Quality of Life Research - McMaster Experts

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Extracting big data from the internet to support the development of a new patient-reported outcome measure for breast implant illness: a proof of concept study 2024
Response shift in parent-reported psychopathology in children with chronic physical illness 2023
Determining impact following service delivery model transition: Contemporary outcomes practices for school-based speech-language therapy services 2022
Development and Pilot testing of a Patient-Reported Outcome Measure for Gender-Affirming Care: The GENDER-Q 2022
Performing a Rasch Analysis on the self-administered ALSFRS-R 2022
The first step in patient-censtered outcomes research: deciding what to measure 2022
Ways of Being for Older Persons Living Actively: The International HRQL-OPAL Project 2022
Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities. 2022
Determining construct validity of scales from the FACE-Q craniofacial module for patients with craniosynostosis 2021
Development of LYMPH-Q upper extremity scales measuring worry, work impact, and burden of conservative treatments 2021
Development of a Prototype Parkinson Health Profile Using Rasch Analysis 2021
European normative data for interpreting the BODY-Q 2021
Fall Risk Factors in Adults with Obesity 2021
Parents of children with medical complexity: a qualitative exploration of impact on health and well-being from caregiving and care coordination 2021
Preliminary validation of the Patient-Generated Index in people with COPD 2021
Rasch analysis of the brief Michigan Hand Questionnaire in patients with thumb osteoarthritis 2021
Self-esteem as partial mediator of mental health outcomes in young people with epilepsy 2021
Understanding outcomes and experiences of care important to transgender and gender diverse youth 2021
Validation of a PROM for use in pediatric head and neck cancer: The FACE-Q Craniofacial Module 2021
Age and sex differences in the trajectories of general health perception of young people with MS 2020
An international qualitative study informing the development of a patient-reported outcome instrument for adults receiving gender-affirming treatments: the GENDER-Q 2020
Development of a new patient-reported outcome measure for use in patient's diagnosis with headaches 2020
Examining the Content Validity of Generic Preference Based Measures in Chronic Obstructive Pulmonary Disease 2020
Construct validity of Health Utilities Index Mark 2 and 3 among residents in long-term care facilities 2019
Critical insights from a large systematic review of anchor-based minimal important difference (MID) estimates for patient-reported outcome measures (PROMs) 2019
Determinants of Health Utilities Index Mark 3 among residents of long-term care facilities 2019
Development of a new Patient-Reported Outcome measure to evaluate treatments for acne and acne scarring: The ACNE-Q 2019
Examining content validity of BREAST-Q a decade later to determine relevance and comprehensiveness 2019
Issues in measuring change and MIDs 2019
Normative data for interpreting the BODY-Q: understanding the value of weight loss surgery 2019
Patient-reported outcomes in weight loss and body contouring surgery: the voice of 1831 patients using the BODY-Q 2019
Psychometric evaluation of new BREAST-Q Scales for the breast reconstruction module 2019
The development of new BODY-Q scales to measure outcomes for patients undergoing weight loss surgery 2019
Usage and content comparison of outcome measures used to evaluate outcome of total shoulder arthroplasty: a structured review with ICF-linking 2019
What matters to children and adolescents with lower limb deformities: an international qualitative study informing the development of the LIMB-Q Kids 2019
An international qualitative study to develop a new patient-reported outcome instrument for hand conditions: the HAND-Q 2018
CLEFT-Q: detecting differences in outcomes between 2,434 patients with varying cleft types 2018
Comparing individualized measures of quality of life with standard outcome measures in people with Parkinson's Disease 2018
Developing a new module of the BREAST-Q to measure outcomes for patients with lymphedema: a qualitative study 2018
Development of a patient education program for patients undergoing body contouring after massive weight loss 2018
Development of health-state classification system for a new breast cancer-specific preference-based measure: the BREAST-Q-U 2018
Do generic preference-based measures capture what is important to the quality of life of people with Parkinson's Disease? 2018
Dutch and Danish translation and cultural adaption of the WOUND-Q 2018
Impact of completing pediatric patient-reported outcome measures that ask about appearance of cleft lip and/or palate 2018
Improving breast cancer care by understanding health utilities: the work before the work 2018
Streamlining assessment of patient satisfaction with body appearance by applying multidimensional computerized adaptive testing to the BODY-Q 2018
