selected scholarly activity
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chapters
- Evans Syndrome in the Adolescent Female. 253-265. 2020
- Presentation and Evaluation of Immune Thrombocytopenia. 35-44. 2018
- Pediatric Thrombosis and Hemostasis: A Historical Perspective. 1-4. 2013
- Reference Ranges for Common Tests of Bleeding and Clotting. 232-234. 2013
- SickKids Handbook of Pediatric Thrombosis and Hemostasis Preface. XVII-XVII. 2013
- von Willebrand Disease in Children. 79-89. 2013
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conferences
- PHASE-SPECIFIC RISKS OF EMERGENCY VISITS AND HOSPITALIZATIONS DURING COG-BASED ALL TREATMENT. Pediatric Blood and Cancer. S50-S50. 2021
- Virtual Peer-to-Peer Mentoring for Adolescents With Cancer: A Pilot Randomized Controlled Trial of the iPeer2Peer Program. Pediatric Blood and Cancer. S87-S87. 2020
- Cellular and Molecular Architecture of Hematopoietic Stem Cells and Progenitors in Genetic Models of Bone Marrow Failure. Blood. 1223-1223. 2019
- Characterization of the Severe Phenotype of Pyruvate Kinase Deficiency. Blood. 949-949. 2019
- Comorbidities and Complications in Adults with Pyruvate Kinase Deficiency. Blood. 2175-2175. 2019
- Predictors of Disease Progression and Survival in Patients with Myelodysplastic Syndrome Secondary to Inherited Bone Marrow Failure Syndromes. Blood. 2507-2507. 2019
- The Impact of Identifying the Syndromic and Genetic Diagnoses on Hematopoietic Stem Cell Transplantation Outcome in Patients with Inherited Bone Marrow Failure Syndromes. Blood. 5015-5015. 2019
- Development and Psychometric Evaluation of the Cancer Distress Scales for Adolescent and Young Adults. Journal of Adolescent and Young Adult Oncology. 566-580. 2019
- QUALITY OF LIFE IS THE MOST IMPORTANT INDICATION FOR SECOND-LINE ITP TREATMENT IN CHILDREN. Pediatric Blood and Cancer. 2019
- Health Related Quality of Life and Fatigue in Patients with Pyruvate Kinase Deficiency. Blood. 4807-4807. 2018
- Genotype-Phenotype Correlation and Molecular Heterogeneity in Pyruvate Kinase Deficiency: Data from the PKD Natural History Study. Blood. 2017
- Re-Analysis of Next Generation Sequencing Gene Panel Data By Normalized Coverage Values Reveals Previously Undetected Copy Number Variations in Inherited Bone Marrow Failure Syndromes. Blood. 2017
- Clinical Characteristics and Quality of Life of Children with ITP Starting Second Line Treatments: Data from the ITP Consortium of North America ICON1 Study. Blood. 249-249. 2016
- Physician Factors Determining Treatment Decisions in Selecting Second Line Agents for Pediatric ITP. Blood. 1008-1008. 2016
- Pilot Study of Online Learning Modules for Hemoglobinopathy Education in Canadian Hematology Training Programs. Blood. 314-314. 2016
- Improving Influenza Vaccination Rates in Paediatric Oncology Patients and their Caregivers: A Quality Improvement Initiative. Pediatric Blood and Cancer. S276-S276. 2016
- FATIGUE IN PEDIATRIC IMMUNE THROMBOCYTOPENIA (ITP): BASELINE PREVALENCE IN PATIENTS STARTING SECOND LINE THERAPIES IN THE FIRST ITP CONSORTIUM OF NORTH AMERICA RESEARCH STUDY (ICON1). Pediatric Blood and Cancer. S20-S20. 2016
- Using cognitive interviews and expert feedback to validate the Australian AYA Distress Thermometer and Problem Checklist for use in Canada.. Journal of Clinical Oncology. 10088-10088. 2016
- Copy Number Variants Underlying Inherited Bone Marrow Failure Syndromes. Blood. 2416-2416. 2015
- Molecular Analysis of Diamond Blackfan Anemia and Genotype-Phenotype Correlation: Experience from the Canadian Inherited Marrow Failure Registry. Blood. 3621-3621. 2015
- The Phenotypic Spectrum of Pyruvate Kinase Deficiency (PKD) from the PKD Natural History Study (NHS): Description of Four Severity Groups By Anemia Status. Blood. 2136-2136. 2015
