A Qualitative Exploration of the Experiences of Children and Adolescents with Tourette Syndrome. Academic Article uri icon

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  • OBJECTIVE: The purpose of this qualitative study was to explore the experiences of youth with Tourette Syndrome (TS). METHOD: Thirteen participants with TS were recruited from a large tertiary care hospital to complete semi-structured interviews and two questionnaires pertaining to demographic information and tic severity. Thematic analysis was utilized to systematically analyze the data. RESULTS: Three main themes were identified: 1) beliefs about TS; 2) TS related distress and impairment; and, 3) coping with TS. CONCLUSION: The findings from this study suggest that most participants were aware of their tics but unaware of the cause of tics/TS. The interviews also highlighted that, for most participants, TS caused emotional, social, physical, and/or occupational impairment. Despite their distress, participants provided several suggestions for coping with TS and for supporting those who are diagnosed with this condition.


  • Edwards, Kim
  • Mendlowitz, Sandra
  • Jackson, Elana
  • Champigny, Claire
  • Specht, Matt
  • Arnold, Paul
  • Gorman, Daniel
  • Dimitropoulos, Gina

publication date

  • 2017