ACNE-Q is a new Patient Reported Outcome instrument that measures appearance-related concerns 2017
An international qualitative study to development a new Patient-Reported Outcome instrument for chronic wounds: The WOUND-Q 2017
Challenges in translating the Mini Asthma Quality of Life Questionnaire (Mini AQLQ) into Tigrigna for Ethiopia 2017
Creating a preference-based scoring system for the Health Status Classification System - Preschool (HSCS-PS) 2017
Development of a new patient-reported outcome instrument for skin cancer: FACE-Q skin cancer 2017
Item reduction and validation of the Chinese version of Diabetes Quality-of-Life Measure (DQOL) 2017
NRG Oncology/RTOG 0415, hypofractionation in patients with low-risk prostate cancer: are patient reported outcomes the practice change tipping point? 2017
Psychometric findings and normative values for the CLEFT-Q based on 2,434 children and young adult patients with cleft lip and/or palate from 12 countries 2017
Qualitative insights to health related quality of life among US and Canadian based children with lower limb deformities 2017
Trajectories in social participation among community dwelling adults with multiple sclerosis 2017
Trajectories of QOL discrepancy for children with epilepsy and their parents 2017
A new measure of health-related quality of life for multiple sclerosis: the preference-based multiple sclerosis index (PBMSI) 2016
Applying computer adaptive testing to the BREAST-Q 2016
Comparative performance of the EQ-5D-5L and SF-6D index scores in adults with type 2 diabetes 2016
Developing content for a PRO instrument for surgical and traumatic scars: qualitative phase 2016
Developing content for a patient-reported outcome instrument for ear anomalies: a qualitative study 2016
Development of a patient-reported outcome instrument to measure quality of life of children with lower limb deformities: preliminary results 2016
Development of a patient-reported outcome instrument to measure satisfaction with appearance of the chest for men 2016
Evaluating options for presenting health states from PROMIS (R) item banks 2016
Getting older adults OUTdoors (GO-OUT) 2016
Health literacy and logical inconsistencies in valuations of hypothetical health states: data from the Canadian EQ-5D-5L valuation study 2016
Linguistic validation of the CLEFT-Q into 8 languages 2016
Measurement invariance of the KIDSCREEN-27: assessing informant discrepancies in children with chronic health conditions 2016
Protocol for the development of a kid-centered preference-based measure of disability for children and adolescents with multiple sclerosis 2016
Response shift in parent-reported health-related quality of life of children with new onset epilepsy 2016
The relationship between self-reported physical function and performance based measures differs between men and women with Multiple Sclerosis 2016
What were they thinking? The evidence for the health utilities index mark 3 2016
A community sample's perception of cause-and-effect directionality among health domains 2015
A time trade-off-derived value set of the 5-level EQ-5D for Canada 2015
An early look: a mixed methods study to examine the feasibility, preliminary psychometric performance, and early construct validity of the CLEFT-Q 2015
Assessment of gender bias in musculoskeletal outcome measures: methods and examples 2015
Comparison of QOL between personalized and "one size fits all'' measures 2015
Determinants of health preferences in the Canadian EQ-5D-5L Valuation Study 2015
Determining the psychometric properties of the CLEFT-Q using two different sets of response options 2015
Development and psychometric validation of a PRO instrument for obese, bariatric and cosmetic body contouring patients: the BODY-Q 2015
Factors influencing health status and quality of life in Canadians living with a traumatic spinal cord 2015
Instrument-defined estimates of minimally important difference in EQ-5D-5L index score for Canadian, Chinese and Spanish scoring algorithms 2015
Linking of the American academy of orthopaedic surgeons distal radius fracture clinical practice guidelines to the international classification of functioning disability and health (ICF) and ICF core sets for hand conditions 2015
Measurement validation in patient-reported outcomes: challenges and opportunities 2015
Measuring outcomes in young patients with conditions associated with a facial difference: are PRO instruments asking the right questions? 2015
Parent-child reporting discrepancies in childhood epilepsy 2015
Quality of life in childhood epilepsy: a KIDSCREEN comparison with typical children and children with cerebral palsy 2015
Reproducibility: reliability and agreement of short version of Western Ontario Rotator Cuff Index (Short-WORC) in patients with rotator cuff disorders 2015
Second-order confirmatory factor analysis of the work role functioning (WRF-26) questionnaire applied to firefighters 2015
The relationship between physical disability and overall health-related quality of life of residents in long-term care facilities 2015
