Experts has a new look! Let us know what you think of the updates.

Provide feedback
Home
Scholarly Works
Factors Influencing Participation in a...
Journal article

Factors Influencing Participation in a Population-based Biorepository for Childhood Heart Disease

Abstract

BACKGROUND: Consenting minors for genetics research and biobanking involves ethical and social challenges. We examined factors influencing participation rates in a population-based biorepository for childhood heart disease. METHODS: Individuals were prospectively enrolled across 7 centers in Ontario by using a standardized consent form. Individuals were approached for consent for the donation of blood/saliva (DNA), tissue, and skin from the …

Authors

Papaz T; Safi M; Manickaraj A-K; Ogaki C; Kyryliuk JB; Burrill L; Dodge C; Chant-Gambacort C; Walter L-L; Rosenberg H

Journal

, Vol. 130, No. 5, pp. e1198–e1205

Publisher

American Academy of Pediatrics (AAP)

Publication Date

November 1, 2012

DOI

10.1542/peds.2012-0687

ISSN

0031-4005