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“I’m Just Forgetting and I Don’t Know Why”:...
Journal article

“I’m Just Forgetting and I Don’t Know Why”: Exploring How People Living With HIV-Associated Neurocognitive Disorder View, Manage, and Obtain Support for Their Cognitive Difficulties

Abstract

HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed …

Authors

Terpstra AR; Worthington C; Ibáñez-Carrasco F; O’Brien KK; Yamamoto A; Carusone SC; Turje RB; McDougall P; Granger W; Thompson V

Journal

Qualitative Health Research, Vol. 28, No. 6, pp. 859–872

Publisher

SAGE Publications

Publication Date

May 2018

DOI

10.1177/1049732318761364

ISSN

1049-7323