instrument for Lower Extremity Trauma, The LIMB-Q. Plastic and Reconstructive Surgery. 148:510e-511e. 2021
- BODY-Q patient-reported outcomes measure (PROM) to assess sleeve gastrectomy vs. Roux-en-Y gastric bypass: eating behavior, eating-related distress, and eating-related symptoms. Surgical Endoscopy. 35:4609-4617. 2021
- Concepts Important to Patients With Facial Differences: A Qualitative Study Informing a New Module of the FACE-Q for Children and Young Adults. Cleft Palate-Craniofacial Journal. 58:1020-1031. 2021
- Development and Validation of New BODY-Q Scales Measuring Expectations, Eating Behavior, Distress, Symptoms, and Work Life in 4004 Adults From 4 Countries. Obesity Surgery. 31:3637-3645. 2021
-
International study to develop the
WOUND‐Q patient‐reported outcome measure for all types of chronic wounds. International Wound Journal. 18:487-509. 2021 - Recursive Partitioning vs Computerized Adaptive Testing to Reduce the Burden of Health Assessments in Cleft Lip and/or Palate: Comparative Simulation Study. Journal of Medical Internet Research. 23:e26412-e26412. 2021
- Determining the Independent Risk Factors for Worse SCAR-Q Scores and Future Scar Revision Surgery. Plastic and Reconstructive Surgery. 148:203-212. 2021
- Optimising the computerised adaptive test to reliably reduce the burden of administering the CLEFT-Q: A Monte Carlo simulation study. Journal of Plastic, Reconstructive and Aesthetic Surgery. 74:1355-1401. 2021
- Correction to: Deriving an overall appearance domain score by applying bifactor IRT analysis to the BODY‑Q appearance scales. Quality of Life Research. 30:1523-1524. 2021
- The BODY-Q Chest Module: Further Validation in a Canadian Chest Masculinization Surgery Sample. Aesthetic Surgery Journal. 41:566-574. 2021
- What matters to children with lower limb deformities: an international qualitative study guiding the development of a new patient-reported outcome measure. Journal of Patient-Reported Outcomes. 5:30. 2021
- Test-Retest Reliability of the BREAST-Q IS in the Australian Breast Device Registry. Aesthetic Surgery Journal. 41:NP177-NP184. 2021
- Patient-Reported Outcome Measures in Lymphedema: A Systematic Review and COSMIN Analysis. Annals of Surgical Oncology. 28:1656-1668. 2021
- Rasch Analysis of Patient- and Parent-Reported Outcome Measures in the International Consortium for Health Outcomes Measurement Standard Set for Cleft Lip and Palate. Value in Health. 24:404-412. 2021
- The BODY-Q Cellulite Scale: A Development and Validation Study. Aesthetic Surgery Journal. 41:206-217. 2021
- A Mixed-Methods Feasibility Study of Integrated Pediatric Complex Care: Experiences of Parents With Care and the Value of Parent Engagement in Research. Frontiers in Rehabilitation Sciences. 2:710335. 2021
- Recursive Partitioning vs Computerized Adaptive Testing to Reduce the Burden of Health Assessments in Cleft Lip and/or Palate: Comparative Simulation Study (Preprint) 2020
- Content Validity of the LIMB-Q: A Patient-Reported Outcome Instrument for Lower Extremity Trauma Patients. Journal of Reconstructive Microsurgery. 36:625-633. 2020
- Re: “Development of a Patient-Reported Outcome Measure for Mohs Reconstruction” by Kavanagh and Christophel. Facial Plastic Surgery and Aesthetic Medicine. 22:397-398. 2020
- Psychometric Findings for the SCAR-Q Patient-Reported Outcome Measure Based on 731 Children and Adults with Surgical, Traumatic, and Burn Scars from Four Countries. Plastic and Reconstructive Surgery. 146:331e-338e. 2020
- Patient‐reported experience measures are essential to improving quality of care for chronic wounds: An international qualitative study. International Wound Journal. 17:1052-1061. 2020
