selected scholarly activity
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chapters
- The Evolution of Patient-Reported Outcome Measures (PROMs) in Plastic Surgery. 411-417. 2024
- Patient-Important Outcome Measures in Surgical Care. 71-83. 2019
- Health-Related Quality of Life. Pediatric Oncology. 735-747. 2017
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conferences
- Using a timeline activity in concept elicitation interviews with youth: Methods and lessons learned from an interpretive descriptive study to develop a patient-reported outcome measure (GENDER-Q Youth). Quality of Life Research. S147-S148. 2024
- Virtual qualitative health research with youth about sensitive topics: A framework to prioritize participant and research team safety during data generation. Quality of Life Research. S25-S25. 2024
- Extracting big data from the internet to support the development of a new patient-reported outcome measure for breast implant illness: a proof of concept study. Quality of Life Research. 1975-1983. 2024
- Development Of A Novel Patient-Reported Outcome Measure For Headache Disorders: The Headache-Q. Plastic and Reconstructive Surgery - Global Open. 48-49. 2023
- Impact of Completing FACE-Q Craniofacial Module Scales on Children and Young Adults with Facial Differences: An International Study. Plastic and Reconstructive Surgery. 1063-1069. 2023
- A Prospective Study to Examine Responsiveness and Minimally Important Differences (MIDs) for the CLEFT-Q Scales Following Three Cleft-Specific Operations. Cleft Palate-Craniofacial Journal. 413-420. 2023
- Development and Pilot testing of a Patient-Reported Outcome Measure for Gender-Affirming Care: The GENDER-Q. Quality of Life Research. S20-S21. 2022
- The first step in patient-censtered outcomes research: deciding what to measure. Quality of Life Research. S18-S18. 2022
- Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities.. Quality of Life Research. 2805-2818. 2022
- Development and Psychometric Validation of BREAST-Q Scales Measuring Cancer Worry, Fatigue, and Impact on Work. Annals of Surgical Oncology. 7410-7420. 2021
- Determining construct validity of scales from the FACE-Q craniofacial module for patients with craniosynostosis. Quality of Life Research. S142-S142. 2021
- Development of LYMPH-Q upper extremity scales measuring worry, work impact, and burden of conservative treatments. Quality of Life Research. S91-S91. 2021
- European normative data for interpreting the BODY-Q. Quality of Life Research. S143-S143. 2021
- Parents of children with medical complexity: a qualitative exploration of impact on health and well-being from caregiving and care coordination. Quality of Life Research. S14-S14. 2021
- Understanding outcomes and experiences of care important to transgender and gender diverse youth. Quality of Life Research. S17-S17. 2021
- Validation of a PROM for use in pediatric head and neck cancer: The FACE-Q Craniofacial Module. Quality of Life Research. S118-S118. 2021
- Health-related quality of life in the treatment and survivorship phases of breast cancer.. Journal of Clinical Oncology. e18621-e18621. 2021
- An international qualitative study informing the development of a patient-reported outcome instrument for adults receiving gender-affirming treatments: the GENDER-Q. Quality of Life Research. S70-S71. 2020
- Development of a new patient-reported outcome measure for use in patient's diagnosis with headaches. Quality of Life Research. S173-S173. 2020
- Development and Psychometric Evaluation of the Cancer Distress Scales for Adolescent and Young Adults. Journal of Adolescent and Young Adult Oncology. 566-580. 2019
- Development of a new Patient-Reported Outcome measure to evaluate treatments for acne and acne scarring: The ACNE-Q. Quality of Life Research. S77-S78. 2019
- Examining content validity of BREAST-Q a decade later to determine relevance and comprehensiveness. Quality of Life Research. S75-S75. 2019
- Normative data for interpreting the BODY-Q: understanding the value of weight loss surgery. Quality of Life Research. S116-S117. 2019
- Patient-reported outcomes in weight loss and body contouring surgery: the voice of 1831 patients using the BODY-Q. Quality of Life Research. S115-S116. 2019
- Psychometric evaluation of new BREAST-Q Scales for the breast reconstruction module. Quality of Life Research. S76-S77. 2019
- The development of new BODY-Q scales to measure outcomes for patients undergoing weight loss surgery. Quality of Life Research. S76-S76. 2019
- What matters to children and adolescents with lower limb deformities: an international qualitative study informing the development of the LIMB-Q Kids. Quality of Life Research. S22-S22. 2019
- BODY CONTOURING SURGERY: IMPROVEMENT IN PHYSICAL SYMPTOMS AFTER ABDOMINOPLASTY Plastic surgery after weight loss. Obesity Surgery. 304-304. 2019
- BODY-Q NETWORK: MEASURING WHAT MATTERS TO MASSIVE WEIGHT LOSS PATIENTS Plastic surgery after weight loss. Obesity Surgery. 305-305. 2019
- GIVING MEANING TO DIFFERENCES IN BODY-Q SCORES: MINIMAL IMPORTANT DIFFERENCE FOR BODY CONTOURING SURGERY PATIENTS Plastic surgery after weight loss. Obesity Surgery. 306-306. 2019
- NORMATIVE DATA FOR INTERPRETING THE BODY-Q: UNDERSTANDING THE VALUE OF BARIATRIC SURGERY Registries and Quality in Bariatric Surgery. Obesity Surgery. 341-341. 2019
- RACIAL DISPARITIES IN BODY IMAGE AND SATISFACTION WITH APPEARANCE FOLLOWING BARIATRIC SURGERY Psychology and bariatric surgery - pre and post-op challenges. Obesity Surgery. 990-990. 2019
- TOWARDS A NATIONWIDE DUTCH PROM IN OBESITY CARE: THE OBESI-Q Registries and Quality in Bariatric Surgery. Obesity Surgery. 297-297. 2019
- WHAT MATTERS TO PATIENTS UNDERGOING BARIATRIC SURGERY: THE DEVELOPMENT OF NEW BARIATRIC SURGERY SPECIFIC BODY-Q SCALES Registries and Quality in Bariatric Surgery. Obesity Surgery. 296-296. 2019
- An international qualitative study to develop a new patient-reported outcome instrument for hand conditions: the HAND-Q. Quality of Life Research. S180-S180. 2018
- CLEFT-Q: detecting differences in outcomes between 2,434 patients with varying cleft types. Quality of Life Research. S147-S147. 2018
- Developing a new module of the BREAST-Q to measure outcomes for patients with lymphedema: a qualitative study. Quality of Life Research. S162-S162. 2018
- Development of a patient education program for patients undergoing body contouring after massive weight loss. Quality of Life Research. S89-S90. 2018
- Development of health-state classification system for a new breast cancer-specific preference-based measure: the BREAST-Q-U. Quality of Life Research. S18-S19. 2018
- Dutch and Danish translation and cultural adaption of the WOUND-Q. Quality of Life Research. S69-S69. 2018
- Impact of completing pediatric patient-reported outcome measures that ask about appearance of cleft lip and/or palate. Quality of Life Research. S110-S111. 2018
- Improving breast cancer care by understanding health utilities: the work before the work. Quality of Life Research. S14-S14. 2018
- Streamlining assessment of patient satisfaction with body appearance by applying multidimensional computerized adaptive testing to the BODY-Q. Quality of Life Research. S107-S107. 2018
- BODY CONTOURING SURGERY: IMPROVEMENT IN PHYSICAL FUNCTION AND SYMPTOMS AFTER ABDOMINOPLASTY. Obesity Surgery. 15-15. 2018
- ACNE-Q is a new Patient Reported Outcome instrument that measures appearance-related concerns. Quality of Life Research. 136-136. 2017
- An international qualitative study to development a new Patient-Reported Outcome instrument for chronic wounds: The WOUND-Q. Quality of Life Research. 137-137. 2017
- Development of A New Patient-Reported Outcome Instrument To Evaluate Treatments For Stretchmarks: The Body-Q Stretchmark Scale. Value in Health. A805-A806. 2017
- Development of a new patient-reported outcome instrument for skin cancer: FACE-Q skin cancer. Quality of Life Research. 104-105. 2017
