Journal article
Quality of life in pediatric-onset multiple sclerosis: Different disease course, different impact, different measurement approach needed
Abstract
OBJECTIVE: To understand the impact of pediatric multiple sclerosis (MS), health-related quality of life (HRQL) measures have been used. However, specific areas of concern of youths with MS are not known. The objective of this study was to contribute content for inclusion in a new condition-specific measure of the life impact of MS for children and adolescents.
METHODS: A patient engagement framework was used, and an online survey was developed …
Authors
Ow N; Karp A; Ogeil J; Dilenge M-E; Sébire G; Dahan-Oliel N; Kuspinar A; Mayo NE
Journal
Multiple Sclerosis and Related Disorders, Vol. 63, ,
Publisher
Elsevier
Publication Date
7 2022
DOI
10.1016/j.msard.2022.103820
ISSN
2211-0348