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Journal article

Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews

Abstract

BackgroundPatient engagement in research is important to ensure research questions address problems important to patients, that research is designed in a way that can effectively answer those questions, and that findings are applicable, relevant, and credible. Yet, patients are rarely involved in the dissemination stage of research. This study explored one way to engage patients in dissemination, through co-presenting …

Authors

Wurz A; Ellis K; Nordlund J; Carrier M-E; Cook V; Gietzen A; Adams C; Nassar E-L; Rice DB; Fortune C

Journal

Research Involvement and Engagement, Vol. 10, No. 1,

Publisher

Springer Nature

DOI

10.1186/s40900-024-00546-6

ISSN

2056-7529

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