- Psychometric findings and normative values for the CLEFT-Q based on 2,434 children and young adult patients with cleft lip and/or palate from 12 countries. Quality of Life Research. 42-42. 2017
- Qualitative insights to health related quality of life among US and Canadian based children with lower limb deformities. Quality of Life Research. 73-74. 2017
- Translation And Cultural Adaptation Of The Body-Q Chest Module Into Finnish For Use In Gynecomastia, Weight Loss And FTM Chest Surgery. Value in Health. A766-A766. 2017
- FIRST RESULTS OF THE BODY-Q; A SPECIFIC 'PATIENT REPORTED OUTCOME MEASURES' (PROM) FOR BODY CONTOURING SURGERY. Plastic surgery after weight loss. Obesity Surgery. 269-269. 2017
- Linguistic Validation of the Finnish Version of the Body-Q Pro Instrument. Value in Health. A595-A595. 2016
- Applying computer adaptive testing to the BREAST-Q. Quality of Life Research. 54-55. 2016
- Developing content for a PRO instrument for surgical and traumatic scars: qualitative phase. Quality of Life Research. 187-188. 2016
- Developing content for a patient-reported outcome instrument for ear anomalies: a qualitative study. Quality of Life Research. 174-174. 2016
- Development of a patient-reported outcome instrument to measure quality of life of children with lower limb deformities: preliminary results. Quality of Life Research. 138-138. 2016
- Development of a patient-reported outcome instrument to measure satisfaction with appearance of the chest for men. Quality of Life Research. 173-174. 2016
- Linguistic validation of the CLEFT-Q into 8 languages. Quality of Life Research. 167-167. 2016
- Using cognitive interviews and expert feedback to validate the Australian AYA Distress Thermometer and Problem Checklist for use in Canada.. Journal of Clinical Oncology. 10088-10088. 2016
- Patient Expectations of Bariatric and Body Contouring Surgery. Plastic and Reconstructive Surgery - Global Open. 2016
- An early look: a mixed methods study to examine the feasibility, preliminary psychometric performance, and early construct validity of the CLEFT-Q. Quality of Life Research. 159-159. 2015
- Determining the psychometric properties of the CLEFT-Q using two different sets of response options. Quality of Life Research. 41-41. 2015
- Development and psychometric validation of a PRO instrument for obese, bariatric and cosmetic body contouring patients: the BODY-Q. Quality of Life Research. 42-42. 2015
- Measuring outcomes in young patients with conditions associated with a facial difference: are PRO instruments asking the right questions?. Quality of Life Research. 115-115. 2015
- What do health-related quality of life questionnaires designed for adolescents and young adults (AYA) with cancer measure? A systematic review. Quality of Life Research. 77-78. 2015
- EXPLORING CANCER WORRY PREDICTORS IN ADOLESCENT AND YOUNG ADULT SURVIVORS OF CHILDHOOD CANCERS. Pediatric Blood and Cancer. S253-S253. 2014
- QUALITY OF LIFE FROM THE PERSPECTIVE OF PEDIATRIC CANCER PATIENTS AND SURVIVORS: "THERE ARE GOOD THINGS AND THEN THERE ARE BAD THINGS". Pediatric Blood and Cancer. S357-S357. 2014
- Development and Validation of a Generic Scale for use in Transition Programs to Measure Self-Management Skills in Adolescents with Chronic Health Conditions: The TRANSITION-Q. Quality of Life Research. 63-63. 2014
- Health-related quality of life (HRQOL) following prophylactic mastectomy and reconstruction. Quality of Life Research. 7-7. 2014
- How qualitative methods can be used to ensure content validity in a PRO instrument for patients with cleft lip and/or palate who vary by age and culture: development of the CLEFT-Q. Quality of Life Research. 62-63. 2014
- Measuring Pros That Matter to Bariatric and Body Contouring Surgery: The Body-Q. Value in Health. A386-A386. 2013
- A qualitative study to develop a conceptual framework to understand the health concerns of patients who undergo facial surgery for skin cancer. Quality of Life Research. 2013
- CLEFT-Q: Cross-cultural and age-related similarities in developing a patient-reported outcome instrument for children with cleft lip and/or palate. Quality of Life Research. 2013
- Development and psychometric evaluation of the FACE-Q aging appraisal scale. Quality of Life Research. 2013
- Quality of life and the impact of altered facial appearance in head and neck cancer patient populations: a qualitative study. Quality of Life Research. 2013
- A systematic review of patient-reported outcome instruments of nonmelanoma skin cancer in the dermatologic population. Journal of American Academy of Dermatology. e59-e67. 2013
- Optimizing Patient-Centered Care in Breast Reconstruction. Plastic and Reconstructive Surgery. 212e-220e. 2013
- Psychometric Development Of A New Pro Instrument: The Face-Q Scales For Facelift Patients. Value in Health. A76-A76. 2013
- Responsiveness Of The Face-Q: A New Pro For Facial Aesthetic Paitents. Value in Health. A77-A77. 2013
- Development of a Conceptual Model of Quality of Life within Pediatric Oncology. International Journal of Qualitative Methods. 744-744. 2013
- A NEW QUESTIONNAIRE TO MEASURE TEEN-CENTRED CARE IN PEDIATRIC ONCOLOGY: GIVE YOUTH A VOICE. Pediatric Blood and Cancer. 1121-1121. 2012
- IDENTIFYING THE HEALTH AND SUPPORTIVE CARE NEEDS OF ADOLESCENT AND YOUNG ADULT CANCER PATIENTS AND SURVIVORS. Pediatric Blood and Cancer. 1119-1119. 2012
- IMPORTANT FACTORS TO UNDERSTANDING QUALITY OF LIFE ACCORDING TO CHILDREN WITH CANCER AND CHILDHOOD CANCER SURVIVORS. Pediatric Blood and Cancer. 1120-1120. 2012
- TEEN-CENTRED CARE IS ASSOCIATED WITH TYPE OF CARE AND HEALTH-RELATED QUALITY OF LIFE IN ADOLESCENT ONCOLOGY PATIENTS. Pediatric Blood and Cancer. 983-983. 2012
- Breast reconstruction and radiation: an analysis of quality of life and satisfaction among patients undergoing implant reconstruction. Quality of Life Research. 12-13. 2012
- Content comparison of the qualitative data informing the CLEFT-Q to generic instruments (Peds-QL 4.0, CHQ, KINDL) using the ICF-CY classification. Quality of Life Research. 28-29. 2012
- Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction. Quality of Life Research. 82-82. 2012
- Optimizing satisfaction in breast reconstruction: the importance of the preoperative information and patient-physician communication. Plastic and Reconstructive Surgery. 61-62. 2012
- Patient-reported satisfaction with psychosocial and sexual well-being and the nipple areola complex: comparison of preservation and reconstruction. Quality of Life Research. 126-127. 2012
- Patient-reported satisfaction with reconstructed breasts in the long-term survivorship period: comparison of autologous and non-autologous breast reconstruction. Quality of Life Research. 5-5. 2012
- Measuring Quality of Life and Patient Satisfaction in Facial Paralysis Patients. Plastic and Reconstructive Surgery. 91-99. 2012
- The Magnitude of Effect of Cosmetic Breast Augmentation on Patient Satisfaction and Health-Related Quality of Life. Plastic and Reconstructive Surgery. 218-223. 2012
- PIH56 Measuring Quality of Life in Facial Aesthetic Patients: Field-Testing of a New Modular System (the FACE-Q). Value in Health. A202-A202. 2012
- Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction.. Journal of Clinical Oncology. 2012
- Patient-reported satisfaction with reconstructed breasts in the long-term survivorship period: Comparison of autologous and nonautologous breast reconstruction. Journal of Clinical Oncology. 2012
- The BREAST-Q. Plastic and Reconstructive Surgery. 293-302. 2012
- Adaptation of existing PRO measures for use in additional patient populations: The BREAST-Q (c) BCT Module. Quality of Life Research. 26-27. 2012
- Developing a Patient-Reported Outcome Measure for Cleft-Lip and/or Palate Patients. Quality of Life Research. 34-35. 2012
