"My child is completely underestimated": Canadian parents' perspectives on implementing an accessible language comprehension assessment for non-speaking children with cerebral palsy. Journal Articles uri icon

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abstract

  • PURPOSE: Reliable assessment of language comprehension is difficult for children with significant speech and motor limitations. The Computer-Based instrument for Low motor Language Testing (C-BiLLT) was designed for children with cerebral palsy (CP) and speech and motor limitations. A Canadian English version (C-BiLLT-CAN) has been validated. However, early investigation identified feasibility challenges necessitating further exploration. This study aimed to understand parents' perceived barriers and facilitators to implementing the C-BiLLT-CAN in the Canadian clinical context. MATERIALS AND METHODS: Seven focus groups were conducted synchronously online with 16 parents from five Canadian provinces/territories. Transcripts were analyzed using semi-deductive thematic analysis, framing results within the Consolidated Framework for Implementation Research (CFIR). RESULTS: Parents unanimously expressed interest in making the C-BiLLT-CAN clinically available. Facilitators and barriers were discussed under five themes. Key facilitators included the unique design, standardized nature, and potential flexibility of the C-BiLLT-CAN. Barriers involved the inability to accommodate all children, the potential for unintended assessment impacts, and clinics' readiness and willingness to prioritize implementation. CONCLUSIONS: This study contributes new knowledge surrounding the assessment needs of parents of children with CP and speech and motor limitations. Alongside findings from a parallel clinician study, results will inform adaptations to the C-BiLLT-CAN to facilitate implementation.

authors

  • Coan-Brill, Juno
  • Friesen, Jodi
  • Kay, Jessica
  • Costigan, Frances
  • Chau, Tom
  • Geytenbeek, Johanna
  • Stadskleiv, Kristine
  • Batorowicz, Beata
  • McCauley, Dayle
  • Hopmans, Sarah
  • Grahovac, Danijela
  • Teachman, Gail
  • Cunningham, Barbara Jane

publication date

  • February 28, 2025