Constructing a relevant decision aid for parents of children with bronchopulmonary dysplasia

Background:To develop and test a decision aid for counseling parents of children with bronchopulmonary dysplasia (BPD).Local problem:Parental education about complex conditions is not standardized and communication and understanding may not be adequate.Methods:Semi-structured interviews were conducted with 33 neonatal clinicians and 12 parents of children with BPD using a qualitative research design. The interviews were used to identify education topics that were felt to be important in BPD education. These topics were then used to create a visual decision aid to be used in counseling sessions with parents. The decision aid was then used in mock counseling sessions with 15 ‘experienced’ participants and 7 ‘naïve’ participants to assess its efficacy. The participants completed a pre and post test to assess change in knowledge as well as an 11-question Likert style acceptability survey.Intervention:Implementation of a decision aid while educating parents about BPD.Results:Topics identified during the interviews were used to create eight educational cards which included pictures, pictographs and statistics. Overall, participants thought the decision aid contained an appropriate amount of information, were easy to understand and improved their knowledge about BPD. Testing demonstrated a significant increase in knowledge in both the ‘experienced’ (P<0.0001) and ‘naïve’ group (P=0.0064).Conclusion:A decision aid for parents of children with BPD may improve understanding of the condition and help facilitate communication between parents and doctors.