- Development of Scales to Measure Transition Readiness in Childhood Cancer Survivors (MT). Quality of Life Research. 41-41. 2012
- Establishing Content Validity of the Give Youth a Voice Questionnaire for use in Pediatric Oncology: A Qualitative Study. Quality of Life Research. 13-13. 2012
- Measuring Child Health: How Do Measures Influence the Outcomes? (MT). Quality of Life Research. 94-95. 2012
- Missing elements in current head and neck patient reported outcome measures. Quality of Life Research. 35-35. 2012
- The BODY-Q: A New Patient-Reported Outcome (PRO) Measure for Body Contouring Patients (CP). Quality of Life Research. 74-75. 2012
- Understanding The Health Impact of Caregiving: A Qualitative Study of Canadian Parents of Children With Cancer (MT). Quality of Life Research. 62-62. 2012
- From breast-Q © to Q-score ©: Using rasch measurement to better capture breast surgery outcomes. 14th Joint International Imeko Tc1 Tc7 Tc13 Symposium on Intelligent Quality Measurements Theory Education and Training 2011 Held in Conj with the 56th Iwk Ilmenau University of Technology. 82-94. 2011
- Measuring Quality of Life and Patient Satisfaction After Body Contouring: A Systematic Review of Patient-Reported Outcome Measures. Aesthetic Surgery Journal. 807-813. 2011
- Identifying the Health Care Supportive needs of Adolescents and Young Adult Cancer Patients and Survivors: Preliminary Findings from a Qualitative Study. International Journal of Qualitative Methods. 481-482. 2011
- LANGUAGE AND COMMUNICATION CHALLENGES EXPERIENCED BY CHINESE AND SOUTH ASIAN PARENTS OF CHILDREN WITH CANCER LIVING IN CANADA. Pediatric Blood and Cancer. 990-990. 2010
- PERCEPTIONS ABOUT COMPLEMENTARY AND ALTERNATIVE MEDICINE USE AMONG CHINESE IMMIGRANT PARENTS OF CHILDREN WITH CANCER. Pediatric Blood and Cancer. 848-849. 2010
- Conceptualizing Quality of Life in Children with Cancer and Childhood Cancer Survivors. Quality of Life Research. 76-76. 2010
- Development of a new BREAST-Q module for Breast Cancer Patients: The Breast-Conserving Therapy (BCT) Module. Quality of Life Research. 112-113. 2010
- Measuring Transition Readiness in Childhood Cancer Survivors: Development of a Patient Reported Outcome (PRO) Instrument. Quality of Life Research. 77-77. 2010
- Measuring and managing patient expectation for breast reconstruction: A new preoperative patient assessment tool. Quality of Life Research. 45-45. 2010
- Solving the Conceptual Discontinuity Problem for Instruments used in Childhood Cancer Research: A systematic review & content analysis using the ICF-CY & WHO definitions. Quality of Life Research. 76-77. 2010
- Single parents' experience of caring for a child with cancer: Preliminary findings. Psychology and Health. 38-38. 2010
- CONTENT COMPARISON OF HEALTH RELATED QUALITY OF LIFE MEASURES FOR CEREBRAL PALSY BASED ON THE INTERNATIONAL CLASSIFICATION OF FUNCTIONING (ICF-CY). Acta Paediatrica, International Journal of Paediatrics. 228-228. 2009
- Development of a New Patient-Reported Outcome Measure for Breast Surgery: The BREAST-Q. Plastic and Reconstructive Surgery. 345-353. 2009
- A Systematic Review of Patient-Reported Outcome Measures after Facial Cosmetic Surgery and/or Nonsurgical Facial Rejuvenation. Plastic and Reconstructive Surgery. 1819-1827. 2009
- A systematic review of patient‐reported outcome measures in head and neck cancer surgery. Otolaryngology - Head and Neck Surgery. 525-535. 2007
- AGREEMENT BETWEEN SELF-REPORT AND PARENT-REPORT OF QUALITY OF LIFE IN A SAMPLE OF CHILDREN DIAGNOSED WITH ATTENTION-DEFICIT/HYPERACTIVITY DISORDER. Quality of Life Research. 1573-1573. 2004
- RELATIONSHIP BETWEEN CHILD HRQL AND PARENT HEALTH IN A SAMPLE OF CHILDREN WITH ADHD. Quality of Life Research. 1572-1572. 2004
- Health status problems in preschoolers: Population-based follow-up study of NICU graduates. Pediatric Research. 485A-486A. 2003
- Who gives permission to access health-related administrative data: Characteristics associated with consent from a study of NICU graduates. Pediatric Research. 445A-445A. 2003
- Behavioral outcomes in a population-based sample of preschool children admitted at birth to a NICU. Pediatric Research. 410A-410A. 2002
- Comparison of parent/caregiver perceptions of the general health of NICU survivors with and without major congenital anomalies. Pediatric Research. 402A-402A. 2002
- Health problems in preschool children admitted to a NICU at birth. Pediatric Research. 410A-410A. 2002
- Health related quality of life (HRQL) and caregiving burden in parents of NICU children: A follow-up study. Pediatric Research. 410A-410A. 2002
- Health related quality of life (HRQL) of preschool children admitted to a NICU at birth. Pediatric Research. 290A-290A. 2002
- Infant toddler quality of life questionnaire (ITHQ): A new measure of health-related quality of life (HRQL) for children aged 1 to 5. Pediatric Research. 290A-290A. 2002
- An Economic Evaluation of Therapies for Attention Deficit Hyperactivity Disorder. Pediatric Research. 18A-18A. 1999
- Benchmarks for nosocomial infection (NI) rates in neonatal intensive care units (NICUs). Pediatric Research. 271A-271A. 1999
- Do antibiotics on admission to the neonatal intensive care unit (NICU) affect later nosocomial infection (NI)?. Pediatric Research. 271A-271A. 1999
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journal articles
- Psychometric Validation of the FACE-Q Dental Module in Patients With Malocclusions.. Community Dentistry and Oral Epidemiology. 53:442-451. 2025
- Comparing the suitability of virtual versus in-person care: Perceptions from pediatricians. Journal of Telemedicine and Telecare. 31:667-672. 2025
- Impact of maternal serum selenium concentration on postpartal serum concentrations of selenium and immunoglobulins in dairy calves - A field study.. Journal of Trace Elements in Medicine and Biology. 89:127656. 2025
- Protocol for the development of a patient-reported outcome measure for patients with hypospadias.. BMJ Open. 15:e088619. 2025
- Measuring Satisfaction With Minimally Invasive Aesthetic Treatments With the SKIN-Q Treatment Outcome Scale.. Aesthetic Surgery Journal. sjaf075. 2025
- Patient Factors That Impact FACE-Q Aesthetics Outcomes: An Exploratory Cross-sectional Regression Analysis.. Aesthetic Surgery Journal. 45:543-551. 2025
- Letter to the Editor: GENDER-Q Youth will measure outcomes that matter to youth seeking gender-affirming care.. Paediatrics and Child Health. 30:98-99. 2025
- The WOUND-Q Function and Symptoms Scales for Chronic Lower Extremity Wounds: A Validation Study. Advances in Wound Care. 14:238-250. 2025
- Establishing Convergent Validity of the FACE-Q Aesthetics Module Scales.. Aesthetic Surgery Journal. 45:508-513. 2025
- Core competencies for healthcare practitioners and clinics providing gender-affirming care from the patient perspective: An international qualitative study.. Journal of Plastic, Reconstructive and Aesthetic Surgery. 103:384-388. 2025
- Development and Assessment of a Patient-Reported Outcome Instrument for Gender-Affirming Care.. JAMA network open. 8:e254708. 2025
- Measuring Outcomes Relevant to the Décolletage From the Patient Perspective: Development and Validation of the BODY-Q Décolletage Scale.. Aesthetic Surgery Journal. 45:313-320. 2025
- Danish translation and linguistic validation of the GENDER-Q, a patient-reported outcome measure for use in gender-affirming care. European Journal of Plastic Surgery. 48. 2025
- Development of a Patient-Reported Outcome Measure for Youth Receiving Gender-Affirming Care: The GENDER-Q Youth Module. Transgender Health. 2025
- Dutch Nationwide Cohort Experience with a New PROMs Set in Metabolic and Bariatric Surgery: BODY-Q Obesity Module.. Obesity Surgery. 35:67-77. 2025
- Patient and wound factors associated with WOUND-Q scales measuring health-related quality of life: An international cross-sectional study.. Wound Repair and Regeneration. 33:e13245. 2025
