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Self-Reported Data and Physician-Reported Data in...
Journal article

Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis

Abstract

BACKGROUND: Patient-based registries can help advance research on rare diseases such as eosinophilic granulomatosis with polyangiitis (EGPA), a complex multiorgan form of antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis. OBJECTIVE: The aim of this study is to compare patient-reported and physician-reported data on manifestations, treatments, and outcomes for patients with EGPA.

Authors

Doubelt I; Springer JM; Kermani TA; Sreih AG; Burroughs C; Cuthbertson D; Carette S; Khalidi NA; Koening CL; Langford C

Journal

Interactive Journal of Medical Research, Vol. 11, No. 1,

Publisher

JMIR Publications

DOI

10.2196/27273

ISSN

1929-073X