Soo Ying Chan Carusone - McMaster Experts

Affiliations

Faculty of Health Sciences, McMaster University
Assistant Clinical Professor (Adjunct), Health Research Methods, Evidence, and Impact, Faculty of Health Sciences
Managing Director, McMaster Collaborative for Health and Aging,
Manager, Strategic Initiatives, McMaster Collaborative for Health and Aging, McMaster University
Director of Research, Casey House,

Research Areas

Scholarly Activity in McMaster Experts

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selected scholarly activity

chapters
- Ethics in Participatory Research for Health and Social Well-Being. 143-145. 2018
conferences
- Compliance With Personal Precautions Against Exposure to Bloodborne Pathogens Among Laboratory Workers: A Canadian Survey. Infection Control and Hospital Epidemiology. 66-68. 2008
journal articles
- Analysis of hospital-based healthcare provision for people living with HIV who use drugs in Ontario, Canada: “Beyond my Scope!”. Cogent Social Sciences. 10:2294562. 2024
- Bridging the divide: supporting and mentoring trainees to conceptualize, plan, and integrate engagement of people with lived experience in health research.. Research Involvement and Engagement. 10:89. 2024
- Co-designing a participatory evaluation of older adult partner engagement in the mcmaster collaborative for health and aging. Research Involvement and Engagement. 10:58. 2024
- Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States. BMC Infectious Diseases. 24:71. 2024
- Adapting Cognitive Remediation Group Therapy Online: Focus Groups with People Aging with HIV. Journal of the International Association of Providers of AIDS Care. 23:23259582241242703. 2024
- “And if my goal is never to leave Casey House?”: The significance of place attachment for patients at a specialty HIV hospital in Toronto, Canada. Health & Place. 83:103100-103100. 2023
- Cognitive screening considerations for psychosocial clinical trials in HIV, aging, and cognition. Clinical Trials. 20:176-180. 2023
- Community reinforcement approach (CRA) supported with structured recreation therapy: Experiences of people living with HIV in a pilot substance use treatment program at a specialty hospital.. Journal of Substance Use and Addiction Treatment. 147:208974. 2023
- Wireless physical activity monitor use among adults living with HIV in a community-based exercise intervention study: a quantitative, longitudinal, observational study. BMJ Open. 13:e068754-e068754. 2023
- Conceptualising the episodic nature of disability among adults living with Long COVID: a qualitative study. BMJ Global Health. 8:e011276-e011276. 2023
- Piloting an online telecoaching community-based exercise intervention with adults living with HIV: protocol for a mixed-methods implementation science study. BMJ Open. 13:e067703-e067703. 2023
- Factors influencing initial implementation of an online community-based exercise intervention with adults living with HIV: a systems approach. Frontiers in Rehabilitation Sciences. 4:1176960. 2023
- Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study. Journal of the International Association of Providers of AIDS Care. 22. 2023
- Philanthropic donor perspectives about providing harm reduction services for people living with HIV/AIDS in a hospital setting. Harm Reduction Journal. 19:124. 2022
- Wireless physical activity monitor use among adults living with HIV in a community-based exercise intervention study: a quantitative longitudinal observational study 2022
- Assessing the sensibility and utility of a short-form version of the HIV Disability Questionnaire in clinical practice settings in Canada, Ireland and the USA: a mixed methods study. BMJ Open. 12:e062008-e062008. 2022
- A structuration theory guided analysis of the hospitalization experience for people living with HIV who use drugs: My rules and their rules. International Journal on Drug Policy, The. 106:103743-103743. 2022
- Considerations for developing and implementing an online community-based exercise intervention with adults living with HIV: a qualitative study. BMJ Open. 12:e059294-e059294. 2022
- Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability among people living with Long COVID – protocol for a mixed-methods study. BMJ Open. 12:e060826-e060826. 2022
- Adapting Cognitive Remediation Group Therapy as an Online or Hybrid Intervention for People Aging With HIV and Cognitive Concerns: Focus Group Protocol. International Journal of Qualitative Methods. 21:160940692211390-160940692211390. 2022
- Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers. Journal of the International Association of Providers of AIDS Care. 21:232595822210791-232595822210791. 2022