- Development and Validation of the BREAST-Q Breast-Conserving Therapy Module. Annals of Surgical Oncology. 27:2238-2247. 2020
- Impact of Completing CLEFT-Q Scales That Ask About Appearance on Children and Young Adults: An International Study. Cleft Palate-Craniofacial Journal. 57:840-848. 2020
- Measuring Outcomes in Cosmetic Abdominoplasty. Clinics in Plastic Surgery. 47:429-436. 2020
- Identifying Factors Most Important to Lower Extremity Trauma Patients: Key Concepts from the Development of a Patient-Reported Outcome Instrument for Lower Extremity Trauma, The LIMB-Q. Plastic and Reconstructive Surgery. 145:1292-1301. 2020
- A Catalyst for Transforming Health Systems and Person-Centred Care: Canadian National Position Statement on Patient-Reported Outcomes. Current Oncology. 27:90-99. 2020
- Abstract 158: Satisfaction With Appearance In Patients With Cleft Lip And/or Palate: Patient-reported Outcomes Using The Cleft-q At The University Of Pittsburgh. Plastic and Reconstructive Surgery - Global Open. 8:106-106. 2020
- Comparison of Patient-Reported Outcome Measures for Use as Performance Metrics in Adolescent and Young Adult Psychosocial Cancer Care. Journal of Adolescent and Young Adult Oncology. 9:262-270. 2020
- Comparison of the Moorehead‐Ardelt quality of life questionnaire and the BODY‐Q in Danish patients undergoing weight loss and body contouring surgery. Clinical Obesity. 10:e12351. 2020
- Deriving an overall appearance domain score by applying bifactor IRT analysis to the BODY-Q appearance scales. Quality of Life Research. 29:1065-1072. 2020
- Translation and cultural adaptation of the EAR-Q into Arabic, Chinese, French and Spanish for use in an international field-test study. European Journal of Plastic Surgery. 43:159-164. 2020
- International mixed methods study protocol to develop a patient-reported outcome measure for all types of chronic wounds (the WOUND-Q). BMJ Open. 10:e032332-e032332. 2020
- Systematic Review of Patient-Reported Outcomes following Surgical Treatment of Lymphedema. Cancers. 12:565-565. 2020
- CanPROS Scientific Conference 2019 Oral Abstracts. Current Oncology. 27:57-63. 2020
- Giving Meaning to Differences in BREAST-Q Scores: Minimal Important Difference for Breast Reconstruction Patients. Plastic and Reconstructive Surgery. 145:11e-20e. 2020
- International phase 1 study protocol to develop a health state classification system for a preference-based measure for women with breast cancer: the BREAST-Q Utility module. BMJ Open. 10:e034451-e034451. 2020
- ACNE‐Q. British Journal of Dermatology. 181:e165-e165. 2019
-
Development of a new patient‐reported outcome measure to evaluate treatments for acne and acne scarring: the
ACNE ‐Q. British Journal of Dermatology. 181:1207-1215. 2019 - Expectations of breast-conserving therapy: a qualitative study. Journal of Patient-Reported Outcomes. 3:73. 2019
- Further construct validation of the CLEFT-Q: Ability to detect differences in outcome for four cleft-specific surgeries. Journal of Plastic, Reconstructive and Aesthetic Surgery. 72:2049-2055. 2019
- The ACNE‐Q. British Journal of Dermatology. 181:e153-e153. 2019
- Computerised adaptive testing accurately predicts CLEFT-Q scores by selecting fewer, more patient-focused questions. Journal of Plastic, Reconstructive and Aesthetic Surgery. 72:1819-1824. 2019
- Development of a Patient-Reported Outcome Instrument for Patients With Severe Lower Extremity Trauma (LIMB-Q): Protocol for a Multiphase Mixed Methods Study. JMIR Research Protocols. 8:e14397-e14397. 2019
- Danish and Dutch linguistic validation and cultural adaptation of the WOUND-Q, a PROM for chronic wounds. European Journal of Plastic Surgery. 42:495-504. 2019
