Journal article
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews
Abstract
BackgroundPatient engagement in research is important to ensure research questions address problems important to patients, that research is designed in a way that can effectively answer those questions, and that findings are applicable, relevant, and credible. Yet, patients are rarely involved in the dissemination stage of research. This study explored one way to engage patients in dissemination, through co-presenting …
Authors
Wurz A; Ellis K; Nordlund J; Carrier M-E; Cook V; Gietzen A; Adams C; Nassar E-L; Rice DB; Fortune C
Journal
Research Involvement and Engagement, Vol. 10, No. 1,
Publisher
Springer Nature
DOI
10.1186/s40900-024-00546-6
ISSN
2056-7529