publication venue for
- Estimating health state utilities in Duchenne muscular dystrophy using the health utilities index and EQ-5D-5L 2023
- International study to develop a patient-reported outcome measure to evaluate outcomes of gender-affirming care - the GENDER-Q.. 8:134. 2024
- Switching treatment to cipaglucosidase alfa plus miglustat positively affects patient-reported outcome measures in patients with late-onset Pompe disease.. 8:132. 2024
- Treatment decision-making factors among patients with cervical myelopathy: a discrete-choice experiment. 8:129. 2024
- Comparison of the EQ-5D-5L and the patient-reported outcomes measurement information system preference score (PROPr) in the United States. 8:76. 2024
- Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024. 8:64. 2024
- Iterative qualitative approach to establishing content validation of a patient-reported outcome measure for arm lymphedema: the LYMPH-Q Upper Extremity Module. 8:63. 2024
- Translation and cross-cultural adaptation of seventeen widely-used assessment instruments for child and adolescent mental health in Greece. 8:18. 2024
- Diversified caregiver input to upgrade the Young Children’s Participation and Environment Measure for equitable pediatric re/habilitation practice. 7:87. 2023
- Re-examining content validity of the BREAST-Q more than a decade later to determine relevance and comprehensiveness. 7:37. 2023
- Mepolizumab improvements in health-related quality of life and disease symptoms in a patient population with very severe chronic rhinosinusitis with nasal polyps: psychometric and efficacy analyses from the SYNAPSE study. 7:4. 2023
- “You need a team”: perspectives on interdisciplinary symptom management using patient-reported outcome measures in hemodialysis care—a qualitative study. 7:3. 2023
- Societal perspectives on disease and treatment attributes characterizing rare diseases: a qualitative study from the United States. 6:9. 2022
- Burden of mental health symptoms and perceptions of their management in in-centre hemodialysis care: a mixed methods study. 5:111. 2021
- What matters to children with lower limb deformities: an international qualitative study guiding the development of a new patient-reported outcome measure. 5:30. 2021
- Patient-reported outcome instruments used in immune-checkpoint inhibitor clinical trials in oncology: a systematic review. 4:58. 2020
- Selecting, implementing and evaluating patient-reported outcome measures for routine clinical use in cancer: the Cancer Care Ontario approach. 4:101. 2020
- The colon cancer screening behaviours survey for South Asians: a pilot study of feasibility and psychometric evaluation. 4:12. 2020
- Expectations of breast-conserving therapy: a qualitative study. 3:73. 2019
- Impact of short stature on health-related quality of life in long-term survivors of acute lymphoblastic leukemia in childhood and adolescence. 2:59. 2018
- Journal of Patient-Reported Outcomes: aims and scope. 1:6. 2017