- Distress Screening in Adolescents and Young Adults with Cancer: Development of Cut-Points for the Cancer Distress Scales-Adolescent and Young Adults. Journal of Adolescent and Young Adult Oncology. 8:560-565. 2019
- French translation and linguistic validation of a new Patient Reported Outcome instrument: the BODY-Q: A description of the process.. Psychiatria Danubina. 31:406-410. 2019
- Deutschsprachige Validierung des Body-Q – standardisiertes PRO-Messinstrument nach bariatrischen und körperformenden Eingriffen. Handchirurgie Mikrochirurgie Plastische Chirurgie. 51:255-261. 2019
- Reply: Treatment of Severe Gynecomastia after Massive Weight Loss: Analysis of Long-Term Outcomes Measured with the Italian Version of the BODY-Q. Plastic and Reconstructive Surgery. 144:326e-328e. 2019
- Reply: Treatment of Severe Gynecomastia after Massive Weight Loss: Analysis of Long-Term Outcomes Measured with the Italian Version of the BODY-Q.. Plastic and Reconstructive Surgery. 144:326e-328e. 2019
- CLEFT-Q: Detecting Differences in Outcomes among 2434 Patients with Varying Cleft Types. Plastic and Reconstructive Surgery. 144:78e-88e. 2019
- Reply: Subcutaneous Mastectomy Improves Satisfaction with Body and Psychosocial Function in Trans Men: Findings of a Cross-Sectional Study Using the BODY-Q Chest Module. Plastic and Reconstructive Surgery. 144:145e-147e. 2019
- Building the political case for investing in public health and public health research. Canadian Journal of Public Health. 110:270-274. 2019
- Implementing Electronic Patient-Reported Outcome Measures in Outpatient Cosmetic Surgery Clinics: An Exploratory Qualitative Study. Aesthetic Surgery Journal. 39:687-695. 2019
- International multiphase mixed methods study protocol to develop a patient-reported outcome instrument for children and adolescents with lower limb deformities. BMJ Open. 9:e027079-e027079. 2019
- Streamlining the Assessment of Patient-Reported Outcomes in Weight Loss and Body Contouring Patients: Applying Computerized Adaptive Testing to the BODY-Q. Plastic and Reconstructive Surgery. 143:946e-955e. 2019
- Abstract 94: SCAR-Q: International Results and Why Individuals Report the Need for Scar Revision Surgery. Plastic and Reconstructive Surgery - Global Open. 7:65-66. 2019
- Development and Validation of a Nipple-Specific Scale for the BREAST-Q to Assess Patient-Reported Outcomes following Nipple-Sparing Mastectomy. Plastic and Reconstructive Surgery. 143:1010-1017. 2019
-
The
FACE ‐Q Skin Cancer Module addresses post‐resection aesthetic and quality of life outcomes. British Journal of Dermatology. 180:953-954. 2019 - Leveraging patient‐reported outcomes data to inform oncology clinical decision making: Introducing the FACE‐Q Head and Neck Cancer Module. Cancer. 125:863-872. 2019
- 52 SCAR-Q, A Patient-Reported Outcome Measure for Scars, Field-Test of Individuals with Burn Scars. Journal of burn care & research : official publication of the American Burn Association.. 40:S37-S37. 2019
- International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome and experience measure for hand conditions (HAND-Q). BMJ Open. 9:e025822-e025822. 2019
- Introducing BREAST-Q Computerized Adaptive Testing: Short and Individualized Patient-Reported Outcome Assessment following Reconstructive Breast Surgery. Plastic and Reconstructive Surgery. 143:679-684. 2019
- The social impact of early psychological maturity in adolescents with cancer. Psycho-Oncology. 28:586-592. 2019
- Exploring Patient Experience of Facial Nerve Palsy to Inform the Development of a PROM. Plastic and Reconstructive Surgery - Global Open. 7:e2072-e2072. 2019
- Patient-Reported Outcome Measures. Clinics in Plastic Surgery. 46:15-24. 2019
- Development of the BODY-Q Chest Module Evaluating Outcomes following Chest Contouring Surgery. Plastic and Reconstructive Surgery. 142:1600-1608. 2018
