Journal article
PT39 Best Practices and Standards to Enhance the Quality of Rare Disease Registries in Canada
Authors
Tarride J-E; Milinkovic D; Okoh A; Caetano P; Husein F; Mittmann N; Sikorski C; Aryal K; Keepanasseril A; Prada C
Journal
Value in Health, Vol. 28, No. 6,
Publisher
Elsevier
Publication Date
July 1, 2025
DOI
10.1016/j.jval.2025.04.2140
ISSN
1098-3015