Validity and responsiveness of Short Version of Western Ontario Rotator cuff Index (Short-WORC) in patients with rotator cuff pathology 2015
What do health-related quality of life questionnaires designed for adolescents and young adults (AYA) with cancer measure? A systematic review 2015
Comparison of health outcome measures used with upper extremity Musculoskeletal Disorders: Health-Related quality of life of persons transitioning towards retirement 2014
Cross-Sectional Construct Validity of Five Generic Preference-Based Measures in Teens 2014
Development and Validation of a Generic Scale for use in Transition Programs to Measure Self-Management Skills in Adolescents with Chronic Health Conditions: The TRANSITION-Q 2014
Development of E-Versions of the asthma quality of life questionnaire (Standardised) [AQLQ(S)] in twenty (20) languages for use on handheld devices 2014
Gender based differences in experiences of patients receiving pain medications in carpal tunnel release 2014
Health-related quality of life (HRQOL) following prophylactic mastectomy and reconstruction 2014
How qualitative methods can be used to ensure content validity in a PRO instrument for patients with cleft lip and/or palate who vary by age and culture: development of the CLEFT-Q 2014
Linking of the Patient Rated Elbow Evaluation (PREE) and the American Shoulder and Elbow Surgeons-Elbow questionnaire (pASES-e) to the International Classification of Functioning Disability and Health (ICF) and Hand Core Sets 2014
What can modern measurement methods tell clinicians about adaptive responses of depression? 2014
A qualitative study to develop a conceptual framework to understand the health concerns of patients who undergo facial surgery for skin cancer 2013
A scoping review: transitioning into retirement with chronic health disorders 2013
Baseline predictors of work instability in patients with work-related upper extremity disorders (WRUED) 2013
CLEFT-Q: Cross-cultural and age-related similarities in developing a patient-reported outcome instrument for children with cleft lip and/or palate 2013
Development and psychometric evaluation of the FACE-Q aging appraisal scale 2013
Emotional support contributes to outcomes following distal radius fractures 2013
Evaluating the longitudinal construct validity of the Health Utilities Indices Mark 2 and Mark 3 over recovery from hip fracture 2013
Evaluation of the CONSORT extension recommendations for PRO reporting in clinical trials: an international survey of oncologists 2013
Factors influencing quality of life in children with epilepsy: a structural equation modeling approach 2013
Gender differences on perceived health in Multiple Sclerosis detected using regression shrinkage, not using conventional methods 2013
Myth or reality: are head and neck cancer patients at increased risk for suicidal thoughts and gestures?: Preliminary results 2013
Quality of life and the impact of altered facial appearance in head and neck cancer patient populations: a qualitative study 2013
The EQ-5D-5L international protocol and the Canadian experience 2013
Use of PRO data from clinical trials to inform cancer care: an international perspective 2013
Using the EORTC QLQ-C30: what score represents a change in patients' supportive care needs? 2013
Assessing quality of care in lung transplant patients 2012
Breast reconstruction and radiation: an analysis of quality of life and satisfaction among patients undergoing implant reconstruction 2012
Calling pain pain: what should we ask MS patients about pain severity? 2012
Cognition and functional recovery after hip fracture 2012
Content comparison of the qualitative data informing the CLEFT-Q to generic instruments (Peds-QL 4.0, CHQ, KINDL) using the ICF-CY classification 2012
Evidence from four countries on the validity of the discrete choice model in quantifying health-states for the new EQ-5D-5L 2012
Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction 2012
Linking child and adolescent quality of life scales in youth with epilepsy 2012
Linking of at-work disability scales to the ICF 2012
Patient-reported satisfaction with psychosocial and sexual well-being and the nipple areola complex: comparison of preservation and reconstruction 2012
Patient-reported satisfaction with reconstructed breasts in the long-term survivorship period: comparison of autologous and non-autologous breast reconstruction 2012
Physical activity matters: the associations between body mass index, physical activity and health-related quality of life trajectories over 10 Years 2012
The evaluation of the patient rated elbow evaluation using Rasch analysis 2012
A Primer for Systematic Reviewers and Others on the Measurement of Health-Related Quality of Life in Older Adults (CP) 2012
A review of the effect of clinical interventions on health-related quality of life in persons with multiple sclerosis 2012
Adaptation of existing PRO measures for use in additional patient populations: The BREAST-Q (c) BCT Module 2012