- Translation and cultural adaptation of the CLEFT-Q into Arabic, Dutch, Hindi, Swedish, and Turkish. European Journal of Plastic Surgery. 41:643-652. 2018
- Danish translation and linguistic validation of the BODY-Q Chest Module. Journal of Plastic Surgery and Hand Surgery. 52:343-346. 2018
- Subcutaneous Mastectomy Improves Satisfaction with Body and Psychosocial Function in Trans Men: Findings of a Cross-Sectional Study Using the BODY-Q Chest Module. Plastic and Reconstructive Surgery. 142:1125-1132. 2018
- International phase I study protocol to develop a patient-reported outcome measure for adolescents and adults receiving gender-affirming treatments (the GENDER-Q). BMJ Open. 8:e025435-e025435. 2018
- The BODY-Q Stretch Marks Scale: A Development and Validation Study. Aesthetic Surgery Journal. 38:990-997. 2018
- Adding scales to BREAST-Q must follow the same rigor as original scales. Journal of Plastic, Reconstructive and Aesthetic Surgery. 71:1216-1230. 2018
- Content Validity of Patient-Reported Outcome Instruments used with Pediatric Patients with Facial Differences. Cleft Palate-Craniofacial Journal. 55:989-998. 2018
- Development of a New Patient-reported Outcome Measure for Ear Conditions: The EAR-Q. Plastic and Reconstructive Surgery - Global Open. 6:e1842-e1842. 2018
- FACE-Q Skin Cancer Module for measuring patient-reported outcomes following facial skin cancer surgery. British Journal of Dermatology. 179:88-94. 2018
- FACE-Q Skin Cancer Module: appearance satisfaction and QoL. British Journal of Dermatology. 179:e70-e70. 2018
- FACE-Q皮肤癌模块:外观满意度和QoL. British Journal of Dermatology. 179:e84-e84. 2018
- Using the BODY-Q to Understand Impact of Weight Loss, Excess Skin, and the Need for Body Contouring following Bariatric Surgery. Plastic and Reconstructive Surgery. 142:77-86. 2018
- Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries. CANADIAN MEDICAL ASSOCIATION JOURNAL. 190:E455-E462. 2018
- 14 SCAR-Q: An Update on Field-testing a Patient-reported Outcome Instrument for Burn, Surgical, and Traumatic Scars. Journal of burn care & research : official publication of the American Burn Association.. 39:S11-S11. 2018
- Development of a New Patient-reported Outcome Instrument to Evaluate Treatments for Scars: The SCAR-Q. Plastic and Reconstructive Surgery - Global Open. 6:e1672-e1672. 2018
- Measuring the patient perspective on latissimus dorsi donor site outcomes following breast reconstruction. Journal of Plastic, Reconstructive and Aesthetic Surgery. 71:336-343. 2018
- What Matters to Patients With Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal. 55:442-450. 2018
- Abstract P5-19-02: Withdrawn. Cancer Research. 78:p5-19-02-p5-19-02. 2018
- Measuring Patient-Reported Outcomes: Key Metrics in Reconstructive Surgery. Annual Review of Medicine. 69:467-479. 2018
- Identifying Needs in Young Adults With Inflammatory Bowel Disease. Gastroenterology Nursing. 41:19-28. 2018
- Reply: Breast Cancer and Reconstruction: Normative Data for Interpreting the BREAST-Q. Plastic and Reconstructive Surgery. 141:181e-182e. 2018
- Further psychometric validation of the BODY-Q: ability to detect change following bariatric surgery weight gain and loss. Health and Quality of Life Outcomes. 15:227. 2017
- Translation and cultural adaptation of the CLEFT-Q for use in Colombia, Chile, and Spain. Health and Quality of Life Outcomes. 15:228. 2017
- Development of a New Module of the FACE-Q for Children and Young Adults with Diverse Conditions Associated with Visible and/or Functional Facial Differences. Facial Plastic Surgery. 33:499-508. 2017
- Measuring Patient-Reported Outcomes in Rhinoplasty Using the FACE-Q: A Single Site Study. Facial Plastic Surgery. 33:461-469. 2017
