Journal article
The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia
Abstract
BackgroundThe interest of health care agencies, private payers and policy makers for patient-reported outcomes (PRO) is continuously increasing. There is a substantial need to improve capacity to collect and interpret relevant PRO data to support implementation of patient-centered research and optimal care in haemophilia. The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project aims to develop a patient-led research network, to …
Authors
Skinner M; Chai-Adisaksopha C; Curtis R; Frick N; Nichol M; Noone D; O’Mahony B; Page D; Stonebraker JS; Iorio A
Journal
Pilot and Feasibility Studies, Vol. 4, No. 1,
Publisher
Springer Nature
Publication Date
December 2018
DOI
10.1186/s40814-018-0253-0
ISSN
2055-5784