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Journal article

Integrating dementia care into primary health services: lay health workers with internal facilitation in Uganda

Abstract

OBJECTIVES: Dementia care is underdeveloped in low- and middle-income countries (LMICs), with limited specialist services. In Uganda's decentralized health system, Health Assistants supervise Lay Health Workers (LHWs), yet dementia care is not part of their remit. This study explored the feasibility of the WHO Lay Health Worker Dementia Care model with Internal Facilitation (WLDC+IF), in which Health Assistants support LHWs in delivering community-based dementia care. METHOD: We conducted formative qualitative in-depth interviews with eight LHWs from two rural parishes in northern Uganda. Guided by the Integrated Promoting Action on Research Implementation in Health Services (i-PARIHS) framework, thematic analysis examined three domains: implementation support, process improvement, and practice sustainment. The WHO Dementia Toolkit and the facilitator role were introduced conceptually during interviews to assess perceived feasibility. RESULTS: LHWs were willing to deliver dementia care but cited limited training, lack of job aids, and unclear referral pathways as barriers. Health Assistants were viewed as trusted supervisors who could offer structured guidance and feedback. Participants emphasized the importance of public sensitization to reduce stigma, caregiver support groups to address isolation and burden, job-aid materials for education, and environmental modifications (home safety). Follow-up visits, documentation, and feedback were identified as practical ways to sustain practice. CONCLUSION: WLDC+IF is a feasible, leadership-centered strategy that leverages existing health system structures to integrate dementia care into primary services. Positioning Health Assistants as internal facilitators may strengthen local supervision, build LHW capacity, and address psychosocial/clinical needs, with potential to reduce caregiver burden, and improve quality of life.

Authors

Wakida EK; Rukundo GZ; Talib ZM; Lopez-Vera A; Maling S; Karungi CK; Obua C

Journal

Aging & Mental Health, Vol. ahead-of-print, No. ahead-of-print, pp. 1–10

Publisher

Taylor & Francis

Publication Date

November 21, 2025

DOI

10.1080/13607863.2025.2587729

ISSN

1360-7863

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