publication venue for
- Finding harmony within dissonance: Engaging patients, family/caregivers and service providers in research to fundamentally restructure relationships through integrative dynamics 2021
- A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity: Family Perspectives and Recommendations.. 28:e70077. 2025
- Building Engagement-Capable Environments for Health System Transformation: Development and Early Implementation of a Capability Framework for Patient, Family and Caregiver Engagement in Ontario Health Teams.. 27:e70083. 2024
- Evaluation of a Question Prompt List About Cardiovascular Disease Risk and Prevention After Hypertensive Pregnancy: A Pilot Study.. 27:e70085. 2024
- Partnered Recruitment: Engaging Individuals With Lived Experience in the Recruitment of Co‐Design Participants. 27:e14131. 2024
- Public Engagement in Health Policy-Making for Older Adults: A Systematic Search and Scoping Review.. 27:e70008. 2024
- Reflections on the opportunities and challenges of applying experience‐based co‐design (EBCD) to phase 1 clinical trials in oncology. 27:e14068. 2024
- ‘If It Was Easy Somebody Would Have Fixed It’: An Exploration of Loneliness and Social Isolation Amongst People Who Frequently Call Ambulance Services. 27:e14167. 2024
- Advancing a collective vision for equity‐based cocreation through prototyping at an international forum. 27:e14041. 2024
- Decoding the persistence of delayed hospital discharge: An in‐depth scoping review and insights from two decades. 27:e14050. 2024
- Family‐centred care interventions for children with chronic conditions: A scoping review. 27:e13897. 2024
- Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end‐of‐life. 27:e13942. 2024
- Patient partner perspectives on compensation: Insights from the Canadian Patient Partner Survey. 27:e13971. 2024
- Development of the Engage with Impact Toolkit: A comprehensive resource to support the evaluation of patient, family and caregiver engagement in health systems. 26:1255-1265. 2023
- Access to novel drugs and therapeutics for children and youth: Eliciting citizens' values to inform public funding decisions. 26:715-727. 2023
- Exploring patients' perspectives of gestational diabetes mellitus screening and counselling in Ontario: A grounded theory study. 26:827-835. 2023
- Patient perspectives on primary care for multimorbidity: An integrative review. 25:2614-2627. 2022
- A patient‐led, peer‐to‐peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food. 25:1486-1497. 2022
- Unpacking the potential of developmental evaluation in codesign work. 25:1186-1189. 2022
- The impact of COVID‐19 on patient engagement in the health system: Results from a Pan‐Canadian survey of patient, family and caregiver partners. 25:744-753. 2022
- No evidence synthesis about me without me: Involving young people in the conduct and dissemination of a complex evidence synthesis.. 24 Suppl 1:122-133. 2021
- ‘It reshaped how I will do research’: A qualitative exploration of team members’ experiences with youth and family engagement in a randomized controlled trial. 24:589-600. 2021
- Priority measures for publicly reporting primary care performance: Results of public engagement through deliberative dialogues in 3 Canadian provinces. 23:1213-1223. 2020
- Preparing for patient partnership: A scoping review of patient partner engagement and evaluation in research. 23:523-539. 2020
- Exploring transitions in care from pulmonary rehabilitation to home for persons with chronic obstructive pulmonary disease: A descriptive qualitative study. 23:414-422. 2020
- Financial relationships between patient and consumer representatives and the health industry: A systematic review. 23:483-495. 2020
- ‘The Future is Probably Now’: Understanding of illness, uncertainty and end‐of‐life discussions in older adults with heart failure and family caregivers. 22:1331-1340. 2019
- Citizen perspectives on the use of publicly reported primary care performance information: Results from citizen‐patient dialogues in three Canadian provinces. 22:974-982. 2019
- Ethnic differences in psychosis—Lay epidemiology explanations. 22:965-973. 2019
- Supporting the evaluation of public and patient engagement in health system organizations: Results from an implementation research study. 22:1132-1143. 2019
- Evaluating community deliberations about health research priorities. 22:772-784. 2019
- Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration. 22:284-297. 2019
- Co‐designing for quality: Creating a user‐driven tool to improve quality in youth mental health services. 21:1013-1023. 2018