- The Quality, Content, Accuracy and Readability of Information about Sickle Cell Anemia on the Internet. Blood. 4462-4462. 2015
- Improving fitness after childhood cancer: A novel exercise clinic for pediatric oncology patients.. Journal of Clinical Oncology. 2015
- Application of Novel Next Generation Sequencing Gene Panel Assay to Genetic and Clinical Diagnosis of Inherited Bone Marrow Failure Syndromes. Blood. 257-257. 2014
- Hemoglobinopathy Education in Canadian Hematology Training Programs: How Much Are Residents Learning?. Blood. 2168-2168. 2014
- Risk Factors for Poor Survival after Hematopoietic Stem Cell Transplantation in Inherited Bone Marrow Failure Syndromes. Blood. 2592-2592. 2014
- LONG TERM CLINICAL AND NEUROCOGNITIVE OUTOMES OF HOMOZYGOUS ALPHA-THALASSEMIA SURVIVORS. Pediatric Blood and Cancer. S90-S91. 2014
- Feasibility study of a randomized control trial to evaluate an internet-based self-management program for adolescents with hemophilia: preliminary results and observations. Journal of Thrombosis and Haemostasis. 1058-1058. 2013
- COMBINED AUTOIMMUNE CYTOPENIAS PRESENTING IN CHILDHOOD: A RETROSPECTIVE CHART REVIEW. Pediatric Blood and Cancer. S14-S14. 2013
- MANAGEMENT OF FXIII DEFICIENCY: A REVIEW OF THE LITERATURE. Pediatric Blood and Cancer. S37-S37. 2013
- A feasibility study of "managing hemophilia online": An Internet-based self-management and transitional care program for teens. Haemophilia. 207-208. 2012
- Understanding the impact of hemophilia on the family: A pilot study of the PedsQL family impact module. Haemophilia. 181-181. 2012
- Usability testing of an online transition program for adolescents with hemophilia. Haemophilia. 31-31. 2012
- GROWING UP WITH HEMOPHILIA: AN ASSESSMENT OF TEENS' PERCEIVED NEEDS PRIOR TO TRANSITION. Pediatric Blood and Cancer. 916-917. 2011
- SURFING FOR CANCER: PERSPECTIVES ON QUALITY AND CONTENT OF INFORMATION ON THE INTERNET FOR ADOLESCENT WITH CANCER. Pediatric Blood and Cancer. 944-944. 2011
- Investigating the Experiences and Educational Needs of Adolescents with Hemophilia Prior to Transition of Care: A Website Development Project.. Blood. 649-649. 2010
- PAIN MANAGEMENT AND OPIOIDS USE IN PAEDIATRIC ONCOLOGY IN INDIA: A QUALITATIVE APPROACH. Pediatric Blood and Cancer. 952-953. 2010
- The development of an innovative internet-based educational program to promote self-management for teens with hemophilia. Haemophilia. 53-53. 2010
- The Quality and Accuracy of Hemophilia Information on the Internet. Blood. 105-105. 2009
- Prognostic factors in advanced-stage pediatric anaplastic large cell lymphoma (ALCL): Analysis of patients from two consecutive pediatric oncology group (POG) studies. Annals of Oncology. 139-139. 2008
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journal articles
- Treatment of Critical Bleeds in Patients With Immune Thrombocytopenia: A Systematic Review.. European Journal of Haematology. 2024
- What's in a name: defining pediatric refractory ITP. Blood Advances. 8:5112-5117. 2024
- Treatment of Critical Bleeding Events in Patients with Immune Thrombocytopenia: A Systematic Review. Blood. 142:7239-7239. 2023
- Rates and predictors of visits to primary care physicians during and after treatment of childhood acute lymphoblastic leukemia: A population‐based cohort study. Pediatric Blood and Cancer. 70:e30610. 2023
- Pediatric refractory immune thrombocytopenia: A systematic review. Pediatric Blood and Cancer. 70:e30173. 2023
- Generic Health-Related Quality of Life Utility Measure for Preschool Children (Health Utilities Preschool): Design, Development, and Properties. Value in Health. 26:251-260. 2023
- Predictors of Disease Progression and Survival in Patients with Myelodysplastic Syndrome Secondary to Inherited Bone Marrow Failure Syndromes. Blood. 140:11461-11462. 2022