Developing a Patient-Reported Outcome Measure for Cleft-Lip and/or Palate Patients 2012
Development of Scales to Measure Transition Readiness in Childhood Cancer Survivors (MT) 2012
Establishing Content Validity of the Give Youth a Voice Questionnaire for use in Pediatric Oncology: A Qualitative Study 2012
Measuring Child Health: How Do Measures Influence the Outcomes? (MT) 2012
Missing elements in current head and neck patient reported outcome measures 2012
Psychometric Evaluation of Self-Reported Pain and Disability Measures for Elbow Pathologies 2012
Symptom Clusters in Individuals With Multiple Sclerosis 2012
The BODY-Q: A New Patient-Reported Outcome (PRO) Measure for Body Contouring Patients (CP) 2012
The Influence of Social Support on Participation in Everyday Activities Among Older Adults with Chronic Health Conditions (PP) 2012
Understanding The Health Impact of Caregiving: A Qualitative Study of Canadian Parents of Children With Cancer (MT) 2012
A systematic review process can inform our understanding of PRO 2010
Assessing Health-related Quality of Life (HRQL) in Lung Transplant Recipients using the Health Utility Index Mark 3 (HUI3) 2010
Bodyweight, Gender, and Health-Related Quality of Life: Results from a National Longitudinal Survey of Canadian Adults 2010
Conceptualizing Quality of Life in Children with Cancer and Childhood Cancer Survivors 2010
Development and Comparisons of Alternative Preference-Based Measures of Health 2010
Development of a new BREAST-Q module for Breast Cancer Patients: The Breast-Conserving Therapy (BCT) Module 2010
Estimating a Multi-Attribute Utility Function for the Health Utilities Index Mark 3 System Based on the Preferences of Singaporeans 2010
Floors, Ceilings, and Foundations: Comparisons Among Generic Preference-Based Measures 2010
Latent Trajectory Analysis did not Detect Response Shift in General Health among MS Patients 2010
Measuring Transition Readiness in Childhood Cancer Survivors: Development of a Patient Reported Outcome (PRO) Instrument 2010
Measuring and managing patient expectation for breast reconstruction: A new preoperative patient assessment tool 2010
Overview of Existing and Novel Methodologies for Testing the Effectiveness of Using Patient Reported Outcomes in Clinical Practice 2010
Solving the Conceptual Discontinuity Problem for Instruments used in Childhood Cancer Research: A systematic review & content analysis using the ICF-CY & WHO definitions 2010
The Construct Validity of the Health Utilities Index Mark 3 (HUI3) in Assessing Health Status in Lung Transplantation 2010
Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy 2008
HEALTH UTILITIES INDEX (HUI) FOR ASSESSING BREAST REDUCTION SURGERY: RELIABILITY, RESPONSIVENESS AND VALIDITY 2005
LINKING IMPORTANT HEALTH-RELATED QUALITY OF LIFE ITEMS WITH THE INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH FROM PERSPECTIVE OF PATIENTS WITH KNEE OSTEOARTHRITIS: CRITICAL EVALUATION OF THE ICF CORE SETS FOR OSTEOARTHRITIS 2005
RELIABILITY OF SPANISH-LANGUAGE HEALTH UTILITIES INDEX MARK 2 (HUI2) IN SURVIVORS OF CANCER DURING CHILDHOOD: AGREEMENT BETWEEN PATIENTS, PARENTS AND PHYSICIANS 2005
A COMPARISON OF THE EFFECTS OF GASTROESOPHAGEAL REFLUX DISEASE AND OTHER CHRONIC DISEASES ON UTILITY VALUES - RESULTS OF THE CANADIAN FEELING THERMOMETER STUDY 2004
AGREEMENT BETWEEN SELF-REPORT AND PARENT-REPORT OF QUALITY OF LIFE IN A SAMPLE OF CHILDREN DIAGNOSED WITH ATTENTION-DEFICIT/HYPERACTIVITY DISORDER 2004
APPLICATION OF GENERALIZABILITY THEORY TO ASSESS RELIABILITY OF HEALTH MARKER STATES 2004
DO MARKER STATES IMPROVE MEASUREMENT PROPERTIES OF UTILITY INSTRUMENTS: A RANDOMIZED MULTI-CENTER TRIAL IN PATIENTS WITH CHRONIC OBSTRUCTIVE PULMONARY DISEASE 2004
HEALTH UTILITIES INDEX (HUI) CONSTRUCT VALIDITY FOR OSTEOPENIA AMONG SURVIVORS OF BRAIN TUMORS IN CHILDHOOD 2004
IMPACT OF MEASURING PATIENT-REPORTED OUTCOMES IN CLINICAL PRACTICE: A SYSTEMATIC REVIEW 2004
IMPACT OF REFLUX DISEASE ON HEALTH-RELATED QUALITY OF LIFE - RESULTS FROM THE GERD FEELING THERMOMETER STUDY 2004
RELATIONSHIP BETWEEN CHILD HRQL AND PARENT HEALTH IN A SAMPLE OF CHILDREN WITH ADHD 2004
SYMPTOM RELIEF RESULTS IN IMPROVED QUALITY OF LIFE: THE CANADIAN FEELING THERMOMETER STUDY IN PATIENTS WITH UNINVESTIGATED REFLUX DISEASE 2004
WHICH DOMAINS OF HEALTH-RELATED QUALITY OF LIFE ARE IMPORTANT IN HIP AND KNEE OSTEOARTHRITIS? A QUALITATIVE SYSTEMATIC LITERATURE REVIEW 2004
A multiplicative multi-attribute utility function for the Health Utilities Index Mark 3 system 1997
Assessment of the multi-attribute preference function for health utility index 3 in France. Preliminary results 1997
Towards an understanding of the factors that affect an individual's preferences for health states 1997
Community screening for rheumatic disorder: Cross-cultural adaptation and screening characteristics of the COPCORD core questionnaire in Brazil, Chile and Mexico 1997
Quality of life of asthma and bronchitis patients as diagnosed from telephone interview data 1997
