Comparative Effectiveness Research and Children With Cerebral Palsy Journal Articles

abstract

• PURPOSE: A step toward advancing research about rehabilitation service associated with positive outcomes for children with cerebral palsy is consensus about a conceptual framework and measures. METHODS: A Delphi process was used to establish consensus among clinicians and researchers in North America. RESULTS: Directors of large pediatric rehabilitation centers, clinicians from large hospitals, and researchers with expertise in outcomes participated (N = 18). Andersen's model of health care utilization framed outcomes: consumer satisfaction, activity, participation, quality of life, and pain. Measures agreed upon included Participation and Environment Measure for Children and Youth, Measure of Processes of Care, PEDI-CAT, KIDSCREEN-10, PROMIS Pediatric Pain Interference Scale, Visual Analog Scale for pain intensity, PROMIS Global Health Short Form, Family Environment Scale, Family Support Scale, and functional classification levels for gross motor, manual ability, and communication. CONCLUSIONS: Universal forms for documenting service use are needed. Findings inform clinicians and researchers concerned with outcome assessment.

authors

• Gannotti, Mary E
• Law, Mary Catherine
• Bailes, Amy F
• O'Neil, Margaret E
• Williams, Uzma
• Direzze, Briano

status

• published 

publication date

• 2016

has subject area

• 1114 Paediatrics and Reproductive Medicine (FoR)
• Adolescent (MeSH)
• Cerebral Palsy (MeSH)
• Child (MeSH)
• Comparative Effectiveness Research (MeSH)
• Consumer Behavior (MeSH)
• Delphi Technique (MeSH)
• Female (MeSH)
• Health Services (MeSH)
• Humans (MeSH)
• Male (MeSH)
• Patient Satisfaction (MeSH)
• Physical Therapy Modalities (MeSH)
• Quality of Life (MeSH)
• Rehabilitation (Science Metrix)
• Social Participation (MeSH)

published in

• Pediatric Physical Therapy  Journal

keywords

• Adolescent
• Cerebral Palsy
• Child
• Comparative Effectiveness Research
• Consumer Behavior
• Delphi Technique
• Female
• Health Services
• Humans
• Male
• Patient Satisfaction
• Physical Therapy Modalities
• Quality of Life
• Social Participation

Digital Object Identifier (DOI)

• 10.1097/pep.0000000000000203

PubMed ID

• 27088688

start page

• 58

end page

• 69

volume

• 28

issue

• 1