- Immediate dam-sourced colostrum provision reduces calf mortality - management practices and calf mortality in large dairy herds.. Acta Veterinaria Scandinavica. 66:61. 2024
- Patient-reported Outcome Measures for Peripheral Nerve Injuries: A Systematic Review.. Plastic and Reconstructive Surgery - Global Open. 12:e6408. 2024
- The LIMB-Q: Reliability and Validity of a Novel Patient-Reported Outcome Measure for Lower Extremity Trauma Patients. Plastic and Reconstructive Surgery. 154:1332-1340. 2024
- International study to develop a patient-reported outcome measure to evaluate outcomes of gender-affirming care - the GENDER-Q.. Journal of Patient-Reported Outcomes. 8:134. 2024
- Improving the Impact of BODY-Q Scores Through Minimal Important Differences in Body Contouring Surgery: An International Prospective Cohort Study. Aesthetic Surgery Journal. 44:1317-1329. 2024
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Development and validation of a patient‐reported outcome measure for hair loss treatment: The
HAIR ‐Q. Journal of Cosmetic Dermatology. 23:3705-3715. 2024 - Patient Factors Associated With Increased Cancer Worry, Fatigue, and Impact on Work Following a Breast Cancer Diagnosis: A Cross-Sectional Analysis. Plastic Surgery. 32:229255032311610-229255032311610. 2024
- Psychometric validation of the FACE‐Q Aesthetics Satisfaction with Temples scale in individuals seeking minimally invasive treatment to improve temple hollowing. Journal of Cosmetic Dermatology. 23:3517-3524. 2024
- Clinical Significance Unveiled: Understanding the Meaning of FACE-Q Skin Cancer Scores for Improved Patient Care.. Psycho-Oncology. 33:e70009. 2024
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Minimal important difference in weight loss following bariatric surgery: Enhancing
BODY‐Q interpretability. Clinical Obesity. 14:e12675. 2024 - [Association between perinatal mortality and the management of cows before and at calving in large dairy herds].. Tierarztliche Praxis Ausgabe G: Grosstiere - Nutztiere. 52:271-280. 2024
- Establishing test-retest reliability and the smallest detectable change of FACE-Q Aesthetic Module scales. Journal of Plastic, Reconstructive and Aesthetic Surgery. 95:231-238. 2024
- Further psychometric evaluation of the WOUND‐Q: A responsiveness study. Wound Repair and Regeneration. 32:451-463. 2024
- German Translation and Linguistic Validation of the LIMB‑Q: A Patient-reported Outcome Measure for Lower Extremity Trauma. Plastic and Reconstructive Surgery - Global Open. 12:e6001-e6001. 2024
- Iterative qualitative approach to establishing content validation of a patient-reported outcome measure for arm lymphedema: the LYMPH-Q Upper Extremity Module. Journal of Patient-Reported Outcomes. 8:63. 2024
- “I Want It to Look Natural”: Development and Validation of the FACE-Q Aesthetics Natural Module. Aesthetic Surgery Journal. 44:733-743. 2024
- Body Contouring Surgery After Bariatric Surgery Improves Long-Term Health-Related Quality of Life and Satisfaction With Appearance. Annals of Surgery. 279:1008-1017. 2024
- Determining Construct Validity of a Patient-Reported Outcome Measure for Birthmarks on the Face and Body. Facial Plastic Surgery and Aesthetic Medicine. 26:310-314. 2024
- Patient factors associated with cancer worry post-breast reconstruction: A cross-sectional study. Journal of Plastic, Reconstructive and Aesthetic Surgery. 93:173-182. 2024
- Patient factors associated with novel EAR-Q appearance, psychosocial, and social scales: A cross-sectional study and regression analysis. Journal of Plastic, Reconstructive and Aesthetic Surgery. 93:62-69. 2024
- The SKIN-Q: An Innovative Patient-Reported Outcome Measure for Evaluating Minimally Invasive Skin Treatments for the Face and Body. Facial Plastic Surgery and Aesthetic Medicine. 26:247-255. 2024
- Dutch translation and cultural adaptation of new LYMPH-Q- scales measuring impact on work and lymphedema worry. European Journal of Plastic Surgery. 47. 2024
- Extending the Range of Measurement for Minimally Invasive Treatments by Adding New Concepts to FACE-Q Aesthetics Scales. Plastic and Reconstructive Surgery - Global Open. 12:e5736-e5736. 2024
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Readability analysis and concept mapping of
PROMs used for headache disorders. Headache. 64:410-423. 2024 - Successful Control of Mycobacterium avium Subspecies paratuberculosis Infection in a Dairy Herd within a Decade-A Case Study.. Animals. 14:984. 2024
- [Prevalence of paratuberculosis in Thuringian sheep and goat flocks].. Tierarztliche Praxis Ausgabe G: Grosstiere - Nutztiere. 52:25-32. 2024
- Measuring the Impact of Surgical and Non-surgical Facial Cosmetic Interventions Using FACE-Q Aesthetic Module Scales: A Systematic Review and Meta-Analysis. Plastic Surgery. 22925503231225480. 2024
- Identifying health-related quality of life concepts to inform the development of the WOUND-Q. Journal of Wound Care. 33:28-38. 2024
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Further psychometric validation and test–retest reproducibility of the
WOUND‐Q . International Wound Journal. 21:e14354. 2024 - “Most efficient and meaningful patient reported appearance assessment in different cleft types and age-groups with Cleft-Q”. Plastic and Reconstructive Surgery. 153:120e-129e. 2024
- Danish translation and linguistic validation of the LIMB-Q, a PROM for traumatic lower limb injuries and amputations. European Journal of Plastic Surgery. 46:1255-1264. 2023
- Estimation of the performance of two real-time polymerase chain reaction assays for detection of Staphylococcus aureus, Streptococcus agalactiae, and Streptococcus dysgalactiae in pooled milk samples in a field study.. Journal of Dairy Science (JDS). 106:9228-9243. 2023
- What is the optimal assessment of speech? A multicentre, international evaluation of speech assessment in 2500 patients with a cleft. BMJ Open. 13:e071571-e071571. 2023
- [Influence of breed and herd size on the intra-herd prevalence of Salmonella enterica subspecies diarizonae serovar 61: k: 1, 5, (7) in sheep].. Tierarztliche Praxis Ausgabe G: Grosstiere - Nutztiere. 51:367-375. 2023
- BODY-Q Normative Scores: Psychometric Validation of the BODY-Q in the General Population in Europe and North America. Plastic and Reconstructive Surgery - Global Open. 11:e5401-e5401. 2023
- Quality of life in children suffering from headaches: a systematic literature review. Journal of Headache and Pain. 24:127. 2023
- Best Practices for FACE-Q Aesthetics Research: A Systematic Review of Study Methodology. Aesthetic Surgery Journal. 43:NP674-NP686. 2023
- Ensuring patient centeredness in upper extremity lymphedema research: Identifying patient-prioritized agenda and preferences. Journal of Plastic, Reconstructive and Aesthetic Surgery. 83:326-333. 2023
- Body contouring surgery improves long-term satisfaction with appearance and health-related quality of life after bariatric surgery: BODY-Q results from a Danish cohort study. Plastic and Reconstructive Surgery. 151:1307-1316. 2023
- Health state utility values in patients undergoing chest masculinization surgery. Journal of Plastic, Reconstructive and Aesthetic Surgery. 81:26-33. 2023
- Patient-Reported Outcome Measures in Gender-Affirming Surgery. The virtual mentor : VM. 25:E421-430. 2023
- Development and Content Validity of a Novel Patient-Reported Outcome Measure for Total Laryngectomy: The LARY-Q. Journal of Voice. S0892-1997(23)00132-7. 2023
- The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery. Journal of Medical Internet Research. 25:e41870-e41870. 2023
- Validation of the Dutch Version of the BODY-Q Measuring Appearance, Health-Related Quality of Life, and Experience of Healthcare in Patients Undergoing Bariatric and Body Contouring Surgery. Aesthetic Surgery Journal. 43:569-579. 2023
