Journal article
Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review
Abstract
PurposeAmyotrophic lateral sclerosis (ALS) is the most common motor neuron disease in adults. There are many patient-reported outcome measures (PROMs) for measuring quality of life (QoL) and health-related QoL (HRQoL) within this population; however, there is limited consensus regarding which are most valid, reliable, responsive, and interpretable. This systematic review assesses the psychometric properties and interpretability of QoL and HRQoL …
Authors
Zahir F; Hanman A; Yazdani N; La Rosa S; Sleik G; Sullivan B; Mehdipour A; Malouka S; Kuspinar A
Journal
Quality of Life Research, Vol. 32, No. 9, pp. 2447–2462
Publisher
Springer Nature
Publication Date
9 2023
DOI
10.1007/s11136-023-03377-2
ISSN
0962-9343