Validity of the QLQ-M28 and QLQ-V28 nausea and vomiting forms of the EORTC QLQ-C30 1997
Quality of life research and health technology assessment?a time for synergy 1996
A MULTICENTER COMPARISON OF SALMETEROL AND SALBUTAMOL ON ASTHMA-SPECIFIC QUALITY-OF-LIFE 1994
COMPARISON OF METHODS FOR SELECTING ITEMS FOR A DISEASE-SPECIFIC QUALITY-OF-LIFE QUESTIONNAIRE - IMPORTANCE VERSUS FACTOR-ANALYSIS 1994
DETERMINING MINIMAL IMPORTANT CHANGE IN A DISEASE-SPECIFIC QUALITY-OF-LIFE QUESTIONNAIRE 1994
HEALTH-RELATED QUALITY-OF-LIFE OF EXTREMELY LOW-BIRTH-WEIGHT CHILDREN AND CONTROLS AT AGE 8 YEARS 1994
MCMASTER HEALTH UTILITIES INDEX OF HEALTH-RELATED QUALITY-OF-LIFE 1994
Health utilities used in oncology cost-utility analyses: a registry-based analysis.. 1-7. 2024
Correction: Measuring what matters to older persons for active living: part II cross-sectional validity evidence for OPAL measure across four countries.. 33:2675-2676. 2024
Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries. 33:2649-2659. 2024
Measuring what matters to older persons for active living: part II cross-sectional validity evidence for OPAL measure across four countries. 33:2661-2673. 2024
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. 33:2029-2046. 2024
Understanding Canadian stakeholders’ views on measuring and valuing health for children and adolescents: a qualitative study. 33:1415-1422. 2024
Psychosocial factors associated with j-pouch surgery for patients with IBD: a scoping review. 32:3309-3326. 2023
Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review. 32:2447-2462. 2023
China Health Related Outcomes Measures (CHROME): development of a descriptive system to support cardiovascular disease specific preference-based measure for the Chinese population. 32:2463-2476. 2023
Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research. 32:2319-2328. 2023
The challenges inherent with anchor-based approaches to the interpretation of important change in clinical outcome assessments. 32:1239-1246. 2023
“From Where I Stand”: using multiple anchors yields different benchmarks for meaningful improvement and worsening in the rheumatoid arthritis flare questionnaire (RA-FQ). 32:1307-1318. 2023
Publisher Correction to: Response to the discussion of the assessment of functioning. 31:3517-3517. 2022
Response to the discussion of the assessment of functioning. 31:3515-3516. 2022
The impact of care–recipient relationship type on health-related quality of life in community-dwelling older adults with dementia and their informal caregivers. 31:3377-3390. 2022
Reducing research wastage by starting off on the right foot: optimally framing the research question. 31:2889-2899. 2022
Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities. 31:2805-2818. 2022
Measuring health-related quality of life in young children with physical illness: psychometric properties of the parent-reported KIDSCREEN-27. 31:1509-1520. 2022
A longitudinal view of successful aging with HIV: role of resilience and environmental factors. 31:1135-1145. 2022
Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond. 31:1191-1198. 2022
Mapping the Edmonton Symptom Assessment System-Revised: Renal to the EQ-5D-5L in patients with chronic kidney disease. 31:567-577. 2022
Health-related quality of life in children with and without physical–mental multimorbidity. 30:3449-3461. 2021
Correction to: Deriving an overall appearance domain score by applying bifactor IRT analysis to the BODY‑Q appearance scales. 30:1523-1524. 2021
Using confirmatory factor analysis and Rasch analysis to examine the dimensionality of The Patient Assessment of Care for Chronic Illness Care (PACIC). 30:1503-1512. 2021
Development and assessment of a verbal response scale for the Patient-Specific Functional Scale (PSFS) in a low-literacy, non-western population. 30:613-628. 2021
3125 steps to perfect health: a nonparametric approach to developing the EQ-5D-5L value set. 29:3109-3118. 2020
Measurement properties of preference-based measures for economic evaluation in COPD: a systematic review. 29:2875-2885. 2020
Deriving an overall appearance domain score by applying bifactor IRT analysis to the BODY-Q appearance scales. 29:1065-1072. 2020
Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic review. 29:593-605. 2020
Relationships between cognition, function, and quality of life among HIV+ Canadian men. 29:37-55. 2020
Agreement of child and parent-proxy reported health-related quality of life in children with mental disorder. 28:703-712. 2019
Evaluation of options for presenting health-states from PROMIS® item banks for valuation exercises. 27:1835-1843. 2018
Health-related quality of life in mothers of children with epilepsy: 10 years after diagnosis. 27:969-977. 2018
Minimal clinically important differences in the EORTC QLQ-C30 and brief pain inventory in patients undergoing re-irradiation for painful bone metastases. 27:1089-1098. 2018
The impact of rehabilitative interventions on quality of life: a qualitative evidence synthesis of personal experiences of individuals with amyotrophic lateral sclerosis. 27:845-856. 2018
