selected scholarly activity
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academic article
- Evaluating the content validity of generic preference-based measures for use in Parkinson's disease. Parkinsonism and Related Disorders. 2019
- A qualitative study of healthcare provider perspectives on measuring functional outcomes in geriatric rehabilitation. Clinical Rehabilitation. 32:546-556. 2018
- Montreal Accord on Patient-Reported Outcomes (PROs) use series–Paper 7: modern perspectives of measurement validation emphasize justification of inferences based on patient reported outcome scores. Journal of Clinical Epidemiology. 89:154-159. 2017
- In support of an individualized approach to assessing quality of life: comparison between Patient Generated Index and standardized measures across four health conditions. Quality of Life Research. 26:601-609. 2017
- How have research questions and methods used in clinical trials published in Clinical Rehabilitation changed over the last 30 years?. Clinical Rehabilitation. 30:847-864. 2016
- Development of a Bilingual MS-Specific Health Classification System. International Journal of MS Care. 18:63-70. 2016
- Developing a Valuation Function for the Preference-Based Multiple Sclerosis Index: Comparison of Standard Gamble and Rating Scale. PLoS ONE. 11:e0151905-e0151905. 2016
- Contribution of symptom clusters to multiple sclerosis consequences. Quality of Life Research. 24:617-629. 2015
- Toward Patient-Centered Care. Medicine (United States) Medicine. 93:e120-e120. 2014
- A Review of the Psychometric Properties of Generic Utility Measures in Multiple Sclerosis. PharmacoEconomics PharmacoEconomics - Italian Research Articles. 32:759-773. 2014
- Using existing data to identify candidate items for a health state classification system in multiple sclerosis. Quality of Life Research. 23:1445-1457. 2014
- Methods and measures: what’s new for MS?. Multiple Sclerosis Journal. 19:709-713. 2013
- Do generic utility measures capture what is important to the quality of life of people with multiple sclerosis?. Health and Quality of Life Outcomes. 11:71-71. 2013
- The effects of clinical interventions on health-related quality of life in multiple sclerosis: a meta-analysis. Multiple Sclerosis Journal. 18:1686-1704. 2012
- Erratum to: Using latent trajectory analysis of residuals to detect response shift in general health among patients with multiple sclerosis. Quality of Life Research. 21:185-185. 2012
- Using latent trajectory analysis of residuals to detect response shift in general health among patients with multiple sclerosis article. Quality of Life Research. 20:1555-1560. 2011
- Predicting Exercise Capacity Through Submaximal Fitness Tests in Persons With Multiple Sclerosis. Archives of Physical Medicine and Rehabilitation. 91:1410-1417. 2010
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conference paper
- A new measure of health-related quality of life for multiple sclerosis: the preference-based multiple sclerosis index (PBMSI). Quality of Life Research. 68-69. 2016
- Protocol for the development of a kid-centered preference-based measure of disability for children and adolescents with multiple sclerosis. Quality of Life Research. 150-150. 2016
- The relationship between self-reported physical function and performance based measures differs between men and women with Multiple Sclerosis. Quality of Life Research. 134-135. 2016
- Comparison of QOL between personalized and "one size fits all'' measures. Quality of Life Research. 12-12. 2015
- Measurement validation in patient-reported outcomes: challenges and opportunities. Quality of Life Research. 141-141. 2015
- Physiological response to exercise in people with MS: peak or slope?. Multiple Sclerosis Journal. 431-431. 2014
- Gender differences on perceived health in Multiple Sclerosis detected using regression shrinkage, not using conventional methods. Quality of Life Research. 2013
- Calling pain pain: what should we ask MS patients about pain severity?. Quality of Life Research. 59-60. 2012
- Which pain indicators are most associated with walking capacity in individuals with multiple sclerosis?. Multiple Sclerosis Journal. 249-249. 2012
- A review of the effect of clinical interventions on health-related quality of life in persons with multiple sclerosis. Quality of Life Research. 7-8. 2012
- Symptom Clusters in Individuals With Multiple Sclerosis. Quality of Life Research. 77-77. 2012
- Latent Trajectory Analysis did not Detect Response Shift in General Health among MS Patients. Quality of Life Research. 5-5. 2010
- Estimating exercise capacity of patients with multiple sclerosis from functional fitness tests. Multiple Sclerosis Journal. S262-S262. 2009
- Role of physical capacity in perceived health for persons with multiple sclerosis. Multiple Sclerosis Journal. S268-S268. 2009