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Using a Timeline Activity in Virtual Concept Elicitation Interviews with Youth: Methods and Lessons Learned from an Interpretive Descriptive Study to Develop a Patient-Reported Outcome Measure (GENDER-Q Youth)

Abstract

One-to-one interviews and focus groups are used to generate qualitative data about patients’ health outcomes and inform the development of patient-reported outcome measures (PROMs). In the development of PROMs for young people, visual elicitation tools can be used with one-to-one interviews and focus groups to enhance the data generation process and data quality. This article aims to (1) provide a detailed description of how visual elicitation …

Authors

Kennedy SL; Jack SM; Johnson N; Couturier J; Rae C; Klassen AF

Pagination

pp. 1-16

Publisher

Springer Nature

Publication Date

September 15, 2025

DOI

10.1007/s40271-025-00770-6

Conference proceedings

The Patient - Patient-Centered Outcomes Research

ISSN

1178-1653