An evaluation of the structural validity of the shoulder pain and disability index (SPADI) using the Rasch model. 27:389-400. 2018
Evidence on the longitudinal construct validity of major generic and utility measures of health-related quality of life in teens with depression. 27:447-454. 2018
Selection of key health domains from PROMIS® for a generic preference-based scoring system. 26:3377-3385. 2017
Impact of an electronic monitoring device and behavioral feedback on adherence to multiple sclerosis therapies in youth: results of a randomized trial. 26:2333-2349. 2017
Comparative performance of the EQ-5D-5L and SF-6D index scores in adults with type 2 diabetes. 26:2057-2066. 2017
Changes in quality of life from a homelessness intervention: true change, response shift, or random variation. 26:1853-1864. 2017
The longitudinal course of depression symptomatology following a palliative rehabilitation program. 26:1809-1818. 2017
Health literacy and logical inconsistencies in valuations of hypothetical health states: results from the Canadian EQ-5D-5L valuation study. 26:1483-1492. 2017
Health-related quality of life in long-term survivors of acute lymphoblastic leukemia in childhood and adolescence. 26:1371-1377. 2017
In support of an individualized approach to assessing quality of life: comparison between Patient Generated Index and standardized measures across four health conditions. 26:601-609. 2017
Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients?. 26:273-281. 2017
EQ-5D-derived health utilities and minimally important differences for chronic health conditions: 2011 Commonwealth Fund Survey of Sicker Adults in Canada. 25:3009-3016. 2016
Minimal clinically important differences in the EORTC QLQ-BM22 and EORTC QLQ-C15-PAL modules in patients with bone metastases undergoing palliative radiotherapy. 25:2535-2541. 2016
Xerostomia health-related quality of life: NRG oncology RTOG 0537. 25:2323-2333. 2016
How different are composite and traditional TTO valuations of severe EQ-5D-5L states?. 25:2101-2108. 2016
Determinants of time trade-off valuations for EQ-5D-5L health states: data from the Canadian EQ-5D-5L valuation study. 25:1679-1685. 2016
Is bad living better than good death? Impact of demographic and cultural factors on health state preference. 25:979-986. 2016
How dead is dead? Qualitative findings from participants of combined traditional and lead-time time trade-off valuations. 25:35-43. 2016
Brazilian urban population norms derived from the health-related quality of life SF-6D. 24:2559-2564. 2015
Training clinicians in how to use patient-reported outcome measures in routine clinical practice. 24:1707-1718. 2015
Integrating health-related quality of life findings from randomized clinical trials into practice: an international study of oncologists’ perspectives. 24:1317-1325. 2015
Identifying changes in scores on the EORTC-QLQ-C30 representing a change in patients’ supportive care needs. 24:1207-1216. 2015
Contribution of symptom clusters to multiple sclerosis consequences. 24:617-629. 2015
Cancer patients’ function, symptoms and supportive care needs: a latent class analysis across cultures. 24:135-146. 2015
Prospectively measured 10-year changes in health-related quality of life and comparison with cross-sectional estimates in a population-based cohort of adult women and men. 23:2707-2721. 2014
Framework to assess the effects of using patient-reported outcome measures in chronic care management. 23:1505-1513. 2014
Using existing data to identify candidate items for a health state classification system in multiple sclerosis. 23:1445-1457. 2014
Letter to the Editor: Concerning Paltzer, Jason, Emily Barker, and Whitney P. Witt: Measuring the health-related quality of life (HRQoL) of young children in resource-limited settings: a review of existing measures, Quality of Life Research. 23:1047-1048. 2014
A review of patient-reported outcomes for children and adolescents with obesity. 23:759-770. 2014
Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model. 23:771-789. 2014
Longitudinal construct validity of the Health Utilities Indices Mark 2 and Mark 3 in hip fracture. 23:805-813. 2014
Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions. 23:751-757. 2014
Self-rated health: analysis of distances and transitions between response options. 22:2761-2768. 2013
Measurement properties of the QuickDASH (Disabilities of the Arm, Shoulder and Hand) outcome measure and cross-cultural adaptations of the QuickDASH: a systematic review. 22:2509-2547. 2013
Factor structure of the Child Health Questionnaire Parent Form-50 and predictors of health-related quality of life in children with epilepsy. 22:2201-2211. 2013
ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research. 22:1889-1905. 2013
Determinants of quality of life in children with chronic somatic disease: pilot data from the GapS Questionnaire. 22:339-349. 2013
Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer. 21:1595-1605. 2012
