Keeping It TogetherTM: an information KIT for parents of children and youth with special needs

BACKGROUND: Provision and use of information about their children is a major concern to families who have a child with a disability. Strategies or systems to influence parents' abilities to receive, give and use information in a way that is satisfying to them have not been well validated. METHODS: This paper reports on the development and evaluation of a Parent Information KIT ('Keeping It Together') information management system and child …