Journal article
The Canadian Arrhythmogenic Right Ventricular Cardiomyopathy Registry: Rationale, Design, and Preliminary Recruitment
Abstract
BACKGROUND: Arrhythmogenic right ventricular cardiomyopathy (ARVC) is a complex and clinically heterogeneous arrhythmic condition. Incomplete penetrance and variable expressivity are particularly evident in ARVC, making clinical decision-making challenging.
METHODS: Pediatric and adult cardiologists, geneticists, genetic counsellors, ethicists, nurses, and qualitative researchers are collaborating to create the Canadian ARVC registry using a …
Authors
Krahn AD; Healey JS; Gerull B; Angaran P; Chakrabarti S; Sanatani S; Arbour L; Laksman ZWM; Carroll SL; Seifer C
Journal
Canadian Journal of Cardiology, Vol. 32, No. 12, pp. 1396–1401
Publisher
Elsevier
Publication Date
December 2016
DOI
10.1016/j.cjca.2016.04.004
ISSN
0828-282X
Associated Experts
Fields of Research (FoR)
Sustainable Development Goals (SDG)
Medical Subject Headings (MeSH)
AdultArrhythmogenic Right Ventricular DysplasiaCanadaDeath, Sudden, CardiacDesmocollinsFemaleGenetic TestingHeart Function TestsHeart VentriclesHumansInterdisciplinary CommunicationIntersectoral CollaborationMaleMembrane ProteinsMiddle AgedPatient Care ManagementPatient Care TeamRegistriesRisk AssessmentTachycardia, Ventricular