- Re-examining content validity of the BREAST-Q more than a decade later to determine relevance and comprehensiveness. Journal of Patient-Reported Outcomes. 7:37. 2023
- D151. The Gender-Q: A Rigorous, Modular, Patient-reported Outcome Measure For Gender-affirming Care. Plastic and Reconstructive Surgery - Global Open. 11. 2023
- Psychometric Validation of the CLEFT-Q Patient Reported Outcome Measure: A Prospective Study to Examine Cross-Sectional Construct Validity. Cleft Palate-Craniofacial Journal. 60:327-335. 2023
- Dutch translation and cultural adaptation of the LYMPH-Q, a new patient-reported outcome measure for breast cancer-related lymphedema. European Journal of Plastic Surgery. 46:105-111. 2023
- Optimizing the Psychosocial Function Measures in the International Consortium for Health Outcomes Measurement Standard Set for Cleft. Plastic and Reconstructive Surgery. 151:274e-281e. 2023
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Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—A multicenter study using the
FACE‐Q Craniofacial module. Cancer Medicine. 12:4739-4750. 2023 -
Quantifying patients' expectations prior to bariatric surgery with the
BODY‐Q in an international multicentre cohort. Clinical Obesity. 13:e12555. 2023 - Development and Validation of a Patient-Reported Outcome Measure for Fingernail and Toenail Conditions: The NAIL-Q. Clinical, Cosmetic and Investigational Dermatology. Volume 16:3091-3105. 2023
- Comparing Breast Sensation between Alloplastic and Autologous Breast Reconstruction Patients Using the BREAST-Q Sensation Module. Plastic and Reconstructive Surgery. 150:1202e-1213e. 2022
- Danish translation and linguistic validation of new body-Q scales measuring expectations, eating behavior, distress, symptoms and work life. Journal of Plastic Surgery and Hand Surgery. 56:376-380. 2022
- Resilience through practicing acceptance: A qualitative study of how patients cope with the psychosocial experiences following limb-threatening lower extremity trauma. Journal of Plastic, Reconstructive and Aesthetic Surgery. 75:3722-3731. 2022
- Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities. Quality of Life Research. 31:2805-2818. 2022
- Patient-Level Factors Associated with Health-Related Quality of Life and Satisfaction with Body After Bariatric Surgery: a Multicenter, Cross-Sectional Study. Obesity Surgery. 32:3079-3087. 2022
- The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery (Preprint) 2022
- Advanced translation and cultural adaption of the LYMPH-Q Upper Extremity Module from English to Danish. European Journal of Plastic Surgery. 45:617-622. 2022
-
General population normative scores for interpreting the
BODY‐Q . Clinical Obesity. 12:e12528. 2022 - Sun protection behaviour checklist for targeted counselling in skin cancer patients. Australasian Journal of Dermatology. 63:392-394. 2022
-
The impact of body mass index (
BMI ) on satisfaction with work life: An internationalBODY‐Q study. Clinical Obesity. 12:e12527. 2022 - A Systematic Literature Review of Health Utility Values in Breast Cancer. Medical decision making. 42:704-719. 2022
- Understanding Breast Implant–Associated Illness: A Delphi Survey Defining Most Frequently Associated Symptoms. Plastic and Reconstructive Surgery. 149:1056e-1061e. 2022
- Correction to: BODY-Q patient-reported outcomes measure (PROM) to assess sleeve gastrectomy vs. Roux-en-Y gastric bypass: eating behavior, eating-related distress, and eating-related symptoms. Surgical Endoscopy. 36:2721-2721. 2022
- Patient-reported outcome measures for patients with nail conditions: a systematic review of the psychometric evidence. Archives of Dermatological Research. 314:223-237. 2022
- Qualitative study informing the development and content validity of the HAND-Q: a modular patient-reported outcome measure for hand conditions. BMJ Open. 12:e052780-e052780. 2022
- Evaluation of the Thuringian Bovine Johne's Disease Control Program-A Case Study.. Animals. 12:493. 2022
- Psychometric Validation of the FACE-Q Craniofacial Module for Facial Nerve Paralysis. Facial Plastic Surgery and Aesthetic Medicine. 24:1-7. 2022
- Comparison of upper extremity lymphedema after sentinel lymph node biopsy and axillary lymph node dissection: patient-reported outcomes in 3044 patients. Breast Cancer Research and Treatment. 191:87-96. 2022
- Development of New BREAST-Q Scales to Measure the Experience of Breast Implant Illness. Plastic and Reconstructive Surgery - Global Open. 10:7-7. 2022
- Measuring outcomes for temple hollowing treatment: Content validity of new and existing FACE‐Q scales. Journal of Cosmetic Dermatology. 21:167-175. 2022
- Patient-reported outcomes measures used in facial vascularized composite allotransplantation: A systematic literature review. Journal of Plastic, Reconstructive and Aesthetic Surgery. 75:33-44. 2022
- The HAND-Q: Psychometrics of a New Patient-reported Outcome Measure for Clinical and Research Applications. Plastic and Reconstructive Surgery - Global Open. 10:e3998-e3998. 2022
- ASO Visual Abstract: Development and Psychometric Validation of BREAST-Q Scales Measuring Cancer Worry, Fatigue, and Impact on Work. Annals of Surgical Oncology. 28:453-454. 2021
- An international mixed methods study to develop a new preference-based measure for women with breast cancer: the BREAST-Q Utility module. BMC Women's Health. 21:8. 2021
- Clinical and Demographic Factors Associated with Distress in Adolescent and Young Adults with Cancer. Journal of Adolescent and Young Adult Oncology. 10:682-689. 2021
- Content Analysis of Patient-Reported Outcome Measures Used in Patients With Nail Conditions. JAMA dermatology. 157:1509-1509. 2021
- Development and Psychometric Validation of the BREAST-Q Sensation Module for Women Undergoing Post-Mastectomy Breast Reconstruction. Annals of Surgical Oncology. 28:7842-7853. 2021
- Establishing content validity of an orthodontic subset of the FACE‐Q Craniofacial Module in children and young adults with malocclusion. Orthodontics and Craniofacial Research. 24:553-560. 2021
- Applying Computerized Adaptive Testing to the FACE-Q Skin Cancer Module: Individualizing Patient-Reported Outcome Measures in Facial Surgery. Plastic and Reconstructive Surgery. 148:863-869. 2021
- Modern Test Theory Techniques for Adaptive Testing in Short Scales Comprising Polytomous Items: A Monte Carlo Simulation Study Comparing Rasch Measurement Theory to Unidimensional and Multidimensional Graded Response Models. (Preprint) 2021
- 26423 Psychometric properties of patient-reported outcome measures for nail conditions: A systematic review. Journal of American Academy of Dermatology. 85:AB18-AB18. 2021
- An international study to develop the EAR-Q patient-reported outcome measure for children and young adults with ear conditions. Journal of Plastic, Reconstructive and Aesthetic Surgery. 74:2341-2348. 2021
- Deeper Understanding of Appearance in Orofacial Clefts: A Structural Equation Model of the CLEFT-Q Appearance Scales. Plastic and Reconstructive Surgery - Global Open. 9:e3806-e3806. 2021
- Development and Psychometric Validation of a Patient-Reported Outcome Measure for Arm Lymphedema: The LYMPH-Q Upper Extremity Module. Annals of Surgical Oncology. 28:5166-5182. 2021
- Development and Psychometric Validation of the BREAST-Q Animation Deformity Scale for Women Undergoing an Implant-Based Breast Reconstruction After Mastectomy. Annals of Surgical Oncology. 28:5183-5193. 2021
- Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process. Archives of Disease in Childhood. 106:868-876. 2021
- FACE-Q Craniofacial Module: Part 1 validation of CLEFT-Q scales for use in children and young adults with facial conditions. Journal of Plastic, Reconstructive and Aesthetic Surgery. 74:2319-2329. 2021
- FACE-Q craniofacial module: Part 2 Psychometric properties of newly developed scales for children and young adults with facial conditions. Journal of Plastic, Reconstructive and Aesthetic Surgery. 74:2330-2340. 2021