- Psychometric Validation of the BODY-Q in Danish Patients Undergoing Weight Loss and Body Contouring Surgery. Plastic and Reconstructive Surgery - Global Open. 5:e1529-e1529. 2017
- Patient-Reported Outcomes in Weight Loss and Body Contouring Surgery: A Cross-Sectional Analysis Using the BODY-Q. Plastic and Reconstructive Surgery. 140:491-500. 2017
- Patient-Reported Outcomes 1 Year After Immediate Breast Reconstruction: Results of the Mastectomy Reconstruction Outcomes Consortium Study. Journal of Clinical Oncology. 35:2499-2506. 2017
- Validation of the electronic version of the BREAST-Q in the army of women study. Breast. 33:44-49. 2017
- Breast Cancer and Reconstruction: Normative Data for Interpreting the BREAST-Q. Plastic and Reconstructive Surgery. 139:1046e-1055e. 2017
- Corrigendum. Australasian Journal of Dermatology. 58:160-160. 2017
- Abstract 25: Normative Values for the BREAST-Q. Plastic and Reconstructive Surgery - Global Open. 5:20-21. 2017
- Abstract 25: Normative Values for the BREAST-Q. Plastic and Reconstructive Surgery - Global Open. 5. 2017
- Establishing Content Validity of the CLEFT-Q: A New Patient-reported Outcome Instrument for Cleft Lip/Palate. Plastic and Reconstructive Surgery - Global Open. 5:e1305-e1305. 2017
- Normative Data for Interpreting the BREAST-Q: Augmentation. Plastic and Reconstructive Surgery. 139:846-853. 2017
- Understanding the Health Burden of Macromastia: Normative Data for the BREAST-Q Reduction Module. Plastic and Reconstructive Surgery. 139:846e-853e. 2017
- Assessing quality of life of patients with hypospadias: A systematic review of validated patient-reported outcome instruments. Journal of Pediatric Urology. 13:19-27. 2017
- Danish translation and linguistic validation of the BODY-Q: a description of the process. European Journal of Plastic Surgery. 40:29-38. 2017
- Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients?. Quality of Life Research. 26:273-281. 2017
- FACE-Q Eye Module for Measuring Patient-Reported Outcomes Following Cosmetic Eye Treatments. Facial Plastic Surgery and Aesthetic Medicine. 19:7-14. 2017
- International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome instrument for children and young adults with cleft lip and/or palate (CLEFT-Q). BMJ Open. 7:e015467-e015467. 2017
- Quality of life of children with lower limb deformities: A systematic review of patient-reported outcomes and development of a preliminary conceptual framework. Journal of Limb Lengthening & Reconstruction. 3:19-19. 2017
- Patient-Reported Outcome Instruments for Surgical and Traumatic Scars: A Systematic Review of their Development, Content, and Psychometric Validation. Aesthetic Plastic Surgery. 40:792-800. 2016
- Self-Report Scales to Measure Expectations and Appearance-Related Psychosocial Distress in Patients Seeking Cosmetic Treatments. Aesthetic Surgery Journal. 36:1068-1078. 2016
- Examining factors associated with self-management skills in teenage survivors of cancer. Journal of Cancer Survivorship. 10:686-691. 2016
- Patient experiences and outcomes following facial skin cancer surgery: A qualitative study. Australasian Journal of Dermatology. 57:e100-e104. 2016
- RHINO Scale: A Question about Content Validity. Plastic and Reconstructive Surgery - Global Open. 4:e826-e826. 2016
- Understanding and Optimizing the Patient Experience in Breast Reconstruction. Annals of Plastic Surgery. 77:237-241. 2016
- Development and Psychometric Validation of the FACE-Q Skin, Lips, and Facial Rhytids Appearance Scales and Adverse Effects Checklists for Cosmetic Procedures. JAMA dermatology. 152:443-443. 2016
