Information preferences of people living with fibromyalgia – a survey of their information needs and preferences

A lack of understanding about fibromyalgia and how to live with it may undermine the foundations of self-management and may compromise quality of life. The purpose of this study was to determine the information needs and preferences pertinent to people living with fibromyalgia. A cross-sectional web-based survey was developed based on conceptual and qualitative work informing information needs. Recruitment took place through hospitals, clinics, …