- Letter to the Editor: Comment on Sinnott CJ, et al. Female Genital Cosmetic Surgery Requires a New Rigorously Developed Patient Reported Outcome Measure (Ann Plast Surg. 2020;85(S1)). Annals of Plastic Surgery. 87:363-364. 2021
- Reply: Identifying Factors Most Important to Lower Extremity Trauma Patients: Key Concepts from the Development of a Patient-Reported Outcome Instrument for Lower Extremity Trauma, The LIMB-Q. Plastic and Reconstructive Surgery. 148:510e-511e. 2021
- BODY-Q patient-reported outcomes measure (PROM) to assess sleeve gastrectomy vs. Roux-en-Y gastric bypass: eating behavior, eating-related distress, and eating-related symptoms. Surgical Endoscopy. 35:4609-4617. 2021
- Concepts Important to Patients With Facial Differences: A Qualitative Study Informing a New Module of the FACE-Q for Children and Young Adults. Cleft Palate-Craniofacial Journal. 58:1020-1031. 2021
- Development and Validation of New BODY-Q Scales Measuring Expectations, Eating Behavior, Distress, Symptoms, and Work Life in 4004 Adults From 4 Countries. Obesity Surgery. 31:3637-3645. 2021
-
International study to develop the
WOUND‐Q patient‐reported outcome measure for all types of chronic wounds. International Wound Journal. 18:487-509. 2021 - Recursive Partitioning vs Computerized Adaptive Testing to Reduce the Burden of Health Assessments in Cleft Lip and/or Palate: Comparative Simulation Study. Journal of Medical Internet Research. 23:e26412-e26412. 2021
- Determining the Independent Risk Factors for Worse SCAR-Q Scores and Future Scar Revision Surgery. Plastic and Reconstructive Surgery. 148:203-212. 2021
- Optimising the computerised adaptive test to reliably reduce the burden of administering the CLEFT-Q: A Monte Carlo simulation study. Journal of Plastic, Reconstructive and Aesthetic Surgery. 74:1355-1401. 2021
- Detection of Mycobacterium avium Subspecies Paratuberculosis in Pooled Fecal Samples by Fecal Culture and Real-Time PCR in Relation to Bacterial Density.. Animals. 11:1605. 2021
- Detection of Paratuberculosis in Dairy Herds by Analyzing the Scent of Feces, Alveolar Gas, and Stable Air.. Molecules. 26:2854. 2021
- Correction to: Deriving an overall appearance domain score by applying bifactor IRT analysis to the BODY‑Q appearance scales. Quality of Life Research. 30:1523-1524. 2021
- The BODY-Q Chest Module: Further Validation in a Canadian Chest Masculinization Surgery Sample. Aesthetic Surgery Journal. 41:566-574. 2021
- What matters to children with lower limb deformities: an international qualitative study guiding the development of a new patient-reported outcome measure. Journal of Patient-Reported Outcomes. 5:30. 2021
- Test-Retest Reliability of the BREAST-Q IS in the Australian Breast Device Registry. Aesthetic Surgery Journal. 41:NP177-NP184. 2021
- Patient-Reported Outcome Measures in Lymphedema: A Systematic Review and COSMIN Analysis. Annals of Surgical Oncology. 28:1656-1668. 2021
- Rasch Analysis of Patient- and Parent-Reported Outcome Measures in the International Consortium for Health Outcomes Measurement Standard Set for Cleft Lip and Palate. Value in Health. 24:404-412. 2021
- [Association between management factors and herd status regarding Porcine Reproductive and Respiratory Syndrome virus infection - An analysis in the course of a voluntary PRRSV control program in Saxony and Thuringia].. Tierarztliche Praxis Ausgabe G: Grosstiere - Nutztiere. 49:30-39. 2021
- The BODY-Q Cellulite Scale: A Development and Validation Study. Aesthetic Surgery Journal. 41:206-217. 2021
- A Mixed-Methods Feasibility Study of Integrated Pediatric Complex Care: Experiences of Parents With Care and the Value of Parent Engagement in Research. Frontiers in Rehabilitation Sciences. 2:710335. 2021
- Detection of Mycobacterium avium ssp. paratuberculosis in Cultures From Fecal and Tissue Samples Using VOC Analysis and Machine Learning Tools.. Frontiers in Veterinary Science. 8:620327. 2021
- Recursive Partitioning vs Computerized Adaptive Testing to Reduce the Burden of Health Assessments in Cleft Lip and/or Palate: Comparative Simulation Study (Preprint) 2020
- Content Validity of the LIMB-Q: A Patient-Reported Outcome Instrument for Lower Extremity Trauma Patients. Journal of Reconstructive Microsurgery. 36:625-633. 2020
- Re: “Development of a Patient-Reported Outcome Measure for Mohs Reconstruction” by Kavanagh and Christophel. Facial Plastic Surgery and Aesthetic Medicine. 22:397-398. 2020
- Psychometric Findings for the SCAR-Q Patient-Reported Outcome Measure Based on 731 Children and Adults with Surgical, Traumatic, and Burn Scars from Four Countries. Plastic and Reconstructive Surgery. 146:331e-338e. 2020
- Patient‐reported experience measures are essential to improving quality of care for chronic wounds: An international qualitative study. International Wound Journal. 17:1052-1061. 2020
- Development and Validation of the BREAST-Q Breast-Conserving Therapy Module. Annals of Surgical Oncology. 27:2238-2247. 2020
- Impact of Completing CLEFT-Q Scales That Ask About Appearance on Children and Young Adults: An International Study. Cleft Palate-Craniofacial Journal. 57:840-848. 2020
- Measuring Outcomes in Cosmetic Abdominoplasty. Clinics in Plastic Surgery. 47:429-436. 2020
- Identifying Factors Most Important to Lower Extremity Trauma Patients: Key Concepts from the Development of a Patient-Reported Outcome Instrument for Lower Extremity Trauma, The LIMB-Q. Plastic and Reconstructive Surgery. 145:1292-1301. 2020
- A Catalyst for Transforming Health Systems and Person-Centred Care: Canadian National Position Statement on Patient-Reported Outcomes. Current Oncology. 27:90-99. 2020
- Abstract 158: Satisfaction With Appearance In Patients With Cleft Lip And/or Palate: Patient-reported Outcomes Using The Cleft-q At The University Of Pittsburgh. Plastic and Reconstructive Surgery - Global Open. 8:106-106. 2020
- Comparison of Patient-Reported Outcome Measures for Use as Performance Metrics in Adolescent and Young Adult Psychosocial Cancer Care. Journal of Adolescent and Young Adult Oncology. 9:262-270. 2020
- Comparison of the Moorehead‐Ardelt quality of life questionnaire and the BODY‐Q in Danish patients undergoing weight loss and body contouring surgery. Clinical Obesity. 10:e12351. 2020
- Deriving an overall appearance domain score by applying bifactor IRT analysis to the BODY-Q appearance scales. Quality of Life Research. 29:1065-1072. 2020
- Translation and cultural adaptation of the EAR-Q into Arabic, Chinese, French and Spanish for use in an international field-test study. European Journal of Plastic Surgery. 43:159-164. 2020
- International mixed methods study protocol to develop a patient-reported outcome measure for all types of chronic wounds (the WOUND-Q). BMJ Open. 10:e032332-e032332. 2020
- Systematic Review of Patient-Reported Outcomes following Surgical Treatment of Lymphedema. Cancers. 12:565-565. 2020
- CanPROS Scientific Conference 2019 Oral Abstracts. Current Oncology. 27:57-63. 2020
- Giving Meaning to Differences in BREAST-Q Scores: Minimal Important Difference for Breast Reconstruction Patients. Plastic and Reconstructive Surgery. 145:11e-20e. 2020
- International phase 1 study protocol to develop a health state classification system for a preference-based measure for women with breast cancer: the BREAST-Q Utility module. BMJ Open. 10:e034451-e034451. 2020
- ACNE‐Q. British Journal of Dermatology. 181:e165-e165. 2019
-
Development of a new patient‐reported outcome measure to evaluate treatments for acne and acne scarring: the
ACNE ‐Q. British Journal of Dermatology. 181:1207-1215. 2019 - Expectations of breast-conserving therapy: a qualitative study. Journal of Patient-Reported Outcomes. 3:73. 2019
- Further construct validation of the CLEFT-Q: Ability to detect differences in outcome for four cleft-specific surgeries. Journal of Plastic, Reconstructive and Aesthetic Surgery. 72:2049-2055. 2019
