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PT39 Best Practices and Standards to Enhance the...
Journal article

PT39 Best Practices and Standards to Enhance the Quality of Rare Disease Registries in Canada

Authors

Tarride J-E; Milinkovic D; Okoh A; Caetano P; Husein F; Mittmann N; Sikorski C; Aryal K; Keepanasseril A; Prada C

Journal

Value in Health, Vol. 28, No. 6,

Publisher

Elsevier

Publication Date

7 2025

DOI

10.1016/j.jval.2025.04.2140

ISSN

1098-3015