- A Pilot Randomized Control Trial of Teens Taking Charge: A Web-based Self-management Program for Adolescents with Cancer. Journal of Pediatric Hematology/Oncology Nursing. 39:366-378. 2022
- Defining vascular anomaly phenotypes in children based on a systematic literature search: A critical step in developing a single severity score for interventional clinical trials. Pediatric Blood and Cancer. 69:e29869. 2022
- Healthcare utilization and costs associated with acute lymphoblastic leukemia in children with and without Down syndrome. Pediatric Blood and Cancer. 69:e29829. 2022
- Canadian Conference on Medical Education 2022 abstracts. Canadian Medical Education Journal. 13:105-251. 2022
- Poor outcome after hematopoietic stem cell transplantation of patients with unclassified inherited bone marrow failure syndromes. European Journal of Haematology. 108:278-287. 2022
- Health-related quality of life and fatigue in children and adults with pyruvate kinase deficiency. Blood Advances. 6:1844-1853. 2022
- Creating Video-Based Education Modules for Parents of Newly Diagnosed Pediatric Patients With Cancer. Cancer Nursing. 45:E428-E435. 2022
- Clinical and Demographic Factors Associated with Distress in Adolescent and Young Adults with Cancer. Journal of Adolescent and Young Adult Oncology. 10:682-689. 2021
- Blinatumomab Is Cost-Effective Compared to Standard Chemotherapy for Children with High Risk Relapses of Acute Lymphoblastic Leukemia: A Cost-Effectiveness Analysis Using Population-Based Healthcare Data. Blood. 138:565-565. 2021
- Rates and Predictors of Visits to Primary Care Physicians during and after Treatment of Childhood Acute Lymphoblastic Leukemia: A Population-Based Cohort Study. Blood. 138:839-839. 2021
- Phase‐specific risks of outpatient visits, emergency visits, and hospitalizations during Children's Oncology Group‐based treatment for childhood acute lymphoblastic leukemia: A population‐based study. Pediatric Blood and Cancer. 68:e29141. 2021
- Pyruvate kinase deficiency in children. Pediatric Blood and Cancer. 68:e29148. 2021
- Definition of a critical bleed in patients with immune thrombocytopenia: Communication from the ISTH SSC Subcommittee on Platelet Immunology. Journal of Thrombosis and Haemostasis. 19:2082-2088. 2021
- Health care utilisation and costs associated with different treatment protocols for newly diagnosed childhood acute lymphoblastic leukaemia: A population-based study in Ontario, Canada. European Journal of Cancer. 151:126-135. 2021
- Predictors of clinical trial enrollment and impact on outcome in children and adolescents with acute lymphoblastic leukemia: A population based study.. Journal of Clinical Oncology. 39:7031-7031. 2021
- Multimodal therapy for rigid, persistent avoidant/restrictive food intake disorder (ARFID) since infancy: A case report. Clinical Child Psychology and Psychiatry. 26:451-463. 2021
- Genotypic and Phenotypic Spectrum of Dyskeratosis Congenita: Results from the Canadian Inherited Marrow Failure Registry. Blood. 136:8-9. 2020
- Healthcare Utilization and Costs Associated with Different Treatment Protocols for Newly Diagnosed Childhood Acute Lymphoblastic Leukemia: A Population-Based Study. Blood. 136:46-47. 2020
- Characterization of the severe phenotype of pyruvate kinase deficiency. American Journal of Hematology. 95:E281-E285. 2020
- Fatigue in children and adolescents with immune thrombocytopenia. British Journal of Haematology. 191:98-106. 2020
- A Newborn With Skin Lesions, Thrombocytopenia, and Gastrointestinal Bleeding. Journal of Pediatric Hematology/Oncology. 42:e531-e535. 2020
- Androgen therapy in inherited bone marrow failure syndromes: analysis from the Canadian Inherited Marrow Failure Registry. British Journal of Haematology. 189:976-981. 2020