- The ACNE‐Q. British Journal of Dermatology. 181:e153-e153. 2019
- Computerised adaptive testing accurately predicts CLEFT-Q scores by selecting fewer, more patient-focused questions. Journal of Plastic, Reconstructive and Aesthetic Surgery. 72:1819-1824. 2019
- Development of a Patient-Reported Outcome Instrument for Patients With Severe Lower Extremity Trauma (LIMB-Q): Protocol for a Multiphase Mixed Methods Study. JMIR Research Protocols. 8:e14397-e14397. 2019
- Danish and Dutch linguistic validation and cultural adaptation of the WOUND-Q, a PROM for chronic wounds. European Journal of Plastic Surgery. 42:495-504. 2019
- Distress Screening in Adolescents and Young Adults with Cancer: Development of Cut-Points for the Cancer Distress Scales-Adolescent and Young Adults. Journal of Adolescent and Young Adult Oncology. 8:560-565. 2019
- French translation and linguistic validation of a new Patient Reported Outcome instrument: the BODY-Q: A description of the process.. Psychiatria Danubina. 31:406-410. 2019
- Deutschsprachige Validierung des Body-Q – standardisiertes PRO-Messinstrument nach bariatrischen und körperformenden Eingriffen. Handchirurgie Mikrochirurgie Plastische Chirurgie. 51:255-261. 2019
- Reply: Treatment of Severe Gynecomastia after Massive Weight Loss: Analysis of Long-Term Outcomes Measured with the Italian Version of the BODY-Q. Plastic and Reconstructive Surgery. 144:326e-328e. 2019
- Reply: Treatment of Severe Gynecomastia after Massive Weight Loss: Analysis of Long-Term Outcomes Measured with the Italian Version of the BODY-Q.. Plastic and Reconstructive Surgery. 144:326e-328e. 2019
- CLEFT-Q: Detecting Differences in Outcomes among 2434 Patients with Varying Cleft Types. Plastic and Reconstructive Surgery. 144:78e-88e. 2019
- Reply: Subcutaneous Mastectomy Improves Satisfaction with Body and Psychosocial Function in Trans Men: Findings of a Cross-Sectional Study Using the BODY-Q Chest Module. Plastic and Reconstructive Surgery. 144:145e-147e. 2019
- Building the political case for investing in public health and public health research. Canadian Journal of Public Health. 110:270-274. 2019
- Implementing Electronic Patient-Reported Outcome Measures in Outpatient Cosmetic Surgery Clinics: An Exploratory Qualitative Study. Aesthetic Surgery Journal. 39:687-695. 2019
- International multiphase mixed methods study protocol to develop a patient-reported outcome instrument for children and adolescents with lower limb deformities. BMJ Open. 9:e027079-e027079. 2019
- Streamlining the Assessment of Patient-Reported Outcomes in Weight Loss and Body Contouring Patients: Applying Computerized Adaptive Testing to the BODY-Q. Plastic and Reconstructive Surgery. 143:946e-955e. 2019
- Abstract 94: SCAR-Q: International Results and Why Individuals Report the Need for Scar Revision Surgery. Plastic and Reconstructive Surgery - Global Open. 7:65-66. 2019
- Development and Validation of a Nipple-Specific Scale for the BREAST-Q to Assess Patient-Reported Outcomes following Nipple-Sparing Mastectomy. Plastic and Reconstructive Surgery. 143:1010-1017. 2019
-
The
FACE ‐Q Skin Cancer Module addresses post‐resection aesthetic and quality of life outcomes. British Journal of Dermatology. 180:953-954. 2019 - Leveraging patient‐reported outcomes data to inform oncology clinical decision making: Introducing the FACE‐Q Head and Neck Cancer Module. Cancer. 125:863-872. 2019
- 52 SCAR-Q, A Patient-Reported Outcome Measure for Scars, Field-Test of Individuals with Burn Scars. Journal of burn care & research : official publication of the American Burn Association.. 40:S37-S37. 2019
- International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome and experience measure for hand conditions (HAND-Q). BMJ Open. 9:e025822-e025822. 2019
- Introducing BREAST-Q Computerized Adaptive Testing: Short and Individualized Patient-Reported Outcome Assessment following Reconstructive Breast Surgery. Plastic and Reconstructive Surgery. 143:679-684. 2019
- The social impact of early psychological maturity in adolescents with cancer. Psycho-Oncology. 28:586-592. 2019
- Exploring Patient Experience of Facial Nerve Palsy to Inform the Development of a PROM. Plastic and Reconstructive Surgery - Global Open. 7:e2072-e2072. 2019
- Patient-Reported Outcome Measures. Clinics in Plastic Surgery. 46:15-24. 2019
- Development of the BODY-Q Chest Module Evaluating Outcomes following Chest Contouring Surgery. Plastic and Reconstructive Surgery. 142:1600-1608. 2018
- Translation and cultural adaptation of the CLEFT-Q into Arabic, Dutch, Hindi, Swedish, and Turkish. European Journal of Plastic Surgery. 41:643-652. 2018
- Danish translation and linguistic validation of the BODY-Q Chest Module. Journal of Plastic Surgery and Hand Surgery. 52:343-346. 2018
- Subcutaneous Mastectomy Improves Satisfaction with Body and Psychosocial Function in Trans Men: Findings of a Cross-Sectional Study Using the BODY-Q Chest Module. Plastic and Reconstructive Surgery. 142:1125-1132. 2018
- International phase I study protocol to develop a patient-reported outcome measure for adolescents and adults receiving gender-affirming treatments (the GENDER-Q). BMJ Open. 8:e025435-e025435. 2018
- The BODY-Q Stretch Marks Scale: A Development and Validation Study. Aesthetic Surgery Journal. 38:990-997. 2018
- Adding scales to BREAST-Q must follow the same rigor as original scales. Journal of Plastic, Reconstructive and Aesthetic Surgery. 71:1216-1230. 2018
- Content Validity of Patient-Reported Outcome Instruments used with Pediatric Patients with Facial Differences. Cleft Palate-Craniofacial Journal. 55:989-998. 2018
- Development of a New Patient-reported Outcome Measure for Ear Conditions: The EAR-Q. Plastic and Reconstructive Surgery - Global Open. 6:e1842-e1842. 2018
- FACE-Q Skin Cancer Module for measuring patient-reported outcomes following facial skin cancer surgery. British Journal of Dermatology. 179:88-94. 2018
- FACE-Q Skin Cancer Module: appearance satisfaction and QoL. British Journal of Dermatology. 179:e70-e70. 2018
- FACE-Q皮肤癌模块:外观满意度和QoL. British Journal of Dermatology. 179:e84-e84. 2018
- Using the BODY-Q to Understand Impact of Weight Loss, Excess Skin, and the Need for Body Contouring following Bariatric Surgery. Plastic and Reconstructive Surgery. 142:77-86. 2018
- Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries. CANADIAN MEDICAL ASSOCIATION JOURNAL. 190:E455-E462. 2018
- 14 SCAR-Q: An Update on Field-testing a Patient-reported Outcome Instrument for Burn, Surgical, and Traumatic Scars. Journal of burn care & research : official publication of the American Burn Association.. 39:S11-S11. 2018
- Development of a New Patient-reported Outcome Instrument to Evaluate Treatments for Scars: The SCAR-Q. Plastic and Reconstructive Surgery - Global Open. 6:e1672-e1672. 2018
- Measuring the patient perspective on latissimus dorsi donor site outcomes following breast reconstruction. Journal of Plastic, Reconstructive and Aesthetic Surgery. 71:336-343. 2018
- What Matters to Patients With Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal. 55:442-450. 2018
- Abstract P5-19-02: Withdrawn. Cancer Research. 78:p5-19-02-p5-19-02. 2018
- Measuring Patient-Reported Outcomes: Key Metrics in Reconstructive Surgery. Annual Review of Medicine. 69:467-479. 2018
- Identifying Needs in Young Adults With Inflammatory Bowel Disease. Gastroenterology Nursing. 41:19-28. 2018
- Reply: Breast Cancer and Reconstruction: Normative Data for Interpreting the BREAST-Q. Plastic and Reconstructive Surgery. 141:181e-182e. 2018
- Further psychometric validation of the BODY-Q: ability to detect change following bariatric surgery weight gain and loss. Health and Quality of Life Outcomes. 15:227. 2017