- Factors associated with childhood cancer survivors’ knowledge about their diagnosis, treatment, and risk for late effects. Journal of Cancer Survivorship. 10:363-374. 2016
- Patient Expectations of Bariatric and Body Contouring Surgery. Plastic and Reconstructive Surgery - Global Open. 4:e694-e694. 2016
- The BODY-Q: A Patient-Reported Outcome Instrument for Weight Loss and Body Contouring Treatments. Plastic and Reconstructive Surgery - Global Open. 4:e679-e679. 2016
- FACE-Q Satisfaction with Appearance Scores from Close to 1000 Facial Aesthetic Patients. Plastic and Reconstructive Surgery. 137:651e-652e. 2016
- Use of FACE-Q to Measure Quality of Life Following Aesthetic Facial Treatments. Facial Plastic Surgery and Aesthetic Medicine. 18:148-149. 2016
- The BREAST-Q in surgical research: A review of the literature 2009–2015. Journal of Plastic, Reconstructive and Aesthetic Surgery. 69:149-162. 2016
- Development and Psychometric Evaluation of the FACE-Q Scales for Patients Undergoing Rhinoplasty. Facial Plastic Surgery and Aesthetic Medicine. 18:27-35. 2016
- Psychosocial and Sexual Well-Being Following Nipple-Sparing Mastectomy and Reconstruction. Breast Journal. 22:10-17. 2016
- Exploring Cancer Worry in Adolescent and Young Adult Survivors of Childhood Cancers. Journal of Adolescent and Young Adult Oncology. 4:192-199. 2015
- The development of scales to measure childhood cancer survivors' readiness for transition to long‐term follow‐up care as adults. Health Expectations. 18:1941-1955. 2015
-
Is the
G iveY outh aV oice questionnaire an appropriate measure of teen‐centred care in paediatric oncology: aR asch measurement theory analysis. Health Expectations. 18:1686-1697. 2015 - Measuring Satisfaction with Appearance. Plastic and Reconstructive Surgery. 136:140-141. 2015
-
Development and validation of a generic scale for use in transition programmes to measure self‐management skills in adolescents with chronic health conditions: the
TRANSITION ‐Q . Child: Care, Health and Development. 41:547-558. 2015 - 133: Are They Expecting Too much? – Unrealistic Expectations About Adult Healthcare in Teenaged Childhood Cancer Survivors. Paediatrics and Child Health. 20:e82-e82. 2015
- FACE-Q Scales for Health-Related Quality of Life, Early Life Impact, Satisfaction with Outcomes, and Decision to Have Treatment. Plastic and Reconstructive Surgery. 135:375-386. 2015
- FACE-Q scales for health-related quality of life, early life impact, satisfaction with outcomes, and decision to have treatment: development and validation.. Plastic and Reconstructive Surgery. 135:375-386. 2015
- Assessing Outcomes in Body Contouring. Clinics in Plastic Surgery. 41:645-654. 2014
- Measuring Outcomes That Matter to Cosmetic Patients. Plastic and Reconstructive Surgery. 134:97-97. 2014
- Measuring Quality of Life in Facial Aesthetic Patients. Plastic and Reconstructive Surgery. 134:96-96. 2014
- Understanding the healthcare experiences of teenaged cancer patients and survivors. Child: Care, Health and Development. 40:723-730. 2014
- ‘He does not see himself as being different’: the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy. Developmental Medicine and Child Neurology. 56:853-861. 2014
- Implant Breast Reconstruction and Radiation: A Multicenter Analysis of Long-Term Health-Related Quality of Life and Satisfaction. Annals of Surgical Oncology. 21:2159-2164. 2014
- Interpreting Clinical Differences in BREAST-Q Scores. Plastic and Reconstructive Surgery. 134:173e-175e. 2014
- 170: Exploring Needs During Transition From Adolescence to Adulthood in Young Adults with Inflammatory Bowel Disease: A Qualitative Study. Paediatrics and Child Health. 19:e93-e94. 2014
- Demands and Rewards of Working Within Multidisciplinary Teams in Pediatric Oncology: The Experiences of Canadian Health Care Providers. Qualitative Report. 2014
