Measuring Health-related Quality of Life Outcomes in Head and Neck Reconstruction Academic Article uri icon

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abstract

  • A qualitative study was undertaken to understand the impact of omitted health concepts in existing patient-reported outcome (PRO) instruments for health-related quality of life (HR-QOL) evaluation following head and neck (H&N) cancer reconstruction. Twenty-six patients were interviewed. Patients described a broad range of symptoms. Oral competence, rhinorrhea, facial sensation, smile, vision and eye discharge are missing from existing PRO instruments. Altered appearance was a major stressor; both function and appearance changes had a negative psychosocial impact leading to social isolation and embarrassment. This framework is the foundation for development of a more complete PRO instrument, the FACE-Q Oncology.

authors

  • Albornoz, Claudia R
  • Pusic, Andrea L
  • Reavey, Patrick
  • Scott, Amie M
  • Klassen, Anne
  • Cano, Stefan J
  • Cordeiro, Peter G
  • Matros, Evan

publication date

  • April 2013