- Translation and cultural adaptation of the CLEFT-Q for use in Colombia, Chile, and Spain. Health and Quality of Life Outcomes. 15:228. 2017
- Development of a New Module of the FACE-Q for Children and Young Adults with Diverse Conditions Associated with Visible and/or Functional Facial Differences. Facial Plastic Surgery. 33:499-508. 2017
- Measuring Patient-Reported Outcomes in Rhinoplasty Using the FACE-Q: A Single Site Study. Facial Plastic Surgery. 33:461-469. 2017
- Psychometric Validation of the BODY-Q in Danish Patients Undergoing Weight Loss and Body Contouring Surgery. Plastic and Reconstructive Surgery - Global Open. 5:e1529-e1529. 2017
- Patient-Reported Outcomes in Weight Loss and Body Contouring Surgery: A Cross-Sectional Analysis Using the BODY-Q. Plastic and Reconstructive Surgery. 140:491-500. 2017
- Patient-Reported Outcomes 1 Year After Immediate Breast Reconstruction: Results of the Mastectomy Reconstruction Outcomes Consortium Study. Journal of Clinical Oncology. 35:2499-2506. 2017
- Validation of the electronic version of the BREAST-Q in the army of women study. Breast. 33:44-49. 2017
- Breast Cancer and Reconstruction: Normative Data for Interpreting the BREAST-Q. Plastic and Reconstructive Surgery. 139:1046e-1055e. 2017
- Corrigendum. Australasian Journal of Dermatology. 58:160-160. 2017
- Abstract 25: Normative Values for the BREAST-Q. Plastic and Reconstructive Surgery - Global Open. 5:20-21. 2017
- Abstract 25: Normative Values for the BREAST-Q. Plastic and Reconstructive Surgery - Global Open. 5. 2017
- Establishing Content Validity of the CLEFT-Q: A New Patient-reported Outcome Instrument for Cleft Lip/Palate. Plastic and Reconstructive Surgery - Global Open. 5:e1305-e1305. 2017
- Normative Data for Interpreting the BREAST-Q: Augmentation. Plastic and Reconstructive Surgery. 139:846-853. 2017
- Understanding the Health Burden of Macromastia: Normative Data for the BREAST-Q Reduction Module. Plastic and Reconstructive Surgery. 139:846e-853e. 2017
- Assessing quality of life of patients with hypospadias: A systematic review of validated patient-reported outcome instruments. Journal of Pediatric Urology. 13:19-27. 2017
- Danish translation and linguistic validation of the BODY-Q: a description of the process. European Journal of Plastic Surgery. 40:29-38. 2017
- Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients?. Quality of Life Research. 26:273-281. 2017
- FACE-Q Eye Module for Measuring Patient-Reported Outcomes Following Cosmetic Eye Treatments. Facial Plastic Surgery and Aesthetic Medicine. 19:7-14. 2017
- International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome instrument for children and young adults with cleft lip and/or palate (CLEFT-Q). BMJ Open. 7:e015467-e015467. 2017
- Quality of life of children with lower limb deformities: A systematic review of patient-reported outcomes and development of a preliminary conceptual framework. Journal of Limb Lengthening & Reconstruction. 3:19-19. 2017
- Patient-Reported Outcome Instruments for Surgical and Traumatic Scars: A Systematic Review of their Development, Content, and Psychometric Validation. Aesthetic Plastic Surgery. 40:792-800. 2016
- Self-Report Scales to Measure Expectations and Appearance-Related Psychosocial Distress in Patients Seeking Cosmetic Treatments. Aesthetic Surgery Journal. 36:1068-1078. 2016
- Examining factors associated with self-management skills in teenage survivors of cancer. Journal of Cancer Survivorship. 10:686-691. 2016
- Patient experiences and outcomes following facial skin cancer surgery: A qualitative study. Australasian Journal of Dermatology. 57:e100-e104. 2016
- RHINO Scale: A Question about Content Validity. Plastic and Reconstructive Surgery - Global Open. 4:e826-e826. 2016
- Understanding and Optimizing the Patient Experience in Breast Reconstruction. Annals of Plastic Surgery. 77:237-241. 2016
- Development and Psychometric Validation of the FACE-Q Skin, Lips, and Facial Rhytids Appearance Scales and Adverse Effects Checklists for Cosmetic Procedures. JAMA dermatology. 152:443-443. 2016
- Factors associated with childhood cancer survivors’ knowledge about their diagnosis, treatment, and risk for late effects. Journal of Cancer Survivorship. 10:363-374. 2016
- Patient Expectations of Bariatric and Body Contouring Surgery. Plastic and Reconstructive Surgery - Global Open. 4:e694-e694. 2016
- The BODY-Q: A Patient-Reported Outcome Instrument for Weight Loss and Body Contouring Treatments. Plastic and Reconstructive Surgery - Global Open. 4:e679-e679. 2016
- FACE-Q Satisfaction with Appearance Scores from Close to 1000 Facial Aesthetic Patients. Plastic and Reconstructive Surgery. 137:651e-652e. 2016
- Use of FACE-Q to Measure Quality of Life Following Aesthetic Facial Treatments. Facial Plastic Surgery and Aesthetic Medicine. 18:148-149. 2016
- The BREAST-Q in surgical research: A review of the literature 2009–2015. Journal of Plastic, Reconstructive and Aesthetic Surgery. 69:149-162. 2016
- Development and Psychometric Evaluation of the FACE-Q Scales for Patients Undergoing Rhinoplasty. Facial Plastic Surgery and Aesthetic Medicine. 18:27-35. 2016
- Psychosocial and Sexual Well-Being Following Nipple-Sparing Mastectomy and Reconstruction. Breast Journal. 22:10-17. 2016
- Exploring Cancer Worry in Adolescent and Young Adult Survivors of Childhood Cancers. Journal of Adolescent and Young Adult Oncology. 4:192-199. 2015
- The development of scales to measure childhood cancer survivors' readiness for transition to long‐term follow‐up care as adults. Health Expectations. 18:1941-1955. 2015
-
Is the
G iveY outh aV oice questionnaire an appropriate measure of teen‐centred care in paediatric oncology: aR asch measurement theory analysis. Health Expectations. 18:1686-1697. 2015 - Measuring Satisfaction with Appearance. Plastic and Reconstructive Surgery. 136:140-141. 2015
-
Development and validation of a generic scale for use in transition programmes to measure self‐management skills in adolescents with chronic health conditions: the
TRANSITION ‐Q . Child: Care, Health and Development. 41:547-558. 2015 - 133: Are They Expecting Too much? – Unrealistic Expectations About Adult Healthcare in Teenaged Childhood Cancer Survivors. Paediatrics and Child Health. 20:e82-e82. 2015
- FACE-Q Scales for Health-Related Quality of Life, Early Life Impact, Satisfaction with Outcomes, and Decision to Have Treatment. Plastic and Reconstructive Surgery. 135:375-386. 2015
- FACE-Q scales for health-related quality of life, early life impact, satisfaction with outcomes, and decision to have treatment: development and validation.. Plastic and Reconstructive Surgery. 135:375-386. 2015
- Assessing Outcomes in Body Contouring. Clinics in Plastic Surgery. 41:645-654. 2014
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- Comparing contents of outcome measures in cerebral palsy using the international classification of functioning (ICF-CY): A systematic review. European Journal of Paediatric Neurology. 18:1-12. 2014
- Measuring Outcomes That Matter to Face-Lift Patients. Plastic and Reconstructive Surgery. 133:21-30. 2014
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- Barriers and facilitators to health and social service access and utilization for immigrant parents raising a child with a physical disability. International Journal of Migration, Health and Social Care. 9:135-145. 2013
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- Reply. Plastic and Reconstructive Surgery. 131:286e-288e. 2013
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- Patient-Reported Outcome Measures in Plastic Surgery: Use and Interpretation in Evidence-Based Medicine. Plastic and Reconstructive Surgery. 127:1361-1367. 2011
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theses
- Establishing Reliability and Validity of the FACE-Q Craniofacial Module for Pediatric Head and Neck Cancer. Journal of Adolescent and Young Adult Oncology. 2024