- Comparison of Patient-Reported Outcome Measures for Use as Performance Metrics in Adolescent and Young Adult Psychosocial Cancer Care. Journal of Adolescent and Young Adult Oncology. 9:262-270. 2020
- Correction to: Development and Psychometric Evaluation of the Cancer Distress Scales for Adolescent and Young Adults by Tsangaris E, D'Agostino N, Rae C, Breakey V, and Klassen AF. J Adolesc Young Adult Oncol. 2019;8(5):566–580. DOI: 10.1089/jayao.2019.0005. Journal of Adolescent and Young Adult Oncology. 9:313-314. 2020
- Pain Squad+ smartphone app to support real-time pain treatment for adolescents with cancer: protocol for a randomised controlled trial. BMJ Open. 10:e037251-e037251. 2020
- Recommendations for medical care in the pediatric oncology camp setting: Consensus statements based on Delphi methodology. Pediatric Blood and Cancer. 67:e28107. 2020
- Cellular and molecular architecture of hematopoietic stem cells and progenitors in genetic models of bone marrow failure. JCI insight. 5:131018. 2020
- Distress Screening in Adolescents and Young Adults with Cancer: Development of Cut-Points for the Cancer Distress Scales-Adolescent and Young Adults. Journal of Adolescent and Young Adult Oncology. 8:560-565. 2019
- Second‐line treatments in children with immune thrombocytopenia: Effect on platelet count and patient‐centered outcomes. American Journal of Hematology. 94:741-750. 2019
- Outcomes indicators and processes in transitional care in adolescents with haemophilia: A Delphi survey of Canadian haemophilia care providers. Haemophilia. 25:296-305. 2019
- Prevalence and management of iron overload in pyruvate kinase deficiency: report from the Pyruvate Kinase Deficiency Natural History Study. Haematologica. 104:e51-e53. 2019
- Reanalysing genomic data by normalized coverage values uncovers CNVs in bone marrow failure gene panels. npj Genomic Medicine. 4:30. 2019
- Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study. JMIR Pediatrics and Parenting. 1:e11058-e11058. 2018
- Online Peer-to-Peer Mentoring Support for Youth with Hemophilia: Qualitative Needs Assessment. JMIR Pediatrics and Parenting. 1:e10958-e10958. 2018
- Physician decision making in selection of second‐line treatments in immune thrombocytopenia in children. American Journal of Hematology. 93:882-888. 2018
- CANADIAN PEDIATRICIANS’ VIEWS AND KNOWLEDGE ABOUT CANNABIS USE FOR MEDICAL PURPOSES AMONG CHILDREN AND ADOLESCENTS. Paediatrics and Child Health. 23:e53-e54. 2018
- Clinical spectrum of pyruvate kinase deficiency: data from the Pyruvate Kinase Deficiency Natural History Study. Blood. 131:2183-2192. 2018
- Molecular analysis and genotype‐phenotype correlation of Diamond‐Blackfan anemia. Clinical Genetics. 93:320-328. 2018
- Health Related Quality of Life and Fatigue Improve on Second Line Treatments in Pediatric Immune Thrombocytopenia (ITP). Blood. 130:752-752. 2017
- Pain Management and Use of Opioids in Pediatric Oncology in India: A Qualitative Approach. Journal of Global Oncology. 3:331-337. 2017
- The clinical impact of copy number variants in inherited bone marrow failure syndromes. npj Genomic Medicine. 2:18. 2017
- The quality of information about sickle cell disease on the Internet for youth. Pediatric Blood and Cancer. 64:e26309-e26309. 2017
- Iron Overload Is Highly Prevalent in All Disease Severity States in Pyruvate Kinase Deficiency (PKD). Blood. 128:2430-2430. 2016
- Neurological PRESentations in Sickle Cell Patients Are Not Always Stroke: A Review of Posterior Reversible Encephalopathy Syndrome in Sickle Cell Disease. Pediatric Blood and Cancer. 63:983-989. 2016
- Triplets with neonatal alloimmune thrombocytopenia due to antibodies against human platelet antigen 1a. Transfusion. 56:1166-1170. 2016
- Combined Autoimmune Cytopenias Presenting in Childhood. Pediatric Blood and Cancer. 63:292-298. 2016
