Journal article
Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions?
Abstract
BackgroundStigma refers to a distinguishing personal trait that is perceived as or actually is physically, socially, or psychologically disadvantageous. Little is known about the opinion of those who have more or less stigmatizing health conditions regarding the need for consent for use of their personal information for health research.MethodsWe surveyed the opinions of people 18 years and older with seven health conditions. Participants were …
Authors
Willison DJ; Steeves V; Charles C; Schwartz L; Ranford J; Agarwal G; Cheng J; Thabane L
Journal
BMC Medical Ethics, Vol. 10, No. 1,
Publisher
Springer Nature
Publication Date
December 2009
DOI
10.1186/1472-6939-10-10
ISSN
1472-6939
Associated Experts
Fields of Research (FoR)
Medical Subject Headings (MeSH)
AdultCanadaChoice BehaviorConfidentialityEducational StatusFemaleFocus GroupsHumansIncomeInformed ConsentMaleMedical Records Systems, ComputerizedMiddle AgedMultivariate AnalysisNarrationOccupationsPublic OpinionPublic PolicyRegression AnalysisResearch DesignResearch SubjectsSelection BiasStereotypingSurveys and QuestionnairesYoung Adult