Journal article
Common data elements for clinical research in mitochondrial disease: a National Institute for Neurological Disorders and Stroke project
Abstract
OBJECTIVES: The common data elements (CDE) project was developed by the National Institute of Neurological Disorders and Stroke (NINDS) to provide clinical researchers with tools to improve data quality and allow for harmonization of data collected in different research studies. CDEs have been created for several neurological diseases; the aim of this project was to develop CDEs specifically curated for mitochondrial disease (Mito) to enhance …
Authors
Karaa A; Rahman S; Lombès A; Yu‐Wai‐Man P; Sheikh MK; Alai‐Hansen S; Cohen BH; Dimmock D; Emrick L; Falk MJ
Journal
Journal of Inherited Metabolic Disease, Vol. 40, No. 3, pp. 403–414
Publisher
Wiley
Publication Date
May 2017
DOI
10.1007/s10545-017-0035-5
ISSN
0141-8955