Developing a database for multicenter evaluation of placenta accreta spectrum Academic Article uri icon

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abstract

  • Studies of rare, but complex clinical conditions require multicenter cooperation. The International Society for Placenta accreta spectrum (IS-PAS) have established a secure web-based database to analyze pregnancies complicated by PAS. By repeated in-person meetings of the IS-PAS, a core dataset was established. Then, a custom-made, secure online database, capable of receiving strictly anonymized patient-related textual and imaging data and allowing statistical queries was designed, tested, amended and implemented. Between 2008 and 2019, 14 IS-PAS centers across Europe and one center in the USA contributed data for all their PAS cases, containing pregnancy data for a total of 442 pregnant women. Data were analyzed by a designated data analysis sub-group of the IS-PAS. Center characteristics are presented. Based on experiences with previous versions, our new online database now allows an all-encompassing data collection. It has shown its usefulness in the current analysis project.

authors

  • Sloboda, Deborah
  • Braun, Thorsten
  • Beekhuizen, Heleen J
  • Morlando, Maddalena
  • Morel, Olivier
  • Stefanovic, Vedran
  • Al Naimi, Ammar
  • Bertholdt, Charline
  • Calda, Pavel
  • Chalubinski, Kinga M
  • Pateisky, Petra
  • Chantraine, Fredric
  • Petit, Philippe
  • Collins, Sally
  • Duvekot, Johannes J
  • Fox, Karin
  • Gronbeck, Lene
  • Henrich, Wolfgang
  • Nonnenmacher, Andreas
  • Schwickert, Alexander
  • Martinelli, Pasquale
  • Mhallem Gziri, Mina
  • Paavonen, Jorma
  • Tikkanen, Minna
  • Rijken, Marcus
  • Ropacka, Mariola
  • Strindfors, Gita
  • Weichert, Alexander
  • Weizsäcker, Katharina

publication date

  • March 2021