Scleroderma, Systemic Concept

subject area of

• 2013 American College of Rheumatology/European League Against Rheumatism Classification Criteria for Systemic Sclerosis Outperform the 1980 Criteria: Data From the Canadian Scleroderma Research Group  Journal Articles
• 2023 American College of Rheumatology (ACR)/American College of Chest Physicians (CHEST) Guideline for the Screening and Monitoring of Interstitial Lung Disease in People with Systemic Autoimmune Rheumatic Diseases  Journal Articles
• 2023 American College of Rheumatology (ACR)/American College of Chest Physicians (CHEST) Guideline for the Treatment of Interstitial Lung Disease in People with Systemic Autoimmune Rheumatic Diseases  Journal Articles
• 45-Years Between Skin Lesions and CNS Symptoms in a Patient with Scleroderma  Journal Articles
• A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members  Journal Articles
• A review of the effects of statins in systemic sclerosis  Journal Articles
• Acute effects of nebulised epoprostenol in pulmonary hypertension due to systemic sclerosis  Journal Articles
• Agreement with Guidelines from a Large Database for Management of Systemic Sclerosis: Results from the Canadian Scleroderma Research Group  Journal Articles
• An Open-label, Phase II Study of the Safety and Tolerability of Pirfenidone in Patients with Scleroderma-associated Interstitial Lung Disease: the LOTUSS Trial  Journal Articles
• Anti-Fibrillarin Antibody in African American Patients with Systemic Sclerosis: Immunogenetics, Clinical Features, and Survival Analysis  Journal Articles
• Anti-RNA Polymerase III Antibodies in the Diagnosis of Scleroderma Renal Crisis in the Absence of Skin Disease  Journal Articles
• Antinuclear antibody-negative systemic sclerosis  Journal Articles
• Assessing the Educational Needs of Canadians with Systemic Sclerosis  Conferences
• Assessment of reproductive history in systemic sclerosis  Journal Articles
• Association Between Immunosuppressive Therapy and Incident Risk of Interstitial Lung Disease in Systemic Sclerosis  Journal Articles
• Association of Gastroesophageal Factors and Worsening of Forced Vital Capacity in Systemic Sclerosis  Journal Articles
• Association of pruritus with quality of life and disability in systemic sclerosis  Journal Articles
• Bicaudal D2 is a novel autoantibody target in systemic sclerosis that shares a key epitope with CENP-A but has a distinct clinical phenotype  Journal Articles
• Calcinosis is associated with digital ischaemia in systemic sclerosis—a longitudinal study  Journal Articles
• Challenges and support service preferences of informal caregivers of people with systemic sclerosis: a cross-sectional survey.  Journal Articles
• Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study  Journal Articles
• Characterization of Incident Interstitial Lung Disease in Late Systemic Sclerosis.  Journal Articles
• Clinical Correlates of CENP-A and CENP-B Antibodies in a Large Cohort of Patients with Systemic Sclerosis  Journal Articles
• Clinical correlates of faecal incontinence in systemic sclerosis: identifying therapeutic avenues  Journal Articles
• Clinical correlates of monospecific anti-PM75 and anti-PM100 antibodies in a tri-nation cohort of 1574 systemic sclerosis subjects  Journal Articles
• Clinical correlates of quality of life in systemic sclerosis measured with the World Health Organization Disability Assessment Schedule II  Journal Articles
• Cross-cultural adaptation and validation of the Brazilian version of the Scleroderma Health Assessment Questionnaire (SHAQ)  Journal Articles
• Damage Trajectories in Systemic Sclerosis Using Group‐Based Trajectory Modeling  Journal Articles
• Demographic and Clinical Factors Associated with Physician Service Use in Systemic Sclerosis  Journal Articles
• Development and Validation of the Body Concealment Scale for Scleroderma  Journal Articles
• Development and validation of the Scleroderma Clinical Trials Consortium Damage Index (SCTC-DI): a novel instrument to quantify organ damage in systemic sclerosis  Journal Articles
• Diagnostic potential of genomic blood biomarkers of pulmonary fibrosis in a prospective cohort.  Journal Articles
• Differential Item Functioning on the Cochin Hand Function Scale Among People With Systemic Sclerosis by Language, Sex, and Disease Subtype: A Scleroderma Patient-Centered Intervention Network (SPIN) Cohort Study.  Journal Articles
• Disability in Systemic Sclerosis — A Longitudinal Observational Study  Journal Articles
• Discordance between Patient and Physician Assessments of Disease Severity in Systemic Sclerosis  Journal Articles
• Does cigarette smoking mitigate the severity of skin disease in systemic sclerosis?  Journal Articles
• Early Mortality in a Multinational Systemic Sclerosis Inception Cohort  Journal Articles
• Effect of menopause on the modified Rodnan skin score in systemic sclerosis  Journal Articles
• Effects of training and support programs for leaders of illness-based support groups: commentary and updated evidence.  Journal Articles
• Etretinate Therapy for Refractory Sclerodermatous Chronic Graft-Versus-Host Disease  Journal Articles
• Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale‐6: A Scleroderma Patient‐Centered Intervention Network (SPIN) Study  Journal Articles
• Evaluation of an Automated Method for Analysing the Electromyogram  Journal Articles
