Journal article
Patient perspectives in pediatric neurology: a critical shift in the paradigm of outcome measurement
Abstract
This review explores children's self-reported outcome measurements in pediatric neurology. We examine the following questions: (1) What is meant by patient-reported health, functioning, and quality of life outcomes? (2) How can patients express whether the interventions they receive do more good than harm? (3) Why and how should pediatric neurology patients help determine the outcomes of interest? (4) What tools and recommendations are …
Authors
Ronen GM; Rosenbaum PL; Streiner DL
Journal
Developmental Medicine & Child Neurology, Vol. 64, No. 2, pp. 149–155
Publisher
Wiley
Publication Date
February 2022
DOI
10.1111/dmcn.14954
ISSN
0012-1622