Parental expectations of residential immersive life skills programs for youth with disabilities and their perception of youth changes

PURPOSE: This study explored parents' expectations before their youth with a disability attended a Residential Immersive Life Skills (RILS) program, and perceptions of youth change over the following 12 months. Understanding expectations is important because parents play a key role in shaping their youth's ongoing development and future hopes when they return home. METHODS: A secondary analysis of qualitative interviews with 13 parents was conducted using a recurrent cross-sectional analysis approach at three time-points: before youth attended a RILS program, and three and 12 months post-program. RESULTS: Before the RILS program, most parents focused on "concrete" life skills (e.g., self-care, budgeting), with some hoping for more youth self-awareness. After three months, many expectations were exceeded, leading some parents to re-evaluate their youth's future. By 12 months, expectations had evolved further, although some parents expressed disappointment in perceived lack of change. Many parental expectations had been initially implicit and unstated. CONCLUSIONS: Exploring parental expectations of RILS programs is critical, as parents can both enhance and diminish their youth's personal growth and future aspirations. Parents should understand how RILS programs may (or may not) change both the youth and the family dynamic upon return home.