- Sports Participation in Children and Adolescents with Immune Thrombocytopenia (ITP). Pediatric Blood and Cancer. 62:2223-2225. 2015
- Improving diagnostic precision, care and syndrome definitions using comprehensive next-generation sequencing for the inherited bone marrow failure syndromes. Journal of Medical Genetics. 52:575-584. 2015
- Improving fitness after childhood cancer: A novel exercise clinic for pediatric oncology patients.. Journal of Clinical Oncology. 33:e21030-e21030. 2015
- The impact of category, cytopathology and cytogenetics on development and progression of clonal and malignant myeloid transformation in inherited bone marrow failure syndromes. Haematologica. 100:633-642. 2015
- A pilot randomized control trial to evaluate the feasibility of an Internet‐based self‐management and transitional care program for youth with haemophilia. Haemophilia. 20:784-793. 2014
- Shared Decision Making in the Management of Children With Newly Diagnosed Immune Thrombocytopenia. Journal of Pediatric Hematology/Oncology. 36:559-565. 2014
- Factor XIII deficiency management. Blood Coagulation and Fibrinolysis. 25:199-205. 2014
- The value of usability testing for Internet-based adolescent self-management interventions: “Managing Hemophilia Online”. BMC Medical Informatics and Decision Making. 13:113. 2013
- Feasibility Study Of a Randomized Control Trial To Evaluate An Internet-Based Self-Management Program For Adolescents With Hemophilia. Blood. 122:2921-2921. 2013
- Growing up with hemophilia: Assessing teens' experiences and needs during transition to adult health care. University of Toronto Medical Journal. 90:149-154. 2013
- Exploring internet needs and use among adolescents with haemophilia: a website development project. Haemophilia. 18:216-221. 2012
- Usability Testing of An Online Transition Program for Adolescents with Hemophilia. Blood. 118:4777-4777. 2011
- Childhood Immune Thrombocytopenia: A Changing Therapeutic Landscape. Seminars in Thrombosis and Hemostasis. 37:745-755. 2011
- Perspectives on quality and content of information on the internet for adolescents with cancer. Pediatric Blood and Cancer. 57:97-104. 2011
- Prospective Evaluation of Residents On Call: Before and After Duty-Hour Reduction. Pediatrics. 127:1080-1087. 2011
- Investigating the Experiences and Educational Needs of Adolescents with Hemophilia Prior to Transition of Care: A Website Development Project.. Blood. 116:1526-1526. 2010
- Towards comprehensive care in transition for young people with haemophilia. Haemophilia. 16:848-857. 2010
- Decision Making in the Management of Children Hospitalized With Acute Itp: Understanding Child, Parent, and Health Care Professional Perspectives. Paediatrics and Child Health. 15:34A-34A. 2010
- Exploring the Experience of Acute Itp Through Narratives of Children With Itp, Their Parents, and Health Care Professionals. Paediatrics and Child Health. 15:33A-33A. 2010
- Prospective Observational Study of Clinical Activities, Education and Sleep During Paediatric Resident On-Call Shifts. Paediatrics and Child Health. 15:35A-35A. 2010
- The Quality and Accuracy of Hemophilia Information on the Internet.. Blood. 114:244-244. 2009
- Hepatitis-associated Aplastic Anemia Presenting as a Familial Bone Marrow Failure Syndrome. Journal of Pediatric Hematology/Oncology. 31:884-887. 2009
- Hemophagocytic Lymphohistiocytosis Onset During Induction Therapy for Precursor B-cell Acute Lymphoblastic Leukemia. Journal of Pediatric Hematology/Oncology. 30:956-958. 2008
- Pediatric and Emergency Medicine Residents' Attitudes and Practices for Analgesia and Sedation During Lumbar Puncture in Pediatric Patients. Pediatrics. 119:e631-e636. 2007
- Canadian Conference on Medical Education 2021 Abstracts. Canadian Medical Education Journal. 12:e138-e344.
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preprints