Journal article
Health‐related Quality of Life in Children with Epilepsy: Development and Validation of Self‐report and Parent Proxy Measures
Abstract
PURPOSE: To answer a need to include and measure accurately the impact and burden of epilepsy as outcomes of interventions with affected children, we developed and validated self-report and parent-proxy respondent health-related quality of life (HRQL) instruments for preadolescent children with epilepsy.
METHODS: We combined qualitative and quantitative research methods. Items were extracted from focus group discussions involving children with …
Authors
Ronen GM; Streiner DL; Rosenbaum P; Network CPE
Journal
Epilepsia, Vol. 44, No. 4, pp. 598–612
Publisher
Wiley
Publication Date
April 2003
DOI
10.1046/j.1528-1157.2003.46302.x
ISSN
0013-9580