selected scholarly activity
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conferences
- Parents of children with medical complexity: a qualitative exploration of impact on health and well-being from caregiving and care coordination. Quality of Life Research. S14-S14. 2021
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journal articles
- Healthcare Utilization and Costs in Children Receiving Home Mechanical Ventilation in Ontario: A 14-Year Cohort Study. Annals of the American Thoracic Society. 21:1421-1431. 2024
- Effectiveness of Structured Care Coordination for Children With Medical Complexity. JAMA Pediatrics. 177:461-461. 2023
- Incidence and Mortality of Children Receiving Home Mechanical Ventilation. Pediatrics. 151:e2022059898. 2023
- The Transitions to Long-term In Home Ventilator Engagement Study (Transitions to LIVE): study protocol for a pragmatic randomized controlled trial. Trials. 23:125. 2022
- A Novel Hospital-to-Home System for Children With Medical Complexities: Usability Testing Study. JMIR Formative Research. 6:e34572-e34572. 2022
- Implementing a Care Coordination Strategy for Children with Medical Complexity in Ontario, Canada: A Process Evaluation. International Journal of Integrated Care. 22:9. 2022
- Identifying the research, advocacy, policy and implementation needs for the prevention and management of respiratory syncytial virus lower respiratory tract infection in low- and middle-income countries. Frontiers in Pediatrics. 10:1033125. 2022
- Transition to adult care for youth with medical complexity: Assessing needs and setting priorities for a health care improvement initiative. Journal of Pediatric Nursing. 62:144-154. 2022
- A generative co-design framework for healthcare innovation: development and application of an end-user engagement framework. Research Involvement and Engagement. 7:12. 2021
- Process Evaluation of a Hub-and-Spoke Model to Deliver Coordinated Care for Children with Medical Complexity across Ontario: Facilitators, Barriers and Lessons Learned. Healthcare Policy. 17:104-122. 2021
- A Mixed-Methods Feasibility Study of Integrated Pediatric Complex Care: Experiences of Parents With Care and the Value of Parent Engagement in Research. Frontiers in Rehabilitation Sciences. 2:710335. 2021
- Family‐provider consensus outcomes for children with medical complexity. Developmental Medicine and Child Neurology. 61:1093-1100. 2019
- Complex care for kids Ontario: protocol for a mixed-methods randomised controlled trial of a population-level care coordination initiative for children with medical complexity. BMJ Open. 9:e028121-e028121. 2019
- Respiratory syncytial virus (RSV) infection in children with medical complexity. European Journal of Clinical Microbiology and Infectious Diseases. 38:171-176. 2019
- Caregiver knowledge and skills to safely care for pediatric tracheostomy ventilation at home. Pediatric pulmonology. Supplement. 52:1610-1615. 2017