Journal article
Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic review
Abstract
BackgroundPreferences for health states for Duchenne muscular dystrophy (DMD) are necessary to assess costs and benefits of novel therapies. Because DMD progression begins in childhood, the impact of DMD on health-related quality-of-life (HRQoL) affects preferences of both DMD patients and their families. The objective of this review was to synthesize published evidence for health state utility from the DMD patient and caregiver …
Authors
Szabo SM; Audhya IF; Malone DC; Feeny D; Gooch KL
Journal
Quality of Life Research, Vol. 29, No. 3, pp. 593–605
Publisher
Springer Nature
Publication Date
3 2020
DOI
10.1007/s11136-019-02355-x
ISSN
0962-9343