Perinatal care experiences of mothers living with HIV in Ontario, Canada

Women living with HIV (WLWH) are increasingly having children yet face complex medical and psychosocial issues in the perinatal period. The HIV Mothering Study sought to understand the psychosocial experiences and needs of mothers living with HIV across Ontario, Canada. The present study was a sub-analysis of interviews conducted with WLWH during pregnancy (n = 67) and at 3 months postpartum (n = 65) and aimed to describe the health care experiences of WLWH during the perinatal period. Narrative analysis revealed positive and negative health care experiences of WLWH and highlighted how relationships with providers affected women’s experiences navigating care. Positive care experiences were characterized by effective communication, feeling a sense of belonging, being heard, and accessible care. Negative care experiences were characterized by a lack of communication, silencing of mothers’ voices and experiences, stigmatizing care, and disregard for HIV confidentiality. Implications for practice, policy, and research across individual, service, and macro systems are discussed.