• Examination of the association of sex and race/ethnicity with appearance concerns: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort study.  Journal Articles
• Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study  Journal Articles
• Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study  Journal Articles
• Exploring research team members' and trial participants' perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview study.  Journal Articles
• Exposure to ACE inhibitors prior to the onset of scleroderma renal crisis—Results from the International Scleroderma Renal Crisis Survey  Journal Articles
• Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating ‘not applicable’ responses as missing data: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study  Journal Articles
• Factors associated with development of gastrointestinal problems in patients with scleroderma: a protocol for a systematic review  Journal Articles
• Factors associated with development of gastrointestinal problems in patients with scleroderma: a systematic review  Journal Articles
• Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study  Journal Articles
• Factors associated with physical function among people with systemic sclerosis: a SPIN cohort cross-sectional study  Journal Articles
• Factors associated with satisfaction with social roles and activities among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study  Journal Articles
• Factors associated with symptoms of depression among informal caregivers of people with systemic sclerosis: a cross-sectional study.  Journal Articles
• Genetic susceptibility loci of idiopathic interstitial pneumonia do not represent risk for systemic sclerosis: a case control study in Caucasian patients  Journal Articles
• Geographical distribution of systemic sclerosis in Canada: An ecologic study based on the Canadian Scleroderma Research Group  Journal Articles
• Health Care Utilization in Systemic Sclerosis Patients With Digital Ulcers  Journal Articles
• Health‐related quality of life in systemic sclerosis: A systematic review  Journal Articles
• High rates of depressive symptoms among patients with systemic sclerosis are not explained by differential reporting of somatic symptoms  Journal Articles
• Hypocomplementemia in systemic sclerosis--clinical and serological correlations.  Journal Articles
• Identifying barriers and facilitators to physical activity for people with scleroderma: a nominal group technique study.  Journal Articles
• Idiopathic portal hypertension complicating systemic sclerosis: a case report  Journal Articles
• Immunochip Analysis Identifies Multiple Susceptibility Loci for Systemic Sclerosis  Journal Articles
• Immunosuppressive Drugs in Early Systemic Sclerosis and Prevention of Damage Accrual.  Journal Articles
• Immunosuppressive treatment in diffuse cutaneous systemic sclerosis is associated with an improved composite response index (CRISS)  Journal Articles
• Improving the sensitivity of the American College of Rheumatology classification criteria for systemic sclerosis.  Journal Articles
• Incident Vertebral Fractures and Risk Factors in the First Three Years Following Glucocorticoid Initiation Among Pediatric Patients With Rheumatic Disorders  Journal Articles
• Longitudinal Study of Renal Function in Systemic Sclerosis  Journal Articles
• Malnutrition Is Common in Systemic Sclerosis: Results from the Canadian Scleroderma Research Group Database  Journal Articles
• Measuring Pain in Systemic Sclerosis: Comparison of the Short-form McGill Pain Questionnaire Versus a Single-item Measure of Pain  Journal Articles
• Methods for shortening patient-reported outcome measures  Journal Articles
• Minimal Detectable Changes of the Health Assessment Questionnaire-Disability Index, Patient-Reported Outcomes Measurement Information System-29 Profile Version 2.0 Domains, and Patient Health Questionnaire-8 in People With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Cross-Sectional Study.  Journal Articles
• Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study  Journal Articles
• Monospecific anti-Ro52/TRIM21 antibodies in a tri-nation cohort of 1574 systemic sclerosis subjects: evidence of an association with interstitial lung disease and worse survival.  Journal Articles
• Observational Data to Study Medication Outcomes in Systemic Sclerosis: Table 1.  Journal Articles
• Organic solvent exposure and systemic sclerosis: A retrospective cohort study based on the Canadian Scleroderma Research Group registry  Journal Articles
• Pan-Lysyl Oxidase Inhibitor PXS-5505 Ameliorates Multiple-Organ Fibrosis by Inhibiting Collagen Crosslinks in Rodent Models of Systemic Sclerosis  Journal Articles
• Patients with scleroderma may have increased risk of osteoporosis. A comparison to rheumatoid arthritis and noninflammatory musculoskeletal conditions.  Journal Articles
• Potential of nintedanib in treatment of progressive fibrosing interstitial lung diseases  Journal Articles
• Predictive value of European Scleroderma Group Activity Index in an early scleroderma cohort  Journal Articles
• Prevalence and clinical correlates of pruritus in patients with systemic sclerosis  Journal Articles
• Prevalence and clinical correlates of symptoms of depression in patients with systemic sclerosis  Journal Articles
• Prevalence, severity, and clinical correlates of pain in patients with systemic sclerosis  Journal Articles
• Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients  Journal Articles
• Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients.  Journal Articles
• Quality of life in systemic sclerosis: Psychometric properties of the World Health Organization Disability Assessment Schedule II  Journal Articles
• Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial  Journal Articles
• Reassuring humoral and cellular immune responses to SARS-CoV-2 vaccination in participants with systemic sclerosis.  Journal Articles
• Relationship between calcium channel blockers and skin fibrosis in patients with systemic sclerosis.  Journal Articles
• Reliability and Validity of Three Versions of the Brief Fear of Negative Evaluation Scale in Patients With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study  Journal Articles
• Reliability and validity of the center for epidemiologic studies depression scale in patients with systemic sclerosis  Journal Articles
• Reports of abnormal cervical cancer screening tests in systemic sclerosis  Journal Articles
• Rheumatic Disease and Carotid Intima-Media Thickness  Journal Articles
• Severe gastrointestinal disease in very early systemic sclerosis is associated with early mortality  Journal Articles
• Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Network Cohort  Journal Articles
• Sociodemographic, disease, and symptom correlates of fatigue in systemic sclerosis: Evidence from a sample of 659 Canadian Scleroderma Research Group Registry patients  Journal Articles
• Sudden cardiac death in a young, male patient with rapidly progressing systemic sclerosis  Journal Articles
• Support Groups in Scleroderma.  Journal Articles
• Systemic Sclerosis Immunoglobulin Induces Growth and a Pro-Fibrotic State in Vascular Smooth Muscle Cells through the Epidermal Growth Factor Receptor  Journal Articles
• Systemic Sclerosis Sine Scleroderma: A Multicenter Study of 1417 Subjects  Journal Articles
• Systemic Sclerosis and Associated Interstitial Lung Disease in Ontario, Canada: An Examination of Prevalence and Survival Over 10 Years  Journal Articles
• Systemic sclerosis-associated interstitial lung disease  Journal Articles
• The 15% Rule in Scleroderma: The Frequency of Severe Organ Complications in Systemic Sclerosis. A Systematic Review  Journal Articles
• The Association Between Disease Activity and Duration in Systemic Sclerosis  Journal Articles
• The Impact of Pain and Itch on Functioning and Health-Related Quality of Life in Systemic Sclerosis: An Exploratory Study  Journal Articles
• The Minimally Important Difference in Clinical Practice for Patient-centered Outcomes Including Health Assessment Questionnaire, Fatigue, Pain, Sleep, Global Visual Analog Scale, and SF-36 in Scleroderma  Journal Articles
• The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts  Journal Articles
• The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial  Journal Articles
• The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study.  Journal Articles
• The association of sociodemographic and disease variables with hand function: a Scleroderma Patient-centered Intervention Network cohort study.  Journal Articles
• The association of sociodemographic and objectively-assessed disease variables with fatigue in systemic sclerosis: an analysis of 785 Canadian Scleroderma Research Group Registry patients  Journal Articles
• The cost of systemic sclerosis  Journal Articles
• Thinking outside the box—The associations with cutaneous involvement and autoantibody status in systemic sclerosis are not always what we expect  Journal Articles
• Treatment of Systemic Sclerosis–associated Interstitial Lung Disease: Evidence-based Recommendations. An Official American Thoracic Society Clinical Practice Guideline  Journal Articles
• Treatment of small intestinal bacterial overgrowth in systemic sclerosis: a systematic review  Journal Articles
• Unmet Workplace Support Needs and Lost Productivity of Workers With Systemic Sclerosis: A Path Analysis Study  Journal Articles
• Use of the nominal group technique to identify stakeholder priorities and inform survey development: an example with informal caregivers of people with scleroderma.  Journal Articles
• Using Marital Status and Continuous Marital Satisfaction Ratings to Predict Depressive Symptoms in Married and Unmarried Women With Systemic Sclerosis: A Canadian Scleroderma Research Group Study  Journal Articles
• Using Optimal Test Assembly Methods for Shortening Patient‐Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale‐6: A Scleroderma Patient‐Centered Intervention Network Cohort Study  Journal Articles
• Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort  Journal Articles
• Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: A Scleroderma Patient-centered Intervention Network COVID-19 Cohort study  Journal Articles
• Validation of the Self‐Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient‐Centered Intervention Network Cohort Study  Journal Articles
• Validity of Self-Reported Comorbidities in Systemic Sclerosis: Table 1.  Journal Articles
• Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10‐Item Connor‐Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study  Journal Articles
• Why A-level evidence does not make it to clinicians' A-lists: the case of thromboprophylaxis in medical patients.  Journal Articles
• Work Disability in Systemic Sclerosis  Journal Articles