- Response to "The FACE-Q: The Importance of Full Disclosure and Sound Methodology in Outcomes Studies". Aesthetic Surgery Journal. 34:628-631. 2014
- Toward the Development of the International Classification of Functioning Core Sets for Children With Cerebral Palsy. Journal of Child Neurology. 29:582-591. 2014
- A review of patient-reported outcomes for children and adolescents with obesity. Quality of Life Research. 23:759-770. 2014
- Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model. Quality of Life Research. 23:771-789. 2014
- Identifying the supportive care needs of adolescent and young adult survivors of cancer: a qualitative analysis and systematic literature review. Supportive Care in Cancer. 22:947-959. 2014
- Caregiving, single parents and cumulative stresses when caring for a child with cancer. Child: Care, Health and Development. 40:184-194. 2014
- Chest and Upper Body Morbidity Following Immediate Postmastectomy Breast Reconstruction. Annals of Surgical Oncology. 21:107-112. 2014
- Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): A systematic review. European Journal of Paediatric Neurology. 18:1-12. 2014
- Measuring Outcomes That Matter to Face-Lift Patients. Plastic and Reconstructive Surgery. 133:21-30. 2014
- P-171 Exploring Needs During Transition from Adolescence to Adulthood in Young Adults with Inflammatory Bowel Disease. Inflammatory Bowel Diseases. 19:S94-S95. 2013
- Development and Psychometric Evaluation of the FACE-Q Aging Appraisal Scale and Patient-Perceived Age Visual Analog Scale. Aesthetic Surgery Journal. 33:1099-1109. 2013
- Barriers and facilitators to health and social service access and utilization for immigrant parents raising a child with a physical disability. International Journal of Migration, Health and Social Care. 9:135-145. 2013
- Barriers and Facilitators of Transition from Pediatric to Adult Long-Term Follow-Up Care in Childhood Cancer Survivors. Journal of Adolescent and Young Adult Oncology. 2:104-111. 2013
- Quality of life domains affected in children with developmental coordination disorder: a systematic review. Child: Care, Health and Development. 39:562-580. 2013
- Measuring the Quality of a Childhood Cancer Care Delivery System: Assessing Stakeholder Agreement. Value in Health. 16:639-646. 2013
- Measuring the Quality of a Childhood Cancer Care Delivery System: Quality Indicator Development. Value in Health. 16:647-654. 2013
- A Closer Look at the BREAST-Q©. Clinics in Plastic Surgery. 40:287-296. 2013
- Development and Psychometric Evaluation of the FACE-Q Satisfaction with Appearance Scale. Clinics in Plastic Surgery. 40:249-260. 2013
- Measuring Health-related Quality of Life Outcomes in Head and Neck Reconstruction. Clinics in Plastic Surgery. 40:341-349. 2013
- Measuring Outcomes in Craniofacial and Pediatric Plastic Surgery. Clinics in Plastic Surgery. 40:305-312. 2013
- Family‐centred care: a qualitative study of Chinese and South Asian immigrant parents' experiences of care in paediatric oncology. Child: Care, Health and Development. 39:185-193. 2013
- Quality of life among breast cancer patients with lymphedema: a systematic review of patient-reported outcome instruments and outcomes. Journal of Cancer Survivorship. 7:83-92. 2013
- Reply. Plastic and Reconstructive Surgery. 131:286e-288e. 2013
- Psychological Screening Measures for Cosmetic Plastic Surgery Patients: A Systematic Review. Aesthetic Surgery Journal. 33:152-159. 2013
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theses
- Establishing Reliability and Validity of the FACE-Q Craniofacial Module for Pediatric Head and Neck Cancer. Journal of Adolescent and Young Adult Oncology. 2024