- How do adolescents with cerebral palsy participate? Learning from their personal experiences. 21:1024-1034. 2018
- Patient and public engagement in research and health system decision making: A systematic review of evaluation tools. 21:1075-1084. 2018
- ‘Who is on your health‐care team?’ Asking individuals with heart failure about care team membership and roles. 20:198-210. 2017
- Trial participation as avoidance strategy: a qualitative study.. 19:1346-1354. 2016
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Supporting quality public and patient engagement in health system organizations: development and usability testing of the
P ublic andP atientE ngagementE valuationT ool. 19:817-827. 2016 - ‘Talk to me’: a mixed methods study on preferred physician behaviours during end‐of‐life communication from the patient perspective. 19:883-896. 2016
- Citizen expectations of ‘academic entrepreneurship’ in health research: public science, practical benefit. 18:2356-2374. 2015
- The development of scales to measure childhood cancer survivors' readiness for transition to long‐term follow‐up care as adults. 18:1941-1955. 2015
- Values and preferences for oral antithrombotic therapy in patients with atrial fibrillation: physician and patient perspectives. 18:2318-2327. 2015
- How oncologists communicate information to women with recurrent ovarian cancer in the context of treatment decision making in the medical encounter. 18:1066-1080. 2015
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Is the
G iveY outh aV oice questionnaire an appropriate measure of teen‐centred care in paediatric oncology: aR asch measurement theory analysis. 18:1686-1697. 2015 - Understanding why patients with immune thrombocytopenia are deeply divided on splenectomy. 17:809-817. 2014
- Assessing the conceptual clarity and evidence base of quality criteria/standards developed for evaluating decision aids. 17:232-243. 2014
- Fair reckoning: a qualitative investigation of responses to an economic health resource allocation survey. 17:174-185. 2014
- Consumer involvement in systematic reviews of comparative effectiveness research. 16:323-337. 2013
- Physician‐related facilitators and barriers to patient involvement in treatment decision making in early stage breast cancer: perspectives of physicians and patients. 16:373-384. 2013
- Patients’ decision making to accept or decline an implantable cardioverter defibrillator for primary prevention of sudden cardiac death. 16:69-79. 2013
- The integration of citizens into a science/policy network in genetics: governance arrangements and asymmetry in expertise. 14:261-271. 2011
- A treatment decision aid may increase patient trust in the diabetes specialist. The Statin Choice randomized trial. 12:38-44. 2009
- A systematic review of information in decision aids. 10:46-61. 2007
- Can I accurately predict the impact of an illness and its treatment on my future subjective well‐being? A complex question that does not have a simple answer. 9:252-254. 2006
- A shared treatment decision‐making approach between patients with chronic conditions and their clinicians: the case of diabetes. 9:25-36. 2006
- Consumer‐driven health care: Building partnerships in research. 8:352-359. 2005
- From rhetoric to reality: including patient voices in supportive cancer care planning. 8:195-209. 2005
- Treatment decision aids: conceptual issues and future directions. 8:114-125. 2005
- Self‐reported use of shared decision‐making among breast cancer specialists and perceived barriers and facilitators to implementing this approach. 7:338-348. 2004
- Providing evidence‐based information to patients in general practice and pharmacies: what is the acceptability, usefulness and impact on drug use?. 6:281-289. 2003
- Using disease risk estimates to guide risk factor interventions: field test of a patient workbook for self‐assessing coronary risk. 5:3-15. 2002
- Whose priorities count? Comparison of community‐identified health problems and Burden‐of‐Disease‐assessed health priorities in a district in Uganda. 5:55-62. 2002
- Development and evaluation of a decision aid for patients with stage IV non‐small cell lung cancer. 3:125-136. 2000
- The use of research‐based theatre in a project related to metastatic breast cancer. 3:137-144. 2000
- Editorial: special conference issue. 3:1-5. 2000
- Lessons learned from the Decision Board: a unique and evolving decision aid. 3:69-76. 2000
- Attitudes to randomized clinical trials amongst out‐patients attending a medical oncology clinic. 2:33-43. 1999
- Book reviews. 2:69-70. 1999