Journal article
Impact of contractures on daily functioning in adolescents with spinal muscular atrophy: a qualitative study
Abstract
PURPOSE: Exploring the impact of contractures in adolescents and young adults (AYA) with spinal muscular atrophy (SMA) on daily functioning and participation and the impact of received contracture management.
METHODS: We included 14, non-ambulant AYA with SMA types 2/3 (10 females and 4 males), aged 16-30 years. Interviews focused on two topics: perceived impact of contractures on daily functioning and of previous contracture management. We …
Authors
Lansink ILBO; Gorter JW; van der Pol WL; Bartels B; Beelen A
Journal
Disability and Rehabilitation, Vol. 46, No. 12, pp. 2593–2599
Publisher
Taylor & Francis
Publication Date
June 4, 2024
DOI
10.1080/09638288.2023.2227953
ISSN
0963-8288