- Stakeholder preferences for supervised consumption site design, staff, and ancillary services: A scoping review of feasibility studies. Drug and Alcohol Dependence. 230:109179-109179. 2022
- Construct Validity and Responsiveness of the Rapid Assessment of Physical Activity in Adults Living With HIV. Archives of Rehabilitation Research and Clinical Translation. 3:100164-100164. 2021
- Disability and self-care living strategies among adults living with HIV during the COVID-19 pandemic. AIDS Research and Therapy. 18:87. 2021
- Feasibility, acceptability, concerns, and challenges of implementing supervised injection services at a specialty HIV hospital in Toronto, Canada: perspectives of people living with HIV. BMC Public Health. 21:1482. 2021
- Picturing Participation: Catalyzing Conversations About Community Engagement in HIV Community–Based Organizations. Health Education and Behavior. 48:769-782. 2021
- “With a PICC line, you never miss”: The role of peripherally inserted central catheters in hospital care for people living with HIV/HCV who use drugs. International Journal on Drug Policy, The. 96:103438-103438. 2021
- Experiences engaging in a group-based physiotherapist-led exercise programme for adults living with HIV and complex multimorbidity: a qualitative study. BMJ Open. 11:e045158-e045158. 2021
- Health care utilization in medically complex people living with HIV before and after admission to an HIV-specific community facility: a pre–post comparison study. CMAJ open. 9:E460-E465. 2021
- Rules and Eligibility Criteria for Supervised Consumption Services Feasibility Studies – A Scoping Review. International Journal on Drug Policy, The. 88:103040-103040. 2021
- A Qualitative Study of Fitness Coaches’ Experiences in Community Based Exercise with People Living with HIV. Journal of the International Association of Providers of AIDS Care. 20:232595822110467-232595822110467. 2021
- Do Mock-Ups, Presentations of Evidence, and Q&As Help Participants Voice their Opinions During Focus Groups and Interviews About Supervised Injection Services?. International Journal of Qualitative Methods. 20:160940692110334-160940692110334. 2021
- Examining the impact of a community-based exercise intervention on cardiorespiratory fitness, cardiovascular health, strength, flexibility and physical activity among adults living with HIV: A three-phased intervention study. PLoS ONE. 16:e0257639-e0257639. 2021
- Experiences of People Living With HIV in Community Based Exercise: A Qualitative Longitudinal Study. Journal of the International Association of Providers of AIDS Care. 20:232595822199534-232595822199534. 2021
- Strengths and Challenges of Implementing Physiotherapy in an HIV Community-Based Care Setting: A Qualitative Study of Perspectives of People Living with HIV and Healthcare Providers. Journal of the International Association of Providers of AIDS Care. 20:232595822110056-232595822110056. 2021
- Training Peers to Ease Hospital Discharge: A Community–Clinical Partnership in Complex HIV Care. Progress in Community Health Partnerships: Research, Education, and Action. 15:225-60. 2021
- Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC). AIDS Research and Therapy. 17:21. 2020
- Illicit drug use while admitted to hospital: Patient and health care provider perspectives. PLoS ONE. 15:e0229713-e0229713. 2020
- Journeying together: A visual exploration of “engagement” as a journey in HIV programming and service delivery. Health & Place. 61:102247-102247. 2020
- Mobile applications to improve antiretroviral therapy adherence: Quality over quantity. University of Toronto Medical Journal. 97:42-43. 2020
- Characterizing the disability experience among adults living with HIV: a structural equation model using the HIV disability questionnaire (HDQ) within the HIV, health and rehabilitation survey. BMC Infectious Diseases. 19:594. 2019
- “Maybe if I stop the drugs, then maybe they’d care?”—hospital care experiences of people who use drugs. Harm Reduction Journal. 16:16. 2019
- Where and how does physical therapy fit? Integrating physical therapy into interprofessional HIV care. Disability and Rehabilitation. 41:1768-1777. 2019
- A Seat at the Table: Designing an Activity-Based Community Advisory Committee With People Living With HIV Who Use Drugs. Qualitative Health Research. 29:1029-1042. 2019
- Recommendations for integrating physiotherapy into an interprofessional outpatient care setting for people living with HIV: a qualitative study. BMJ Open. 9:e026827-e026827. 2019
- The ART of conversation: feasibility and acceptability of a pilot peer intervention to help transition complex HIV-positive people from hospital to community. BMJ Open. 9:e026674-e026674. 2019
