Journal article
The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making
Abstract
Purpose: The anticipated emergence of hemophilia gene therapy will present people with hemophilia (PWH) and treating clinicians with increasingly complex treatment options. It will be critical that PWH and their families be empowered to participate fully in decision-making through transparent communication and the development of targeted educational resources.
Methods: The Council of Hemophilia Community (CHC) convened across a series of …
Authors
Wang M; Negrier C; Driessler F; Goodman C; Skinner MW
Journal
Patient Preference and Adherence, Vol. 16, No. 0, pp. 1439–1447
Publisher
Taylor & Francis
Publication Date
June 9, 2022
DOI
10.2147/ppa.s355627
ISSN
1177-889X