Bodyweight, gender, and quality of life: a population-based longitudinal study. 21:813-825. 2012
Erratum to: Bodyweight, gender, and quality of life: a population-based longitudinal study. 21:827-827. 2012
Measuring health-related quality-of-life for Alzheimer’s disease using the general public. 21:593-601. 2012
Erratum to: Using latent trajectory analysis of residuals to detect response shift in general health among patients with multiple sclerosis. 21:185-185. 2012
Using latent trajectory analysis of residuals to detect response shift in general health among patients with multiple sclerosis article. 20:1555-1560. 2011
Erratum to: Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions. 20:1259-1259. 2011
Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions. 20:1247-1258. 2011
Estimation of the impact of diabetes-related complications on health utilities for patients with type 2 diabetes in Ontario, Canada. 20:939-943. 2011
Race and gender associations between obesity and nine health-related quality-of-life measures. 20:665-674. 2011
The Generation R study: a candidate gene study and genome-wide association study (GWAS) on health-related quality of life (HRQOL) of mothers and young children. 19:1439-1446. 2010
Do depressive symptoms affect mothers’ reports of child outcomes in children with new-onset epilepsy?. 19:955-964. 2010
The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study. 19:539-549. 2010
Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients. 19:371-379. 2010
Factors determining utility measured with the EQ-5D in patients with atrial fibrillation. 19:381-390. 2010
Modification, translation and adaptation of questionnaires should copyright laws be observed?. 18:531-533. 2009
The construct validity of the Health Utilities Index Mark 3 in assessing mental health in population health surveys. 18:667-667. 2009
The construct validity of the Health Utilities Index Mark 3 in assessing mental health in population health surveys. 18:519-526. 2009
Evaluation of the methodological quality of systematic reviews of health status measurement instruments. 18:313-333. 2009
Health-related quality of life and utilities in primary-care patients with generalized anxiety disorder. 17:1285-1294. 2008
Computerized adaptive test for patients with foot or ankle impairments produced valid and responsive measures of function. 17:1081-1091. 2008
A relevant study was missed in our systematic review on the impact of patient-reported outcomes in clinical practice. 17:965-966. 2008
Evidence on the construct validity of the Health Utilities Index Mark 2 and Mark 3 in patients with chronic kidney disease. 17:933-942. 2008
Health-related quality-of-life measures for long-term follow-up in children after major trauma. 17:701-713. 2008
Validation of Chinese Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC) in patients scheduled for total knee replacement. 17:595-601. 2008
The feasibility and responsiveness of the health utilities index in patients with early-stage breast cancer: A prospective longitudinal study. 17:333-345. 2008
The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature. 17:179-193. 2008
Psychometric evaluation of the Schizophrenia Quality of Life Scale (SQLS) in English- and Chinese-speaking Asians in Singapore. 17:115-122. 2008
The association between body mass index and health-related quality of life: data from CaMos, a stratified population study. 16:1595-1603. 2007
The predictive validity of health-related quality of life measures: mortality in a longitudinal population-based study. 16:1539-1546. 2007
Responsiveness to change due to supportive-expressive group therapy, improvement in mood and disease progression in women with metastatic breast cancer. 16:1451-1451. 2007
How can quality of life researchers make their work more useful to health workers and their patients?. 16:1097-1105. 2007
Responsiveness to change to change due to supportive-expressive group therapy, improvement in mood and disease progression in women with metastatic breast cancer. 16:1007-1017. 2007
The mathematical relationship among different forms of responsiveness coefficients. 16:815-822. 2007
Commentary on Cox CL, Lensing S, Rai SN et al. Proxy assessment of quality of life in pediatric clinical trials: Application of the Health Utilities Index 3. Qual Life Res 2005; 14: 1045–1056. 15:1291-1293. 2006
Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity. 15:1161-1171. 2006
Measuring health status and decline in at-risk seniors residing in the community using the Health Utilities Index Mark 2. 15:1415-1426. 2006
A measure of quality of life after abdominal surgery. 15:1053-1061. 2006
A Study of the Construct Validity of the Health Utilities Index Mark 3 (HUI3) in Patients with Schizophrenia. 15:889-898. 2006
Analyzing Oncology Clinical Trial Data Using the Q-TWiST Method: Clinical Importance and Sources for Health State Preference Data*. 15:411-423. 2006
Clinically Important Differences in Q-TWIST – One Twist too Many?. 15:425-426. 2006