- Antiretroviral Prescription Pick-up and Physician Follow-up After Hospital Discharge Among Medically Complex People With HIV. Open Forum Infectious Diseases. 6:ofz009. 2019
- Distribution of Harm Reduction Kits in a Specialty HIV Hospital. American Journal of Public Health. 108:1363-1365. 2018
- A blended learning curriculum for training peer researchers to conduct community-based participatory research. Action Learning: Research and Practice. 15:139-150. 2018
- “I’m Just Forgetting and I Don’t Know Why”: Exploring How People Living With HIV-Associated Neurocognitive Disorder View, Manage, and Obtain Support for Their Cognitive Difficulties. Qualitative Health Research. 28:859-872. 2018
- The evolution of casey house: The response to a changing hiv patient population. University of Toronto Medical Journal. 95:31-32. 2018
- Use of Living Strategies among Adults Aging with HIV in Canada: Comparison by Age-Group Using Data from the HIV, Health and Rehabilitation Survey. Journal of the International Association of Providers of AIDS Care. 17:232595821877404-232595821877404. 2018
- Perceptions of ‘physical activity’ and ‘exercise’ among people living with HIV: A qualitative study. International Journal of Therapy and Rehabilitation. 24:473-482. 2017
- Spotlight on Caroline Families First Wraparound Program: Lessons for Advancing Collaborative Family-Centred Care for Complex Child and Youth Mental Health. Canadian Journal of Community Mental Health. 36:1-14. 2017
- A growing need – HIV education in long-term care. Geriatric Nursing. 38:199-206. 2017
- The Lived Experience of the Hospital Discharge “Plan”: A Longitudinal Qualitative Study of Complex Patients. Journal of Hospital Medicine. 12:5-10. 2017
- Evaluating a community-based exercise intervention with adults living with HIV: protocol for an interrupted time series study. BMJ Open. 6:e013618-e013618. 2016
- Opportunities, challenges and ethical issues associated with conducting community-based participatory research in a hospital setting. Research Ethics. 12:149-157. 2016
- Are you ready? Exploring readiness to engage in exercise among people living with HIV and multimorbidity in Toronto, Canada: a qualitative study. BMJ Open. 6:e010029-e010029. 2016
- Visualizing harm reduction: Methodological and ethical considerations. Social Science and Medicine. 133:77-84. 2015
- Living with addiction: The perspectives of drug using and non-using individuals about sharing space in a hospital setting. International Journal on Drug Policy, The. 25:640-649. 2014
- Complex care needs of patients with late-stage HIV disease: A retrospective study. AIDS Care. 26:320-325. 2014
- Complex care needs of patients with late-stage HIV disease: A retrospective study. AIDS Care. 25:793-793. 2013
- Causes of Death in HIV Patients and the Evolution of an AIDS Hospice: 1988–2008. AIDS Research and Treatment. 2012:1-7. 2012
- Environmental Risk Factors for Community‐Acquired Pneumonia Hospitalization in Older Adults. Journal of The American Geriatrics Society. 57:1036-1040. 2009
- Hand hygiene practices of health care workers in long-term care facilities. American Journal of Infection Control. 36:492-494. 2008
- Stop Orders to Reduce Inappropriate Urinary Catheterization in Hospitalized Patients: A Randomized Controlled Trial. Journal of General Internal Medicine. 23:816-820. 2008
- Pneumonia care and the nursing home: a qualitative descriptive study of resident and family member perspectives. BMC Geriatrics. 6:2. 2006
- Reducing Hospitalizations in Nursing Home Patients With Pneumonia—Reply. Journal of the American Medical Association (JAMA). 296:2201-2201. 2006
- Interobserver Reliability of Radiologists’ Interpretations of Mobile Chest Radiographs for Nursing Home–Acquired Pneumonia. Journal of the American Medical Directors Association. 7:416-419. 2006
- Effect of a Clinical Pathway to Reduce Hospitalizations in Nursing Home Residents With Pneumonia. Journal of the American Medical Association (JAMA). 295:2503-2503. 2006
- A Clinical Pathway for Treating Pneumonia in the Nursing Home: Part I: The Nursing Perspective. Journal of the American Medical Directors Association. 7:271-278. 2006
- A Clinical Pathway for Treating Pneumonia in the Nursing Home: Part II: The Administrators’ Perspective and How It Differs From Nurses’ Views. Journal of the American Medical Directors Association. 7:279-286. 2006
- Summary measures were a useful alternative for analyzing therapeutic clinical trial data. Journal of Clinical Epidemiology. 59:387-392. 2006
- Lack of association between vascular dementia and Chlamydia pneumoniae infection: a case-control study. BMC Neurology. 4:15. 2004
preprints