Clinically Important Differences in Q-TWiST – One TWiST too Many, or TWiST and Shout?. 15:427-428. 2006
The Natural Progression of Health-Related Quality of Life: Results of a Five-Year Prospective Study of SF-36 Scores in a Normative Population. 15:527-536. 2006
Do Clinical Marker States Improve Responsiveness and Construct Validity of the Standard Gamble and Feeling Thermometer: A Randomized Multi-Center Trial in Patients with Chronic Respiratory Disease. 15:1-14. 2006
Health Status in Survivors of Cancer in Childhood and Adolescence. 15:143-157. 2006
Health-related Quality of Life in Preschool Children with Wheezing and Dyspnea: Preliminary Results from a Random General Population Sample. 14:1931-1936. 2005
The impact of the VF-14 index, a perceived visual function measure, in the routine management of cataract patients. 14:1743-1753. 2005
Health-related quality of life deficits associated with diabetes and comorbidities in a Canadian National Population Health Survey. 14:1311-1320. 2005
Translation and cultural adaptation of Health Utilities Index (HUI) Mark 2 (HUI2) and Mark 3 (HUI3) with application to survivors of childhood cancer in Brazil. 14:1407-1412. 2005
The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30): Validation of English version in Singapore. 14:1181-1186. 2005
Quality of life in multiple sclerosis patients with urinary disorders: Discriminative validation of the english version of qualiveen. 14:425-431. 2005
Development, reliability and validity of a new measure of overall health for pre-school children. 14:243-252. 2005
Responsiveness of generic health-related quality of life measures in stroke. 14:207-219. 2005
Responsiveness, longitudinal- and cross-sectional construct validity of the Pediatric Asthma Quality of Life Questionnaire (PAQLQ) in Dutch children with asthma. 14:265-272. 2005
Comparing Short Form 6D, Standard Gamble, and Health Utilities Index Mark 2 and Mark 3 utility scores: Results from total hip arthroplasty patients. 13:1659-1670. 2004
Inter-observer agreement of a comprehensive health status classification system for pre-school children among patients with Wilms? tumor or advanced. 13:1707-1714. 2004
Baseline FACT-G score is a predictor of survival for advanced lung cancer. 13:1209-1216. 2004
How well do parents know their children? implications for proxy reporting of child health-related quality of life. 13:1297-1307. 2004
Construct validity of the RAND-12 and Health Utilities Index Mark 2 and 3 in type 2 diabetes. 13:435-448. 2004
Development and initial validation of a new preference-based disease-specific health-related quality of life instrument for erectile function. 13:349-359. 2004
Is the Health Utilities Index valid in total hip arthroplasty patients?. 13:339-348. 2004
The stability of utility scores: Test–retest reliability and the interpretation of utility scores in elective total hip arthroplasty. 13:15-22. 2004
Hi! How are you? Response shift, implicit theories and differing epistemologies.. 12:239-249. 2003
Is adherence to drug treatment correlated with health-related quality of life?. 12:621-633. 2003
A Comparison of Narrative and Point-by-Point Formats for Presenting Hypothetical Health States: Results from Two Randomized Trials. 644-644. 2002
Commentary on "Health-related quality-of-life research and the capability approach of Amartya Sen". 10:57-58. 2001
Does electronic implementation of questionnaires used in asthma alter responses compared to paper implementation?. 10:683-691. 2001
Health-related quality of life in childhood disorders: a modified focus group technique to involve children.. 10:71-79. 2001
Censoring in statistical models of health status: what happens when one can do better than '1'.. 9:911-914. 2000
Development and testing of a utility measure for major, unipolar depression (McSad).. 9:109-120. 2000
The Illness Intrusiveness Rating Scale: a measure of severity in individuals with hyperhidrosis.. 8:693-698. 1999
Development of a health-related quality of life instrument for use in children with spina bifida.. 6:0-0. 1997
Discriminative aspects of two generic and two asthma-specific instruments: relation with symptoms, bronchodilator use and lung function in patients with mild asthma.. 6:353-361. 1997
Measuring quality of life in children with asthma. 5:35-46. 1996
Measuring quality of life in the parents of children with asthma. 5:27-34. 1996
Reliability of the Health Utilities Index—Mark III used in the 1991 cycle 6 Canadian General Social Survey Health Questionnaire. 4:249-257. 1995
The probability of recovery and return to work from work disability as a function of time. 3:S97-S109. 1994
Spectrum of quality of life impairment in hypothyroidism. 3:323-327. 1994
Intellectual property considerations in the development and use of HRQL measures for clinical trial research. 3:273-277. 1994
Methods for assessing relative importance in preference based outcome measures. 2:467-475. 1993
The philosophy of health-related quality of life translation. 2:461-465. 1993

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